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#isoqol — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #isoqol, aggregated by home.social.

  1. Jan R. Boehnke @[email protected] ·

    Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

    #scharr #hrqol #patientcentered #isoqol
  2. Jan R. Boehnke @[email protected] ·

    Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

    #scharr #hrqol #patientcentered #isoqol
  3. Jan R. Boehnke @[email protected] ·

    Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

    #isoqol #patientcentered #hrqol #scharr
  4. Jan R. Boehnke @[email protected] ·

    Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

    #isoqol #preprint #psychometrics #hrqol
  5. Jan R. Boehnke @[email protected] ·

    Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

    #isoqol #preprint #psychometrics #hrqol
  6. Jan R. Boehnke @[email protected] ·

    Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

    #hrqol #psychometrics #preprint #isoqol
  7. Jan R. Boehnke @[email protected] ·

    Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
    isoqol.org/news-from-quality-o

    The last annual update I will be involved in... 😅👋

    #ISOQOL #HRQL #HealthEconomics #Psychometrics
    #EQ5D #COSMIN #PROMIS

    #isoqol #hrql #healtheconomics #psychometrics #eq5d #cosmin
  8. Jan R. Boehnke @[email protected] ·

    The monthly research selection by #EuroQol featured two papers from Quality of Life Research:

    1) link.springer.com/article/10.1

    2) link.springer.com/article/10.1

    #HealthEconomics #ISOQOL #HRQL

    If you are still active on the 🐦 you can read their thread here:
    twitter.com/EuroQol/status/178

    #euroqol #healtheconomics #isoqol #hrql
  9. Jan R. Boehnke @[email protected] ·

    Looking for a #WeekendRead?
    Quality of Life Research 04-2024
    link.springer.com/journal/1113
    #ISOQOL

    For example a #ScopingReview of biopsychosocial factors of #HRQL in individuals with traumatic brain injury
    link.springer.com/article/10.1

    Disability-free life expectancy after a #stroke in a South Korean cohort (11yr horizon)
    rdcu.be/dCLug

    Association of exacerbations in patients with #COPD with #HRQL
    link.springer.com/article/10.1
    #EQ5D

    and much more 😊📰📚

    #weekendread #isoqol #scopingreview #hrql #stroke #copd
  10. Jan R. Boehnke @[email protected] ·

    #ISOQOL content that conference attendees liked on other platforms:

    Julie Ratcliffe presented among other things on their work including insights from the application of #EyeTracking technology when filling out the #EQ5D
    link.springer.com/article/10.1

    🔥For papers published in Quality of Life Research in 2023, this is so far the most accessed paper!🥳

    #HealthEconomics #HRQL #Psychometrics

    #isoqol #eyetracking #eq5d #healtheconomics #hrql #psychometrics
  11. Jan R. Boehnke @[email protected] ·

    One publication from Quality of Life Research was mentioned in the #EuroQol Group's September selection:

    The study investigated #EQ5D response heterogeneity assoc w respondents' focus on past, present & future (time perspective):
    link.springer.com/article/10.1

    #HRQL #HealthEconomics #ISOQOL #ResponseBehaviour

    #euroqol #eq5d #hrql #healtheconomics #isoqol #responsebehaviour
  12. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 6 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    A #SysReview showing widespread use of #PreferenceBased measures in studies w Indigenous people, but little evidence on their measurement properties
    link.springer.com/article/10.1 #EQ5D

    A comparative assessment of such measures in China
    link.springer.com/article/10.1

    And the elicitation of a #ValueSet for the Swedish Capability-Adjusted Life Years instrument
    link.springer.com/article/10.1 #TTO

    #HealthEconomics

    #isoqol #sysreview #preferencebased #eq5d #valueset #tto
  13. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
    link.springer.com/article/10.1

    or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
    rdcu.be/djvIf [Link edited]
    #HRQL

    #isoqol #aqol #eq5d #wellbeing #hiv #hrql
  14. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 7 papers:
    link.springer.com/journal/1113 #ISOQOL

    For example,

    effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
    rdcu.be/diEFn
    #India #PalliativeCare

    #SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
    link.springer.com/article/10.1 #COSMIN

    Estimating the disutility of relapse in #MultipleSclerosis
    link.springer.com/article/10.1 #EQ5D #AQoL #SF6D

    #isoqol #cancer #india #palliativecare #sysreview #hrql
  15. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 6 papers:
    link.springer.com/journal/1113

    For example,
    the use of #EyeTracking technology to investigate use of the #EQ5D
    link.springer.com/article/10.1

    the Norwegian Fatigue Characteristics and Interference Measure for #stroke survivors
    link.springer.com/article/10.1 #Rasch #Psychometrics

    and social factors of health-related quality of life in older adults
    link.springer.com/article/10.1

    #HRQL

    #isoqol #eyetracking #eq5d #stroke #rasch #psychometrics
  16. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 5 papers:
    link.springer.com/journal/1113

    For example,

    after adjusting covariates, falls of elderly predicted #EQ5D outcomes
    rdcu.be/dgpHH

    finding notable differences in #HRQL at new diagnosis of advanced prostate cancer for Black and White individuals
    rdcu.be/dgpH5

    comparing latent variable & network models in #PROMIS data
    rdcu.be/dgpH8
    #Psychometrics

    #isoqol #eq5d #hrql #promis #psychometrics
  17. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 3 articles:
    link.springer.com/journal/1113

    Development & evaluation of a measure of #COVID-related psychosocial experiences in US cancer survivors
    rdcu.be/df0NV
    #Psychometrics

    How do older adults receiving aged care services understand & respond to the #EQ5D?
    link.springer.com/article/10.1
    #ResidentialCare

    Indications for the identification of patients with advanced #cancer who require additional supportive care
    link.springer.com/article/10.1

    #HRQL

    #isoqol #covid #psychometrics #eq5d #residentialcare #cancer
  18. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 10 articles:
    link.springer.com/journal/1113

    For example:
    Use of a multi-component design in questionnaire development:
    rdcu.be/dfkXK
    #Psychometrics

    #HRQL among people who inject drugs:
    link.springer.com/article/10.1
    #HealthEconomics #EQ5D

    And an evaluation of how to capture aspects of quality of life important to #InformalCarers:
    link.springer.com/article/10.1

    #isoqol #psychometrics #hrql #healtheconomics #eq5d #informalcarers
  19. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" published 3 articles:

    Alternative data collection methods for resource use and #HRQL (#CHU9D #EQ5d) in the context of appendicitis in children
    link.springer.com/article/10.1
    #HealthEconomics #HTA

    Association btw cognitive impairment & HRQL in a sample of older Australians (HILDA survey)
    link.springer.com/article/10.1

    Evidence gap map of interventions for people living w skeletal dysplasias
    link.springer.com/article/10.1

    Online first articles:
    link.springer.com/journal/1113
    #ISOQOL

    #hrql #chu9d #eq5d #healtheconomics #hta #isoqol
  20. Jan R. Boehnke @[email protected] ·

    Quality of Life Research, July issue published:
    link.springer.com/journal/1113
    #ISOQOL #HRQL

    Opened by a #SysReview of instruments measuring the quality of dying and death in Asian countries:
    rdcu.be/ddRIE
    #COSMIN #EndOfLifeCare

    the issue features several pieces on properties of various instruments in different contexts and versions, e.g.,

    #EQ5D
    link.springer.com/article/10.1

    #EORTC link.springer.com/article/10.1

    #PROCTCAE
    link.springer.com/article/10.1

    #isoqol #hrql #sysreview #cosmin #endoflifecare #eq5d
  21. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 7 articles:
    link.springer.com/journal/1113

    For example:

    Describing #HRQL of Māori adults in Aotearoa me Te Waipounamu w data from the NZ #EQ5D valuation study:
    link.springer.com/article/10.1

    Interviews w 35 executives of US healthcare organizations regarding
    #ImplementationScience of #PROMs:
    rdcu.be/c7045
    #Feedback

    What matters to residents of Australian aged care facilities pre- & mid-pandemic?
    link.springer.com/article/10.1
    #QualitativeMethods

    #isoqol #hrql #eq5d #implementationscience #proms #feedback
  22. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 6 articles:
    link.springer.com/journal/1113

    For example:

    What happens if you split the #EQ5D #Depression / #Anxiety item into two?
    link.springer.com/article/10.1
    #Psychometrics
    Maybe good accompaniment, bolt-ons for the EQ-5D:
    link.springer.com/article/10.1

    A qualitative study of the impacts of necrotizing soft tissue infections, highlighting the extensive impact this disease can have on survivors’ families:
    link.springer.com/article/10.1

    #HRQL

    #isoqol #eq5d #depression #anxiety #psychometrics #hrql
  23. Jan R. Boehnke @[email protected] ·

    Last week "Quality of Life Research" #ISOQOL published 4 articles:
    link.springer.com/journal/1113

    For example:

    #HRQL in 7 European countries from 9 quarterly waves collected between April 2020 and January 2022 throughout the course of the #COVID19 pandemic:
    link.springer.com/article/10.1

    "Fixed effects regressions showed that in particular occurrence of infection was associated with problems in all #EQ5D dimensions and a reduction in EQ VAS score as well as EQ-5D-5L index."

    #isoqol #hrql #covid19 #eq5d