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#hrqol — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #hrqol, aggregated by home.social.

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  1. Announcement from #NICE "[t]o avoid unnecessary delay in implementing the EQ-5D-5L #ValueSet"
    nice.org.uk/process/pmg51/chap

    "After this interim methods statement is published, the EQ-5D-5L descriptive system and the new UK value set will be NICE's preferred approaches to measure and value health-related quality of life in adults."
    [dated: 27.08.2026]

    #HealthEconomics #EQ5D #HRQL #HRQoL

  2. Announcement from #NICE "[t]o avoid unnecessary delay in implementing the EQ-5D-5L #ValueSet"
    nice.org.uk/process/pmg51/chap

    "After this interim methods statement is published, the EQ-5D-5L descriptive system and the new UK value set will be NICE's preferred approaches to measure and value health-related quality of life in adults."
    [dated: 27.08.2026]

    #HealthEconomics #EQ5D #HRQL #HRQoL

  3. Announcement from #NICE "[t]o avoid unnecessary delay in implementing the EQ-5D-5L #ValueSet"
    nice.org.uk/process/pmg51/chap

    "After this interim methods statement is published, the EQ-5D-5L descriptive system and the new UK value set will be NICE's preferred approaches to measure and value health-related quality of life in adults."
    [dated: 27.08.2026]

    #HealthEconomics #EQ5D #HRQL #HRQoL

  4. A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
    bmjpublichealth.bmj.com/conten

    Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇

    #HRQOL #Psychometrics #PatientCentered

  5. A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
    bmjpublichealth.bmj.com/conten

    Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇

    #HRQOL #Psychometrics #PatientCentered

  6. A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
    bmjpublichealth.bmj.com/conten

    Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇

    #HRQOL #Psychometrics #PatientCentered

  7. A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
    bmjpublichealth.bmj.com/conten

    Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇

    #HRQOL #Psychometrics #PatientCentered

  8. The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
    link.springer.com/article/10.1

    #PPIE #PatientCentered #HRQOL

  9. The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
    link.springer.com/article/10.1

    #PPIE #PatientCentered #HRQOL

  10. The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
    link.springer.com/article/10.1

    #PPIE #PatientCentered #HRQOL

  11. The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
    link.springer.com/article/10.1

    #PPIE #PatientCentered #HRQOL

  12. Important note in this report by the Future #DSM Strategic Committee:

    Acknowledgement of the importance of functioning and quality of life (beyond symptoms) and tasking a sub-committee with finding assessments that align with recovery-oriented care
    psychiatryonline.org/doi/10.11

    #HRQL #HRQoL #MentalIllness #DSM5 #ICD11

  13. Important note in this report by the Future #DSM Strategic Committee:

    Acknowledgement of the importance of functioning and quality of life (beyond symptoms) and tasking a sub-committee with finding assessments that align with recovery-oriented care
    psychiatryonline.org/doi/10.11

    #HRQL #HRQoL #MentalIllness #DSM5 #ICD11

  14. Important note in this report by the Future #DSM Strategic Committee:

    Acknowledgement of the importance of functioning and quality of life (beyond symptoms) and tasking a sub-committee with finding assessments that align with recovery-oriented care
    psychiatryonline.org/doi/10.11

    #HRQL #HRQoL #MentalIllness #DSM5 #ICD11

  15. Important note in this report by the Future #DSM Strategic Committee:

    Acknowledgement of the importance of functioning and quality of life (beyond symptoms) and tasking a sub-committee with finding assessments that align with recovery-oriented care
    psychiatryonline.org/doi/10.11

    #HRQL #HRQoL #MentalIllness #DSM5 #ICD11

  16. Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
    link.springer.com/article/10.1

    #PatientCentered #Psychometrics #ScaleDevelopment #HRQOL

  17. Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
    link.springer.com/article/10.1

    #PatientCentered #Psychometrics #ScaleDevelopment #HRQOL

  18. Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
    link.springer.com/article/10.1

    #PatientCentered #Psychometrics #ScaleDevelopment #HRQOL

  19. Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
    link.springer.com/article/10.1

    #PatientCentered #Psychometrics #ScaleDevelopment #HRQOL

  20. Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

  21. Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

  22. Webpage live for the

    10th UK Patient Reported Outcome Measures Research Conference
    sheffield.ac.uk/smph/events/10

    The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

    Going back to where the journey started in 2016:
    Sheffield #SCHARR
    23rd June 2026

    #HRQOL #PatientCentered #ISOQOL

  23. Three calls for papers from JPRO:
    jpro.springeropen.com/articles

    Translation and Validation of Patient-Reported Outcome (PRO) Measures

    PROs in Clinical Registries

    Patient-Reported Outcome Measures (PROMs) in Telehealth

    #PatientCentered #HRQOL #HealthEconomics #CrossCultural

  24. Three calls for papers from JPRO:
    jpro.springeropen.com/articles

    Translation and Validation of Patient-Reported Outcome (PRO) Measures

    PROs in Clinical Registries

    Patient-Reported Outcome Measures (PROMs) in Telehealth

    #PatientCentered #HRQOL #HealthEconomics #CrossCultural

  25. Three calls for papers from JPRO:
    jpro.springeropen.com/articles

    Translation and Validation of Patient-Reported Outcome (PRO) Measures

    PROs in Clinical Registries

    Patient-Reported Outcome Measures (PROMs) in Telehealth

    #PatientCentered #HRQOL #HealthEconomics #CrossCultural

  26. We* investigated how QoL/ #HRQoL instruments were used as outcome measures in substance and behavioural addictions. We found similar issues as this team regarding wide variety of measures, lack of theory, and issues around methodological quality:
    onlinelibrary.wiley.com/doi/10

    #SysReview #Psychometrics

  27. We* investigated how QoL/ #HRQoL instruments were used as outcome measures in substance and behavioural addictions. We found similar issues as this team regarding wide variety of measures, lack of theory, and issues around methodological quality:
    onlinelibrary.wiley.com/doi/10

    #SysReview #Psychometrics

  28. We* investigated how QoL/ #HRQoL instruments were used as outcome measures in substance and behavioural addictions. We found similar issues as this team regarding wide variety of measures, lack of theory, and issues around methodological quality:
    onlinelibrary.wiley.com/doi/10

    #SysReview #Psychometrics

  29. We* investigated how QoL/ #HRQoL instruments were used as outcome measures in substance and behavioural addictions. We found similar issues as this team regarding wide variety of measures, lack of theory, and issues around methodological quality:
    onlinelibrary.wiley.com/doi/10

    #SysReview #Psychometrics

  30. A #ScopingReview of quality of life measures in treatment for substance misuse:
    link.springer.com/article/10.1

    Urgent development topics:
    Culturally adapted measures, how intersecting identities shape QoL experience, impacts of stigma on QoL, and the roles of socioeconomic factors and cooccurring conditions.
    #SDH #Multimorbidity

    #HRQOL

  31. A #ScopingReview of quality of life measures in treatment for substance misuse:
    link.springer.com/article/10.1

    Urgent development topics:
    Culturally adapted measures, how intersecting identities shape QoL experience, impacts of stigma on QoL, and the roles of socioeconomic factors and cooccurring conditions.
    #SDH #Multimorbidity

    #HRQOL

  32. A #ScopingReview of quality of life measures in treatment for substance misuse:
    link.springer.com/article/10.1

    Urgent development topics:
    Culturally adapted measures, how intersecting identities shape QoL experience, impacts of stigma on QoL, and the roles of socioeconomic factors and cooccurring conditions.
    #SDH #Multimorbidity

    #HRQOL

  33. A #ScopingReview of quality of life measures in treatment for substance misuse:
    link.springer.com/article/10.1

    Urgent development topics:
    Culturally adapted measures, how intersecting identities shape QoL experience, impacts of stigma on QoL, and the roles of socioeconomic factors and cooccurring conditions.
    #SDH #Multimorbidity

    #HRQOL

  34. Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

  35. Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

  36. Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

    Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
    osf.io/preprints/psyarxiv/fgbj

    Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
    journals.plos.org/plosone/arti

    #Psychometrics #HRQOL

  37. A review of UK MHRA protocols (k=122) of the use of #Estimand -s offers insights for improvement of protocols due to incomplete or incorrect specifications:
    trialsjournal.biomedcentral.co

    #RCT #StudyDesign #Registration #Causality

    Further resources:

    How estimands support stating the exact research question of a study and the interpretation of results:
    bmj.com/content/384/bmj-2023-0

    Application of the estimand framework to for studies with Patient-Reported Outcomes:
    jpro.springeropen.com/articles
    #HRQOL

  38. A review of UK MHRA protocols (k=122) of the use of #Estimand -s offers insights for improvement of protocols due to incomplete or incorrect specifications:
    trialsjournal.biomedcentral.co

    #RCT #StudyDesign #Registration #Causality

    Further resources:

    How estimands support stating the exact research question of a study and the interpretation of results:
    bmj.com/content/384/bmj-2023-0

    Application of the estimand framework to for studies with Patient-Reported Outcomes:
    jpro.springeropen.com/articles
    #HRQOL

  39. A review of UK MHRA protocols (k=122) of the use of #Estimand -s offers insights for improvement of protocols due to incomplete or incorrect specifications:
    trialsjournal.biomedcentral.co

    #RCT #StudyDesign #Registration #Causality

    Further resources:

    How estimands support stating the exact research question of a study and the interpretation of results:
    bmj.com/content/384/bmj-2023-0

    Application of the estimand framework to for studies with Patient-Reported Outcomes:
    jpro.springeropen.com/articles
    #HRQOL

  40. A review of UK MHRA protocols (k=122) of the use of #Estimand -s offers insights for improvement of protocols due to incomplete or incorrect specifications:
    trialsjournal.biomedcentral.co

    #RCT #StudyDesign #Registration #Causality

    Further resources:

    How estimands support stating the exact research question of a study and the interpretation of results:
    bmj.com/content/384/bmj-2023-0

    Application of the estimand framework to for studies with Patient-Reported Outcomes:
    jpro.springeropen.com/articles
    #HRQOL

  41. First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.

    Currently available from this work #SysReview -s on
    sciencedirect.com/science/arti
    and work on #HRQoL assessment
    onlinelibrary.wiley.com/doi/10

    #SARN #SubstanceUse #Scotland

  42. First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.

    Currently available from this work #SysReview -s on
    sciencedirect.com/science/arti
    and work on #HRQoL assessment
    onlinelibrary.wiley.com/doi/10

    #SARN #SubstanceUse #Scotland

  43. First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.

    Currently available from this work #SysReview -s on
    sciencedirect.com/science/arti
    and work on #HRQoL assessment
    onlinelibrary.wiley.com/doi/10

    #SARN #SubstanceUse #Scotland

  44. First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.

    Currently available from this work #SysReview -s on
    sciencedirect.com/science/arti
    and work on #HRQoL assessment
    onlinelibrary.wiley.com/doi/10

    #SARN #SubstanceUse #Scotland

  45. First up, @ptoner.bsky.social presents on developing screening & assessment instruments for young people.

    Currently available from this work #SysReview -s on
    sciencedirect.com/science/arti
    and work on #HRQoL assessment
    onlinelibrary.wiley.com/doi/10

    #SARN #SubstanceUse #Scotland

  46. New #AcademicYear - New #introduction

    I am a researcher at #DundeeUni and interested in health-related quality of life
    #HRQoL #Psychometrics

    I teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.

    I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing

    This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)

  47. New #AcademicYear - New #introduction

    I am a researcher at #DundeeUni and interested in health-related quality of life
    #HRQoL #Psychometrics

    I teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.

    I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing

    This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)

  48. New #AcademicYear - New #introduction

    I am a researcher at #DundeeUni and interested in health-related quality of life
    #HRQoL #Psychometrics

    I teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.

    I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing

    This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)

  49. New #AcademicYear - New #introduction

    I am a researcher at #DundeeUni and interested in health-related quality of life
    #HRQoL #Psychometrics

    I teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.

    I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing

    This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)

  50. New #AcademicYear - New #introduction

    I am a researcher at #DundeeUni and interested in health-related quality of life
    #HRQoL #Psychometrics

    I teach #ResearchMethodology and #ResearchMethods with a focus on #Quantitative methods.

    I worked for 7yrs as a #NightshiftEditor and I am still mulling over roles in and sense of #AcademicPublishing

    This is mainly a work account, but I also post #Dundee stuff such as #DunDeCofaidh and occasional #Deutsch #Svenska #Gaidhlig (👉 pure work account at BSky)

  51. A #SysReview of quality of life and #HRQoL instruments used in trials of interventions for adults with alcohol use disorder:
    jsatjournal.com/article/S2949-

    One of the interesting findings:
    Although the team focused on the most frequently used instruments they found only very few studies reporting psychometric properties in this population.

    This mirrors findings from our broader #SysReview of #HRQL as an outcome in substance and behavioural addictions
    pubmed.ncbi.nlm.nih.gov/374393

    #Psychometrics #Validity

  52. A #SysReview of quality of life and #HRQoL instruments used in trials of interventions for adults with alcohol use disorder:
    jsatjournal.com/article/S2949-

    One of the interesting findings:
    Although the team focused on the most frequently used instruments they found only very few studies reporting psychometric properties in this population.

    This mirrors findings from our broader #SysReview of #HRQL as an outcome in substance and behavioural addictions
    pubmed.ncbi.nlm.nih.gov/374393

    #Psychometrics #Validity