#hrqol — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #hrqol, aggregated by home.social.
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Novel Tool Predicts Risk for Difficult-To-Treat Depression
#NewsBeep #News #Mentalhealth #antidepressant;antidepressantdrug #anxiety #CA #Canada #child #childhood #Children #depression #Health #healthrelatedqualityoflife #hospitals #HRQOL #impairment #kids #majordepression;majordepressivedisorder;unipolardepression;clinicaldepression;MDD;majordepressivedisorder(MDD) #MentalHealth #Nebraska #pediatrics #psychosocial #QOL #qualityoflife #remission #RhodeIsland
https://www.newsbeep.com/ca/738782/ -
https://www.wacoca.com/life/409041/ 日本人の健康関連QOL、7年間で一貫して低下－広島大 – QLifePro 医療ニュース #health #HRQOL #Kenkō #QLifePro編集部 #健康 #健康関連QOL #医療 #就労世代 #広島大学 #新型コロナウイルス #疫学
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https://www.wacoca.com/life/409041/ 日本人の健康関連QOL、7年間で一貫して低下－広島大 – QLifePro 医療ニュース #health #HRQOL #Kenkō #QLifePro編集部 #健康 #健康関連QOL #医療 #就労世代 #広島大学 #新型コロナウイルス #疫学
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A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
https://bmjpublichealth.bmj.com/content/4/1/e004156Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇
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A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
https://bmjpublichealth.bmj.com/content/4/1/e004156Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇
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The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8 -
The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8 -
Important note in this report by the Future #DSM Strategic Committee:
Acknowledgement of the importance of functioning and quality of life (beyond symptoms) and tasking a sub-committee with finding assessments that align with recovery-oriented care
https://psychiatryonline.org/doi/10.1176/appi.ajp.20250878 -
Important note in this report by the Future #DSM Strategic Committee:
Acknowledgement of the importance of functioning and quality of life (beyond symptoms) and tasking a sub-committee with finding assessments that align with recovery-oriented care
https://psychiatryonline.org/doi/10.1176/appi.ajp.20250878 -
Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
https://link.springer.com/article/10.1007/s11136-024-03858-y -
Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
https://link.springer.com/article/10.1007/s11136-024-03858-y -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
Are Sexual Side Effects Emerging With GLP-1 Agonists?
Few new drugs have sparked as much…
#NewsBeep #News #Medication #adherence #adherencetomedicationissuesforpatients #AU #Australia #compliance #drugcompliance #GLP-1receptoragonists #Health #healthrelatedqualityoflife #HRQOL #QOL #qualityoflife #treatmentadherence #type2diabetesmellitus;diabetesmellitustype2;diabetesmellitustypeII;type2diabetes;type2DM;T2DM;T2D;type2diabetesmellitus(T2DM);type2diabetes(T2D)
https://www.newsbeep.com/au/315243/ -
Mediterranean Diet Reduces Psoriasis Severity in Trial https://www.diningandcooking.com/2396379/mediterranean-diet-reduces-psoriasis-severity-in-trial/ #ClinicalResearch #ClinicalStudies #ClinicalTrials #corticosteroid #diet #DoubleBlindStudies #DoubleBlindStudy #HealthRelatedQualityOfLife #HRQOL #LifestyleCounseling #Mediterranean #MediterraneanDiet #PreClinicalTrial #psoriasis #QOL #QualityOfLife #SeverityIndices #SingleBlindStudies #SingleBlindStudy #TopicalMedications #TopicalTherapy
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Mediterranean Diet Reduces Psoriasis Severity in Trial https://www.diningandcooking.com/2396379/mediterranean-diet-reduces-psoriasis-severity-in-trial/ #ClinicalResearch #ClinicalStudies #ClinicalTrials #corticosteroid #diet #DoubleBlindStudies #DoubleBlindStudy #HealthRelatedQualityOfLife #HRQOL #LifestyleCounseling #Mediterranean #MediterraneanDiet #PreClinicalTrial #psoriasis #QOL #QualityOfLife #SeverityIndices #SingleBlindStudies #SingleBlindStudy #TopicalMedications #TopicalTherapy
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Mediterranean Diet Reduces Psoriasis Severity in Trial https://www.diningandcooking.com/2396379/mediterranean-diet-reduces-psoriasis-severity-in-trial/ #ClinicalResearch #ClinicalStudies #ClinicalTrials #corticosteroid #diet #DoubleBlindStudies #DoubleBlindStudy #HealthRelatedQualityOfLife #HRQOL #LifestyleCounseling #Mediterranean #MediterraneanDiet #PreClinicalTrial #psoriasis #QOL #QualityOfLife #SeverityIndices #SingleBlindStudies #SingleBlindStudy #TopicalMedications #TopicalTherapy
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Three calls for papers from JPRO:
https://jpro.springeropen.com/articles/collectionsTranslation and Validation of Patient-Reported Outcome (PRO) Measures
PROs in Clinical Registries
Patient-Reported Outcome Measures (PROMs) in Telehealth
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The new paper is part of the ongoing #CallForPapers by the journal "Quality of Life Research"
"Quality of life in people with #MentalDisorder – beyond global scores"
https://link.springer.com/journal/11136/updates/27711536Linked editorial:
https://rdcu.be/eNtXG -
We* investigated how QoL/ #HRQoL instruments were used as outcome measures in substance and behavioural addictions. We found similar issues as this team regarding wide variety of measures, lack of theory, and issues around methodological quality:
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717 -
A #ScopingReview of quality of life measures in treatment for substance misuse:
https://link.springer.com/article/10.1007/s11136-025-04072-0Urgent development topics:
Culturally adapted measures, how intersecting identities shape QoL experience, impacts of stigma on QoL, and the roles of socioeconomic factors and cooccurring conditions.
#SDH #Multimorbidity -
Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL
Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035 -
A review of UK MHRA protocols (k=122) of the use of #Estimand -s offers insights for improvement of protocols due to incomplete or incorrect specifications:
https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-025-08991-8#RCT #StudyDesign #Registration #Causality
Further resources:
How estimands support stating the exact research question of a study and the interpretation of results:
https://www.bmj.com/content/384/bmj-2023-076316Application of the estimand framework to for studies with Patient-Reported Outcomes:
https://jpro.springeropen.com/articles/10.1186/s41687-020-00218-5
#HRQOL -
First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.
Currently available from this work #SysReview -s on
https://www.sciencedirect.com/science/article/pii/S0376871619300626?via%3Dihub
and work on #HRQoL assessment
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717 -
First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.
Currently available from this work #SysReview -s on
https://www.sciencedirect.com/science/article/pii/S0376871619300626?via%3Dihub
and work on #HRQoL assessment
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717 -
First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.
Currently available from this work #SysReview -s on
https://www.sciencedirect.com/science/article/pii/S0376871619300626?via%3Dihub
and work on #HRQoL assessment
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717 -
First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.
Currently available from this work #SysReview -s on
https://www.sciencedirect.com/science/article/pii/S0376871619300626?via%3Dihub
and work on #HRQoL assessment
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717 -
First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.
Currently available from this work #SysReview -s on
https://www.sciencedirect.com/science/article/pii/S0376871619300626?via%3Dihub
and work on #HRQoL assessment
https://onlinelibrary.wiley.com/doi/10.1111/dar.13717 -
New #AcademicYear - New #introduction
I am a researcher at #DundeeUni and interested in health-related quality of life
#HRQoL #PsychometricsI teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.
I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing
This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)
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New #AcademicYear - New #introduction
I am a researcher at #DundeeUni and interested in health-related quality of life
#HRQoL #PsychometricsI teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.
I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing
This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)
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New #AcademicYear - New #introduction
I am a researcher at #DundeeUni and interested in health-related quality of life
#HRQoL #PsychometricsI teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.
I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing
This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)
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A #SysReview of quality of life and #HRQoL instruments used in trials of interventions for adults with alcohol use disorder:
https://www.jsatjournal.com/article/S2949-8759(25)00172-9/fulltextOne of the interesting findings:
Although the team focused on the most frequently used instruments they found only very few studies reporting psychometric properties in this population.This mirrors findings from our broader #SysReview of #HRQL as an outcome in substance and behavioural addictions
https://pubmed.ncbi.nlm.nih.gov/37439397/ -
Meta-analysis of #TaskShifting / #TaskSharing for managing #Multimorbidity shows some associations w depression (d=-.27, k=14), quality of life (d=.10, k=12), increased anxiety (d=.14, k=5), mortality (OR=.77, k=4).
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Still in the summer write-up of papers?
Have a look at the call for papers on "Quality of life in people with mental disorders – beyond global scores" at Quality of Life Research
https://link.springer.com/collections/cddjbdidbjLinked Editorial
https://link.springer.com/collections/cddjbdidbj -
This #CostUtilityAnalysis of 'academic detailing' to enhance naloxone distribution for opioid users (i) shows it potentially cost-effective at WTP of US$50,000 per #QALY and (ii) it used #UtilityScores developed from #NIDA shared data*
https://link.springer.com/article/10.1007/s40258-025-00991-8* To develop these we used National Institute on Drug Abuse-published #RCT data
https://link.springer.com/article/10.1007/s11136-024-03729-6To me an example how #DataSharing supports research for community infrastructure
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This #CostUtilityAnalysis of 'academic detailing' to enhance naloxone distribution for opioid users (i) shows it potentially cost-effective at WTP of US$50,000 per #QALY and (ii) it used #UtilityScores developed from #NIDA shared data*
https://link.springer.com/article/10.1007/s40258-025-00991-8* To develop these we used National Institute on Drug Abuse-published #RCT data
https://link.springer.com/article/10.1007/s11136-024-03729-6To me an example how #DataSharing supports research for community infrastructure
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This #CostUtilityAnalysis of 'academic detailing' to enhance naloxone distribution for opioid users (i) shows it potentially cost-effective at WTP of US$50,000 per #QALY and (ii) it used #UtilityScores developed from #NIDA shared data*
https://link.springer.com/article/10.1007/s40258-025-00991-8* To develop these we used National Institute on Drug Abuse-published #RCT data
https://link.springer.com/article/10.1007/s11136-024-03729-6To me an example how #DataSharing supports research for community infrastructure
-
This #CostUtilityAnalysis of 'academic detailing' to enhance naloxone distribution for opioid users (i) shows it potentially cost-effective at WTP of US$50,000 per #QALY and (ii) it used #UtilityScores developed from #NIDA shared data*
https://link.springer.com/article/10.1007/s40258-025-00991-8* To develop these we used National Institute on Drug Abuse-published #RCT data
https://link.springer.com/article/10.1007/s11136-024-03729-6To me an example how #DataSharing supports research for community infrastructure
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In a week's time #SPRKrakow2025 will be over already.
I am grateful to my colleagues for joining me for the panel
"Measuring what matters: How do we know that we do?"#PsychotherapyResearch #Measurement #HRQOL #CoreOutcomes #DundeeUni
@paperbag1Discussant: Michael Barkham, University of Sheffield, UK
Talks:
Constructing a measurement ontology of depression and depression related constructs
Presenter: Gary Brown, Royal Holloway University of London, UK -
Looking forward to discussing work contributing to the European Psychotherapy Consortium (EPoC)!
EPoC homepage:
https://www.psychotherapyresearch.org/page/EPoCPublication relating to these presentations:
https://www.psycharchives.org/en/item/43ccc929-5c44-40fe-b59a-9c2162fa3cd9 -
Preparing our panel on measuring what matters, revisiting this gem:
https://academic.oup.com/schizophreniabulletin/article-abstract/39/1/226/1889747?login=falseIn 10k trials on the Cochrane Schizophrenia Group’s Register, 2194 different scales were employed with every fifth trial introducing a new rating instrument.
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Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
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The first paper of the EQ-DAPHNIE project describes its rationale, design and data collection methods:
https://link.springer.com/article/10.1007/s11136-025-03983-2Online survey quota (age, sex, household income, area of residence & per official language where relevant) samples from 15 countries with a range of #HRQOL data collected using the same methodology to support progress toward an international research infrastructure in this area.
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A start, but since #FDA cannot enforce the guidance without statute, advocates need to lobby Congress ... so that how well patients live is accounted for in randomized clinical trials.
Patient-Focused Drug Development:
Incorporating Clinical Outcome Assessments Into Endpoints For Regulatory Decision-Making
Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders
DRAFT GUIDANCE
https://www.fda.gov/media/166830/download