#ppie — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ppie, aggregated by home.social.
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Last week the #IncludeAge project invited to a day of sharing and celebrating. I enjoyed it very much and the #SeriousGame session facilitated by socialudo* was a great way to explore findings!
IncludeAge works with mid to older aged people with Learning Disabilities and/or who identify as LGBT+ to co-create understandings of inclusion and exclusion in everyday physical and online places and spaces:
https://includeage.co.uk/ -
The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8 -
Great day at our Postgraduate Research Symposium at the School of #HealthSciences #DundeeUni !
21 presentations across such diverse topics as breastfeeding, the Dysphoric Milk Ejection Reflex, #MentalHealth literacy, stigma of mental illness, the nursing curriculum, #PPIE in #RCTs, skin to skin care, traumatic birth and... and... 👏
Great opportunity to welcome new students, and to see projects develop over the years.
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We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.
Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data
They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.
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We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.
Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data
They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.
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We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.
Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data
They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.
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We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.
Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data
They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.
-
We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.
Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data
They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.