#pvfs — Public Fediverse posts

#PEM #LeonardJason #DSQPEM2 #Questionnaire

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI #ELC

Via Tom Kindlon's ME CFS & related page: News, Research and more on Facebook, @tomkindlon here.

Link to explorationpub.com:

https://www.explorationpub.com/Journals/ent/Article/1004116?fbclid=IwdGRleAOT9H9leHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xNzM4NDc2NDI2NzAzNzAAAR476-toqBdRCVEFXatvHemS9Da2SvmcK6S2r_TY13sSQ_YUt8m_n5pD1OM1Zg_aem__CMSqSImOPkVVo2i70V_xA

#PEM #LeonardJason #DSQPEM2 #Questionnaire

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI #ELC

Via Tom Kindlon's ME CFS & related page: News, Research and more on Facebook, @tomkindlon here.

Link to explorationpub.com:

https://www.explorationpub.com/Journals/ent/Article/1004116?fbclid=IwdGRleAOT9H9leHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xNzM4NDc2NDI2NzAzNzAAAR476-toqBdRCVEFXatvHemS9Da2SvmcK6S2r_TY13sSQ_YUt8m_n5pD1OM1Zg_aem__CMSqSImOPkVVo2i70V_xA

#PEM #LeonardJason #DSQPEM2 #Questionnaire

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI #ELC

Via Tom Kindlon's ME CFS & related page: News, Research and more on Facebook, @tomkindlon here.

Link to explorationpub.com:

https://www.explorationpub.com/Journals/ent/Article/1004116?fbclid=IwdGRleAOT9H9leHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xNzM4NDc2NDI2NzAzNzAAAR476-toqBdRCVEFXatvHemS9Da2SvmcK6S2r_TY13sSQ_YUt8m_n5pD1OM1Zg_aem__CMSqSImOPkVVo2i70V_xA

#PEM #LeonardJason #DSQPEM2 #Questionnaire

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI #ELC

Via Tom Kindlon's ME CFS & related page: News, Research and more on Facebook, @tomkindlon here.

Link to explorationpub.com:

https://www.explorationpub.com/Journals/ent/Article/1004116?fbclid=IwdGRleAOT9H9leHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xNzM4NDc2NDI2NzAzNzAAAR476-toqBdRCVEFXatvHemS9Da2SvmcK6S2r_TY13sSQ_YUt8m_n5pD1OM1Zg_aem__CMSqSImOPkVVo2i70V_xA

3/

I had been taking a lower dose for a number of years but then read of one or more trials on post viral fatigue syndrome of higher doses.

#PVFS #MEcfs
@mecfs @longcovid

"Among the features of B cells, we identified five that are associated with an increased risk of PVFS, suggesting their potential role as risk factors."

https://virologyj.biomedcentral.com/articles/10.1186/s12985-025-02809-4

Screenshot from the Science for ME weekly update

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PVFS

1/

GP Educational Webinar on #PVFS and ME/CFS

Dr Ros Vallings, a New Zealand GP who is an expert on ME/ #CFS, will present a free talk followed by a Q&A session on Tuesday, April 8 7:30 PM for just over one hour.

https://irishmecfs.org/blog/april-8-2025-educational-event-for-gps-key-messages-for-primary-care-on-the-diagnosis-and-management-of-post-viral-fatigue-syndrome-and-mecfs

#MyalgicE #PostViralSyndrome #MedEd #CFSME #MEcfs @mecfs

New factsheet from The Sick Times team:

"What are fatigue and Post-Exertional Malaise (PEM)?"
https://longcovidjustice.org/PEM

3-page PDF:
https://longcovidjustice.org/wp-content/uploads/PEM-LCE-series-2024.pdf

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PostExertionalMalaise #ChronicFatigue #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness

New factsheet from The Sick Times team:

"What are fatigue and Post-Exertional Malaise (PEM)?"
https://longcovidjustice.org/PEM

3-page PDF:
https://longcovidjustice.org/wp-content/uploads/PEM-LCE-series-2024.pdf

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PostExertionalMalaise #ChronicFatigue #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness

New factsheet from The Sick Times team:

"What are fatigue and Post-Exertional Malaise (PEM)?"
https://longcovidjustice.org/PEM

3-page PDF:
https://longcovidjustice.org/wp-content/uploads/PEM-LCE-series-2024.pdf

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PostExertionalMalaise #ChronicFatigue #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness

New factsheet from The Sick Times team:

"What are fatigue and Post-Exertional Malaise (PEM)?"
https://longcovidjustice.org/PEM

3-page PDF:
https://longcovidjustice.org/wp-content/uploads/PEM-LCE-series-2024.pdf

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PostExertionalMalaise #ChronicFatigue #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness

New factsheet from The Sick Times team:

"What are fatigue and Post-Exertional Malaise (PEM)?"
https://longcovidjustice.org/PEM

3-page PDF:
https://longcovidjustice.org/wp-content/uploads/PEM-LCE-series-2024.pdf

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PostExertionalMalaise #ChronicFatigue #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness

The Coroner of the #MaeveInquest has issued a REGULATION 28: REPORT TO PREVENT FUTURE DEATHS sent to inter alia the representative of #UKgov & #NHSEngland. The link is to the three-page document, which is succinct and clear.

#SevereME #pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #Virology blog:

https://virology.ws/wp-content/uploads/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf

The Coroner of the #MaeveInquest has issued a REGULATION 28: REPORT TO PREVENT FUTURE DEATHS sent to inter alia the representative of #UKgov & #NHSEngland. The link is to the three-page document, which is succinct and clear.

#SevereME #pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #Virology blog:

https://virology.ws/wp-content/uploads/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf

The Coroner of the #MaeveInquest has issued a REGULATION 28: REPORT TO PREVENT FUTURE DEATHS sent to inter alia the representative of #UKgov & #NHSEngland. The link is to the three-page document, which is succinct and clear.

#SevereME #pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #Virology blog:

https://virology.ws/wp-content/uploads/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf

The Coroner of the #MaeveInquest has issued a REGULATION 28: REPORT TO PREVENT FUTURE DEATHS sent to inter alia the representative of #UKgov & #NHSEngland. The link is to the three-page document, which is succinct and clear.

#SevereME #pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #Virology blog:

https://virology.ws/wp-content/uploads/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf

The Coroner of the #MaeveInquest has issued a REGULATION 28: REPORT TO PREVENT FUTURE DEATHS sent to inter alia the representative of #UKgov & #NHSEngland. The link is to the three-page document, which is succinct and clear.

#SevereME #pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #Virology blog:

https://virology.ws/wp-content/uploads/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf

2/

"Preexisting psychiatric conditions did not significantly modify the risk of postacute fatigue symptoms."

#LongCovid #PVFS #Fatigue #ChronicFatigue
@longcovid @covid19 #mecfs @mecfs #LongCovid

New from Germany:
Post-viral symptoms and conditions are more frequent in COVID-19 than influenza, but not more persistent

Free
https://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-024-10059-y

"Research should focus on the development of effective treatments for post-viral symptoms"

#PVFS #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain #MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs_de

Solve ME/CFS Initiative:

Read our Solve Science Spotlight summary of the @JAMA_current study of #MECFS onset which compares risks after #COVID vs. other illnesses.

https://ow.ly/NHNL50TfRqe

Hashtags:
@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#postcovid19
#CovidBrain #pvfs @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

It is difficult to believe that #neoliberal #Labour, that is #UKgov, will listen let alone take action needed within the #NHS!

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #Covid #LongCovid #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #BMJ :

https://ebn.bmj.com/content/early/2024/08/29/ebnurs-2024-104177

It is difficult to believe that #neoliberal #Labour, that is #UKgov, will listen let alone take action needed within the #NHS!

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #Covid #LongCovid #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #BMJ :

https://ebn.bmj.com/content/early/2024/08/29/ebnurs-2024-104177

It is difficult to believe that #neoliberal #Labour, that is #UKgov, will listen let alone take action needed within the #NHS!

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #Covid #LongCovid #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #BMJ :

https://ebn.bmj.com/content/early/2024/08/29/ebnurs-2024-104177

It is difficult to believe that #neoliberal #Labour, that is #UKgov, will listen let alone take action needed within the #NHS!

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #Covid #LongCovid #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #BMJ :

https://ebn.bmj.com/content/early/2024/08/29/ebnurs-2024-104177

It is difficult to believe that #neoliberal #Labour, that is #UKgov, will listen let alone take action needed within the #NHS!

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #Covid #LongCovid #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Link to #BMJ :

https://ebn.bmj.com/content/early/2024/08/29/ebnurs-2024-104177

2/

"Despite reporting chronic fatigue and achieving 10% less expected 6-minute walking distance compared to controls, PASC participants showed no apparent differences in muscle size or strength.”

#LongCovid #PASC #PVFS @longcovid

Please consider signing this petition to force #Cochrane to fulfil their promises and to stop delaying & obfuscating.

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

https://chng.it/bNj7W9bhst

Please consider signing this petition to force #Cochrane to fulfil their promises and to stop delaying & obfuscating.

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

https://chng.it/bNj7W9bhst

Please consider signing this petition to force #Cochrane to fulfil their promises and to stop delaying & obfuscating.

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

https://chng.it/bNj7W9bhst

Please consider signing this petition to force #Cochrane to fulfil their promises and to stop delaying & obfuscating.

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

https://chng.it/bNj7W9bhst

Please consider signing this petition to force #Cochrane to fulfil their promises and to stop delaying & obfuscating.

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

https://chng.it/bNj7W9bhst

#LadyShambles’ take on the #MaeveInquest result, per her worthy comment to @DavidTuller1 & @ValeriEliotSmit’s overview & commentary:

1. M.E. Is a ‘physical’ (as opposed to psychological) disease;

2. M.E. can cause death;

3. #MEKills

Link to #Virology blog:

https://virology.ws/2024/08/12/trial-by-error-valerie-eliot-smith-on-the-inquest-findings/?sfnsn=scwspwa

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

#LadyShambles’ take on the #MaeveInquest result, per her worthy comment to @DavidTuller1 & @ValeriEliotSmit’s overview & commentary:

1. M.E. Is a ‘physical’ (as opposed to psychological) disease;

2. M.E. can cause death;

3. #MEKills

Link to #Virology blog:

https://virology.ws/2024/08/12/trial-by-error-valerie-eliot-smith-on-the-inquest-findings/?sfnsn=scwspwa

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

#LadyShambles’ take on the #MaeveInquest result, per her worthy comment to @DavidTuller1 & @ValeriEliotSmit’s overview & commentary:

1. M.E. Is a ‘physical’ (as opposed to psychological) disease;

2. M.E. can cause death;

3. #MEKills

Link to #Virology blog:

https://virology.ws/2024/08/12/trial-by-error-valerie-eliot-smith-on-the-inquest-findings/?sfnsn=scwspwa

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

#LadyShambles’ take on the #MaeveInquest result, per her worthy comment to @DavidTuller1 & @ValeriEliotSmit’s overview & commentary:

1. M.E. Is a ‘physical’ (as opposed to psychological) disease;

2. M.E. can cause death;

3. #MEKills

Link to #Virology blog:

https://virology.ws/2024/08/12/trial-by-error-valerie-eliot-smith-on-the-inquest-findings/?sfnsn=scwspwa

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

#LadyShambles’ take on the #MaeveInquest result, per her worthy comment to @DavidTuller1 & @ValeriEliotSmit’s overview & commentary:

1. M.E. Is a ‘physical’ (as opposed to psychological) disease;

2. M.E. can cause death;

3. #MEKills

Link to #Virology blog:

https://virology.ws/2024/08/12/trial-by-error-valerie-eliot-smith-on-the-inquest-findings/?sfnsn=scwspwa

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI

Ongoing failures by #NHS towards #pwME, especially those of us with #SevereME or #VerySevereME, really do need the UK ME charities to step up their game. My suggestion is a national #BuddySystem.

Link to #Blogger: https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #MECFS
#PostViralFatigueSyndrome #PVFS #PostViralDisorder
#ELCI

Ongoing failures by #NHS towards #pwME, especially those of us with #SevereME or #VerySevereME, really do need the UK ME charities to step up their game. My suggestion is a national #BuddySystem.

Link to #Blogger: https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #MECFS
#PostViralFatigueSyndrome #PVFS #PostViralDisorder
#ELCI

Ongoing failures by #NHS towards #pwME, especially those of us with #SevereME or #VerySevereME, really do need the UK ME charities to step up their game. My suggestion is a national #BuddySystem.

Link to #Blogger: https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #MECFS
#PostViralFatigueSyndrome #PVFS #PostViralDisorder
#ELCI

Ongoing failures by #NHS towards #pwME, especially those of us with #SevereME or #VerySevereME, really do need the UK ME charities to step up their game. My suggestion is a national #BuddySystem.

Link to #Blogger: https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #MECFS
#PostViralFatigueSyndrome #PVFS #PostViralDisorder
#ELCI

Recognised by #WHO since 1969 as a #DiseaseOfTheNervousSystem:

#ICD10 #G93point3

#ICD11 #8E49

Despite efforts of the #BioPsychoSocial brigade to have it reclassified, it remains categorised as a neurological illness.

#pwME #MyalgicEncephalomyelitis #MECFS #CFS #ChronicFatigueSyndrome #PVFS #PostViralFatigueSyndrome #ELCI #PostViralDisorder

Recognised by #WHO since 1969 as a #DiseaseOfTheNervousSystem:

#ICD10 #G93point3

#ICD11 #8E49

Despite efforts of the #BioPsychoSocial brigade to have it reclassified, it remains categorised as a neurological illness.

#pwME #MyalgicEncephalomyelitis #MECFS #CFS #ChronicFatigueSyndrome #PVFS #PostViralFatigueSyndrome #ELCI #PostViralDisorder

Recognised by #WHO since 1969 as a #DiseaseOfTheNervousSystem:

#ICD10 #G93point3

#ICD11 #8E49

Despite efforts of the #BioPsychoSocial brigade to have it reclassified, it remains categorised as a neurological illness.

#pwME #MyalgicEncephalomyelitis #MECFS #CFS #ChronicFatigueSyndrome #PVFS #PostViralFatigueSyndrome #ELCI #PostViralDisorder

Recognised by #WHO since 1969 as a #DiseaseOfTheNervousSystem:

#ICD10 #G93point3

#ICD11 #8E49

Despite efforts of the #BioPsychoSocial brigade to have it reclassified, it remains categorised as a neurological illness.

#pwME #MyalgicEncephalomyelitis #MECFS #CFS #ChronicFatigueSyndrome #PVFS #PostViralFatigueSyndrome #ELCI #PostViralDisorder

2/

This article summarises the literature on post-viral symptoms during past pandemics and supplements and illustrates it with Swiss examples from the pandemics of 1890, 1918–1920 and later.

#PVFS #MEcfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs @longcovid

New:
An Unwanted but Long-Known Company: Post-Viral Symptoms in the Context of Past Pandemics in Switzerland (and Beyond)

Free full text:
https://www.ssph-journal.org/articles/10.3389/phrs.2024.1606966/full

#PVFS @mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC

3/
The CDC found in their research that an earlier diagnosis led to a better prognosis in #CFS.

This prompted them to run a multi-million dollar awareness campaign in the 2000s aimed at professionals & the general public to highlight the issue.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#MEcfs #PwME #PVFS @mecfs

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #PostViralFatigueSyndrome #PVFS #pwLC #LongCovid #PostViralDisorder

#DecodeME one week left to enrol!

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #PostViralFatigueSyndrome #PVFS #pwLC #LongCovid #PostViralDisorder

#DecodeME one week left to enrol!

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #PostViralFatigueSyndrome #PVFS #pwLC #LongCovid #PostViralDisorder

#DecodeME one week left to enrol!