#sysreview — Public Fediverse posts

Useful proposal for a critical appraisal tool for Delphi studies
https://www.bmj.com/content/391/bmj-2025-084509

Ironically, the proposed tool was developed w/o consultation, #SysReview, or consensus methods.

Opportunity to point to a very good reporting guideline for Delphi studies:
https://pubmed.ncbi.nlm.nih.gov/35718726/

A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
https://bmjpublichealth.bmj.com/content/4/1/e004156

Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇

#HRQOL #Psychometrics #PatientCentered

Quality Assessment of Diagnostic Test Accuracy Studies

QUADAS-3 published:
https://pubmed.ncbi.nlm.nih.gov/41698208/

__Key changes from QUADAS-2__

introduction of an 'ideal test accuracy trial'

assessment at the estimate rather than study level

"Flow and Timing" domain replaced with an "Analysis" domain

sections on the rationale for judgments

introduction of a judgment of #RiskOfBias and concerns regarding applicability

#Psychometrics #SysReview #RoB

We* investigated how QoL/ #HRQoL instruments were used as outcome measures in substance and behavioural addictions. We found similar issues as this team regarding wide variety of measures, lack of theory, and issues around methodological quality:
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717

#SysReview #Psychometrics

Brittany Lapin and I edited* the joint publication of the PRISMA-COSMIN guidelines for Outcome Measurement Instruments 2024 in four journals last year:
https://pubmed.ncbi.nlm.nih.gov/38980635/

It is great to see that this is now also accompanied by table templates for communication of results
https://link.springer.com/article/10.1007/s11136-025-04058-y

#NightshiftEditor #ReportingGuidelines #AcademicPublishing #SysReview #Psychometrics
* https://osf.io/preprints/osf/ukw93_v1

Brittany Lapin and I edited* the joint publication of the PRISMA-COSMIN guidelines for Outcome Measurement Instruments 2024 in four journals last year:
https://pubmed.ncbi.nlm.nih.gov/38980635/

It is great to see that this is now also accompanied by table templates for communication of results
https://link.springer.com/article/10.1007/s11136-025-04058-y

#NightshiftEditor #ReportingGuidelines #AcademicPublishing #SysReview #Psychometrics
* https://osf.io/preprints/osf/ukw93_v1

Busy week, I have not much posted from #RSS2025. This will follow in the next days.

For now, I enjoyed chatting with Robert Grant and am reading his co-authored book "Bayesian #MetaAnalysis" which he kindly gave me a copy of 🙇
http://www.robertgrantstats.co.uk/bma-book.html

I am always looking combinations of unusual and cross-cutting themes for teaching/ training, so I'll do a parallel read with #MixtureModels in this area: https://link.springer.com/chapter/10.1007/978-3-540-68651-4_7

#SysReview #SystematicReview #Bayes

First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.

Currently available from this work #SysReview -s on
https://www.sciencedirect.com/science/article/pii/S0376871619300626?via%3Dihub
and work on #HRQoL assessment
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717

#SARN #SubstanceUse #Scotland

A #SysReview of quality of life and #HRQoL instruments used in trials of interventions for adults with alcohol use disorder:
https://www.jsatjournal.com/article/S2949-8759(25)00172-9/fulltext

One of the interesting findings:
Although the team focused on the most frequently used instruments they found only very few studies reporting psychometric properties in this population.

This mirrors findings from our broader #SysReview of #HRQL as an outcome in substance and behavioural addictions
https://pubmed.ncbi.nlm.nih.gov/37439397/

#Psychometrics #Validity

This #SysReview suggests that medical #crowdfunding is less a tool for mitigating health disparities, but rather reproduces existing #HealthInequity.

Individuals who face structural barriers to healthcare access often have the greatest financial need but the least capacity to launch successful campaigns.

https://equityhealthj.biomedcentral.com/articles/10.1186/s12939-025-02543-x

#GlobalHealth

A #SysReview (24 studies) synthesises evidence around the impact of adopting different perspectives when valuing child & adolescent #HRQL
https://link.springer.com/article/10.1007/s40273-025-01493-0

Results show that differences in mean values arise with different perspectives on severe child #HealthStates. These differences are influenced by factors such as health state severity and valuation method. Uncertainty remains regarding the optimal choice of preference elicitation and anchoring methods.

#HealthEconomics

Core outcome sets for trials of interventions to prevent and to treat #multimorbidity in adults in low and middle-income countries
https://gh.bmj.com/content/9/8/e015120.info

In the works since early 2020 w #SysReview, 50 qualitative interviews in 10 countries, Delphi study & consensus meetings.

Enormous thanks to all who made this possible!🙇

Summary of core outcomes 👇 incl. earlier seminal #COSmm work in #HIC.

#GlobalHealth #Multimorbidity #HRQL #LMIC

One of my PhD students is currently conducting a #SysReview and found within their ~6.3k screening hits seven retracted papers.
❤️ #Zotero #RetractionWatch

Stated retraction reason:

3x integrity of journal or #PeerReview (Hindawi)

2x errors & update published

1x error & no update published

1x no ethics approval

As already with errata / corrigenda, this is extremely heterogeneous and not all retractions are equal.

#ErrorCulture #PublicationEthics #AcademicPublishing #AcademicChatter

Quality of Life Research 05-2024

https://link.springer.com/journal/11136/volumes-and-issues/33-5

#ISOQOL

#HRQL of people w heart failure in #LMICs

https://rdcu.be/dF2sX

#SysReview

#QOL of people living w mental illness in Africa

https://link.springer.com/article/10.1007/s11136-023-03525-8

#SysReview #SMI #Multimorbidity

#NightshiftEditor seven issues to go...

Working on a #SystematicReview and #metaanalysis 🌪️
I have a basic problem with 'esc' package

When I want convert (un)standardized beta to r, I can't use vectors with esc_beta or esc_B , but it is ok if I convert beta in d or g.

I want convert numerous Beta in r.

Ideas ? :rickroll:

#rstats #meta #academia #research #SysReview

Quality of Life Research 03-2024
https://link.springer.com/journal/11136/volumes-and-issues/33-3, incl.

A #SysReview of #HRQL in emergency laparotomy #RCTs
https://link.springer.com/article/10.1007/s11136-023-03531-w

comparison of @promisNIH 29/global physical and #MentalHealth scores
https://link.springer.com/article/10.1007/s11136-023-03559-y

and using unsupervised IRT models for assessing sample heterogeneity
https://link.springer.com/article/10.1007/s11136-023-03560-5
#Psychometrics

A #SysReview (n=16 studies) of #multimorbidity patterns in #PrimaryCare electronic health records shows #MentalIllness and cardiovascular patterns in all studies, and other patterns relating to musculoskeletal, respiratory, and gastrointestinal diseases in some studies:
https://journals.sagepub.com/doi/full/10.1177/26335565231223350

It is likely due to the type of data used, but the included studies are only from seven countries (and only one MIC).

#GlobalHealth

A very good piece of news that came just in time for Christmas:

Andrew Dyer, whom I had the honour of co-supervising at #QUBPsych, has defended his PhD! 🎉

If you want to have a first peek at his work on alcohol and #HRQL, you can have a look at this #SysReview that was published earlier this year:
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717

#QUBelfast #DundeeUni

You would like to engage with #ISOQOL conference content?

How about reading the 2022 article of the year finalists?

1) Association btw 24h movement behaviors and #HRQL in children
rdcu.be/dpqJY
#Winner 🎉

2) Perceived benefits and limitations of using patient‑reported outcome measures in clinical practice with individual patients
rdcu.be/dpqKK
#Feedback #SysReview

3) #SocialSupport and HRQL among the oldest old
https://link.springer.com/article/10.1007/s11136-021-03070-2
#AgeQualiDe

In #ISOQOL-s #QualityTALK, Carolyn Schwartz provides an insight into her development as a researcher
https://www.isoqol.org/the-story-behind-the-elephant-in-the-room-a-long-journey-begins-with-a-single-step/

Reflecting on research experiences with people living with Multiple Sclerosis, she realised that what was important to patients did not form a consistent hierarchy of domains for each patient over time. This led her into #ResponseShift research and she discusses her most recent #SysReview on the importance of the phenomenon in #RCTs #Trials:
https://jpro.springeropen.com/articles/10.1186/s41687-022-00510-6

Last week "Quality of Life Research" published 6 papers:
https://link.springer.com/journal/11136/online-first #ISOQOL

For example,

A #SysReview showing widespread use of #PreferenceBased measures in studies w Indigenous people, but little evidence on their measurement properties
https://link.springer.com/article/10.1007/s11136-023-03499-7 #EQ5D

A comparative assessment of such measures in China
https://link.springer.com/article/10.1007/s11136-023-03512-z

And the elicitation of a #ValueSet for the Swedish Capability-Adjusted Life Years instrument
https://link.springer.com/article/10.1007/s11136-023-03507-w #TTO

#HealthEconomics

A #SysReview from the "#ResponseShift – in Sync Working Group" analysed 150 studies
https://link.springer.com/article/10.1007/s11136-023-03495-x

Apart from the interest in the psychological phenomenon, the relative size of such effects compared to intervention effects (e.g., in #RCT https://link.springer.com/article/10.1186/s41687-022-00510-6) is very important for #StudyDesign in #HRQL research (see also https://doi.org/10.1007/s11136-023-03347-8).

Therefore an interesting descriptive finding: it was possible only for 105 of these studies to calculate #EffectSize-s.

#Psychometrics

Fifty-nine studies were included in this #SysReview on the costs of #Multimorbidity
https://link.springer.com/article/10.1186/s12916-022-02427-9

i) annual costs of per person ranged from I$*800 to I$150,000

ii) increased country GDP per capita was associated with higher costs

iii) morbidity-dyads including #MentalHealth conditions are among the most costly (I$36,840)

Important future research: The included studies mostly focused on direct costs and #HighIncome countries.

*I$ 2021 International Dollars

Last week "Quality of Life Research" published 7 papers:
https://link.springer.com/journal/11136/online-first #ISOQOL

For example,

effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
https://rdcu.be/diEFn
#India #PalliativeCare

#SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
https://link.springer.com/article/10.1007/s11136-023-03487-x #COSMIN

Estimating the disutility of relapse in #MultipleSclerosis
https://link.springer.com/article/10.1007/s11136-023-03486-y #EQ5D #AQoL #SF6D

What can #psychometrics offer for #CrossCultural research? Why is simply translating questionnaires rarely enough for international research efforts?

#SysReview published last week excellently illustrates the #interdisciplinary problems:
https://onlinelibrary.wiley.com/doi/full/10.1111/dar.13715 measuring #AlcoholUse

Two other examples I like a lot:
https://pubmed.ncbi.nlm.nih.gov/26319270/ in #Dementia
and
https://www.pnas.org/doi/10.1073/pnas.1721166115 for broader #BehaviouralScience issues.

#TranslationIsNotEnough #HRQL #GlobalHealth #GlobalMentalHealth

August issue of Quality of Life Research:
https://link.springer.com/journal/11136/volumes-and-issues/32-8

It opens w #SysReview-s of assessing #HRQL
in people living w bladder cancer (https://link.springer.com/article/10.1007/s11136-022-03335-4)
and impact of urinary tract infections (https://link.springer.com/article/10.1007/s11136-023-03358-5).

Also:

#ISOQOL comment on #FDA draft guidance on core patient-reported outcomes in cancer #RCT-s
https://link.springer.com/article/10.1007/s11136-023-03396-z

Ethical and practical issues of data sharing in care-based child health research
https://link.springer.com/article/10.1007/s11136-023-03393-2 #ResearchEthics

+20 more

Routine outcome data are a valuable source of evidence.

Using the REporting of studies Conducted using Observational Routinely-collected health Data statement this #SysReview finds that the reporting quality was largely not great:
https://bmcmedresmethodol.biomedcentral.com/articles/10.1186/s12874-023-01960-2

The use of #ReportingGuidelines will not improve the study (if only used at writing stage). But readers will be in a much better position to understand the research!

* https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001885
#STROBE

I moderated a panel on "Measuring in ways that matter: Leveraging content and context in outcome assessments" at #SPRDublin2023.

Effects of an ecological momentary intervention for early intervention
https://academic.oup.com/schizophreniabulletin/article/49/3/592/7026043
#RCT #EMIcompass

Response compliance in ecological momentary assessment research in borderline personality disorder
https://jmir.org/2023/1/e44853
#MetaAnalysis

What works for whom in goal setting with young people?
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-022-00879-5

#HRQL #Psychometrics #SysReview

Quality of Life Research, July issue published:
https://link.springer.com/journal/11136/volumes-and-issues/32-7
#ISOQOL #HRQL

Opened by a #SysReview of instruments measuring the quality of dying and death in Asian countries:
https://rdcu.be/ddRIE
#COSMIN #EndOfLifeCare

the issue features several pieces on properties of various instruments in different contexts and versions, e.g.,

#EQ5D
https://link.springer.com/article/10.1007/s11136-023-03372-7

#EORTC https://link.springer.com/article/10.1007/s11136-023-03373-6

#PROCTCAE
https://link.springer.com/article/10.1007/s11136-023-03374-5

In #ISOQOL's #QualityTALK newsletter:
Quality of Life Research's 3 most downloaded papers (published in 2019-21) in 2021, titles & links:

1) A #SysReview of quality of life research in medicine and #HealthSciences:
https://link.springer.com/article/10.1007/s11136-019-02214-9

2) Quality of life under the COVID-19 quarantine:
https://rdcu.be/c97dV

3) The impact of lockdown during the COVID-19 pandemic on #MentalHealth and SocialHealth of children and adolescents:
https://link.springer.com/article/10.1007/s11136-021-02861-x

More:
https://www.isoqol.org/news-from-quality-of-life-research-2023/

#HRQL