#isoqol — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #isoqol, aggregated by home.social.
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Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
https://www.isoqol.org/news-from-quality-of-life-research-112024/The last annual update I will be involved in... 😅👋
#ISOQOL #HRQL #HealthEconomics #Psychometrics
#EQ5D #COSMIN #PROMIS -
The monthly research selection by #EuroQol featured two papers from Quality of Life Research:
1) https://link.springer.com/article/10.1007/s11136-024-03618-y
2) https://link.springer.com/article/10.1007/s11136-024-03632-0
#HealthEconomics #ISOQOL #HRQL
If you are still active on the 🐦 you can read their thread here:
https://twitter.com/EuroQol/status/1783031504404148624 -
Looking for a #WeekendRead?
Quality of Life Research 04-2024
https://link.springer.com/journal/11136/volumes-and-issues/33-4
#ISOQOLFor example a #ScopingReview of biopsychosocial factors of #HRQL in individuals with traumatic brain injury
https://link.springer.com/article/10.1007/s11136-023-03511-0Disability-free life expectancy after a #stroke in a South Korean cohort (11yr horizon)
https://rdcu.be/dCLugAssociation of exacerbations in patients with #COPD with #HRQL
https://link.springer.com/article/10.1007/s11136-023-03582-z
#EQ5Dand much more 😊📰📚
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#ISOQOL content that conference attendees liked on other platforms:
Julie Ratcliffe presented among other things on their work including insights from the application of #EyeTracking technology when filling out the #EQ5D
https://link.springer.com/article/10.1007/s11136-023-03488-w🔥For papers published in Quality of Life Research in 2023, this is so far the most accessed paper!🥳
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One publication from Quality of Life Research was mentioned in the #EuroQol Group's September selection:
The study investigated #EQ5D response heterogeneity assoc w respondents' focus on past, present & future (time perspective):
https://link.springer.com/article/10.1007/s11136-023-03509-8 -
Last week "Quality of Life Research" published 6 papers:
https://link.springer.com/journal/11136/online-first #ISOQOLFor example,
A #SysReview showing widespread use of #PreferenceBased measures in studies w Indigenous people, but little evidence on their measurement properties
https://link.springer.com/article/10.1007/s11136-023-03499-7 #EQ5DA comparative assessment of such measures in China
https://link.springer.com/article/10.1007/s11136-023-03512-zAnd the elicitation of a #ValueSet for the Swedish Capability-Adjusted Life Years instrument
https://link.springer.com/article/10.1007/s11136-023-03507-w #TTO -
Last week "Quality of Life Research" published 3 papers:
https://link.springer.com/journal/11136/online-first #ISOQOLFor example,
an analysis of responses by 198 people w ME/CFS to #AQoL & #EQ5D questions suggests lower utilities than for population norms
https://link.springer.com/article/10.1007/s11136-023-03498-8or an analysis of subjective #WellBeing among people living with #HIV during the COVID19 pandemic
https://rdcu.be/djvIf [Link edited]
#HRQL -
Last week "Quality of Life Research" published 7 papers:
https://link.springer.com/journal/11136/online-first #ISOQOLFor example,
effectiveness of verbal instruction vs video-based education for caregivers of head & neck #cancer patients
https://rdcu.be/diEFn
#India #PalliativeCare#SysReview of psychometric quality of instruments reporting #HRQL in survivors of critical illness
https://link.springer.com/article/10.1007/s11136-023-03487-x #COSMINEstimating the disutility of relapse in #MultipleSclerosis
https://link.springer.com/article/10.1007/s11136-023-03486-y #EQ5D #AQoL #SF6D -
Last week "Quality of Life Research" #ISOQOL published 6 papers:
https://link.springer.com/journal/11136/online-firstFor example,
the use of #EyeTracking technology to investigate use of the #EQ5D
https://link.springer.com/article/10.1007/s11136-023-03488-wthe Norwegian Fatigue Characteristics and Interference Measure for #stroke survivors
https://link.springer.com/article/10.1007/s11136-023-03477-z #Rasch #Psychometricsand social factors of health-related quality of life in older adults
https://link.springer.com/article/10.1007/s11136-023-03472-4 -
Last week "Quality of Life Research" #ISOQOL published 5 papers:
https://link.springer.com/journal/11136/online-firstFor example,
after adjusting covariates, falls of elderly predicted #EQ5D outcomes
https://rdcu.be/dgpHHfinding notable differences in #HRQL at new diagnosis of advanced prostate cancer for Black and White individuals
https://rdcu.be/dgpH5comparing latent variable & network models in #PROMIS data
https://rdcu.be/dgpH8
#Psychometrics -
Last week "Quality of Life Research" #ISOQOL published 3 articles:
https://link.springer.com/journal/11136/online-firstDevelopment & evaluation of a measure of #COVID-related psychosocial experiences in US cancer survivors
https://rdcu.be/df0NV
#PsychometricsHow do older adults receiving aged care services understand & respond to the #EQ5D?
https://link.springer.com/article/10.1007/s11136-023-03466-2
#ResidentialCareIndications for the identification of patients with advanced #cancer who require additional supportive care
https://link.springer.com/article/10.1007/s11136-023-03460-8 -
Last week "Quality of Life Research" #ISOQOL published 10 articles:
https://link.springer.com/journal/11136/online-firstFor example:
Use of a multi-component design in questionnaire development:
https://rdcu.be/dfkXK
#Psychometrics#HRQL among people who inject drugs:
https://link.springer.com/article/10.1007/s11136-023-03459-1
#HealthEconomics #EQ5DAnd an evaluation of how to capture aspects of quality of life important to #InformalCarers:
https://link.springer.com/article/10.1007/s11136-023-03459-1 -
Last week "Quality of Life Research" published 3 articles:
Alternative data collection methods for resource use and #HRQL (#CHU9D #EQ5d) in the context of appendicitis in children
https://link.springer.com/article/10.1007/s11136-023-03442-w
#HealthEconomics #HTAAssociation btw cognitive impairment & HRQL in a sample of older Australians (HILDA survey)
https://link.springer.com/article/10.1007/s11136-023-03449-3Evidence gap map of interventions for people living w skeletal dysplasias
https://link.springer.com/article/10.1007/s11136-023-03431-zOnline first articles:
https://link.springer.com/journal/11136/online-first
#ISOQOL -
Quality of Life Research, July issue published:
https://link.springer.com/journal/11136/volumes-and-issues/32-7
#ISOQOL #HRQLOpened by a #SysReview of instruments measuring the quality of dying and death in Asian countries:
https://rdcu.be/ddRIE
#COSMIN #EndOfLifeCarethe issue features several pieces on properties of various instruments in different contexts and versions, e.g.,
#EQ5D
https://link.springer.com/article/10.1007/s11136-023-03372-7#EORTC https://link.springer.com/article/10.1007/s11136-023-03373-6
#PROCTCAE
https://link.springer.com/article/10.1007/s11136-023-03374-5 -
Last week "Quality of Life Research" #ISOQOL published 7 articles:
https://link.springer.com/journal/11136/online-firstFor example:
Describing #HRQL of Māori adults in Aotearoa me Te Waipounamu w data from the NZ #EQ5D valuation study:
https://link.springer.com/article/10.1007/s11136-023-03399-wInterviews w 35 executives of US healthcare organizations regarding
#ImplementationScience of #PROMs:
https://rdcu.be/c7045
#FeedbackWhat matters to residents of Australian aged care facilities pre- & mid-pandemic?
https://link.springer.com/article/10.1007/s11136-023-03387-0
#QualitativeMethods -
Last week "Quality of Life Research" #ISOQOL published 6 articles:
https://link.springer.com/journal/11136/online-firstFor example:
What happens if you split the #EQ5D #Depression / #Anxiety item into two?
https://link.springer.com/article/10.1007/s11136-023-03372-7
#Psychometrics
Maybe good accompaniment, bolt-ons for the EQ-5D:
https://link.springer.com/article/10.1007/s11136-022-03138-7A qualitative study of the impacts of necrotizing soft tissue infections, highlighting the extensive impact this disease can have on survivors’ families:
https://link.springer.com/article/10.1007/s11136-023-03371-8 -
Last week "Quality of Life Research" #ISOQOL published 4 articles:
https://link.springer.com/journal/11136/online-firstFor example:
#HRQL in 7 European countries from 9 quarterly waves collected between April 2020 and January 2022 throughout the course of the #COVID19 pandemic:
https://link.springer.com/article/10.1007/s11136-022-03334-5"Fixed effects regressions showed that in particular occurrence of infection was associated with problems in all #EQ5D dimensions and a reduction in EQ VAS score as well as EQ-5D-5L index."