#musculardystrophy — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #musculardystrophy, aggregated by home.social.
-
RE: https://todon.eu/@regendans/116579546000043721
Everyone please read this! This is horrid! We can't let people be treated like this ! A #MustReadArticle
-
RE: https://todon.eu/@regendans/116579546000043721
Everyone please read this! This is horrid! We can't let people be treated like this ! A #MustReadArticle
-
RE: https://todon.eu/@regendans/116579546000043721
Everyone please read this! This is horrid! We can't let people be treated like this ! A #MustReadArticle
-
RE: https://todon.eu/@regendans/116579546000043721
Everyone please read this! This is horrid! We can't let people be treated like this ! A #MustReadArticle
-
RE: https://todon.eu/@regendans/116579546000043721
Everyone please read this! This is horrid! We can't let people be treated like this ! A #MustReadArticle
-
https://www.europesays.com/ie/419483/ Toxic RNA drives progressive heart damage in myotonic dystrophy #AnimalModel #Brain #CellularBiology #DNA #Éire #fibrosis #GastrointestinalTract #Gene #Genetic #GeneticDisorder #Health #Heart #HeartDisease #IE #Immunology #Ireland #medicine #Mortality #Muscle #MuscularDystrophy #Mutation #MyotonicDystrophy #Pathology #Physiology #Research #RNA #Splicing
-
https://www.europesays.com/ch/?p=36333 Roche drops Phase III plans for emugrobart in two muscle wasting diseases #FSHD #MuscularDystrophy #MuscularGrowth #Roche #SpinalMuscularAtrophy
-
https://www.europesays.com/ch/35861/ Roche stops work on experimental SMA drug #MuscularDystrophy #RareDiseases #Roche #ScholarRock #SMAPatients #SpinalMuscularAtrophy
-
https://www.europesays.com/ie/197638/ Immune cells use a surprising trick to heal muscle faster #Éire #IE #Ireland #MuscularDystrophy;Women'sHealth;DiseasesAndConditions;Today'sHealthcare;WorkplaceHealth;MedicalImaging;Pharmacology;NervousSystem #Science
-
US disability rights activist and author Alice Wong dies at 51
Alice Wong, a disability rights activ…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Activism #AliceWong #America #assistivebreathingdevice #disabilityjusticemovement #DisabilityVisibilityProjectblog #HongKongimmigrants #JohnD.andCatherineT.MacArthurFoundation #LGBTQ #MuscularDystrophy #SanFrancisco #SandyHo #SocialMedia #UnitedStatesofAmerica #YearoftheTiger:AnActivist'sLife
https://www.newsbeep.com/us/294071/ -
US disability rights activist and author Alice Wong dies at 51
Alice Wong, a disability rights activ…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Activism #AliceWong #America #assistivebreathingdevice #disabilityjusticemovement #DisabilityVisibilityProjectblog #HongKongimmigrants #JohnD.andCatherineT.MacArthurFoundation #LGBTQ #MuscularDystrophy #SanFrancisco #SandyHo #SocialMedia #UnitedStatesofAmerica #YearoftheTiger:AnActivist'sLife
https://www.newsbeep.com/us/294071/ -
Boyne Island boy Nayte Scott diagnosed with Duchenne Muscular Dystrophy
Nayte Scott is a patient little boy who loves playing with his Lego and watching movies at his…
#NewsBeep #News #Science #AU #Australia #boys #Children #condition #cure #disease #disorder #duchenne #Genetic #MuscularDystrophy #saveoursons
https://www.newsbeep.com/au/272231/ -
News – New research could unlock ways to treat myotonic dystrophy
Friday, 12 September 2025
Scientists at the University of Nottingham will look at why a…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Genetics #DavidBrook #geneticcondition #MuscularDystrophy #myotonicdystrophy #RNA #Science
https://www.newsbeep.com/us/156470/ -
News – New research could unlock ways to treat myotonic dystrophy
Friday, 12 September 2025
Scientists at the University of Nottingham will look at why a…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Genetics #DavidBrook #geneticcondition #MuscularDystrophy #myotonicdystrophy #RNA #Science
https://www.newsbeep.com/us/156470/ -
New specialist clinic aims to give better access to advanced genetic testing
A new specialist clinic is aiming to support faster diagnoses and more personalised care for people living w…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Genetics #genetictesting #musclewasting #MuscularDystrophy #neuromuscularcondition #NorthernIreland #personalisedcare #Queen'sUniversityBelfast #Science #SouthEasternHealthandSocialCareTrust #specialistclinic
https://www.newsbeep.com/us/154843/ -
New specialist clinic aims to give better access to advanced genetic testing
A new specialist clinic is aiming to support faster diagnoses and more personalised care for people living w…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Genetics #genetictesting #musclewasting #MuscularDystrophy #neuromuscularcondition #NorthernIreland #personalisedcare #Queen'sUniversityBelfast #Science #SouthEasternHealthandSocialCareTrust #specialistclinic
https://www.newsbeep.com/us/154843/ -
Charity funding boosts research into inclusion body myopathy at Aston University
Muscular Dystrophy UK, a charity working on behalf of 110,000 children and adults living with more than 60…
#NewsBeep #News #Health #AU #Australia #Bone #Charity #Children #Muscle #Musclewasting #MuscularDystrophy #Myopathy #research
https://www.newsbeep.com/au/140354/ -
The final episode of Cycle The Nations World Record adventure is now on YouTube, and you can own can own a part of the adventure. The charity auction for Cyclus Minor is now live here: https://ebay.us/m/yjV7t1 He is looking a bit worse for wear, but that's all a part of his story. All proceeds are going to Muscular Dystrophy UK, own a part of history, and help out a good cause!
#Warhammer #Warhammer40K #WarhammerCommunity #MuscularDystrophy #Charity
-
The final episode of Cycle The Nations World Record adventure is now on YouTube, and you can own can own a part of the adventure. The charity auction for Cyclus Minor is now live here: https://ebay.us/m/yjV7t1 He is looking a bit worse for wear, but that's all a part of his story. All proceeds are going to Muscular Dystrophy UK, own a part of history, and help out a good cause!
#Warhammer #Warhammer40K #WarhammerCommunity #MuscularDystrophy #Charity
-
The final episode of Cycle The Nations World Record adventure is now on YouTube, and you can own can own a part of the adventure. The charity auction for Cyclus Minor is now live here: https://ebay.us/m/yjV7t1 He is looking a bit worse for wear, but that's all a part of his story. All proceeds are going to Muscular Dystrophy UK, own a part of history, and help out a good cause!
#Warhammer #Warhammer40K #WarhammerCommunity #MuscularDystrophy #Charity
-
The final episode of Cycle The Nations World Record adventure is now on YouTube, and you can own can own a part of the adventure. The charity auction for Cyclus Minor is now live here: https://ebay.us/m/yjV7t1 He is looking a bit worse for wear, but that's all a part of his story. All proceeds are going to Muscular Dystrophy UK, own a part of history, and help out a good cause!
#Warhammer #Warhammer40K #WarhammerCommunity #MuscularDystrophy #Charity
-
The final episode of Cycle The Nations World Record adventure is now on YouTube, and you can own can own a part of the adventure. The charity auction for Cyclus Minor is now live here: https://ebay.us/m/yjV7t1 He is looking a bit worse for wear, but that's all a part of his story. All proceeds are going to Muscular Dystrophy UK, own a part of history, and help out a good cause!
#Warhammer #Warhammer40K #WarhammerCommunity #MuscularDystrophy #Charity
-
‘Cruel postcode lottery’ facing kids at two Birmingham hospitals just four miles apart
Children with a life-limiting condition face a “cruel postcode lottery” over a new drug – despite being treated…
#Birmingham #UnitedKingdom #UK #GB #England #Headlines #News #Europe #EU #Britain #DMDpatients #DuchenneMuscularDystrophy #FoundationTrust #GreatBritain #HarryReid #MuscularDystrophy #Postcodelottery #RosemaryReid #UniversityHospitals #UniversityofBirmingham
https://www.europesays.com/uk/223109/ -
https://www.europesays.com/uk/223109/ ‘Cruel postcode lottery’ facing kids at two Birmingham hospitals just four miles apart #Birmingham #Britain #DMDPatients #DuchenneMuscularDystrophy #England #FoundationTrust #GreatBritain #HarryReid #MuscularDystrophy #PostcodeLottery #RosemaryReid #UK #UnitedKingdom #UniversityHospitals #UniversityOfBirmingham
-
Sarepta Viral Vector Gets FDA Platform Technology Designation
Sarepta Therapeutics Inc. (NASDAQ:SRPT) is one of the best mid cap growth stocks to invest in now. Earlier…
#UnitedStates #US #USA #america #duchennemusculardystrophy #genetherapy #midcapgrowthstocks #musculardystrophy #SareptaTherapeutics #science #technology #unitedstatesofamerica #USFDA #viralvector
https://www.europesays.com/2190686/ -
Preschool Teacher Spots Symptoms and Tells Parents, Leading to Child’s Early Diagnosis With Rare Disease
-
Preschool Teacher Spots Symptoms and Tells Parents, Leading to Child’s Early Diagnosis With Rare Disease
-
Preschool Teacher Spots Symptoms and Tells Parents, Leading to Child’s Early Diagnosis With Rare Disease
-
https://youtu.be/i3u_2MaqgoI?si=vnPM1Lx6mBcvYcSs New video is on YouTube. This week I am painting a Space Marine which will be taking part in a World Record breaking challenge to cycle to every county in the UK raising money for Muscular Dystrophy UK.
#Warhammer #Warhammer40K #Warhammer40000 #PaintingWarhammer #WarhammerCommunity #PaintingMiniatures #PaintingMinis #GamesWorkshop #BoardGames #YouTube #MDUK #MuscularDystrophy #Nerdlings
-
https://youtu.be/i3u_2MaqgoI?si=vnPM1Lx6mBcvYcSs New video is on YouTube. This week I am painting a Space Marine which will be taking part in a World Record breaking challenge to cycle to every county in the UK raising money for Muscular Dystrophy UK.
#Warhammer #Warhammer40K #Warhammer40000 #PaintingWarhammer #WarhammerCommunity #PaintingMiniatures #PaintingMinis #GamesWorkshop #BoardGames #YouTube #MDUK #MuscularDystrophy #Nerdlings
-
https://youtu.be/i3u_2MaqgoI?si=vnPM1Lx6mBcvYcSs New video is on YouTube. This week I am painting a Space Marine which will be taking part in a World Record breaking challenge to cycle to every county in the UK raising money for Muscular Dystrophy UK.
#Warhammer #Warhammer40K #Warhammer40000 #PaintingWarhammer #WarhammerCommunity #PaintingMiniatures #PaintingMinis #GamesWorkshop #BoardGames #YouTube #MDUK #MuscularDystrophy #Nerdlings
-
https://youtu.be/i3u_2MaqgoI?si=vnPM1Lx6mBcvYcSs New video is on YouTube. This week I am painting a Space Marine which will be taking part in a World Record breaking challenge to cycle to every county in the UK raising money for Muscular Dystrophy UK.
#Warhammer #Warhammer40K #Warhammer40000 #PaintingWarhammer #WarhammerCommunity #PaintingMiniatures #PaintingMinis #GamesWorkshop #BoardGames #YouTube #MDUK #MuscularDystrophy #Nerdlings
-
https://youtu.be/i3u_2MaqgoI?si=vnPM1Lx6mBcvYcSs New video is on YouTube. This week I am painting a Space Marine which will be taking part in a World Record breaking challenge to cycle to every county in the UK raising money for Muscular Dystrophy UK.
#Warhammer #Warhammer40K #Warhammer40000 #PaintingWarhammer #WarhammerCommunity #PaintingMiniatures #PaintingMinis #GamesWorkshop #BoardGames #YouTube #MDUK #MuscularDystrophy #Nerdlings
-
Hey, folks?
Mike Ahlers is an old friend and colleague from way back when. He's a semi-pro bicycle racer these days. He's riding in the 2025 Triple Bypass (https://www.triplebypass.org/) in Colorado to raise money for #MuscularDystrophy research, by way of the #FSHD Society (https://www.fshdsociety.org/about-us/).
Both Mike and his sister have #MuscularDystrophy (specifically, facioscapulohumeral muscular dystrophy), so he's got skin in the game.
If you've got a few bucks to spare would you please consider donating to his ride?
-
Hey, folks?
Mike Ahlers is an old friend and colleague from way back when. He's a semi-pro bicycle racer these days. He's riding in the 2025 Triple Bypass (https://www.triplebypass.org/) in Colorado to raise money for #MuscularDystrophy research, by way of the #FSHD Society (https://www.fshdsociety.org/about-us/).
Both Mike and his sister have #MuscularDystrophy (specifically, facioscapulohumeral muscular dystrophy), so he's got skin in the game.
If you've got a few bucks to spare would you please consider donating to his ride?
-
Hey, folks?
Mike Ahlers is an old friend and colleague from way back when. He's a semi-pro bicycle racer these days. He's riding in the 2025 Triple Bypass (https://www.triplebypass.org/) in Colorado to raise money for #MuscularDystrophy research, by way of the #FSHD Society (https://www.fshdsociety.org/about-us/).
Both Mike and his sister have #MuscularDystrophy (specifically, facioscapulohumeral muscular dystrophy), so he's got skin in the game.
If you've got a few bucks to spare would you please consider donating to his ride?
-
Hey, folks?
Mike Ahlers is an old friend and colleague from way back when. He's a semi-pro bicycle racer these days. He's riding in the 2025 Triple Bypass (https://www.triplebypass.org/) in Colorado to raise money for #MuscularDystrophy research, by way of the #FSHD Society (https://www.fshdsociety.org/about-us/).
Both Mike and his sister have #MuscularDystrophy (specifically, facioscapulohumeral muscular dystrophy), so he's got skin in the game.
If you've got a few bucks to spare would you please consider donating to his ride?
-
Hey, folks?
Mike Ahlers is an old friend and colleague from way back when. He's a semi-pro bicycle racer these days. He's riding in the 2025 Triple Bypass (https://www.triplebypass.org/) in Colorado to raise money for #MuscularDystrophy research, by way of the #FSHD Society (https://www.fshdsociety.org/about-us/).
Both Mike and his sister have #MuscularDystrophy (specifically, facioscapulohumeral muscular dystrophy), so he's got skin in the game.
If you've got a few bucks to spare would you please consider donating to his ride?
-
Researchers hit the target: they transport #microRNAs against #MuscularDystrophy to muscle stem cells using nanoparticles.
🎯 Treated mice showed improved muscle strength.
+info: https://nanociencia.imdea.org/home-en/news/item/researchers-hit-the-target-they-transport-micrornas-against-muscular-dystrophy-to-muscle-stem-cells-using-nanoparticles #IMDEAnanoPublications
-
"We are...convinced that this has opened the door to the development of new therapeutic approaches for the treatment of Duchenne muscular dystrophy. In particular, this could be the case for patients with mutations that have so far been difficult to address," said Dr Didier Stainier, Director of the Max Planck Institute for Heart and Lung Research, among other appointments.
#MuscularDystrophy #DMD #health #medicine #genetics #research #science
-
"We are...convinced that this has opened the door to the development of new therapeutic approaches for the treatment of Duchenne muscular dystrophy. In particular, this could be the case for patients with mutations that have so far been difficult to address," said Dr Didier Stainier, Director of the Max Planck Institute for Heart and Lung Research, among other appointments.
#MuscularDystrophy #DMD #health #medicine #genetics #research #science
-
"We are...convinced that this has opened the door to the development of new therapeutic approaches for the treatment of Duchenne muscular dystrophy. In particular, this could be the case for patients with mutations that have so far been difficult to address," said Dr Didier Stainier, Director of the Max Planck Institute for Heart and Lung Research, among other appointments.
#MuscularDystrophy #DMD #health #medicine #genetics #research #science
-
"We are...convinced that this has opened the door to the development of new therapeutic approaches for the treatment of Duchenne muscular dystrophy. In particular, this could be the case for patients with mutations that have so far been difficult to address," said Dr Didier Stainier, Director of the Max Planck Institute for Heart and Lung Research, among other appointments.
#MuscularDystrophy #DMD #health #medicine #genetics #research #science
-
"We are...convinced that this has opened the door to the development of new therapeutic approaches for the treatment of Duchenne muscular dystrophy. In particular, this could be the case for patients with mutations that have so far been difficult to address," said Dr Didier Stainier, Director of the Max Planck Institute for Heart and Lung Research, among other appointments.
#MuscularDystrophy #DMD #health #medicine #genetics #research #science
-
Very disappointing news on the Duchenne muscular dystrophy front. Elevidys, the only available gene therapy for DMD has shown no significant improvement in motor function in kids receiving the treatment after 1 year. However, certain secondary outcomes showed some benefit.
It remains to be seen if FDA will allow it to stay on the market in the US, given that there are no other available treatments for DMD.
https://www.ajmc.com/view/sarepta-joins-pfizer-in-dmd-gene-therapy-trial-failures
#Duchenne #musculardystrophy #raredisease #genetherapy #elevidys #biotech #pharma
-
Very disappointing news on the Duchenne muscular dystrophy front. Elevidys, the only available gene therapy for DMD has shown no significant improvement in motor function in kids receiving the treatment after 1 year. However, certain secondary outcomes showed some benefit.
It remains to be seen if FDA will allow it to stay on the market in the US, given that there are no other available treatments for DMD.
https://www.ajmc.com/view/sarepta-joins-pfizer-in-dmd-gene-therapy-trial-failures
#Duchenne #musculardystrophy #raredisease #genetherapy #elevidys #biotech #pharma
-
Scientists create a new approach for muscular dystrophy gene therapy. The researchers are hooing to start human clinical trials within about two years.
#MuscularDystrophy #DMD #genetics #health #medicine #biology #biotechnology
-
Scientists create a new approach for muscular dystrophy gene therapy. The researchers are hooing to start human clinical trials within about two years.
#MuscularDystrophy #DMD #genetics #health #medicine #biology #biotechnology
-
Scientists create a new approach for muscular dystrophy gene therapy. The researchers are hooing to start human clinical trials within about two years.
#MuscularDystrophy #DMD #genetics #health #medicine #biology #biotechnology