#disabledjoy — Public Fediverse posts

@oldladyplays
A friend and I (we're both disabled by chronic illness) were able to visit the Crystal Springs Rhododendren Gardens last week. It's rare when we're both well enough to do something together.

No photos, but it was lovely! So many flowering trees/plants!

https://csrgpdx.org/

My husband and I have an annual pass but for certain groups (eg, folks on SNAP EBT) the garden has "pay what you wish" admission:

https://csrgpdx.org/community-access-program

#DisabledJoy #PDX #Portland #Gardens

@oldladyplays
A friend and I (we're both disabled by chronic illness) were able to visit the Crystal Springs Rhododendren Gardens last week. It's rare when we're both well enough to do something together.

No photos, but it was lovely! So many flowering trees/plants!

https://csrgpdx.org/

My husband and I have an annual pass but for certain groups (eg, folks on SNAP EBT) the garden has "pay what you wish" admission:

https://csrgpdx.org/community-access-program

#DisabledJoy #PDX #Portland #Gardens

@oldladyplays
A friend and I (we're both disabled by chronic illness) were able to visit the Crystal Springs Rhododendren Gardens last week. It's rare when we're both well enough to do something together.

No photos, but it was lovely! So many flowering trees/plants!

https://csrgpdx.org/

My husband and I have an annual pass but for certain groups (eg, folks on SNAP EBT) the garden has "pay what you wish" admission:

https://csrgpdx.org/community-access-program

#DisabledJoy #PDX #Portland #Gardens

@oldladyplays
A friend and I (we're both disabled by chronic illness) were able to visit the Crystal Springs Rhododendren Gardens last week. It's rare when we're both well enough to do something together.

No photos, but it was lovely! So many flowering trees/plants!

https://csrgpdx.org/

My husband and I have an annual pass but for certain groups (eg, folks on SNAP EBT) the garden has "pay what you wish" admission:

https://csrgpdx.org/community-access-program

#DisabledJoy #PDX #Portland #Gardens

@oldladyplays
A friend and I (we're both disabled by chronic illness) were able to visit the Crystal Springs Rhododendren Gardens last week. It's rare when we're both well enough to do something together.

No photos, but it was lovely! So many flowering trees/plants!

https://csrgpdx.org/

My husband and I have an annual pass but for certain groups (eg, folks on SNAP EBT) the garden has "pay what you wish" admission:

https://csrgpdx.org/community-access-program

#DisabledJoy #PDX #Portland #Gardens

I am having a painful day.

Would you kind folks, in the next 24 hours or so, tag me on a post you make about the last moment (or much longer?) you had or saw some #TransJoy ? Or #NBJoy ? Or #AgenderJoy ? Now you see why I'm asking? Too many possible sources. #BlackJoy or #DisabledJoy or #DeafJoy or so many others.

If you've a marginalised identity and found joy recently, tell me what it was. Don't be afraid to say it was about discomfiting your oppressor. Speak your joy. Doesn't matter if I share an identity with your oppressor, I don't do defensive. If I've done what you say, I'll apologise and/or accept responsibility for my failures and misdeeds and privilege. If I haven't, then I will share your victory joy, bc any oppressor is too many.

I just want to hear what's bringing you joy in an identity important to you?

Thread RULE: if it isn't about you, don't make it about you. You need to defend yourself for some reason? This is neither time nor place. Joy only. You wanna hurt someone? Not here. This is a braver space than that.

What's your joy, if you want to share?

1. https://www.mkuh.nhs.uk/wp-content/uploads/2022/10/Women-with-Disabilities-and-Special-Needs-Guideline.pdf
2. https://bmjopen.bmj.com/content/7/7/e016757
3. https://rcm.org.uk/blog/2025/06/improving-maternity-care-and-support-for-pregnant-women-with-disabilities/
4. https://birthrights.org.uk/factsheets/disability-and-long-term-health-conditions-and-maternity-care/
5. https://criplife.co.uk/pregnancy-and-disability-ensuring-inclusive-maternity-care-for-prospective-disabled-mothers/
6. https://www.ableize.com/health-and-fitness/pregnancy-and-parenthood/

I guess obstretics is My New Thing.

#maternity #pregnancy #ObGyn #Obstetrics #pregnant #nativity #disabled #DisabledJoy #DisabledFedi #disability #MedMastodon #med #meds #medicine #medical

https://www.mkuh.nhs.uk/wp-content/uploads/2022/10/Women-with-Disabilities-and-Special-Needs-Guideline.pdf "Appendix 1: MOTHERS WITH LEARNING DISABILITIES GUIDANCE TOOL
V
Value family – Involve individuals who best know the woman with learning disabilities as they can provide additional information that may be helpful to the decision-making process.
A
Avoid making assumptions – Do not assume that because someone has a diagnosis of a learning disability that they cannot be good enough parents
L
Look for support – Professionals should not work in isolation and should involve learning disability services for further support and guidance.
U
Understand emotions – Take into consideration that many mothers with learning disabilities have their own anxieties and worries about motherhood and fear of judgment. Do not assume they are being difficult.
E
Establish reasonable adjustments – Professionals should put reasonable adjustments into place to ensure women with learning disabilities can comprehend and understand information to give informed consent. I.E. easy read, pictorials, large font, visual and hearing aids.

M
Mental Capacity – Do not assume capacity. In liaison with the Mental Capacity Act 2005, professionals should consider completing a Mental Capacity Assessment (MCA) to establish whether the women can give informed consent. Professionals should also consider best interest, Deprivation of Liberty Safeguards (DoLS) and involving an Independent Mental Capacity Advocate (IMCA).
E
Efficient discharge – Professionals should consider possible support that can be put into place to ensure a person-centered discharge is consolidated. Consider, access to health and additional services, transport, financial support and accommodation.

THINK... VALUE ME"

#maternity #pregnancy #ObGyn #Obstetrics #pregnant #nativity #disabled #DisabledJoy #DisabledFedi #disability #MedMastodon #med #meds #medicine #medical

Omfg. Read section 3.4 "Learning Disabilities support" on page 5. Literally everyone will be helped by these suggestions, not just diagnosed disabled people.
https://www.mkuh.nhs.uk/wp-content/uploads/2022/10/Women-with-Disabilities-and-Special-Needs-Guideline.pdf
"3.4 Learning Disabilities support
Although 7% of people with learning disabilities become parents ( Best Beginnings) the Equality Act 2010 obligates responsibility to service providers to ensure that reasonable adjustments are put into place to ensure the holistic needs of people with learning disabilities are met to the highest standards.
Remember to think VALUE ME! (Appendix 1)

1. Early intervention strategies should be considered. Ensure that the community midwife is involved and if they are under 20 consider discussion with the specialist teenage pregnancy midwife for additional support.
2. Professionals should ensure that adequate time is provided for consultations, appointments and formal discussions. Taking time to allow the woman to understand the information in
order to make an informed decision.
3. Professionals should ensure that reasonable adjustments are put into place to aid with understanding. Including: easy read, pictorials, large font, visual and hearing aids.
4. Abilities led practice rather than inabilities led practice. Professionals should avoid making assumptions based on a diagnosis of a learning disability as often mothers will have their own anxieties, fears and worries regarding motherhood.
5. Avoid assuming that mothers are being difficult. Consider other possible reasons such as the environment, loud noises, bright lights (especially if they have a dual diagnosis of learning disability and ASD), sensory needs, stress and anxiety. Provide a side room if possible."

#maternity #pregnancy #ObGyn #Obstetrics #pregnant #nativity #disabled #DisabledJoy #DisabledFedi #disability #MedMastodon #med #meds #medicine #medical

Die ersten zwei Tage im Urlaub? Regen, Regen, Regen. 🌧️

Aber hey, wofür gibt es heiße Schaumbäder und gute Freunde? 😄🛁

Manchmal ist gute Pflege eben Teamwork und ein bisschen Improvisation. 💪💦

#BarrierefreierUrlaub #DisabledAndCute #DisabilityAwareness #CripTravel #DisabledJoy #DisabledAndProud #AccessibilityMatters #Behinderung #Disability #DisabilityAwareness #Inklusion #Inkluencer #Behinderung #InklusivReisen #PflegeMitWürde #RechtAufErholung #Urlaub #Holydays #Garmisch

Die ersten zwei Tage im Urlaub? Regen, Regen, Regen. 🌧️

Aber hey, wofür gibt es heiße Schaumbäder und gute Freunde? 😄🛁

Manchmal ist gute Pflege eben Teamwork und ein bisschen Improvisation. 💪💦

#BarrierefreierUrlaub #DisabledAndCute #DisabilityAwareness #CripTravel #DisabledJoy #DisabledAndProud #AccessibilityMatters #Behinderung #Disability #DisabilityAwareness #Inklusion #Inkluencer #Behinderung #InklusivReisen #PflegeMitWürde #RechtAufErholung #Urlaub #Holydays #Garmisch

Die ersten zwei Tage im Urlaub? Regen, Regen, Regen. 🌧️

Aber hey, wofür gibt es heiße Schaumbäder und gute Freunde? 😄🛁

Manchmal ist gute Pflege eben Teamwork und ein bisschen Improvisation. 💪💦

#BarrierefreierUrlaub #DisabledAndCute #DisabilityAwareness #CripTravel #DisabledJoy #DisabledAndProud #AccessibilityMatters #Behinderung #Disability #DisabilityAwareness #Inklusion #Inkluencer #Behinderung #InklusivReisen #PflegeMitWürde #RechtAufErholung #Urlaub #Holydays #Garmisch

Die ersten zwei Tage im Urlaub? Regen, Regen, Regen. 🌧️

Aber hey, wofür gibt es heiße Schaumbäder und gute Freunde? 😄🛁

Manchmal ist gute Pflege eben Teamwork und ein bisschen Improvisation. 💪💦

#BarrierefreierUrlaub #DisabledAndCute #DisabilityAwareness #CripTravel #DisabledJoy #DisabledAndProud #AccessibilityMatters #Behinderung #Disability #DisabilityAwareness #Inklusion #Inkluencer #Behinderung #InklusivReisen #PflegeMitWürde #RechtAufErholung #Urlaub #Holydays #Garmisch

Manchmal braucht der eigene Körper einfach nur die Chance, endlich sein zu dürfen. ✨
⬇️

#TransIsBeautiful #DisabledAndProud #DisabilityPride #Disability #Behinderung #Queer #Trans #TransPride #BodyAutonomy #QueerAndDisabled #DisabilityVisibility #TransHealthcare #HRTworks #TraumaHealing #TransJoy #DisabledJoy #BodyPositivity #TransAktivismus #IntersectionalFeminism #DisabilityJustice #StigmaKills #MentalHealthHealing #QueerActivism #LoveYourself #HealingJourney

Manchmal braucht der eigene Körper einfach nur die Chance, endlich sein zu dürfen. ✨
⬇️

#TransIsBeautiful #DisabledAndProud #DisabilityPride #Disability #Behinderung #Queer #Trans #TransPride #BodyAutonomy #QueerAndDisabled #DisabilityVisibility #TransHealthcare #HRTworks #TraumaHealing #TransJoy #DisabledJoy #BodyPositivity #TransAktivismus #IntersectionalFeminism #DisabilityJustice #StigmaKills #MentalHealthHealing #QueerActivism #LoveYourself #HealingJourney

Manchmal braucht der eigene Körper einfach nur die Chance, endlich sein zu dürfen. ✨
⬇️

#TransIsBeautiful #DisabledAndProud #DisabilityPride #Disability #Behinderung #Queer #Trans #TransPride #BodyAutonomy #QueerAndDisabled #DisabilityVisibility #TransHealthcare #HRTworks #TraumaHealing #TransJoy #DisabledJoy #BodyPositivity #TransAktivismus #IntersectionalFeminism #DisabilityJustice #StigmaKills #MentalHealthHealing #QueerActivism #LoveYourself #HealingJourney

Manchmal braucht der eigene Körper einfach nur die Chance, endlich sein zu dürfen. ✨
⬇️

#TransIsBeautiful #DisabledAndProud #DisabilityPride #Disability #Behinderung #Queer #Trans #TransPride #BodyAutonomy #QueerAndDisabled #DisabilityVisibility #TransHealthcare #HRTworks #TraumaHealing #TransJoy #DisabledJoy #BodyPositivity #TransAktivismus #IntersectionalFeminism #DisabilityJustice #StigmaKills #MentalHealthHealing #QueerActivism #LoveYourself #HealingJourney

Just laying in bed listening to chickadees singing.

Today's alright.

#DisabledJoy

I am so tired. My sleep is fucked for my course so I know I'll be tired AF, whatever times I sleep and wake, unless I get randomly lucky, which is possible.
It's annoying but otherwise fine. The DWP looms with their "make young people with symptoms work" bullshit, but the blade's not fallen yet.

With any luck, I can get work as an off-hours therapist. Like crisis lines, night shift standby, or similarly flaky clients who check my daily / weekly schedule forecast and call me up during my projected online-office hours.

#work #SocialWork #therapy #counselling #counsellor #therapist #training #job #planning #future #organisation #predict #disabled #DisabledJoy #disability #cripGripe #really? #holyCrap #newHashtag #goMe

I am so tired. My sleep is fucked for my course so I know I'll be tired AF, whatever times I sleep and wake, unless I get randomly lucky, which is possible.
It's annoying but otherwise fine. The DWP looms with their "make young people with symptoms work" bullshit, but the blade's not fallen yet.

With any luck, I can get work as an off-hours therapist. Like crisis lines, night shift standby, or similarly flaky clients who check my daily / weekly schedule forecast and call me up during my projected online-office hours.

#work #SocialWork #therapy #counselling #counsellor #therapist #training #job #planning #future #organisation #predict #disabled #DisabledJoy #disability #cripGripe #really? #holyCrap #newHashtag #goMe

I am so tired. My sleep is fucked for my course so I know I'll be tired AF, whatever times I sleep and wake, unless I get randomly lucky, which is possible.
It's annoying but otherwise fine. The DWP looms with their "make young people with symptoms work" bullshit, but the blade's not fallen yet.

With any luck, I can get work as an off-hours therapist. Like crisis lines, night shift standby, or similarly flaky clients who check my daily / weekly schedule forecast and call me up during my projected online-office hours.

#work #SocialWork #therapy #counselling #counsellor #therapist #training #job #planning #future #organisation #predict #disabled #DisabledJoy #disability #cripGripe #really? #holyCrap #newHashtag #goMe

I am so tired. My sleep is fucked for my course so I know I'll be tired AF, whatever times I sleep and wake, unless I get randomly lucky, which is possible.
It's annoying but otherwise fine. The DWP looms with their "make young people with symptoms work" bullshit, but the blade's not fallen yet.

With any luck, I can get work as an off-hours therapist. Like crisis lines, night shift standby, or similarly flaky clients who check my daily / weekly schedule forecast and call me up during my projected online-office hours.

#work #SocialWork #therapy #counselling #counsellor #therapist #training #job #planning #future #organisation #predict #disabled #DisabledJoy #disability #cripGripe #really? #holyCrap #newHashtag #goMe

I am so tired. My sleep is fucked for my course so I know I'll be tired AF, whatever times I sleep and wake, unless I get randomly lucky, which is possible.
It's annoying but otherwise fine. The DWP looms with their "make young people with symptoms work" bullshit, but the blade's not fallen yet.

With any luck, I can get work as an off-hours therapist. Like crisis lines, night shift standby, or similarly flaky clients who check my daily / weekly schedule forecast and call me up during my projected online-office hours.

#work #SocialWork #therapy #counselling #counsellor #therapist #training #job #planning #future #organisation #predict #disabled #DisabledJoy #disability #cripGripe #really? #holyCrap #newHashtag #goMe

Watching a live stream of SF Opera's Carmen and it's wonderful to be able to access arts & culture from my couch! YAY #DisabledJoy

I want to work on the ramps sooner rather than later (so I can have wheelchair users over!), but for tonight, taking the win. It’s such a big improvement than our poorly designed 2 stories off street level, stairs-only apartment.

Oh, and THERE WILL BE DEER FRIENDS VISITING AGAIN 🦌

#DisabledJoy

FORST TIME I GOT A FIVE ON MY MORNING STABILITY WITH #VISIBLEAPP

NUMBER GO UP! NUMBER GO UP!!! #disabledJoy

Joy is not a luxury.

Joy is not a reward.

Joy is not conditional on our successes or acceptability or productivity.

Joy is our birth-right, each and every one of us. And we should orient towards it, encourage it, protect it - demand it - as part of every day of our lives.

The joy is the point.

#TransJoy #AutisticJoy #DisabledJoy

I feel like I've barely left the couch (or bed) in over a month, but I've been watching a ton of birds just hanging out in all the wildflowers out back, so it's ok.

#DisabledJoy

Today is a day for saying fuck you to the little voice that insists I should only be taken seriously as a disabled person if I'm always miserable.

Today is a day to flip the finger to the attitude that my work, my activism, my principles only count if I suffer all the time. That my desire to work towards a better world is meaningless if I ever take a break.

Today is a day to laugh and kick aside the pesky, nonsensical notion that I somehow am cold and soulless and uncaring because I choose to turn away from things I cannot possibly affect in order to attend to things I desperately need.

Today is a day to remember that liberation isn't about what we are willing to die for - it's about what we insist on living for.

Today is a day for #DisabledJoy.

Some days are just meant for sitting around watching squirrels be adorable.

#DisabledJoy

Just in case someone else needs this reminder as much as I do.

#DisabledJoy

I spent all day face down in the sofa looking for an extra spoon, but couldn't find it. Going to go double check the bed next, just in case.

If not, no worries, I'll just check the sofa again tomorrow!

#DisabilityLifestyle #DisabledJoy

#ThrowbackThursday
My first time enjoying Pease Lake in the Highlands. 2019.
My friend, Lyrica, introduced me to this lake 🥰 We've been back a few times since this day. We took a small inflatable boat out & paddled to far end of lake. There was only 4 other people at lake at other end.
You can see part of my atrophied legs here - left is thinner than right.

#GoodMemories #LakeDay #AsianMastodon #Teochew #Chinese #PolioSurvivor #Fab40s #scoliosis #osteoporosis #DisabledJoy #Saanich #vanisle

#ThrowbackThursday
My first time enjoying Pease Lake in the Highlands. 2019.
My friend, Lyrica, introduced me to this lake 🥰 We've been back a few times since this day. We took a small inflatable boat out & paddled to far end of lake. There was only 4 other people at lake at other end.
You can see part of my atrophied legs here - left is thinner than right.

#GoodMemories #LakeDay #AsianMastodon #Teochew #Chinese #PolioSurvivor #Fab40s #scoliosis #osteoporosis #DisabledJoy #Saanich #vanisle

#ThrowbackThursday
My first time enjoying Pease Lake in the Highlands. 2019.
My friend, Lyrica, introduced me to this lake 🥰 We've been back a few times since this day. We took a small inflatable boat out & paddled to far end of lake. There was only 4 other people at lake at other end.
You can see part of my atrophied legs here - left is thinner than right.

#GoodMemories #LakeDay #AsianMastodon #Teochew #Chinese #PolioSurvivor #Fab40s #scoliosis #osteoporosis #DisabledJoy #Saanich #vanisle

#ThrowbackThursday
My first time enjoying Pease Lake in the Highlands. 2019.
My friend, Lyrica, introduced me to this lake 🥰 We've been back a few times since this day. We took a small inflatable boat out & paddled to far end of lake. There was only 4 other people at lake at other end.
You can see part of my atrophied legs here - left is thinner than right.

#GoodMemories #LakeDay #AsianMastodon #Teochew #Chinese #PolioSurvivor #Fab40s #scoliosis #osteoporosis #DisabledJoy #Saanich #vanisle

It took my very last spoon for the day, but I just finished some work that lets me generate pages for the SpoonStack web site using an Accessible-First Document as the contents of the page, all within my programming tool SwitchBoard.

I am very pleased by this.

#DisabledJoy #DisabilityDrivenDevelopment

I like this silly “Memoji” of me in my FFFP3 mask. It’s cute and reminds me of a time when a mask was so normal, a huge corporation made it a virtual accessory option. The full range of emotions are visible on the little emoji despite the mask. It wasn’t that long ago this was something we did for each other- masking & testing.(continued in comments) #covid #MaskUp #ChronicIllness #DisabilityAwareness #DisabledJoy

Congratulations to this month's winner of the Awesome Foundation Disability grant, Crip Ecstasy! https://www.awesomefoundation.org/en/projects/214795-crip-ecstasy #AwesomeFoundation #DisabledJoy

Congratulations to this month's winner of the Awesome Foundation Disability grant, Crip Ecstasy! https://www.awesomefoundation.org/en/projects/214795-crip-ecstasy #AwesomeFoundation #DisabledJoy

Congratulations to this month's winner of the Awesome Foundation Disability grant, Crip Ecstasy! https://www.awesomefoundation.org/en/projects/214795-crip-ecstasy #AwesomeFoundation #DisabledJoy

Congratulations to this month's winner of the Awesome Foundation Disability grant, Crip Ecstasy! https://www.awesomefoundation.org/en/projects/214795-crip-ecstasy #AwesomeFoundation #DisabledJoy

Congratulations to this month's winner of the Awesome Foundation Disability grant, Crip Ecstasy! https://www.awesomefoundation.org/en/projects/214795-crip-ecstasy #AwesomeFoundation #DisabledJoy

Happy 1 month #ExoSym mobility aid anniversary to me. #DisabledJoy #MobilityAidUser

Guess what guess what!!!! I’m learning to walk without ankle pain! #ExoSym #Prosthetic #Orthotic #DisabledJoy

CW Eye contact selfie

#introductions No.2 - Searchable post of hashtags I am about, for the purposes of making new connections on here :moji14:​

#DisabilityJustice #ACAB #NEISvoid #RaiseTheRate #DeepEcology #LandBack #TreatyNow #DisabledJoy #ChronicPain #NeuroSpicy #Neurodivergent #Poetry #houseplants #SnailMail #PenPal #PaperCraft #BlackLivesMatter #Hypermobility #TransRights #Queer #QueerJoy #nonbinary #CatParent #TraumaInformed #Permaculture #BrainFog #Writers #PlantBasedRecipes #FatJoy #FatEmpowerment #FatAcceptance #ProChoice #mspec #ChildrensRights #FatLiberation #ChildrensLiberation #DisabledQueer #DisabledLiberation #MelbourneQueer #ArtsAndCulture

#introductions No.2 - Searchable post of hashtags I am about, for the purposes of making new connections on here :moji14:​

#DisabilityJustice #ACAB #NEISvoid #RaiseTheRate #DeepEcology #LandBack #TreatyNow #DisabledJoy #ChronicPain #NeuroSpicy #Neurodivergent #Poetry #houseplants #SnailMail #PenPal #PaperCraft #BlackLivesMatter #Hypermobility #TransRights #Queer #QueerJoy #nonbinary #CatParent #TraumaInformed #Permaculture #BrainFog #Writers #PlantBasedRecipes #FatJoy #FatEmpowerment #FatAcceptance #ProChoice #mspec #ChildrensRights #FatLiberation #ChildrensLiberation #DisabledQueer #DisabledLiberation #MelbourneQueer #ArtsAndCulture

#introductions No.2 - Searchable post of hashtags I am about, for the purposes of making new connections on here :moji14:​

#DisabilityJustice #ACAB #NEISvoid #RaiseTheRate #DeepEcology #LandBack #TreatyNow #DisabledJoy #ChronicPain #NeuroSpicy #Neurodivergent #Poetry #houseplants #SnailMail #PenPal #PaperCraft #BlackLivesMatter #Hypermobility #TransRights #Queer #QueerJoy #nonbinary #CatParent #TraumaInformed #Permaculture #BrainFog #Writers #PlantBasedRecipes #FatJoy #FatEmpowerment #FatAcceptance #ProChoice #mspec #ChildrensRights #FatLiberation #ChildrensLiberation #DisabledQueer #DisabledLiberation #MelbourneQueer #ArtsAndCulture