#hrqol — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #hrqol, aggregated by home.social.
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Announcement from #NICE "[t]o avoid unnecessary delay in implementing the EQ-5D-5L #ValueSet"
https://www.nice.org.uk/process/pmg51/chapter/statement-on-using-the-eq-5d-5l-value-set"After this interim methods statement is published, the EQ-5D-5L descriptive system and the new UK value set will be NICE's preferred approaches to measure and value health-related quality of life in adults."
[dated: 27.08.2026] -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.