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#eq5d — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #eq5d, aggregated by home.social.

  1. Jan R. Boehnke @[email protected] ·

    The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
    link.springer.com/article/10.1

    #PPIE #PatientCentered #HRQOL

    #eq5d #ppie #patientcentered #hrqol
  2. Jan R. Boehnke @[email protected] ·

    I really enjoy reading the expanding literature on #invariance of #ValueSets. Two interesting papers and a taxonomy regarding #obsolescence

    1- link.springer.com/article/10.1

    2- sciencedirect.com/science/arti

    3- link.springer.com/article/10.1

    "As time and methods advance, the bedrock of applied valuation research naturally becomes increasingly unreliable, and, as a field, we need to consider how to approach this challenge."

    #HealthEconomics
    #EQ5D #Psychometrics

    #invariance #valuesets #obsolescence #healtheconomics #eq5d #psychometrics
  3. Jan R. Boehnke @[email protected] ·

    Investigating functioning of the #EQ5D -Y-5L in five countries shows that participants can differentiate ordinal response levels, but that measurement quality and scaling functions differ by country and age:
    sciencedirect.com/science/arti

    Since this is conceptually similar to violations of invariance in other measurement models, I wonder whether the #utility #valuation literature needs a more formal framework for this and whether #Psychometrics might help with this?

    #HRQL #HealthEconomics

    #eq5d #utility #valuation #psychometrics #hrql #healtheconomics
  4. Jan R. Boehnke @[email protected] ·

    Perspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon:
    link.springer.com/article/10.1

    #HRQL #PatientCentered #EQ5D #FeedbackSystems

    #hrql #patientcentered #eq5d #feedbacksystems
  5. Jan R. Boehnke @[email protected] ·

    Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
    isoqol.org/news-from-quality-o

    The last annual update I will be involved in... 😅👋

    #ISOQOL #HRQL #HealthEconomics #Psychometrics
    #EQ5D #COSMIN #PROMIS

    #isoqol #hrql #healtheconomics #psychometrics #eq5d #cosmin
  6. Jan R. Boehnke @[email protected] ·

    New paper out, great collaboration w former #UniOfYork colleague Tom Patton:
    link.springer.com/article/10.1

    We harmonized data from #SF12 and #EQ5D using data from the 2000-2001-2003 Medical Expenditure Panel Surveys. We then analysed data from 6 trials (N=1,777 ppl living with opioid use disorder).

    Key among multiple findings:
    the inclusion of people with lived experience and the measurement of withdrawal symptoms and anhedonia could improve cost-effectiveness models

    #Rstats #HealthEconomics #HRQL

    #uniofyork #sf12 #eq5d #rstats #healtheconomics #hrql
  7. Jan R. Boehnke @[email protected] ·

    The EuroQol foundation's May publication summary included a paper from Quality of Life Research:

    Using registry data in Germany, the team investigates #HRQL of adults with spinal muscular atrophy:
    rdcu.be/dM5h2

    The other included papers were:

    link.springer.com/article/10.1

    valueinhealthjournal.com/artic

    valueinhealthjournal.com/artic

    #EQ5D #HealthEconomics

    #hrql #eq5d #healtheconomics
  8. Jan R. Boehnke @[email protected] ·

    Looking for a #WeekendRead?
    Quality of Life Research 04-2024
    link.springer.com/journal/1113
    #ISOQOL

    For example a #ScopingReview of biopsychosocial factors of #HRQL in individuals with traumatic brain injury
    link.springer.com/article/10.1

    Disability-free life expectancy after a #stroke in a South Korean cohort (11yr horizon)
    rdcu.be/dCLug

    Association of exacerbations in patients with #COPD with #HRQL
    link.springer.com/article/10.1
    #EQ5D

    and much more 😊📰📚

    #weekendread #isoqol #scopingreview #hrql #stroke #copd
  9. Jan R. Boehnke @[email protected] ·

    Population norms for the #EQ5D-5L in Australia (age >18 yrs), quota sample from an online panel (n = 9,958):
    rdcu.be/dzyuW

    The average index value was 0.86 (SD=0.19), and VAS score 73.2 (SD=21.7), with 23.9% reporting 11111 health state.

    #HealthEconomics #HRQL

    #eq5d #healtheconomics #hrql
  10. Jan R. Boehnke @[email protected] ·

    #ISOQOL content that conference attendees liked on other platforms:

    Julie Ratcliffe presented among other things on their work including insights from the application of #EyeTracking technology when filling out the #EQ5D
    link.springer.com/article/10.1

    🔥For papers published in Quality of Life Research in 2023, this is so far the most accessed paper!🥳

    #HealthEconomics #HRQL #Psychometrics

    #isoqol #eyetracking #eq5d #healtheconomics #hrql #psychometrics
  11. Jan R. Boehnke @[email protected] ·

    A study investigating the #FaceValidity of four #preference weighted #HRQL measures in residential aged care shows a range of issues related to comprehensibility and questionnaire construction:
    link.springer.com/article/10.1

    #EQ5D #ASCOT #HealthEconomics #Psychometrics

    #facevalidity #preference #hrql #eq5d #ascot #healtheconomics
  12. Jan R. Boehnke @[email protected] ·

    One publication from Quality of Life Research was mentioned in the #EuroQol Group's September selection:

    The study investigated #EQ5D response heterogeneity assoc w respondents' focus on past, present & future (time perspective):
    link.springer.com/article/10.1

    #HRQL #HealthEconomics #ISOQOL #ResponseBehaviour

    #euroqol #eq5d #hrql #healtheconomics #isoqol #responsebehaviour
  13. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 6 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    A #SysReview showing widespread use of #PreferenceBased measures in studies w Indigenous people, but little evidence on their measurement properties
    link.springer.com/article/10.1 #EQ5D

    A comparative assessment of such measures in China
    link.springer.com/article/10.1

    And the elicitation of a #ValueSet for the Swedish Capability-Adjusted Life Years instrument
    link.springer.com/article/10.1 #TTO

    #HealthEconomics

    #isoqol #sysreview #preferencebased #eq5d #valueset #tto
  14. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #isoqol #aqol #eq5d #wellbeing #hiv #hrql
  15. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #isoqol #cancer #india #palliativecare #sysreview #hrql
  16. Jan R. Boehnke @[email protected] ·

    I was glad to see that this recent paper published with QLR using Māori-specific data from a nationwide health-related quality of life survey received some media attention:
    link.springer.com/article/10.1

    According to these media sources, it sheds an important light on the extent of inequities in Aotearoa me Te Waipounamu.

    #NewZealand #HRQL #EQ5D

    #newzealand #hrql #eq5d
  17. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 6 papers:
    link.springer.com/journal/1113

    For example,
    the use of #EyeTracking technology to investigate use of the #EQ5D
    link.springer.com/article/10.1

    the Norwegian Fatigue Characteristics and Interference Measure for #stroke survivors
    link.springer.com/article/10.1 #Rasch #Psychometrics

    and social factors of health-related quality of life in older adults
    link.springer.com/article/10.1

    #HRQL

    #isoqol #eyetracking #eq5d #stroke #rasch #psychometrics
  18. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 5 papers:
    link.springer.com/journal/1113

    For example,

    after adjusting covariates, falls of elderly predicted #EQ5D outcomes
    rdcu.be/dgpHH

    finding notable differences in #HRQL at new diagnosis of advanced prostate cancer for Black and White individuals
    rdcu.be/dgpH5

    comparing latent variable & network models in #PROMIS data
    rdcu.be/dgpH8
    #Psychometrics

    #isoqol #eq5d #hrql #promis #psychometrics
  19. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 3 articles:
    link.springer.com/journal/1113

    Development & evaluation of a measure of #COVID-related psychosocial experiences in US cancer survivors
    rdcu.be/df0NV
    #Psychometrics

    How do older adults receiving aged care services understand & respond to the #EQ5D?
    link.springer.com/article/10.1
    #ResidentialCare

    Indications for the identification of patients with advanced #cancer who require additional supportive care
    link.springer.com/article/10.1

    #HRQL

    #isoqol #covid #psychometrics #eq5d #residentialcare #cancer
  20. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 10 articles:
    link.springer.com/journal/1113

    For example:
    Use of a multi-component design in questionnaire development:
    rdcu.be/dfkXK
    #Psychometrics

    #HRQL among people who inject drugs:
    link.springer.com/article/10.1
    #HealthEconomics #EQ5D

    And an evaluation of how to capture aspects of quality of life important to #InformalCarers:
    link.springer.com/article/10.1

    #isoqol #psychometrics #hrql #healtheconomics #eq5d #informalcarers
  21. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 articles:

    Alternative data collection methods for resource use and #HRQL (#CHU9D #EQ5d) in the context of appendicitis in children
    link.springer.com/article/10.1
    #HealthEconomics #HTA

    Association btw cognitive impairment & HRQL in a sample of older Australians (HILDA survey)
    link.springer.com/article/10.1

    Evidence gap map of interventions for people living w skeletal dysplasias
    link.springer.com/article/10.1

    Online first articles:
    link.springer.com/journal/1113
    #ISOQOL

    #hrql #chu9d #eq5d #healtheconomics #hta #isoqol
  22. Jan R. Boehnke @[email protected] ·

    Quality of Life Research, July issue published:
    link.springer.com/journal/1113
    #ISOQOL #HRQL

    Opened by a #SysReview of instruments measuring the quality of dying and death in Asian countries:
    rdcu.be/ddRIE
    #COSMIN #EndOfLifeCare

    the issue features several pieces on properties of various instruments in different contexts and versions, e.g.,

    #EQ5D
    link.springer.com/article/10.1

    #EORTC link.springer.com/article/10.1

    #PROCTCAE
    link.springer.com/article/10.1

    #isoqol #hrql #sysreview #cosmin #endoflifecare #eq5d
  23. Jan R. Boehnke @[email protected] ·

    Last week was very busy at Quality of Life Research.

    First, our April issue was published:
    link.springer.com/journal/1113
    #TTO #EQ5D #Psychometrics #Epidemiology

    Second, the Proceedings of the 6th National Patient Reported Outcome Measures (PROMs) Annual UK Research Virtual #Conference 2022 were published:
    link.springer.com/article/10.1

    And the May issue with the #SpecialSection on #MeaningfulChange was published
    link.springer.com/journal/1113
    But there will be more on this in a separate post next week!

    #HRQL

    #tto #eq5d #psychometrics #epidemiology #conference #specialsection
  24. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 7 articles:
    link.springer.com/journal/1113

    For example:

    Describing #HRQL of Māori adults in Aotearoa me Te Waipounamu w data from the NZ #EQ5D valuation study:
    link.springer.com/article/10.1

    Interviews w 35 executives of US healthcare organizations regarding
    #ImplementationScience of #PROMs:
    rdcu.be/c7045
    #Feedback

    What matters to residents of Australian aged care facilities pre- & mid-pandemic?
    link.springer.com/article/10.1
    #QualitativeMethods

    #isoqol #hrql #eq5d #implementationscience #proms #feedback
  25. Jan R. Boehnke @[email protected] ·

    Canadian population norms for the #EQ5D-5L:
    link.springer.com/article/10.1 or here
    rdcu.be/c6Uuh

    The discussion section offers a good comparison to other norming studies.

    The TTO study for the accompanying value set was published here:
    journals.lww.com/lww-medicalca

    #HRQL #HealthEconomics

    #eq5d #hrql #healtheconomics
  26. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 6 articles:
    link.springer.com/journal/1113

    For example:

    What happens if you split the #EQ5D #Depression / #Anxiety item into two?
    link.springer.com/article/10.1
    #Psychometrics
    Maybe good accompaniment, bolt-ons for the EQ-5D:
    link.springer.com/article/10.1

    A qualitative study of the impacts of necrotizing soft tissue infections, highlighting the extensive impact this disease can have on survivors’ families:
    link.springer.com/article/10.1

    #HRQL

    #isoqol #eq5d #depression #anxiety #psychometrics #hrql
  27. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 4 articles:
    link.springer.com/journal/1113

    For example:

    #HRQL in 7 European countries from 9 quarterly waves collected between April 2020 and January 2022 throughout the course of the #COVID19 pandemic:
    link.springer.com/article/10.1

    "Fixed effects regressions showed that in particular occurrence of infection was associated with problems in all #EQ5D dimensions and a reduction in EQ VAS score as well as EQ-5D-5L index."

    #isoqol #hrql #covid19 #eq5d
  28. Jan R. Boehnke @[email protected] ·

    I was just reminded of this useful #Rstats resource for #HealthEconomics & #HRQL research:
    The -eq5d- package
    cran.r-project.org/web/package

    "Frequently the scores on the five dimensions of the #EQ5D are converted to a single utility index using country specific value sets, which can be used in the clinical and economic evaluation of health care as well as in population health surveys. The eq5d package provides methods to calculate index scores from a subject's dimension scores."

    #rstats #healtheconomics #hrql #eq5d