#isoqol — Public Fediverse posts

Webpage live for the

10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conference

The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026

#HRQOL #PatientCentered #ISOQOL

Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2

Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035

#Psychometrics #HRQOL

Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIE

The aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.

#ISOQOL #HRQOL #PatientCentered #Psychometrics

Members of the #ISOQOL_CP and #ISOQOL_PE discuss three case studies from the UK, USA, Australia collated to explore how adherence to PROMs can be evaluated and understood
https://link.springer.com/article/10.1007/s11136-023-03505-y

Focusing on #HelthCare systems, patients, clinical teams, and #QualityImprovement in measurement, the authors derive nine key recommendations for future research and practice (Table 3):
https://link.springer.com/article/10.1007/s11136-023-03505-y/tables/3

#ISOQOL #FeedbackSystems #PatientCentered #Psychometrics