#meawarenesshour — Public Fediverse posts

Please #Boost

Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.

Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )

If you are a #nurse #phlebotomist #hcw or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.

This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.

It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.

I’ve even asked the government for help. Nothing.

Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)

P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.

Please give me some quality of life.

I’m in #Melbourne #Australia.
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.

TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.

#PWME #PWLC #MECFS #Migraine #MEAwarenesshour #pots #Dysautonomia #ChronicPain #Disability #CommunityCare #MutualAidRequest

@longcovid @mecfs @dysclinic
@chronicillness
@chronicpain
@migraine
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@socialwork
@socialworkers
@communitycare @mutualaid

Help me get out of bed, gain health, get far away from my abusers.

This is me:

Please #Boost

Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.

Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )

If you are a #nurse #phlebotomist #hcw or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.

This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.

It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.

I’ve even asked the government for help. Nothing.

Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)

P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.

Please give me some quality of life.

I’m in #Melbourne #Australia.
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.

TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.

#PWME #PWLC #MECFS #Migraine #MEAwarenesshour #pots #Dysautonomia #ChronicPain #Disability #CommunityCare #MutualAidRequest

@longcovid @mecfs @dysclinic
@chronicillness
@chronicpain
@migraine
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@socialwork
@socialworkers
@communitycare @mutualaid

Help me get out of bed, gain health, get far away from my abusers.

This is me:

Please #Boost

Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.

Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )

If you are a #nurse #phlebotomist #hcw or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.

This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.

It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.

I’ve even asked the government for help. Nothing.

Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)

P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.

Please give me some quality of life.

I’m in #Melbourne #Australia.
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.

TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.

#PWME #PWLC #MECFS #Migraine #MEAwarenesshour #pots #Dysautonomia #ChronicPain #Disability #CommunityCare #MutualAidRequest

@longcovid @mecfs @dysclinic
@chronicillness
@chronicpain
@migraine
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@socialwork
@socialworkers
@communitycare @mutualaid

Help me get out of bed, gain health, get far away from my abusers.

This is me:

Please #Boost

Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.

Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )

If you are a #nurse #phlebotomist #hcw or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.

This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.

It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.

I’ve even asked the government for help. Nothing.

Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)

P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.

Please give me some quality of life.

I’m in #Melbourne #Australia.
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.

TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.

#PWME #PWLC #MECFS #Migraine #MEAwarenesshour #pots #Dysautonomia #ChronicPain #Disability #CommunityCare #MutualAidRequest

@longcovid @mecfs @dysclinic
@chronicillness
@chronicpain
@migraine
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@socialwork
@socialworkers
@communitycare @mutualaid

Help me get out of bed, gain health, get far away from my abusers.

This is me:

Please #Boost

Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.

Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )

If you are a #nurse #phlebotomist #hcw or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.

This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.

It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.

I’ve even asked the government for help. Nothing.

Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)

P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.

Please give me some quality of life.

I’m in #Melbourne #Australia.
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.

TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.

#PWME #PWLC #MECFS #Migraine #MEAwarenesshour #pots #Dysautonomia #ChronicPain #Disability #CommunityCare #MutualAidRequest

@longcovid @mecfs @dysclinic
@chronicillness
@chronicpain
@migraine
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@socialwork
@socialworkers
@communitycare @mutualaid

Help me get out of bed, gain health, get far away from my abusers.

This is me:

Desperately seeking #disability #advocate.

None in my catchment. #Melbourne #Australia

What can I do? I’ve followed *every* lead.

Waiting 2 years. Help.

#FDV #MEAwarenessHour #DisabilityRights #LongCovid #MECFS #PwME #pwLC
#MutualAid #LongCovidAid

@mecfs
@Melbourne
@australia @[email protected]
@[email protected]
@mutualaid
@socialwork
@socialwg
@publichealth

Desperately seeking #disability #advocate.

None in my catchment. #Melbourne #Australia

What can I do? I’ve followed *every* lead.

Waiting 2 years. Help.

#FDV #MEAwarenessHour #DisabilityRights #LongCovid #MECFS #PwME #pwLC
#MutualAid #LongCovidAid

@mecfs
@melbourne
@disabilityjustice
@australia
@mutualaid
@disability

I really need a home 🏡

Can someone please help me? I’m being #neglected & #abused
All you need is a spare room & a heart. Ask anyone you know.

Domestic violence orgs don’t help #disabled people. I need someone to take me in. I just need a quiet room.

I need to be safe with care. Please help.

#MEAwarenessHour #MECFS #pWME #PWLC #LongCovid #ChronicIllness

#Melbourne #Australia

@mecfs @disabilityjustice @disability @chronicillness @neisvoid @socialwork
@multipledisabilities
@longcovid

I really need somewhere to live. Can someone please help me? I’m being #neglected and #abused. Anyone with a spare room and heart can help. Ask anyone you know.

Those domestic violence numbers and orgs don’t help #disabled people. I need someone to take me in. I just need a quiet room.

Anyone. I need to be safe with care.

Please help.

#Melbourne #Australia

#MEAwarenesshour

@mecfs
@disabilityjustice
@disability
@chronicillness
@neisvoid
@Resister
@socialwork
@socialworker

I really need somewhere to live. Can someone please help me? I’m being #neglected and #abused
All you need is a spare room and a heart. Ask anyone you know.

Domestic violence orgs don’t help #disabled people. I need someone to take me in. I just need a quiet room.

Anyone. I need to be safe with care.

#MEAwarenessHour

Please help.

#Melbourne #Australia

@mecfs @disabilityjustice @disability @chronicillness @neisvoid @socialwork @socialworkers
@multipledisabilities
@longcovid

🇪🇦 La #EncefalomielitisMiálgica es la enfermedad en la que esforzarse más duro puede hacerte enfermar más. Y millones de personas están contrayendo #EMsfc tras #COVID_19.
En #España aconsejaría la @/AsociacionPEM:
https://www.ongpem.org/emsfc

🇬🇧 #MyalgicEncephalomyelitis is the disease where pushing harder can make you sicker. And millions more are getting #MEcfs following #COVID19.
INFO:
https://worldmealliance.org
https://www.meaction.net/
#SarsCoV2 #Epstein_Barr
#MEAwarenessHour

🇪🇸 #MEawarenesshour ¿Alguna experiencia de #climaterio o #menopausia relacionada con #EncefalomielitisMialgica? ¿Alguna mejoría o empeoramiento con el cambio de hormonas? No sé cómo voy a plantear esto a los médicos cuando hay que pelear por cosas básicas 😶

#301 Un #climaterio que no entiendo 🐺
https://domandoallobo.blogspot.com/2023/07/301-un-climaterio-que-no-entiendo.html #discapacidad #dependencia #EMsfc #autoinmunes #SaludSexual #mujer #Sexualidad #perimenopausia #ginecologia #salud #Etapa #LaVida #Mastoblogs #Mastobloguers

#MEAwarenessHour "Es importante que la #sociedad entienda lo extremadamente limitante que puede ser la #EncefalomielitisMiálgica especialmente en los casos más severos".
Yo: Los #ServiciosSociales me aprobaron el catering porque no puedo cocinar. Aún así a veces es difícil levantarme, sacar la bandeja, poner la comida en el plato y calentarla en el microondas. Así que no como y tomo algo sencillo más tarde. Es extenuante masticar y tragar.
#MEcfs #severeME #EMsevera #discapacidad #dependencia

#Infografía sobre #EncefalomielitisMialgica gracias a la colaboración entre la Asociación de Personas con Encefalomielitis Miálgica (#PEM) @/AsociacionPEM y la Sociedad Española de Médicos Generales y de Familia @SEMG_ES.
Podéis imprimirla y llevarla con vuestros informes con lo que es y lo que NO se debe hacer SUBRAYADO.
Dejarla en centros de #salud, etc...
Enhorabuena compañeras 💙
#MEAwarenessHour #AP #AtencionPrimaria #EMsfc #discapacidad #dependencia #autoinmunes #psicologia #TCC #ejercicio

#MEawarenessHour #MEcfs
#Teleasistencia llama para ver cómo estoy, conversación,... que me es imposible. Por la #EncefalomielitisMialgica uso mensajería, e-mail y #RRSS. Raramente llamadas.
Aunque lo dije desde el principio, seguimos igual. Me llaman al fijo, al móvil y como no lo cojo, llaman a mi hermana.
Mando email con el problema.
Solución: Cuando venga mi hermana pulsamos el botón y que hable ella.
¿Qué servicio para #PersonasMayores y #Dependencia necesita de otra persona para atendernos?

2/2

Longer message about this competition where 420 charities will win £1000 https://movementforgood.com/index.php?cn=20100254&ct=health&i=1680527423-83536.jpg&utm_source=holiday+card&utm_medium=social&utm_campaign=M4G2023card&utm_id=M4G2023card

#meawarenesshour #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #MyE #MEeps
@Ecclesiastical
#MovementForGood #PostViralFatigueSyndrome #PostViralSyndrome #PVFS

#MEawarenessHour
#Brainfog: disfunción cognitiva
#PEM #ANPE #PESE: Exacerbación de síntomas post-esfuerzo por actividad física, cognitiva, emocional... a veces mínima.
Con esto en mente.
Tardo mucho en escribir un toot, un tuit, etc.. y empeoro "si me paso". Si a esto le añado la descripción de imágenes que prácticamente es otro post ¿tiene sentido que alguien con discapacidad enferme por ayudar a alguien con otro tipo de #discapacidad? #AltText
#EncefalomielitisMialgica #EMsfc #MEcfs #Reflexión

Tal vez no entiendan la #EncefalomielitisMiálgica pero todo el mundo ha sentido la frustración de quedarse sin batería.
Somos móviles viejos en un mundo de smartphones.

#116 La teoría de la batería del móvil de antena (para explicar la #fatiga) 🐺 https://domandoallobo.blogspot.com/2015/10/116-la-teoria-de-la-bateria-del-movil.html
Aclaración: no es solo fatiga. Es falta de energía y muchos síntomas que se detallan a lo largo del #blog y buenos artículos científicos.
#MEAwarenessHour #MyalgicEncephalomielitis #MEcfs #EMsfc #pwME

#MEawarenessHour World ME Alliance announced the 'World #ME Day 2023' theme:
'ME: The disease where pushing harder can make you sicker'. Focusing on post-exertional malaise (#PEM).

More INFO: https://worldmealliance.org/2023/02/2023-world-me-day-campaign-announced/
##MECFS #Maythe12th #WorldMEDay #LearnFromME #MyalgicEncephalomyelitis