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#isoqol — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #isoqol, aggregated by home.social.

  1. Jan R. Boehnke @[email protected] ·

    Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

    #scharr #hrqol #patientcentered #isoqol
  2. Jan R. Boehnke @[email protected] ·

    Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

    #scharr #hrqol #patientcentered #isoqol
  3. Jan R. Boehnke @[email protected] ·

    Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

    #isoqol #patientcentered #hrqol #scharr
  4. Jan R. Boehnke @[email protected] ·

    Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

    #isoqol #preprint #psychometrics #hrqol
  5. Jan R. Boehnke @[email protected] ·

    Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

    #isoqol #preprint #psychometrics #hrqol
  6. Jan R. Boehnke @[email protected] ·

    Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

    #hrqol #psychometrics #preprint #isoqol
  7. Jan R. Boehnke @[email protected] ·

    And #3/
    In terms of music from the Cologne area for #ISOQOL attendees, why not listen to a nice cover version of a Number 1 hit by #Erdmöbel?
    youtube.com/watch?v=aQXRCKKU87

    Worried about the German lyrics? Check here 😊
    genius.com/Erdmobel-der-weg-na

    Thanks to @md for pointing out that they are from the area, and there were additional recommendations:
    social.cologne/@md/11329249937

    #isoqol #erdmobel
  8. Jan R. Boehnke @[email protected] ·

    The #PrismaCosmin #guideline
    was published jointly in Quality of Life Research, J of Patient Reported Outcomes, Health and Quality of Life Outcomes & J of Clinical Epidemiology.

    As lead editors, Brittany Lapin and I offer some thoughts on content, process, and future
    osf.io/preprints/osf/ukw93

    #PRISMA #Psychometrics #HRQL #ISOQOL

    The four versions of the guidelines are published here:
    link.springer.com/article/10.1

    jpro.springeropen.com/articles

    hqlo.biomedcentral.com/article

    sciencedirect.com/science/arti

    #prismacosmin #guideline #prisma #psychometrics #hrql #isoqol
  9. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #isoqol #aqol #eq5d #wellbeing #hiv #hrql
  10. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #isoqol #aqol #eq5d #wellbeing #hiv #hrql
  11. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #hrql #hiv #wellbeing #eq5d #aqol #isoqol
  12. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #isoqol #cancer #india #palliativecare #sysreview #hrql
  13. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #isoqol #cancer #india #palliativecare #sysreview #hrql
  14. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #sf6d #aqol #eq5d #multiplesclerosis #cosmin #hrql