#hrqol — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #hrqol, aggregated by home.social.
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The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8 -
This #CostUtilityAnalysis of 'academic detailing' to enhance naloxone distribution for opioid users (i) shows it potentially cost-effective at WTP of US$50,000 per #QALY and (ii) it used #UtilityScores developed from #NIDA shared data*
https://link.springer.com/article/10.1007/s40258-025-00991-8* To develop these we used National Institute on Drug Abuse-published #RCT data
https://link.springer.com/article/10.1007/s11136-024-03729-6To me an example how #DataSharing supports research for community infrastructure
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Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.