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#isoqol — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #isoqol, aggregated by home.social.

  1. Jan R. Boehnke @[email protected] ·

    Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

    #scharr #hrqol #patientcentered #isoqol
  2. Jan R. Boehnke @[email protected] ·

    Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

    #isoqol #preprint #psychometrics #hrqol
  3. Jan R. Boehnke @[email protected] ·

    Roughly 2 weeks left to submit to JPRO's #SpecialIssue
    "Patient and Public Involvement and Engagement"
    springeropen.com/collections/P
    #PPIE

    The aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.

    #ISOQOL #HRQOL #PatientCentered #Psychometrics

    #specialissue #ppie #isoqol #hrqol #patientcentered #psychometrics
  4. Jan R. Boehnke @[email protected] ·

    Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
    isoqol.org/news-from-quality-o

    The last annual update I will be involved in... 😅👋

    #ISOQOL #HRQL #HealthEconomics #Psychometrics
    #EQ5D #COSMIN #PROMIS

    #isoqol #hrql #healtheconomics #psychometrics #eq5d #cosmin
  5. Jan R. Boehnke @[email protected] ·

    Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
    isoqol.org/news-from-quality-o

    The last annual update I will be involved in... 😅👋

    #ISOQOL #HRQL #HealthEconomics #Psychometrics
    #EQ5D #COSMIN #PROMIS

    #isoqol #hrql #healtheconomics #psychometrics #eq5d #cosmin
  6. Jan R. Boehnke @[email protected] ·

    Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
    isoqol.org/news-from-quality-o

    The last annual update I will be involved in... 😅👋

    #ISOQOL #HRQL #HealthEconomics #Psychometrics
    #EQ5D #COSMIN #PROMIS

    #promis #cosmin #eq5d #psychometrics #healtheconomics #hrql
  7. Jan R. Boehnke @[email protected] ·

    The #PrismaCosmin #guideline
    was published jointly in Quality of Life Research, J of Patient Reported Outcomes, Health and Quality of Life Outcomes & J of Clinical Epidemiology.

    As lead editors, Brittany Lapin and I offer some thoughts on content, process, and future
    osf.io/preprints/osf/ukw93

    #PRISMA #Psychometrics #HRQL #ISOQOL

    The four versions of the guidelines are published here:
    link.springer.com/article/10.1

    jpro.springeropen.com/articles

    hqlo.biomedcentral.com/article

    sciencedirect.com/science/arti

    #prismacosmin #guideline #prisma #psychometrics #hrql #isoqol
  8. Jan R. Boehnke @[email protected] ·

    Looking for a #WeekendRead?
    Quality of Life Research 04-2024
    link.springer.com/journal/1113
    #ISOQOL

    For example a #ScopingReview of biopsychosocial factors of #HRQL in individuals with traumatic brain injury
    link.springer.com/article/10.1

    Disability-free life expectancy after a #stroke in a South Korean cohort (11yr horizon)
    rdcu.be/dCLug

    Association of exacerbations in patients with #COPD with #HRQL
    link.springer.com/article/10.1
    #EQ5D

    and much more 😊📰📚

    #weekendread #isoqol #scopingreview #hrql #stroke #copd
  9. Jan R. Boehnke @[email protected] ·

    Looking for a #WeekendRead?
    Quality of Life Research 04-2024
    link.springer.com/journal/1113
    #ISOQOL

    For example a #ScopingReview of biopsychosocial factors of #HRQL in individuals with traumatic brain injury
    link.springer.com/article/10.1

    Disability-free life expectancy after a #stroke in a South Korean cohort (11yr horizon)
    rdcu.be/dCLug

    Association of exacerbations in patients with #COPD with #HRQL
    link.springer.com/article/10.1
    #EQ5D

    and much more 😊📰📚

    #weekendread #isoqol #scopingreview #hrql #stroke #copd
  10. Jan R. Boehnke @[email protected] ·

    Looking for a #WeekendRead?
    Quality of Life Research 04-2024
    link.springer.com/journal/1113
    #ISOQOL

    For example a #ScopingReview of biopsychosocial factors of #HRQL in individuals with traumatic brain injury
    link.springer.com/article/10.1

    Disability-free life expectancy after a #stroke in a South Korean cohort (11yr horizon)
    rdcu.be/dCLug

    Association of exacerbations in patients with #COPD with #HRQL
    link.springer.com/article/10.1
    #EQ5D

    and much more 😊📰📚

    #eq5d #copd #stroke #hrql #scopingreview #isoqol
  11. Jan R. Boehnke @[email protected] ·

    Looking for a #WeekendRead?
    Quality of Life Research 04-2024
    link.springer.com/journal/1113
    #ISOQOL

    For example a #ScopingReview of biopsychosocial factors of #HRQL in individuals with traumatic brain injury
    link.springer.com/article/10.1

    Disability-free life expectancy after a #stroke in a South Korean cohort (11yr horizon)
    rdcu.be/dCLug

    Association of exacerbations in patients with #COPD with #HRQL
    link.springer.com/article/10.1
    #EQ5D

    and much more 😊📰📚

    #weekendread #isoqol #scopingreview #hrql #stroke #copd
  12. Jan R. Boehnke @[email protected] ·

    #ISOQOL content that conference attendees liked on other platforms:

    Julie Ratcliffe presented among other things on their work including insights from the application of #EyeTracking technology when filling out the #EQ5D
    link.springer.com/article/10.1

    🔥For papers published in Quality of Life Research in 2023, this is so far the most accessed paper!🥳

    #HealthEconomics #HRQL #Psychometrics

    #isoqol #eyetracking #eq5d #healtheconomics #hrql #psychometrics
  13. Jan R. Boehnke @[email protected] ·

    #ISOQOL content that conference attendees liked on other platforms:

    Julie Ratcliffe presented among other things on their work including insights from the application of #EyeTracking technology when filling out the #EQ5D
    link.springer.com/article/10.1

    🔥For papers published in Quality of Life Research in 2023, this is so far the most accessed paper!🥳

    #HealthEconomics #HRQL #Psychometrics

    #isoqol #eyetracking #eq5d #healtheconomics #hrql #psychometrics
  14. Jan R. Boehnke @[email protected] ·

    #ISOQOL content that conference attendees liked on other platforms:

    Julie Ratcliffe presented among other things on their work including insights from the application of #EyeTracking technology when filling out the #EQ5D
    link.springer.com/article/10.1

    🔥For papers published in Quality of Life Research in 2023, this is so far the most accessed paper!🥳

    #HealthEconomics #HRQL #Psychometrics

    #psychometrics #hrql #healtheconomics #eq5d #eyetracking #isoqol
  15. Jan R. Boehnke @[email protected] ·

    One publication from Quality of Life Research was mentioned in the #EuroQol Group's September selection:

    The study investigated #EQ5D response heterogeneity assoc w respondents' focus on past, present & future (time perspective):
    link.springer.com/article/10.1

    #HRQL #HealthEconomics #ISOQOL #ResponseBehaviour

    #euroqol #eq5d #hrql #healtheconomics #isoqol #responsebehaviour
  16. Jan R. Boehnke @[email protected] ·

    One publication from Quality of Life Research was mentioned in the #EuroQol Group's September selection:

    The study investigated #EQ5D response heterogeneity assoc w respondents' focus on past, present & future (time perspective):
    link.springer.com/article/10.1

    #HRQL #HealthEconomics #ISOQOL #ResponseBehaviour

    #euroqol #eq5d #hrql #healtheconomics #isoqol #responsebehaviour
  17. Jan R. Boehnke @[email protected] ·

    One publication from Quality of Life Research was mentioned in the #EuroQol Group's September selection:

    The study investigated #EQ5D response heterogeneity assoc w respondents' focus on past, present & future (time perspective):
    link.springer.com/article/10.1

    #HRQL #HealthEconomics #ISOQOL #ResponseBehaviour

    #responsebehaviour #isoqol #healtheconomics #hrql #eq5d #euroqol
  18. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 6 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    A #SysReview showing widespread use of #PreferenceBased measures in studies w Indigenous people, but little evidence on their measurement properties
    link.springer.com/article/10.1 #EQ5D

    A comparative assessment of such measures in China
    link.springer.com/article/10.1

    And the elicitation of a #ValueSet for the Swedish Capability-Adjusted Life Years instrument
    link.springer.com/article/10.1 #TTO

    #HealthEconomics

    #isoqol #sysreview #preferencebased #eq5d #valueset #tto
  19. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 6 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    A #SysReview showing widespread use of #PreferenceBased measures in studies w Indigenous people, but little evidence on their measurement properties
    link.springer.com/article/10.1 #EQ5D

    A comparative assessment of such measures in China
    link.springer.com/article/10.1

    And the elicitation of a #ValueSet for the Swedish Capability-Adjusted Life Years instrument
    link.springer.com/article/10.1 #TTO

    #HealthEconomics

    #isoqol #sysreview #preferencebased #eq5d #valueset #tto
  20. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 6 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    A #SysReview showing widespread use of #PreferenceBased measures in studies w Indigenous people, but little evidence on their measurement properties
    link.springer.com/article/10.1 #EQ5D

    A comparative assessment of such measures in China
    link.springer.com/article/10.1

    And the elicitation of a #ValueSet for the Swedish Capability-Adjusted Life Years instrument
    link.springer.com/article/10.1 #TTO

    #HealthEconomics

    #healtheconomics #tto #valueset #eq5d #preferencebased #sysreview
  21. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 5 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    Evaluating different versions of the #WHODAS to measure disability in #MultipleSclerosis
    link.springer.com/article/10.1 #RaschModel #Psychometrics

    A longitudinal analysis of #multimorbidity and #HRQL amongst Indigenous Australians
    link.springer.com/article/10.1 #HILDA

    HRQL in people with Hepatitis C virus after treatment w direct-acting antivirals
    rdcu.be/djWrJ

    #isoqol #whodas #multiplesclerosis #raschmodel #psychometrics #multimorbidity
  22. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 5 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    Evaluating different versions of the #WHODAS to measure disability in #MultipleSclerosis
    link.springer.com/article/10.1 #RaschModel #Psychometrics

    A longitudinal analysis of #multimorbidity and #HRQL amongst Indigenous Australians
    link.springer.com/article/10.1 #HILDA

    HRQL in people with Hepatitis C virus after treatment w direct-acting antivirals
    rdcu.be/djWrJ

    #isoqol #whodas #multiplesclerosis #raschmodel #psychometrics #multimorbidity
  23. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 5 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    Evaluating different versions of the #WHODAS to measure disability in #MultipleSclerosis
    link.springer.com/article/10.1 #RaschModel #Psychometrics

    A longitudinal analysis of #multimorbidity and #HRQL amongst Indigenous Australians
    link.springer.com/article/10.1 #HILDA

    HRQL in people with Hepatitis C virus after treatment w direct-acting antivirals
    rdcu.be/djWrJ

    #hilda #hrql #multimorbidity #psychometrics #raschmodel #multiplesclerosis
  24. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #isoqol #aqol #eq5d #wellbeing #hiv #hrql
  25. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #isoqol #aqol #eq5d #wellbeing #hiv #hrql
  26. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #hrql #hiv #wellbeing #eq5d #aqol #isoqol
  27. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #isoqol #cancer #india #palliativecare #sysreview #hrql
  28. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #isoqol #cancer #india #palliativecare #sysreview #hrql
  29. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #sf6d #aqol #eq5d #multiplesclerosis #cosmin #hrql
  30. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 6 papers:
    link.springer.com/journal/1113

    For example,
    the use of #EyeTracking technology to investigate use of the #EQ5D
    link.springer.com/article/10.1

    the Norwegian Fatigue Characteristics and Interference Measure for #stroke survivors
    link.springer.com/article/10.1 #Rasch #Psychometrics

    and social factors of health-related quality of life in older adults
    link.springer.com/article/10.1

    #HRQL

    #isoqol #eyetracking #eq5d #stroke #rasch #psychometrics
  31. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 6 papers:
    link.springer.com/journal/1113

    For example,
    the use of #EyeTracking technology to investigate use of the #EQ5D
    link.springer.com/article/10.1

    the Norwegian Fatigue Characteristics and Interference Measure for #stroke survivors
    link.springer.com/article/10.1 #Rasch #Psychometrics

    and social factors of health-related quality of life in older adults
    link.springer.com/article/10.1

    #HRQL

    #isoqol #eyetracking #eq5d #stroke #rasch #psychometrics
  32. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 6 papers:
    link.springer.com/journal/1113

    For example,
    the use of #EyeTracking technology to investigate use of the #EQ5D
    link.springer.com/article/10.1

    the Norwegian Fatigue Characteristics and Interference Measure for #stroke survivors
    link.springer.com/article/10.1 #Rasch #Psychometrics

    and social factors of health-related quality of life in older adults
    link.springer.com/article/10.1

    #HRQL

    #hrql #psychometrics #rasch #stroke #eq5d #eyetracking
  33. Jan R. Boehnke @[email protected] ·

    Quality of Life Research, July issue published:
    link.springer.com/journal/1113
    #ISOQOL #HRQL

    Opened by a #SysReview of instruments measuring the quality of dying and death in Asian countries:
    rdcu.be/ddRIE
    #COSMIN #EndOfLifeCare

    the issue features several pieces on properties of various instruments in different contexts and versions, e.g.,

    #EQ5D
    link.springer.com/article/10.1

    #EORTC link.springer.com/article/10.1

    #PROCTCAE
    link.springer.com/article/10.1

    #isoqol #hrql #sysreview #cosmin #endoflifecare #eq5d
  34. Jan R. Boehnke @[email protected] ·

    Quality of Life Research, July issue published:
    link.springer.com/journal/1113
    #ISOQOL #HRQL

    Opened by a #SysReview of instruments measuring the quality of dying and death in Asian countries:
    rdcu.be/ddRIE
    #COSMIN #EndOfLifeCare

    the issue features several pieces on properties of various instruments in different contexts and versions, e.g.,

    #EQ5D
    link.springer.com/article/10.1

    #EORTC link.springer.com/article/10.1

    #PROCTCAE
    link.springer.com/article/10.1

    #isoqol #hrql #sysreview #cosmin #endoflifecare #eq5d
  35. Jan R. Boehnke @[email protected] ·

    Quality of Life Research, July issue published:
    link.springer.com/journal/1113
    #ISOQOL #HRQL

    Opened by a #SysReview of instruments measuring the quality of dying and death in Asian countries:
    rdcu.be/ddRIE
    #COSMIN #EndOfLifeCare

    the issue features several pieces on properties of various instruments in different contexts and versions, e.g.,

    #EQ5D
    link.springer.com/article/10.1

    #EORTC link.springer.com/article/10.1

    #PROCTCAE
    link.springer.com/article/10.1

    #proctcae #eortc #eq5d #endoflifecare #cosmin #sysreview