#patientcentered — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #patientcentered, aggregated by home.social.
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Really nice day with #interdisciplinary and stakeholder perspectives at #UofGlasgow at the workshop
"What’s a difference that matters? Establishing #PatientFocused “good enough” margins"
organised by Beatriz Goulao.Brief intro to #NonInferiority margins in trials and what they are used for:
https://youtu.be/bv9GXUbqyfs?si=zpdU7NaydF8d0apVAnd a link to Beatriz' work:
https://www.gla.ac.uk/schools/healthwellbeing/staff/beatrizgoulao/ -
Got an early train from Balmossie. It felt a bit like a certain movie.
#BaileMosaidh #SpiritedAwayOff for the day to Glasgow for the workshop
"What’s a difference that matters? Establishing patient-focused “good enough” margins”
organised by Beatriz Goulao.
#Glaschu #Psychometrics #PatientCentered -
Interesting paper on the evaluation of anxiety and depression item banks for the #EORTC CAT
https://link.springer.com/article/10.1007/s11136-026-04370-1The classification of the symptoms by experts is an interesting step (but no involvement of #LivedExperience).
Cross-sectionally it is difficult to separate these 2 dimensions empirically (discussed from a dynamic perspective: https://www.pnas.org/doi/full/10.1073/pnas.1711978115), so it is interesting that the item banks are assumed to be independent, this is not tested here.
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Abstracts for the EU-UK Meeting* of the Society for #PsychotherapyResearch needed to be written, a good opportunity to visit MANA.
#EarlyCoffee #DunDeCofaidh #CofaidhOpens all week 8.00am
#FlatWhite £3.90
#Espresso £3.00*Submissions still open until March 3rd, #conference topic "Putting Psychotherapy Practice at the Heart of Research: Amplifying the Clients’ Voices"
https://www.psychotherapyresearch.org/page/uk-eu-spr2026
#PatientCentered -
💡 Did you know? AI is helping healthcare providers deliver better outcomes and more personalized care to patients worldwide. Explore how cutting-edge technology is reshaping modern medicine. 🌍
Discover more: ravcare.com/how-ai-is-revolutionizing-patient-care-with-ravcare/
#DigitalHealth #AIRevolution #HealthcareTransformation #IntelligentCare #MedicalTechnology #PatientCentered #HealthInnovation
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A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
https://bmjpublichealth.bmj.com/content/4/1/e004156Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇
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The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8 -
Submissions to the 7th UK-EU SPR conference are open until
🔥📆 Friday 27th February
https://www.psychotherapyresearch.org/page/uk-eu-spr2026The conference theme is
Putting #Psychotherapy Practice at the Heart of Research: Amplifying the Clients' VoicesLast time I tried to reach Bristol, a certain volcano made it impossible. 🌋 #Iceland
Maybe there is a chance this year? 😅 -
Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
https://link.springer.com/article/10.1007/s11136-024-03858-y -
Webpage live for the
10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conferenceThe conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.
Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026 -
How to engage w collaborators in health state valuation, how to include their voices?
https://link.springer.com/article/10.1007/s40273-025-01550-8Based on 37 guidance documents and studies, the team develops a 15pt framework for developing guidance to improve practice in the field.
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Three calls for papers from JPRO:
https://jpro.springeropen.com/articles/collectionsTranslation and Validation of Patient-Reported Outcome (PRO) Measures
PROs in Clinical Registries
Patient-Reported Outcome Measures (PROMs) in Telehealth
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Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
https://pmc.ncbi.nlm.nih.gov/articles/PMC11648710/
#ISOQOLThis is a great example of papers that elucidate practical challenges of PRO capture (see our call for more such work in this editorial https://rdcu.be/eMp57 )
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Rehabilitation is often criticised for its focus on physical and functional recovery, at the expense of recognising the profound social and psychological impacts of illness and injury:
https://www.frontiersin.org/journals/rehabilitation-sciences/articles/10.3389/fresc.2025.1665527/full -
Perspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon:
https://link.springer.com/article/10.1007/s11136-025-03996-x -
Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIEThe aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.
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#PersonCentred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users.
Read our discussion piece on how we measure and evaluate such care and the potential place for #PatientReported outcomes in it:
https://www.frontiersin.org/journals/health-services/articles/10.3389/frhs.2025.1578037/full -
A new paper discusses workflow development for ePRO symptom monitoring to support PRO(M) implementation into practice using the Action, Actor, Context, Target, Time framework:
https://link.springer.com/article/10.1007/s11136-025-03995-y#HRQL #PatientCentered #ImplementationScience #ParticipatoryResearch
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"The article focusses primarily on presenting the case for adopting ROM and is a starting point—a primer—for any person working in the field of student counselling, or psychological therapies more generally, who is considering the challenges of adopting ROM."
Quote from:
https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12694 -
The March* issue of Quality of Life Research includes the call for papers
"Quality of life dimensions in people living with mental disorders: moving beyond global scores"
https://rdcu.be/ehPIyWe encourage submissions of research and practice using nuanced approaches to #HRQL & #QOL, adopting the term “mental disorder” broadly, e.g., based on standard diagnoses or using transdiagnostic perspectives.
#SMI #HRQL #PatientCentered #Psychometrics #ClinicalPsychology #PsychotherapyResearch
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Protocol for one of our current trials published:
DIAMONDS evaluates a #diabetes #SelfManagement intervention for people living with severe mental illness
https://bmjopen.bmj.com/content/15/3/e090295Registration incl. SAP at ISRCTN22275538
https://www.isrctn.com/ISRCTN22275538#SMI #Multimorbidity #ISRCTN #NIHR #DundeeUni #UniOfYork #PatientCentered
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9th National Patient-Reported Outcome Measures Research Conference
https://www.birmingham.ac.uk/research/centres-institutes/patient-reported-outcomes/events/9th-national-proms-research-conferenceConference: 19th June 2025
at Uo Birmingham #CPRORSubmission deadline: 11th April
The call "PROMising Futures" highlights focal areas for submissions:
Innovative ways to develop and implement PROMs
#ImplementationScience #ImplementationResearchPresentation of PROMs to clinicians and patients
#Feedbackand the description of the clinical utility of PROMs.
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How to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor #SideEffects to items from existing item libraries ( #CTCAE #EORTC #FACIT )
https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8 -
Embracing Holistic Healthcare: The Power of Palliative Care Psychiatry
#HolisticHealthcare #PalliativeCare #MentalHealth #Cardiology #Psychiatry #MultidisciplinaryCare #PatientCentered #WellBeing #HealthcareCollaboration #CompassionateCare #Neuroinflammation #HormonalDysregulation #MindBodyConnection #CognitiveHealth #HealingTogether
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A #ScopingReview (n=6) from one of our #ProfDoc students highlights the profound impact of adenomyosis and how important a better understanding of the lived experience is to improve diagnostic pathways
https://bmjopen.bmj.com/content/15/1/e087122.full -
Deadline for the Annual SPR meeting extended until 12th January 2025!
Enough time to get presentations, workshops, or even panels lined up and submitted!
#PsychotherapyResearch #PatientCentered
Previous post with more detail on the conference and relevant links:
https://mastodon.social/deck/@jrboehnke/113639421869779869 -
Only a few days to go until the submission deadline for the 56th International Annual Meeting of the Society of #PsychotherapyResearch closes!
Deadline: 15th Dec 2024
#Conference 25-28th June in Krakow, Poland
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10/x Thanks for reading in case you made it this far.
I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract.
And once again links to the book
https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#and the book review:
https://rdcu.be/dXACh -
8/x The last chapter focuses on the contexts of use of #HRQL measures (e.g., #FDA, agencies, #PatientCentered initiatives). Kevin Weinfurt (👇) and Rebecca Jackson discussed how even the often ignored response options reflect assumptions of how we want to represent what we are measuring!
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6/x Rick Sawatzky's recorded input focused on #Exchangeablility and discussed how the term #PatientCentered measurement may relate to ideographic and nomothetic methods.
You can find out more about Rick's work here:
https://healthyqol.com/about-ephm