#hrqol — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #hrqol, aggregated by home.social.
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Announcement from #NICE "[t]o avoid unnecessary delay in implementing the EQ-5D-5L #ValueSet"
https://www.nice.org.uk/process/pmg51/chapter/statement-on-using-the-eq-5d-5l-value-set"After this interim methods statement is published, the EQ-5D-5L descriptive system and the new UK value set will be NICE's preferred approaches to measure and value health-related quality of life in adults."
[dated: 27.08.2026] -
The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8 -
Three calls for papers from JPRO:
https://jpro.springeropen.com/articles/collectionsTranslation and Validation of Patient-Reported Outcome (PRO) Measures
PROs in Clinical Registries
Patient-Reported Outcome Measures (PROMs) in Telehealth
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Still in the summer write-up of papers?
Have a look at the call for papers on "Quality of life in people with mental disorders – beyond global scores" at Quality of Life Research
https://link.springer.com/collections/cddjbdidbjLinked Editorial
https://link.springer.com/collections/cddjbdidbj -
This #CostUtilityAnalysis of 'academic detailing' to enhance naloxone distribution for opioid users (i) shows it potentially cost-effective at WTP of US$50,000 per #QALY and (ii) it used #UtilityScores developed from #NIDA shared data*
https://link.springer.com/article/10.1007/s40258-025-00991-8* To develop these we used National Institute on Drug Abuse-published #RCT data
https://link.springer.com/article/10.1007/s11136-024-03729-6To me an example how #DataSharing supports research for community infrastructure