#disabilitylife — Public Fediverse posts

Today I’m in a celebratory mood. On one hand, it’s Pride weekend in Berlin, and I’m on my way to the Internationalist Queer Pride march, a valued alternative to the commercialized and pinkwashing-ridden CSD. On the other, all 6 episodes of the first season of my #ActuallyAutistic podcast The Autistic Rant Hour are now online and available to binge.

Being a queer and disability activist doesn’t stop at making sure we have the right to change our names and change or delete our gender markers, to love whomever we choose or have the right to self-determination along with needed support and accessibility measures.
It also means standing up for the rights of people in intersecting struggles: migrant rights, asylum rights, worker rights, bodily autonomy, the right to live free of oppression, eugenics and apartheid, and the right to live at all, in times where folks are hunted down, locked up, denied life-saving medical care, ethnically cleansed and genocided, in more countries than anyone would have believed would still be the case in the 21st century.

My guest on the closing episode of Season 1, Tal’y Wozner (she/her), is the kind of person who understands that and who has always been part of this kind of struggle, resisting intersectionally and challenging preconceptions, both outside and inside queer spaces and discourse. This is why it was such a pleasure and a privilege to have her on the show, even though she isn’t autistic (how dare she!). Tune in to hear us discuss the different challenges of accessing places and services: I from the autistic perspective, and she from the mobility perspective. Together we not only explain the challenges, but also dig into their systemic reasons and reach some conclusions about the meaning of community and how disabled people can be there for each other to make going places more accessible than it, infuriatingly, is.

Get The Autistic Rant Hour wherever you get your podcasts, or see here for links to various platforms, RSS, online player and human-proofread transcripts: https://prepped.to/podcasts/autistic-rant-hour

#podcast #podcasting #disability #disabilityJustice #disabilityLife #autistic #autisticLife #CP

@autistics

Today I’m in a celebratory mood. On one hand, it’s Pride weekend in Berlin, and I’m on my way to the Internationalist Queer Pride march, a valued alternative to the commercialized and pinkwashing-ridden CSD. On the other, all 6 episodes of the first season of my #ActuallyAutistic podcast The Autistic Rant Hour are now online and available to binge.

Being a queer and disability activist doesn’t stop at making sure we have the right to change our names and change or delete our gender markers, to love whomever we choose or have the right to self-determination along with needed support and accessibility measures.
It also means standing up for the rights of people in intersecting struggles: migrant rights, asylum rights, worker rights, bodily autonomy, the right to live free of oppression, eugenics and apartheid, and the right to live at all, in times where folks are hunted down, locked up, denied life-saving medical care, ethnically cleansed and genocided, in more countries than anyone would have believed would still be the case in the 21st century.

My guest on the closing episode of Season 1, Tal’y Wozner (she/her), is the kind of person who understands that and who has always been part of this kind of struggle, resisting intersectionally and challenging preconceptions, both outside and inside queer spaces and discourse. This is why it was such a pleasure and a privilege to have her on the show, even though she isn’t autistic (how dare she!). Tune in to hear us discuss the different challenges of accessing places and services: I from the autistic perspective, and she from the mobility perspective. Together we not only explain the challenges, but also dig into their systemic reasons and reach some conclusions about the meaning of community and how disabled people can be there for each other to make going places more accessible than it, infuriatingly, is.

Get The Autistic Rant Hour wherever you get your podcasts, or see here for links to various platforms, RSS, online player and human-proofread transcripts: https://prepped.to/podcasts/autistic-rant-hour

#podcast #podcasting #disability #disabilityJustice #disabilityLife #autistic #autisticLife #CP

@autistics

Today I’m in a celebratory mood. On one hand, it’s Pride weekend in Berlin, and I’m on my way to the Internationalist Queer Pride march, a valued alternative to the commercialized and pinkwashing-ridden CSD. On the other, all 6 episodes of the first season of my #ActuallyAutistic podcast The Autistic Rant Hour are now online and available to binge.

Being a queer and disability activist doesn’t stop at making sure we have the right to change our names and change or delete our gender markers, to love whomever we choose or have the right to self-determination along with needed support and accessibility measures.
It also means standing up for the rights of people in intersecting struggles: migrant rights, asylum rights, worker rights, bodily autonomy, the right to live free of oppression, eugenics and apartheid, and the right to live at all, in times where folks are hunted down, locked up, denied life-saving medical care, ethnically cleansed and genocided, in more countries than anyone would have believed would still be the case in the 21st century.

My guest on the closing episode of Season 1, Tal’y Wozner (she/her), is the kind of person who understands that and who has always been part of this kind of struggle, resisting intersectionally and challenging preconceptions, both outside and inside queer spaces and discourse. This is why it was such a pleasure and a privilege to have her on the show, even though she isn’t autistic (how dare she!). Tune in to hear us discuss the different challenges of accessing places and services: I from the autistic perspective, and she from the mobility perspective. Together we not only explain the challenges, but also dig into their systemic reasons and reach some conclusions about the meaning of community and how disabled people can be there for each other to make going places more accessible than it, infuriatingly, is.

Get The Autistic Rant Hour wherever you get your podcasts, or see here for links to various platforms, RSS, online player and human-proofread transcripts: https://prepped.to/podcasts/autistic-rant-hour

#podcast #podcasting #disability #disabilityJustice #disabilityLife #autistic #autisticLife #CP

@autistics

Today I’m in a celebratory mood. On one hand, it’s Pride weekend in Berlin, and I’m on my way to the Internationalist Queer Pride march, a valued alternative to the commercialized and pinkwashing-ridden CSD. On the other, all 6 episodes of the first season of my #ActuallyAutistic podcast The Autistic Rant Hour are now online and available to binge.

Being a queer and disability activist doesn’t stop at making sure we have the right to change our names and change or delete our gender markers, to love whomever we choose or have the right to self-determination along with needed support and accessibility measures.
It also means standing up for the rights of people in intersecting struggles: migrant rights, asylum rights, worker rights, bodily autonomy, the right to live free of oppression, eugenics and apartheid, and the right to live at all, in times where folks are hunted down, locked up, denied life-saving medical care, ethnically cleansed and genocided, in more countries than anyone would have believed would still be the case in the 21st century.

My guest on the closing episode of Season 1, Tal’y Wozner (she/her), is the kind of person who understands that and who has always been part of this kind of struggle, resisting intersectionally and challenging preconceptions, both outside and inside queer spaces and discourse. This is why it was such a pleasure and a privilege to have her on the show, even though she isn’t autistic (how dare she!). Tune in to hear us discuss the different challenges of accessing places and services: I from the autistic perspective, and she from the mobility perspective. Together we not only explain the challenges, but also dig into their systemic reasons and reach some conclusions about the meaning of community and how disabled people can be there for each other to make going places more accessible than it, infuriatingly, is.

Get The Autistic Rant Hour wherever you get your podcasts, or see here for links to various platforms, RSS, online player and human-proofread transcripts: https://prepped.to/podcasts/autistic-rant-hour

#podcast #podcasting #disability #disabilityJustice #disabilityLife #autistic #autisticLife #CP

@autistics

Today I’m in a celebratory mood. On one hand, it’s Pride weekend in Berlin, and I’m on my way to the Internationalist Queer Pride march, a valued alternative to the commercialized and pinkwashing-ridden CSD. On the other, all 6 episodes of the first season of my #ActuallyAutistic podcast The Autistic Rant Hour are now online and available to binge.

Being a queer and disability activist doesn’t stop at making sure we have the right to change our names and change or delete our gender markers, to love whomever we choose or have the right to self-determination along with needed support and accessibility measures.
It also means standing up for the rights of people in intersecting struggles: migrant rights, asylum rights, worker rights, bodily autonomy, the right to live free of oppression, eugenics and apartheid, and the right to live at all, in times where folks are hunted down, locked up, denied life-saving medical care, ethnically cleansed and genocided, in more countries than anyone would have believed would still be the case in the 21st century.

My guest on the closing episode of Season 1, Tal’y Wozner (she/her), is the kind of person who understands that and who has always been part of this kind of struggle, resisting intersectionally and challenging preconceptions, both outside and inside queer spaces and discourse. This is why it was such a pleasure and a privilege to have her on the show, even though she isn’t autistic (how dare she!). Tune in to hear us discuss the different challenges of accessing places and services: I from the autistic perspective, and she from the mobility perspective. Together we not only explain the challenges, but also dig into their systemic reasons and reach some conclusions about the meaning of community and how disabled people can be there for each other to make going places more accessible than it, infuriatingly, is.

Get The Autistic Rant Hour wherever you get your podcasts, or see here for links to various platforms, RSS, online player and human-proofread transcripts: https://prepped.to/podcasts/autistic-rant-hour

#podcast #podcasting #disability #disabilityJustice #disabilityLife #autistic #autisticLife #CP

@autistics

dear #Disability #DisabilityLife #HelpFolksLive2026 #HelpNeeded #HelpNeeded2026 #Jewstodon #LosAngeles #Mazeldon #MutualAid #MutualAidNeeded #MutualAidRequest, not to go on a whole saga, but we have a need i've been trying to fill and trying to figure out for years at this point, and i've gotten to the conclusion that it's impossible barring intercession my someone with more money than we have, or some sort of connection, and we need the help.

we need #Housing, we need housing yesterday, or at least #HousingNow, and it needs to be relatively local to where we already are. this could mean living with people who already have the apartment/house and the space, or it could mean banding with a third person or couple who can afford to shoulder most of the burden of the rent and are willing to live with us.

we're both #AmbulatoryWheelchairUser and #Disabled, and we live on my #SSDI, and am the sole income provider for myself and @inoru_no_hoshi. i get $1704 per month, and right now about $700 of that goes to bills, and a decent portion of the rest goes to food and medical needs even though we do still get food stamps even with my income. at the most, we can afford to put $600 towards housing every month. we know that's not much, and that may change depending upon coming into additional money, them getting a job, what have you. we're always going to be limited by needing to qualify for medi-cal (although we're aware of the 250% working disabled program), and i'm always going to be limited by the substantial gainful activity rules and my own limited abilities to bring in further money. it changing cannot be counted on, especially in the near future..

if this is you! i'm going to dump the rest of the details, including why we need to get out of our current situation, into a thread so that not everyone has to read them, but if you know people in los angeles environs, empty nesters who miss having a full house, people with a two bedroom adu or guest house/back house, whatever it may be, please #Boost #BoostThis and #ShareThis and whatever other ways of getting the word out that you have. we're desperate. we're really, truly desperate.

dear #Disability #DisabilityLife #HelpFolksLive2026 #HelpNeeded #HelpNeeded2026 #Jewstodon #LosAngeles #Mazeldon #MutualAid #MutualAidNeeded #MutualAidRequest, not to go on a whole saga, but we have a need i've been trying to fill and trying to figure out for years at this point, and i've gotten to the conclusion that it's impossible barring intercession my someone with more money than we have, or some sort of connection, and we need the help.

we need #Housing, we need housing yesterday, or at least #HousingNow, and it needs to be relatively local to where we already are. this could mean living with people who already have the apartment/house and the space, or it could mean banding with a third person or couple who can afford to shoulder most of the burden of the rent and are willing to live with us.

we're both #AmbulatoryWheelchairUser and #Disabled, and we live on my #SSDI, and am the sole income provider for myself and @inoru_no_hoshi. i get $1704 per month, and right now about $700 of that goes to bills, and a decent portion of the rest goes to food and medical needs even though we do still get food stamps even with my income. at the most, we can afford to put $600 towards housing every month. we know that's not much, and that may change depending upon coming into additional money, them getting a job, what have you. we're always going to be limited by needing to qualify for medi-cal (although we're aware of the 250% working disabled program), and i'm always going to be limited by the substantial gainful activity rules and my own limited abilities to bring in further money. it changing cannot be counted on, especially in the near future..

if this is you! i'm going to dump the rest of the details, including why we need to get out of our current situation, into a thread so that not everyone has to read them, but if you know people in los angeles environs, empty nesters who miss having a full house, people with a two bedroom adu or guest house/back house, whatever it may be, please #Boost #BoostThis and #ShareThis and whatever other ways of getting the word out that you have. we're desperate. we're really, truly desperate.

dear #Disability #DisabilityLife #HelpFolksLive2026 #HelpNeeded #HelpNeeded2026 #Jewstodon #LosAngeles #Mazeldon #MutualAid #MutualAidNeeded #MutualAidRequest, not to go on a whole saga, but we have a need i've been trying to fill and trying to figure out for years at this point, and i've gotten to the conclusion that it's impossible barring intercession my someone with more money than we have, or some sort of connection, and we need the help.

we need #Housing, we need housing yesterday, or at least #HousingNow, and it needs to be relatively local to where we already are. this could mean living with people who already have the apartment/house and the space, or it could mean banding with a third person or couple who can afford to shoulder most of the burden of the rent and are willing to live with us.

we're both #AmbulatoryWheelchairUser and #Disabled, and we live on my #SSDI, and am the sole income provider for myself and @inoru_no_hoshi. i get $1704 per month, and right now about $700 of that goes to bills, and a decent portion of the rest goes to food and medical needs even though we do still get food stamps even with my income. at the most, we can afford to put $600 towards housing every month. we know that's not much, and that may change depending upon coming into additional money, them getting a job, what have you. we're always going to be limited by needing to qualify for medi-cal (although we're aware of the 250% working disabled program), and i'm always going to be limited by the substantial gainful activity rules and my own limited abilities to bring in further money. it changing cannot be counted on, especially in the near future..

if this is you! i'm going to dump the rest of the details, including why we need to get out of our current situation, into a thread so that not everyone has to read them, but if you know people in los angeles environs, empty nesters who miss having a full house, people with a two bedroom adu or guest house/back house, whatever it may be, please #Boost #BoostThis and #ShareThis and whatever other ways of getting the word out that you have. we're desperate. we're really, truly desperate.

Today was a good day. I call Saturday “self care Saturday” because it is my therapy day and a time for contemplation, and, when the weather allows, being in nature. Lately I have been noticing how enjoyable food can be. I had scones today that were absolutely out of this world. Unfortunately, something did not agree with me and I am feeling rather unwell now.

#SelfCareSaturday #MentalHealth #MindfulLiving #SimplePleasures #Neurodivergent #DisabilityLife #NatureTherapy

Today was a good day. I call Saturday “self care Saturday” because it is my therapy day and a time for contemplation, and, when the weather allows, being in nature. Lately I have been noticing how enjoyable food can be. I had scones today that were absolutely out of this world. Unfortunately, something did not agree with me and I am feeling rather unwell now.

#SelfCareSaturday #MentalHealth #MindfulLiving #SimplePleasures #Neurodivergent #DisabilityLife #NatureTherapy

Today was a good day. I call Saturday “self care Saturday” because it is my therapy day and a time for contemplation, and, when the weather allows, being in nature. Lately I have been noticing how enjoyable food can be. I had scones today that were absolutely out of this world. Unfortunately, something did not agree with me and I am feeling rather unwell now.

#SelfCareSaturday #MentalHealth #MindfulLiving #SimplePleasures #Neurodivergent #DisabilityLife #NatureTherapy

Today was a good day. I call Saturday “self care Saturday” because it is my therapy day and a time for contemplation, and, when the weather allows, being in nature. Lately I have been noticing how enjoyable food can be. I had scones today that were absolutely out of this world. Unfortunately, something did not agree with me and I am feeling rather unwell now.

#SelfCareSaturday #MentalHealth #MindfulLiving #SimplePleasures #Neurodivergent #DisabilityLife #NatureTherapy

Today was a good day. I call Saturday “self care Saturday” because it is my therapy day and a time for contemplation, and, when the weather allows, being in nature. Lately I have been noticing how enjoyable food can be. I had scones today that were absolutely out of this world. Unfortunately, something did not agree with me and I am feeling rather unwell now.

#SelfCareSaturday #MentalHealth #MindfulLiving #SimplePleasures #Neurodivergent #DisabilityLife #NatureTherapy

Sarcoidosis doesn’t just hit your lungs or heart—it comes for your calendar, energy, and bank account. Staying alive shouldn’t be a subscription.
https://www.buzzsprout.com/2548730/episodes/18680105
#Sarcoidosis #ChronicIllness #HealthcareCosts #DisabilityLife #Podcast

Sarcoidosis doesn’t just hit your lungs or heart—it comes for your calendar, energy, and bank account. Staying alive shouldn’t be a subscription.
https://www.buzzsprout.com/2548730/episodes/18680105
#Sarcoidosis #ChronicIllness #HealthcareCosts #DisabilityLife #Podcast

Let’s retire the word “lazy.” You’re not lazy for needing breaks, rest, or creative adjustments. You’re building a workflow that works for you, and that’s powerful.
#SelfCompassion #DisabilityLife

You’re allowed to budget your energy and focus on what actually matters—especially now.
What’s one thing you did (or let yourself not do) today that deserves to be counted as a win?
Share or just notice. It all adds up.
#SmallWins #DisabilityLife

Tonight’s workout courtesy of Squeaker:
He refused to leave his "pocket" bed, so I had to pick up the whole bundle — dog + bed — and wrestle it through a kennel door just wide enough for the bed. Eleven pounds of pure Min Pin dead weight, and I was out of breath by the end. 🐾💪
#DogLife #MinPin #StubbornPets #DisabilityLife #Accessibility #Humor #Christian #dogs #dogsofmastodon @dogs

Tonight’s workout courtesy of Squeaker:
He refused to leave his "pocket" bed, so I had to pick up the whole bundle — dog + bed — and wrestle it through a kennel door just wide enough for the bed. Eleven pounds of pure Min Pin dead weight, and I was out of breath by the end. 🐾💪
#DogLife #MinPin #StubbornPets #DisabilityLife #Accessibility #Humor #Christian #dogs #dogsofmastodon @dogs

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

It is bitterly cold here in #Melbourne. Winter has arrived. To stay warm and moving, I’m doing my walking inside the local shopping centre. Bonus: coffee is definitely on the agenda. Priorities.

#MelbourneWinter #DisabilityLife #Exercise #CoffeeTime

Another day - another brainfog - another comic you can support by subscribing for FREE in Tapas (or read for free in Ko-fi) to spread disability awareness with me and help me survive March by maybe dropping me a braincell in ko-fi too? (:

Please share this for good Karma!

Kofi: https://ko-fi.com/i/IQ5Q51BNM2Z

Tapas: https://tapas.io/episode/3465163

#art #disability #webcomic #idiopathichypersomnia #sleepdisorder #sleep #disabilitylife #Mutualaid #brainfog #accessibility

Another day - another brainfog - another comic you can support by subscribing for FREE in Tapas (or read for free in Ko-fi) to spread disability awareness with me and help me survive March by maybe dropping me a braincell in ko-fi too? (:

Please share this for good Karma!

Kofi: https://ko-fi.com/i/IQ5Q51BNM2Z

Tapas: https://tapas.io/episode/3465163

#art #disability #webcomic #idiopathichypersomnia #sleepdisorder #sleep #disabilitylife #Mutualaid #brainfog #accessibility

Those people who think that chronically ill people are just vacationing and having fun while the hardworking people are busting their asses off should have their kneecaps popped while their doctors deny there is anything wrong with them for the rest of their agonizing lives.

Would serve them right.

#disability #disabilitylife #ChronicIllnessIsAFullTimeJob

Those people who think that chronically ill people are just vacationing and having fun while the hardworking people are busting their asses off should have their kneecaps popped while their doctors deny there is anything wrong with them for the rest of their agonizing lives.

Would serve them right.

#disability #disabilitylife #ChronicIllnessIsAFullTimeJob

I was not sure if I would make through shopping today but by sheer determination and fact that I could not afford a taxi ride home. My leg was hurting like hell on the get-go and by the time we walked to the shop, it tried to give in.

After all that. We forgot milk.

And there is no way in hell I can go to shop before next week. (=_=)

#disability #pain #disabilitylife

I was not sure if I would make through shopping today but by sheer determination and fact that I could not afford a taxi ride home. My leg was hurting like hell on the get-go and by the time we walked to the shop, it tried to give in.

After all that. We forgot milk.

And there is no way in hell I can go to shop before next week. (=_=)

#disability #pain #disabilitylife

Me: *reads medication side effects*
The side effects: bloating, "moon face", swollen feet, muscle weakness, eyesight issues, risen heartrate and bloodpressure...
Me: *as the list keeps getting longer, and longer* Oh wow... I really hope I don't get that "moon face", it takes like 6 months to a year for that kind of swelling to go away and I really like my face as is.

Also me: Still worth it though, if the medication works.

#disabilitylife #disability #newmedication #MoonFace #SideEffects

Me: *reads medication side effects*
The side effects: bloating, "moon face", swollen feet, muscle weakness, eyesight issues, risen heartrate and bloodpressure...
Me: *as the list keeps getting longer, and longer* Oh wow... I really hope I don't get that "moon face", it takes like 6 months to a year for that kind of swelling to go away and I really like my face as is.

Also me: Still worth it though, if the medication works.

#disabilitylife #disability #newmedication #MoonFace #SideEffects

The feeling of "I AM NOT DOING ENOUGH" is really excruciating. I have long list of to-do's, some that I have shoved to the very back of the list, and all of them haunt me while I scramble to do the most basic tasks to stay alive.

I know I do the best I can, but sometimes the stress grows so much as the damn of STUFF keeps overflowing.

#ADHD #IdiopathicHypersomnia #SleepDisorder #DisabilityLife #Disabled #Disability

The feeling of "I AM NOT DOING ENOUGH" is really excruciating. I have long list of to-do's, some that I have shoved to the very back of the list, and all of them haunt me while I scramble to do the most basic tasks to stay alive.

I know I do the best I can, but sometimes the stress grows so much as the damn of STUFF keeps overflowing.

#ADHD #IdiopathicHypersomnia #SleepDisorder #DisabilityLife #Disabled #Disability

Worst moment of the day is when I need to do "the acessment" of whether I can do XYZ or do I need to go nap instead in order to be able to do just Z later.

It is frustrating, furiating, and a lot of other F's.

#disabled #disabilitylife #exhausted #nap

THE FIGHT FOR DISABILITY JUSTICE presented with passion, clarity, and wit by a writer and activist living with facial and skeletal differences who uses a wheelchair. Lovely mix of personal stories and a broader history and vision. B PLUS

https://www.barnesandnoble.com/w/beautiful-people-melissa-blake/1143738113?ean=9780306830426

@bookstodon

#book #Books #bookreview #bookreviews #nonfiction #memoir #memoirs #disability #DisabilityPrideMonth #DisabilityRights #DisabilityJustice #DisabilityLife

On wednesdays I work on surviving grocery shopping and not much else.

#DisabilityLife #Disability #SleepDisorder #IdiopathicHypersomnia #DisabilityIsAFullTimeJob

…/… ✊ 🖤

#CovidIsNotOver #EncephalomyeliteMyalgique #emsfc #pwME #CovidLong #DisabilityJustice #DisabilityLife