We (and by ‘we’ I mean our very experienced skipper) outmaneuvered a couple of colleagues and came in upper midfield in both runs… have to learn the numbers still, because, screw you #sarcoidosis, I left before awards ceremony and -despite having slept over 10:30h- feel pretty beat up today
#sarcoidosis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #sarcoidosis, aggregated by home.social.
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https://www.europesays.com/ie/630774/ Study identifies key immune cell changes in the lungs of people with sarcoidosis #CD4 #Cell #Éire #Health #hospital #IE #Immunology #InflammatoryDisease #Ireland #Lungs #Research #Respiratory #RNA #RNASequencing #Sarcoidosis #Technology
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Small details in a story can reveal the assumptions we don’t notice. In this episode, I reflect on bias, fear, race, and what our words reveal.
https://www.abodyrebels.com/race-colored-glasses-and-the-stories-we-tell-ourselves/
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When doctors you’ve trusted for 20 years drop your insurance, sarcoidosis and heart failure aren’t the only battle. Choosing between good doctors and good coverage feels like gambling with your health—and sanity.
#sarcoidosis #chronicillness -
“Surviving Chronic Illness” is now “A Body Rebels”. Same podacst New name.
#chronicillness #sarcoidosis https://www.abodyrebels.com/ -
Sarcoidosis may steal breath, energy, and even your voice—but not your humor. As a chef with chronic illness and heart failure, I’m still fighting for air with sarcasm, garlic, and grit.
#sarcoidosis #chronicillness -
Chronic illness changes more than one body. It changes marriage, caregiving, fear, routines, and love. This episode reflects on sarcoidosis, heart failure, and the spouse who helped me survive the hardest parts.
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I’m happy that I’m going to see #phoebebridgers in december. Her song “I know the end” was my theme song for the covid epidemic, and I’ve never seen her band live. Too bad it’s a large arena now but well deserved for them.
By way of energy management I’ve also booked a room next to the arena, so I can crash long after my usual bedtime. Makes it more expensive but that’s living with #sarcoidosis I guess, and the tickets were reasonable (thanks Phoebe)
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Sarcoidosis may steal breath, energy, and even your voice—but not your humor. As a chef with chronic illness and heart failure, I’m still fighting for air with sarcasm, garlic, and grit.
#sarcoidosis #chronicillness -
Getting ready for my MRI turned into a wild ride! From mundane check-in to unexpected quiz about my life, plus the usual sarcoidosis info. But then, the questions went off the rails! Who knew a scan could be so surprising?
#sarcoidosis #chronicillness
https://bit.ly/4uYU9wZ -
At 16, a quiet walk home became the scariest night of my life—and the moment I found the fighter inside me. Fear turned into fire, and courage showed up without asking permission.
#sarcoidosis #chronicillness -
At 18, I got peer-pressured into a “mandatory meeting” that was really rum shots and card games. It became my first and only time getting drunk—spinning room, bad choices, and one disgusted girlfriend (now wife) included.
#sarcoidosis #chronicillness
https://bit.ly/43dtW1A -
When doctors you’ve trusted for 20 years drop your insurance, sarcoidosis and heart failure aren’t the only battle. Choosing between good doctors and good coverage feels like gambling with your health—and sanity.
#sarcoidosis #chronicillness -
Chronic illness changes more than one body. It changes marriage, caregiving, fear, routines, and love. This episode reflects on sarcoidosis, heart failure, and the spouse who helped me survive the hardest parts.
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Sarcoidosis may steal breath, energy, and even your voice—but not your humor. As a chef with chronic illness and heart failure, I’m still fighting for air with sarcasm, garlic, and grit.
#sarcoidosis #chronicillness -
Let me promote your #sarcoidosis fundraiser or event. 💜
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Getting ready for my MRI turned into a wild ride! From mundane check-in to unexpected quiz about my life, plus the usual sarcoidosis info. But then, the questions went off the rails! Who knew a scan could be so surprising?
#sarcoidosis #chronicillness
https://bit.ly/4uYU9wZ -
At 16, a quiet walk home became the scariest night of my life—and the moment I found the fighter inside me. Fear turned into fire, and courage showed up without asking permission.
#sarcoidosis #chronicillness -
At 18, I got peer-pressured into a “mandatory meeting” that was really rum shots and card games. It became my first and only time getting drunk—spinning room, bad choices, and one disgusted girlfriend (now wife) included.
#sarcoidosis #chronicillness
https://bit.ly/43dtW1A -
When doctors you’ve trusted for 20 years drop your insurance, sarcoidosis and heart failure aren’t the only battle. Choosing between good doctors and good coverage feels like gambling with your health—and sanity.
#sarcoidosis #chronicillness -
You are currently the youngest version of yourself that will ever complain about aging.
#sarcoidosis #chronicillness -
Living with sarcoidosis and an ICD means my chest has a tiny hall monitor clocking my heart 24/7. So yes, I’m grateful for modern medicine—and side-eyeing the urge to make complaining a full-time job.
#sarcoidosis #chronicillness
https://bit.ly/4wzhvdS -
Before #sarcoidosis I could throw some stuff in a bag the night before (or even the day of) a trip and be reasonably certain I packed the essentials (but somehow unexplicably I’ve ended up with many plug travel converters). I wouldn’t say the stress was healthy, but it did work.
These days I’ve to take a few days off before and make a list to make sure I’ve got everything, and have my house in *some* order for the cat sitter.
I *am* #grateful though I still can make trips
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Coastal Charleston, SC | Pulmonary/Critical Care Physician Scientist
Medical University of South Carolina
Join a team that’s Changing What’s Possible – MUSC is seeking a Pulmonary CC Physician‐Scientist with expertise in research. #Coastal #Sarcoidosis
See the full job description on jobRxiv: https://jobrxiv.org/job/medical-university-of-south...
https://jobrxiv.org/job/medical-university-of-south-carolina-27778-coastal-charleston-sc-pulmonary-critical-care-physician-scientist/?feed_id=85493 -
Coastal Charleston, SC | Pulmonary/Critical Care Physician Scientist
Medical University of South Carolina
Join a team that’s Changing What’s Possible – MUSC is seeking a Pulmonary CC Physician‐Scientist with expertise in research. #Coastal #Sarcoidosis
See the full job description on jobRxiv: https://jobrxiv.org/job/medical-university-of-south...
https://jobrxiv.org/job/medical-university-of-south-carolina-27778-coastal-charleston-sc-pulmonary-critical-care-physician-scientist/?feed_id=81311 -
Coastal Charleston, SC | Pulmonary/Critical Care Physician Scientist
Medical University of South Carolina
Join a team that’s Changing What’s Possible – MUSC is seeking a Pulmonary CC Physician‐Scientist with expertise in research. #Coastal #Sarcoidosis
See the full job description on jobRxiv: https://jobrxiv.org/job/medical-university-of-south...
https://jobrxiv.org/job/medical-university-of-south-carolina-27778-coastal-charleston-sc-pulmonary-critical-care-physician-scientist/?feed_id=77930 -
Coastal Charleston, SC | Pulmonary/Critical Care Physician Scientist
Medical University of South Carolina
Join a team that’s Changing What’s Possible – MUSC is seeking a Pulmonary CC Physician‐Scientist with expertise in research. #Coastal #Sarcoidosis
See the full job description on jobRxiv: https://jobrxiv.org/job/medical-university-of-south...
https://jobrxiv.org/job/medical-university-of-south-carolina-27778-coastal-charleston-sc-pulmonary-critical-care-physician-scientist/?feed_id=76215 -
Coastal Charleston, SC | Pulmonary/Critical Care Physician Scientist
Medical University of South Carolina
Join a team that’s Changing What’s Possible – MUSC is seeking a Pulmonary CC Physician‐Scientist with expertise in research. #Coastal #Sarcoidosis
See the full job description on jobRxiv: https://jobrxiv.org/job/medical-university-of-south...
https://jobrxiv.org/job/medical-university-of-south-carolina-27778-coastal-charleston-sc-pulmonary-critical-care-physician-scientist/?feed_id=76166 -
Hola Titánicos, cada 13 de abril se celebra el día de Concienciación de la Sarcoidosis, con el objetivo de visibilizar esta enfermedad rara, que afecta al sistema inmunológico.
https://somosdisca.es/dia-de-concienciacion-de-la-sarcoidosis-2024/
#sarcoidosis #enfermedad #enfermedadesraras #salud #sistemainmune #sistemainmunologico #enfermedadautoinmune #discapacidad #disability #disabilities #cuidados #visibilidad #prevención #titan #titanicos #gentetitanica #somosdisca
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My friend’s daughter is raising funds to help Sarcoidosis UK after seeing her dad struggle with the debilitating condition. Please help if you can #wales #sarcoidosis #health #fundraising https://gofund.me/ac0bbdfc
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#BoneThugsNHarmony’s #KrayzieBone Hospitalized, Fighting for Life: Report
https://allhiphop.com/news/krayzie-bone-bone-thugs-n-harmony-hospital/?expand_article=1
The 50-year-old #rapper suffers from a rare #inflammatorydisease called #sarcoidosis -
Results are up to 15mo. post-index date.
The vasculitises include #Wegener's disease (2.51x risk), #Behcet's (2.42x), #sarcoidosis (2.14x), & #arteritis temporalis (1.63x).
Risk of AI disease also increased markedly amongst adolescents (but was not statistically significant).
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A great article on Long-Covid, and I’m extra glad it references “LC sufferers and the many people before them with chronic and complex autoimmune and post-infection illnesses”…
Very recognizable symptoms… #sarcoidosis
https://www.abc.net.au/news/2022-12-19/long-covid-symptoms-treatment-recovery/101751410
(Found via @vicgrinberg but for lack of quote-post 💣 😇)
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I was just searching #sarcoidosis so that was timely!
I haven’t been posting about it here on Mastodon, I may do so later though. I follow Foundation for Sarcoidosis Research on other media.
Nice to meet you!
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Redone with shifting my server to disabled.social.
#Introduction 2.0: #MichiganState alum #EnglishMajor. #Neurosarcoidosis #Sarcoidosis patient, placed me in the #disability community. A #GenX nerd with far too many fandoms: #StarTrek, #StarWars, #Anime, #TwinPeaks, #Tolkien, Tolkien Society Member, #Playstation, #Music, #90s, #SherlockHolmes, #D&D, #biology, #gothic fiction, #history, #science, #scicomm, etc.