#disabilitylife — Public Fediverse posts

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

Me: *reads medication side effects*
The side effects: bloating, "moon face", swollen feet, muscle weakness, eyesight issues, risen heartrate and bloodpressure...
Me: *as the list keeps getting longer, and longer* Oh wow... I really hope I don't get that "moon face", it takes like 6 months to a year for that kind of swelling to go away and I really like my face as is.

Also me: Still worth it though, if the medication works.

#disabilitylife #disability #newmedication #MoonFace #SideEffects

…/… ✊ 🖤

#CovidIsNotOver #EncephalomyeliteMyalgique #emsfc #pwME #CovidLong #DisabilityJustice #DisabilityLife

"Nos existences handies", actuellement en rupture de stock, va être réédité en 2024 ! Sous une nouvelle maison d'édition, Monstrograph ayant fermé boutique pour d'autres projets heureux.
En attendant il est toujours possible ici d'écouter gratos toute la version audio du livre (travaillée par @ChiaraChiarel) 👉 https://www.monstrograph.com/product/nos-existences-handies/.

#disability #disabled #DisabilityLife #DisabilityJustice #validisme #FightAbleism #Accessibilité #CripLit #DisabledAuthors #DisabledWriters #CripTime

"Nos existences handies", actuellement en rupture de stock, va être réédité en 2024 ! Sous une nouvelle maison d'édition, Monstrograph ayant fermé boutique pour d'autres projets heureux.
En attendant il est toujours possible ici d'écouter gratos toute la version audio du livre (travaillée par @ChiaraChiarel) 👉 https://www.monstrograph.com/product/nos-existences-handies/.

#disability #disabled #DisabilityLife #DisabilityJustice #validisme #FightAbleism #Accessibilité #CripLit #DisabledAuthors #DisabledWriters #CripTime

New Apple short film shows the everyday impact of accessible tech - Mashable #Accessibility #DisabilityLife #AccessibleTechnology

https://apple.news/Acrd34CzWSgafg7Eu6vOD9Q