#disabilitylife — Public Fediverse posts

Energy Budgeting and The Good Thing Principle

https://dreamspacestudio.net/energy-budgeting-and-the-good-thing-principle/

Tonight’s workout courtesy of Squeaker:
He refused to leave his "pocket" bed, so I had to pick up the whole bundle — dog + bed — and wrestle it through a kennel door just wide enough for the bed. Eleven pounds of pure Min Pin dead weight, and I was out of breath by the end. 🐾💪
#DogLife #MinPin #StubbornPets #DisabilityLife #Accessibility #Humor #Christian #dogs #dogsofmastodon @dogs

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

Another day - another brainfog - another comic you can support by subscribing for FREE in Tapas (or read for free in Ko-fi) to spread disability awareness with me and help me survive March by maybe dropping me a braincell in ko-fi too? (:

Please share this for good Karma!

Kofi: https://ko-fi.com/i/IQ5Q51BNM2Z

Tapas: https://tapas.io/episode/3465163

#art #disability #webcomic #idiopathichypersomnia #sleepdisorder #sleep #disabilitylife #Mutualaid #brainfog #accessibility

Those people who think that chronically ill people are just vacationing and having fun while the hardworking people are busting their asses off should have their kneecaps popped while their doctors deny there is anything wrong with them for the rest of their agonizing lives.

Would serve them right.

#disability #disabilitylife #ChronicIllnessIsAFullTimeJob

I was not sure if I would make through shopping today but by sheer determination and fact that I could not afford a taxi ride home. My leg was hurting like hell on the get-go and by the time we walked to the shop, it tried to give in.

After all that. We forgot milk.

And there is no way in hell I can go to shop before next week. (=_=)

#disability #pain #disabilitylife

Me: *reads medication side effects*
The side effects: bloating, "moon face", swollen feet, muscle weakness, eyesight issues, risen heartrate and bloodpressure...
Me: *as the list keeps getting longer, and longer* Oh wow... I really hope I don't get that "moon face", it takes like 6 months to a year for that kind of swelling to go away and I really like my face as is.

Also me: Still worth it though, if the medication works.

#disabilitylife #disability #newmedication #MoonFace #SideEffects

Me: *reads medication side effects*
The side effects: bloating, "moon face", swollen feet, muscle weakness, eyesight issues, risen heartrate and bloodpressure...
Me: *as the list keeps getting longer, and longer* Oh wow... I really hope I don't get that "moon face", it takes like 6 months to a year for that kind of swelling to go away and I really like my face as is.

Also me: Still worth it though, if the medication works.

#disabilitylife #disability #newmedication #MoonFace #SideEffects

Me: *reads medication side effects*
The side effects: bloating, "moon face", swollen feet, muscle weakness, eyesight issues, risen heartrate and bloodpressure...
Me: *as the list keeps getting longer, and longer* Oh wow... I really hope I don't get that "moon face", it takes like 6 months to a year for that kind of swelling to go away and I really like my face as is.

Also me: Still worth it though, if the medication works.

#disabilitylife #disability #newmedication #MoonFace #SideEffects

Me: *reads medication side effects*
The side effects: bloating, "moon face", swollen feet, muscle weakness, eyesight issues, risen heartrate and bloodpressure...
Me: *as the list keeps getting longer, and longer* Oh wow... I really hope I don't get that "moon face", it takes like 6 months to a year for that kind of swelling to go away and I really like my face as is.

Also me: Still worth it though, if the medication works.

#disabilitylife #disability #newmedication #MoonFace #SideEffects

The feeling of "I AM NOT DOING ENOUGH" is really excruciating. I have long list of to-do's, some that I have shoved to the very back of the list, and all of them haunt me while I scramble to do the most basic tasks to stay alive.

I know I do the best I can, but sometimes the stress grows so much as the damn of STUFF keeps overflowing.

#ADHD #IdiopathicHypersomnia #SleepDisorder #DisabilityLife #Disabled #Disability

Worst moment of the day is when I need to do "the acessment" of whether I can do XYZ or do I need to go nap instead in order to be able to do just Z later.

It is frustrating, furiating, and a lot of other F's.

#disabled #disabilitylife #exhausted #nap

THE FIGHT FOR DISABILITY JUSTICE presented with passion, clarity, and wit by a writer and activist living with facial and skeletal differences who uses a wheelchair. Lovely mix of personal stories and a broader history and vision. B PLUS

https://www.barnesandnoble.com/w/beautiful-people-melissa-blake/1143738113?ean=9780306830426

@bookstodon

#book #Books #bookreview #bookreviews #nonfiction #memoir #memoirs #disability #DisabilityPrideMonth #DisabilityRights #DisabilityJustice #DisabilityLife

On wednesdays I work on surviving grocery shopping and not much else.

#DisabilityLife #Disability #SleepDisorder #IdiopathicHypersomnia #DisabilityIsAFullTimeJob

…/… ✊ 🖤

#CovidIsNotOver #EncephalomyeliteMyalgique #emsfc #pwME #CovidLong #DisabilityJustice #DisabilityLife

One of the many small dreams I have is that I would have enough energy to clean every week. Tidy floors feel like magic, especially when you get them only every other week...or sometimes longer.

#disability #disabilitylife #cleaning #chores
#exhaustion #IdiopathicHypersomnia

I managed to live my life in a way that I very rarely pulled a muscle. Maybe once in a 5 years.

But in 2024? Pulled a finger, abdominal muscle, and now one of my rib muscles?? First third of this year isn't even over yet!! Calm down.

(Btw, pulled it while doing dishes, yes I am a genious thanks for asking.)

#2024 #disabled #DisabilityLife #Muscle #musclepain #PulledMuscle #Genious #Funny

I managed to live my life in a way that I very rarely pulled a muscle. Maybe once in a 5 years.

But in 2024? Pulled a finger, abdominal muscle, and now one of my rib muscles?? First third of this year isn't even over yet!! Calm down.

(Btw, pulled it while doing dishes, yes I am a genious thanks for asking.)

#2024 #disabled #DisabilityLife #Muscle #musclepain #PulledMuscle #Genious #Funny

I managed to live my life in a way that I very rarely pulled a muscle. Maybe once in a 5 years.

But in 2024? Pulled a finger, abdominal muscle, and now one of my rib muscles?? First third of this year isn't even over yet!! Calm down.

(Btw, pulled it while doing dishes, yes I am a genious thanks for asking.)

#2024 #disabled #DisabilityLife #Muscle #musclepain #PulledMuscle #Genious #Funny

I managed to live my life in a way that I very rarely pulled a muscle. Maybe once in a 5 years.

But in 2024? Pulled a finger, abdominal muscle, and now one of my rib muscles?? First third of this year isn't even over yet!! Calm down.

(Btw, pulled it while doing dishes, yes I am a genious thanks for asking.)

#2024 #disabled #DisabilityLife #Muscle #musclepain #PulledMuscle #Genious #Funny

C'est ce samedi à Paris (malheureusement à Paris…) et l'intervention de la pote Harriet de Gouge promet de bons uppercuts de pertinence & justesse. Nous en discutions hier autour d'une pizza sous un arbre, je ne peux que vous recommander d'aller écouter cela publiquement !
Une retransmission ultérieurement devrait être disponible.

#handicap
#DisabilityJustice
#validisme
#CripTime
#DisabilityLife

"Nos existences handies", actuellement en rupture de stock, va être réédité en 2024 ! Sous une nouvelle maison d'édition, Monstrograph ayant fermé boutique pour d'autres projets heureux.
En attendant il est toujours possible ici d'écouter gratos toute la version audio du livre (travaillée par @ChiaraChiarel) 👉 https://www.monstrograph.com/product/nos-existences-handies/.

#disability #disabled #DisabilityLife #DisabilityJustice #validisme #FightAbleism #Accessibilité #CripLit #DisabledAuthors #DisabledWriters #CripTime

"Nos existences handies", actuellement en rupture de stock, va être réédité en 2024 ! Sous une nouvelle maison d'édition, Monstrograph ayant fermé boutique pour d'autres projets heureux.
En attendant il est toujours possible ici d'écouter gratos toute la version audio du livre (travaillée par @ChiaraChiarel) 👉 https://www.monstrograph.com/product/nos-existences-handies/.

#disability #disabled #DisabilityLife #DisabilityJustice #validisme #FightAbleism #Accessibilité #CripLit #DisabledAuthors #DisabledWriters #CripTime

New Apple short film shows the everyday impact of accessible tech - Mashable #Accessibility #DisabilityLife #AccessibleTechnology

https://apple.news/Acrd34CzWSgafg7Eu6vOD9Q