#isoqol — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #isoqol, aggregated by home.social.
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Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
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Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
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#1/
Excellent talk by Kevin Weinfurt in #Plenary1 discussing multiple types of measures (go also to #Plenary4 for that!), increased use of high-intensity longitudinal data, and generative AI for assessments.Start reading his work:
https://rdcu.be/dWXSz
#HRQL #Psychometrics#2/
Not sure this is what the #ISOQOL_NewInvestigators wanted when asking me to talk about advice for manuscript writing, but this is the slide people talked to me about 👇
#NightshiftEditor #ScientificPublishing -
#1/ First day of #ISOQOL started with an interesting symposium on progress when optimizing the collection of patient-reported outcomes in clinical trials.
Part of the discussion were desirable changes to the publication system when publishing expert consensus and guidance documents:
1) What does #PeerReview for such a document look like?
2) Static journal publications may not be the best format for such documents.
Both seem solvable, no?
#HTD -
Quality of Life Research 05-2024
https://link.springer.com/journal/11136/volumes-and-issues/33-5
#HRQL of people w heart failure in #LMICs
#QOL of people living w mental illness in Africa
https://link.springer.com/article/10.1007/s11136-023-03525-8
#SysReview #SMI #Multimorbidity
#NightshiftEditor seven issues to go...
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Newsletter reporting Quality of Life Research awards and statistics from 2022
https://www.isoqol.org/news-from-quality-of-life-research-2024/We (+ Brittany Lapin, Richard Skolasky) are immensely grateful to all authors submitting, our team of associate editors, and everyone else supporting the journal (e.g., peer-review, language editing)!