#qualitytalk — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #qualitytalk, aggregated by home.social.
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Newsletter reporting Quality of Life Research awards and statistics from 2022
https://www.isoqol.org/news-from-quality-of-life-research-2024/We (+ Brittany Lapin, Richard Skolasky) are immensely grateful to all authors submitting, our team of associate editors, and everyone else supporting the journal (e.g., peer-review, language editing)!
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Explore research from #ISOQOL23, abstracts now published:
https://rdcu.be/dr2hGHave also a look at the October issue of #ISOQOL #QualityTALK, which highlights ten of the presentations:
https://www.isoqol.org/qualitytalk-18-october-2023/#HRQL #Psychometrics #HealthEconomics #PatientCentered
Edit: spelling hashtag -
In #ISOQOL-s #QualityTALK, Carolyn Schwartz provides an insight into her development as a researcher
https://www.isoqol.org/the-story-behind-the-elephant-in-the-room-a-long-journey-begins-with-a-single-step/Reflecting on research experiences with people living with Multiple Sclerosis, she realised that what was important to patients did not form a consistent hierarchy of domains for each patient over time. This led her into #ResponseShift research and she discusses her most recent #SysReview on the importance of the phenomenon in #RCTs #Trials:
https://jpro.springeropen.com/articles/10.1186/s41687-022-00510-6 -
Members of #ISOQOL_CP discuss in #QualityTALK #ImplementationScience for #HRQL research:
https://www.isoqol.org/why-proms-in-clinical-practice-matter-an-introduction-to-the-clinical-practice-special-interest-group/IS acknowledges dynamic relationships between individual clinicians and the wider context of the intervention (e.g., organizational context, structures, patient engagement). It is highly useful for developing PROMs and #FeedbackSystems.
The group published five articles explaining these ideas in more detail in our #FeedbackTools special issue:
https://link.springer.com/journal/11136/volumes-and-issues/30-11 -
Members of #ISOQOL_CP discuss in #QualityTALK #ImplementationScience for #HRQL research:
https://www.isoqol.org/why-proms-in-clinical-practice-matter-an-introduction-to-the-clinical-practice-special-interest-group/IS acknowledges dynamic relationships between individual clinicians and the wider context of the intervention (e.g., organizational context, structures, patient engagement). It is highly useful for developing PROMs and #FeedbackSystems.
The group published five articles explaining these ideas in more detail in our #FeedbackTools special issue:
https://link.springer.com/journal/11136/volumes-and-issues/30-11 -
Members of #ISOQOL_CP discuss in #QualityTALK #ImplementationScience for #HRQL research:
https://www.isoqol.org/why-proms-in-clinical-practice-matter-an-introduction-to-the-clinical-practice-special-interest-group/IS acknowledges dynamic relationships between individual clinicians and the wider context of the intervention (e.g., organizational context, structures, patient engagement). It is highly useful for developing PROMs and #FeedbackSystems.
The group published five articles explaining these ideas in more detail in our #FeedbackTools special issue:
https://link.springer.com/journal/11136/volumes-and-issues/30-11 -
In #ISOQOL-s most recent #QualityTALK, a team argues that while such a modular approach has advantages, it complicates the decision of choosing a PROM. The selection should take account of the overall trial objectives and context (e.g., see #ISOQOL, #SPIRITPRO, #SISAQOL) and involve all relevant stakeholders.
https://www.isoqol.org/implementing-the-fdas-draft-guidance-on-core-pros-in-cancer-trials-the-challenge-of-a-modular-approach/Link to ISOQOL's perspective: https://www.isoqol.org/wp-content/uploads/2023/07/ISOQOL-R_HE-SIG-Comments-on-PFDD-Draft-Guidance-4_Final.pdf
and a commentary presenting the position:
https://link.springer.com/article/10.1007/s11136-023-03396-z -
In #ISOQOL's #QualityTALK newsletter:
Quality of Life Research's 3 most downloaded papers in 2021, titles & links:1) A systematic review of quality of life research in medicine and health sciences
https://link.springer.com/article/10.1007/s11136-019-02214-92) Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)
https://rdcu.be/c99kl3) Quality of life under the COVID-19 quarantine
https://rdcu.be/daaD4More:
https://www.isoqol.org/news-from-quality-of-life-research-2023/ -
In #ISOQOL's #QualityTALK newsletter:
Quality of Life Research's 3 most downloaded papers (published in 2019-21) in 2021, titles & links:1) A #SysReview of quality of life research in medicine and #HealthSciences:
https://link.springer.com/article/10.1007/s11136-019-02214-92) Quality of life under the COVID-19 quarantine:
https://rdcu.be/c97dV3) The impact of lockdown during the COVID-19 pandemic on #MentalHealth and SocialHealth of children and adolescents:
https://link.springer.com/article/10.1007/s11136-021-02861-xMore:
https://www.isoqol.org/news-from-quality-of-life-research-2023/