#isoqol — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #isoqol, aggregated by home.social.
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Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
https://pmc.ncbi.nlm.nih.gov/articles/PMC11648710/
#ISOQOLThis is a great example of papers that elucidate practical challenges of PRO capture (see our call for more such work in this editorial https://rdcu.be/eMp57 )
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Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
https://pmc.ncbi.nlm.nih.gov/articles/PMC11648710/
#ISOQOLThis is a great example of papers that elucidate practical challenges of PRO capture (see our call for more such work in this editorial https://rdcu.be/eMp57 )
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Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
https://pmc.ncbi.nlm.nih.gov/articles/PMC11648710/
#ISOQOLThis is a great example of papers that elucidate practical challenges of PRO capture (see our call for more such work in this editorial https://rdcu.be/eMp57 )
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Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
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Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
-
Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
-
Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
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The development of an interactive platform for applying tree-based IRT models for detection of differential item functioning is summarised in a recent #ISOQOL letter:
https://www.isoqol.org/bridging-the-gap-a-user-friendly-tool-for-evaluating-differential-item-functioning-in-patient-reported-outcome-measures/A related methods paper by the team:
https://link.springer.com/article/10.1007/s11136-023-03560-5 -
The development of an interactive platform for applying tree-based IRT models for detection of differential item functioning is summarised in a recent #ISOQOL letter:
https://www.isoqol.org/bridging-the-gap-a-user-friendly-tool-for-evaluating-differential-item-functioning-in-patient-reported-outcome-measures/A related methods paper by the team:
https://link.springer.com/article/10.1007/s11136-023-03560-5 -
The development of an interactive platform for applying tree-based IRT models for detection of differential item functioning is summarised in a recent #ISOQOL letter:
https://www.isoqol.org/bridging-the-gap-a-user-friendly-tool-for-evaluating-differential-item-functioning-in-patient-reported-outcome-measures/A related methods paper by the team:
https://link.springer.com/article/10.1007/s11136-023-03560-5 -
The development of an interactive platform for applying tree-based IRT models for detection of differential item functioning is summarised in a recent #ISOQOL letter:
https://www.isoqol.org/bridging-the-gap-a-user-friendly-tool-for-evaluating-differential-item-functioning-in-patient-reported-outcome-measures/A related methods paper by the team:
https://link.springer.com/article/10.1007/s11136-023-03560-5 -
When you leave a job, there is always unfinished business, stuff that could have gone better etc.
Therefore, I am glad to see that "Quality of Life Research" has passed 2,000 submissions this week, which makes 2024 (so far) the year with the second most submissions (after 2020) in the history of the journal.
Thanks to authors and reviewers supporting us! 🙇
#ISOQOL #HRQL #HealthEconomics
Earlier news post on paper awards and usage:
https://mastodon.social/deck/@jrboehnke/113629324934342255 -
When you leave a job, there is always unfinished business, stuff that could have gone better etc.
Therefore, I am glad to see that "Quality of Life Research" has passed 2,000 submissions this week, which makes 2024 (so far) the year with the second most submissions (after 2020) in the history of the journal.
Thanks to authors and reviewers supporting us! 🙇
#ISOQOL #HRQL #HealthEconomics
Earlier news post on paper awards and usage:
https://mastodon.social/deck/@jrboehnke/113629324934342255 -
When you leave a job, there is always unfinished business, stuff that could have gone better etc.
Therefore, I am glad to see that "Quality of Life Research" has passed 2,000 submissions this week, which makes 2024 (so far) the year with the second most submissions (after 2020) in the history of the journal.
Thanks to authors and reviewers supporting us! 🙇
#ISOQOL #HRQL #HealthEconomics
Earlier news post on paper awards and usage:
https://mastodon.social/deck/@jrboehnke/113629324934342255 -
When you leave a job, there is always unfinished business, stuff that could have gone better etc.
Therefore, I am glad to see that "Quality of Life Research" has passed 2,000 submissions this week, which makes 2024 (so far) the year with the second most submissions (after 2020) in the history of the journal.
Thanks to authors and reviewers supporting us! 🙇
#ISOQOL #HRQL #HealthEconomics
Earlier news post on paper awards and usage:
https://mastodon.social/deck/@jrboehnke/113629324934342255 -
Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
https://www.isoqol.org/news-from-quality-of-life-research-112024/The last annual update I will be involved in... 😅👋
#ISOQOL #HRQL #HealthEconomics #Psychometrics
#EQ5D #COSMIN #PROMIS -
Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
https://www.isoqol.org/news-from-quality-of-life-research-112024/The last annual update I will be involved in... 😅👋
#ISOQOL #HRQL #HealthEconomics #Psychometrics
#EQ5D #COSMIN #PROMIS -
Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
https://www.isoqol.org/news-from-quality-of-life-research-112024/The last annual update I will be involved in... 😅👋
#ISOQOL #HRQL #HealthEconomics #Psychometrics
#EQ5D #COSMIN #PROMIS -
10/x Thanks for reading in case you made it this far.
I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract.
And once again links to the book
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#and the book review:
https://rdcu.be/dXACh -
10/x Thanks for reading in case you made it this far.
I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract.
And once again links to the book
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#and the book review:
https://rdcu.be/dXACh -
10/x Thanks for reading in case you made it this far.
I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract.
And once again links to the book
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#and the book review:
https://rdcu.be/dXACh -
7/x Leah took the last straw the audience was holding on to:
No, even when thinking about clocks and time, ongoing coordination is an issue. There is no #GoldStandard for time, its #measurement is under constant development.
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7/x Leah took the last straw the audience was holding on to:
No, even when thinking about clocks and time, ongoing coordination is an issue. There is no #GoldStandard for time, its #measurement is under constant development.
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7/x Leah took the last straw the audience was holding on to:
No, even when thinking about clocks and time, ongoing coordination is an issue. There is no #GoldStandard for time, its #measurement is under constant development.
-
7/x Leah took the last straw the audience was holding on to:
No, even when thinking about clocks and time, ongoing coordination is an issue. There is no #GoldStandard for time, its #measurement is under constant development.
-
7/x Leah took the last straw the audience was holding on to:
No, even when thinking about clocks and time, ongoing coordination is an issue. There is no #GoldStandard for time, its #measurement is under constant development.
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6/x Rick Sawatzky's recorded input focused on #Exchangeablility and discussed how the term #PatientCentered measurement may relate to ideographic and nomothetic methods.
You can find out more about Rick's work here:
https://healthyqol.com/about-ephm -
6/x Rick Sawatzky's recorded input focused on #Exchangeablility and discussed how the term #PatientCentered measurement may relate to ideographic and nomothetic methods.
You can find out more about Rick's work here:
https://healthyqol.com/about-ephm -
6/x Rick Sawatzky's recorded input focused on #Exchangeablility and discussed how the term #PatientCentered measurement may relate to ideographic and nomothetic methods.
You can find out more about Rick's work here:
https://healthyqol.com/about-ephm -
2/x We had a good panel of presenters.
Melanie Hawkins (Swinburn UT) opened the session with a discussion of how values and assumptions impact on interpretations of scores in application contexts, and how this may reinforce and exacerbate societal inequities.
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2/x We had a good panel of presenters.
Melanie Hawkins (Swinburn UT) opened the session with a discussion of how values and assumptions impact on interpretations of scores in application contexts, and how this may reinforce and exacerbate societal inequities.
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2/x We had a good panel of presenters.
Melanie Hawkins (Swinburn UT) opened the session with a discussion of how values and assumptions impact on interpretations of scores in application contexts, and how this may reinforce and exacerbate societal inequities.
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2/x We had a good panel of presenters.
Melanie Hawkins (Swinburn UT) opened the session with a discussion of how values and assumptions impact on interpretations of scores in application contexts, and how this may reinforce and exacerbate societal inequities.
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1/x It was great fun to co-organise the #ISOQOL discussion of Leah McClimans' book
" #PatientCentered #Measurement: Perspectives from philosophy and health-related quality of life"
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#You can read the book review by Sebastian Rodriguez Duque here:
https://rdcu.be/dXACh -
1/x It was great fun to co-organise the #ISOQOL discussion of Leah McClimans' book
" #PatientCentered #Measurement: Perspectives from philosophy and health-related quality of life"
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#You can read the book review by Sebastian Rodriguez Duque here:
https://rdcu.be/dXACh -
1/x It was great fun to co-organise the #ISOQOL discussion of Leah McClimans' book
" #PatientCentered #Measurement: Perspectives from philosophy and health-related quality of life"
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#You can read the book review by Sebastian Rodriguez Duque here:
https://rdcu.be/dXACh -
1/x It was great fun to co-organise the #ISOQOL discussion of Leah McClimans' book
" #PatientCentered #Measurement: Perspectives from philosophy and health-related quality of life"
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#You can read the book review by Sebastian Rodriguez Duque here:
https://rdcu.be/dXACh -
Programme for the final day of #ISOQOL once again jam-packed*
I am looking forward to chairing #Plenary4 "Broaden the scope: health outcomes assessment beyond PROs" with a great line-up of speakers and topics.
Cologne music suggestion:
Bukahara: Tales of the Tides
https://www.youtube.com/watch?v=9GKmDK_EMhE*Learn German?
"pickepackevoll" -
Programme for the final day of #ISOQOL once again jam-packed*
I am looking forward to chairing #Plenary4 "Broaden the scope: health outcomes assessment beyond PROs" with a great line-up of speakers and topics.
Cologne music suggestion:
Bukahara: Tales of the Tides
https://www.youtube.com/watch?v=9GKmDK_EMhE*Learn German?
"pickepackevoll" -
Programme for the final day of #ISOQOL once again jam-packed*
I am looking forward to chairing #Plenary4 "Broaden the scope: health outcomes assessment beyond PROs" with a great line-up of speakers and topics.
Cologne music suggestion:
Bukahara: Tales of the Tides
https://www.youtube.com/watch?v=9GKmDK_EMhE*Learn German?
"pickepackevoll" -
Really glad how our symposium around Leah McClimans' book " #PatientCentered #Measurement: Perspectives from philosophy and health-related quality of life" went.
I really enjoyed working with Leah on this as well as reading her thought-provoking book:
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#
-
Really glad how our symposium around Leah McClimans' book " #PatientCentered #Measurement: Perspectives from philosophy and health-related quality of life" went.
I really enjoyed working with Leah on this as well as reading her thought-provoking book:
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#
-
Really glad how our symposium around Leah McClimans' book " #PatientCentered #Measurement: Perspectives from philosophy and health-related quality of life" went.
I really enjoyed working with Leah on this as well as reading her thought-provoking book:
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#
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And there is #ISOQOL pushing the #preregistration methodology maybe a bit too far 🤭