#patientcentered — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #patientcentered, aggregated by home.social.
-
Abstracts for the EU-UK Meeting* of the Society for #PsychotherapyResearch needed to be written, a good opportunity to visit MANA.
#EarlyCoffee #DunDeCofaidh #CofaidhOpens all week 8.00am
#FlatWhite £3.90
#Espresso £3.00*Submissions still open until March 3rd, #conference topic "Putting Psychotherapy Practice at the Heart of Research: Amplifying the Clients’ Voices"
https://www.psychotherapyresearch.org/page/uk-eu-spr2026
#PatientCentered -
💡 Did you know? AI is helping healthcare providers deliver better outcomes and more personalized care to patients worldwide. Explore how cutting-edge technology is reshaping modern medicine. 🌍
Discover more: ravcare.com/how-ai-is-revolutionizing-patient-care-with-ravcare/
#DigitalHealth #AIRevolution #HealthcareTransformation #IntelligentCare #MedicalTechnology #PatientCentered #HealthInnovation
-
The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8 -
How to engage w collaborators in health state valuation, how to include their voices?
https://link.springer.com/article/10.1007/s40273-025-01550-8Based on 37 guidance documents and studies, the team develops a 15pt framework for developing guidance to improve practice in the field.
-
Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
https://pmc.ncbi.nlm.nih.gov/articles/PMC11648710/
#ISOQOLThis is a great example of papers that elucidate practical challenges of PRO capture (see our call for more such work in this editorial https://rdcu.be/eMp57 )
-
Rehabilitation is often criticised for its focus on physical and functional recovery, at the expense of recognising the profound social and psychological impacts of illness and injury:
https://www.frontiersin.org/journals/rehabilitation-sciences/articles/10.3389/fresc.2025.1665527/full -
Perspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon:
https://link.springer.com/article/10.1007/s11136-025-03996-x -
Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
-
#PersonCentred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users.
Read our discussion piece on how we measure and evaluate such care and the potential place for #PatientReported outcomes in it:
https://www.frontiersin.org/journals/health-services/articles/10.3389/frhs.2025.1578037/full -
A new paper discusses workflow development for ePRO symptom monitoring to support PRO(M) implementation into practice using the Action, Actor, Context, Target, Time framework:
https://link.springer.com/article/10.1007/s11136-025-03995-y#HRQL #PatientCentered #ImplementationScience #ParticipatoryResearch
-
"The article focusses primarily on presenting the case for adopting ROM and is a starting point—a primer—for any person working in the field of student counselling, or psychological therapies more generally, who is considering the challenges of adopting ROM."
Quote from:
https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12694 -
The March* issue of Quality of Life Research includes the call for papers
"Quality of life dimensions in people living with mental disorders: moving beyond global scores"
https://rdcu.be/ehPIyWe encourage submissions of research and practice using nuanced approaches to #HRQL & #QOL, adopting the term “mental disorder” broadly, e.g., based on standard diagnoses or using transdiagnostic perspectives.
#SMI #HRQL #PatientCentered #Psychometrics #ClinicalPsychology #PsychotherapyResearch
* 👇
-
Protocol for one of our current trials published:
DIAMONDS evaluates a #diabetes #SelfManagement intervention for people living with severe mental illness
https://bmjopen.bmj.com/content/15/3/e090295Registration incl. SAP at ISRCTN22275538
https://www.isrctn.com/ISRCTN22275538#SMI #Multimorbidity #ISRCTN #NIHR #DundeeUni #UniOfYork #PatientCentered
-
Protocol for one of our current trials published:
DIAMONDS evaluates a #diabetes #SelfManagement intervention for people living with severe mental illness
https://bmjopen.bmj.com/content/15/3/e090295Registration incl. SAP at ISRCTN22275538
https://www.isrctn.com/ISRCTN22275538#SMI #Multimorbidity #ISRCTN #NIHR #DundeeUni #UniOfYork #PatientCentered
-
Protocol for one of our current trials published:
DIAMONDS evaluates a #diabetes #SelfManagement intervention for people living with severe mental illness
https://bmjopen.bmj.com/content/15/3/e090295Registration incl. SAP at ISRCTN22275538
https://www.isrctn.com/ISRCTN22275538#SMI #Multimorbidity #ISRCTN #NIHR #DundeeUni #UniOfYork #PatientCentered
-
Protocol for one of our current trials published:
DIAMONDS evaluates a #diabetes #SelfManagement intervention for people living with severe mental illness
https://bmjopen.bmj.com/content/15/3/e090295Registration incl. SAP at ISRCTN22275538
https://www.isrctn.com/ISRCTN22275538#SMI #Multimorbidity #ISRCTN #NIHR #DundeeUni #UniOfYork #PatientCentered
-
Protocol for one of our current trials published:
DIAMONDS evaluates a #diabetes #SelfManagement intervention for people living with severe mental illness
https://bmjopen.bmj.com/content/15/3/e090295Registration incl. SAP at ISRCTN22275538
https://www.isrctn.com/ISRCTN22275538#SMI #Multimorbidity #ISRCTN #NIHR #DundeeUni #UniOfYork #PatientCentered
-
How to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor #SideEffects to items from existing item libraries ( #CTCAE #EORTC #FACIT )
https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8 -
A #ScopingReview (n=6) from one of our #ProfDoc students highlights the profound impact of adenomyosis and how important a better understanding of the lived experience is to improve diagnostic pathways
https://bmjopen.bmj.com/content/15/1/e087122.full -
10/x Thanks for reading in case you made it this far.
I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract.
And once again links to the book
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#and the book review:
https://rdcu.be/dXACh -
8/x The last chapter focuses on the contexts of use of #HRQL measures (e.g., #FDA, agencies, #PatientCentered initiatives). Kevin Weinfurt (👇) and Rebecca Jackson discussed how even the often ignored response options reflect assumptions of how we want to represent what we are measuring!
-
5/x Alessandra Basso (LSE) highlighted hermeneutic marginalisation and misrepresentation as injustices 👇
An important question the book raises is how to elicit and integrate all voices and still recognising that all positions are fallible. #Epistemology