#multiple-sclerosis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #multiple-sclerosis, aggregated by home.social.
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DATE: June 29, 2026 at 12:10AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEEDTITLE: These fat-filled brain cells may be making multiple sclerosis worse
URL: https://www.sciencedaily.com/releases/2026/06/260621060307.htm
Scientists have uncovered a surprising clue that may help explain why multiple sclerosis (MS) progresses rapidly in some people but not others. In brain tissue from patients with severe MS, researchers found large numbers of “foamy” immune cells packed with fat droplets after absorbing damaged myelin. These overloaded cells appear to switch from helping repair the brain to fueling ongoing damage and inflammation.
URL: https://www.sciencedaily.com/releases/2026/06/260621060307.htm
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Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org
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#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #MultipleSclerosis #MSresearch #FattyBuildup #FoamyCells #Neuroinflammation #MyelinDamage #BrainHealth #ImmuneCells #Neurology #MedicalScience
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DATE: June 29, 2026 at 12:10AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEEDTITLE: These fat-filled brain cells may be making multiple sclerosis worse
URL: https://www.sciencedaily.com/releases/2026/06/260621060307.htm
Scientists have uncovered a surprising clue that may help explain why multiple sclerosis (MS) progresses rapidly in some people but not others. In brain tissue from patients with severe MS, researchers found large numbers of “foamy” immune cells packed with fat droplets after absorbing damaged myelin. These overloaded cells appear to switch from helping repair the brain to fueling ongoing damage and inflammation.
URL: https://www.sciencedaily.com/releases/2026/06/260621060307.htm
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Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org
Unofficial Psychology Today Xitter to toot feed at Psych Today Unofficial Bot @PTUnofficialBot
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#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #MultipleSclerosis #MSresearch #FattyBuildup #FoamyCells #Neuroinflammation #MyelinDamage #BrainHealth #ImmuneCells #Neurology #MedicalScience
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Please boost: My spouse can no longer work due to #MultipleSclerosis and other complications; please help our queer family survive.
Just $15 will help our account stay out of the negative!
https://chuffed.org/project/kat
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis and other complications; please help our queer family survive.
Just $15 will help our account stay out of the negative!
https://chuffed.org/project/kat
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis and other complications; please help our queer family survive.
We need about $650 in donations over the next 2 weeks to get us through June/July.
https://chuffed.org/project/kat
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis and other complications; please help our queer family survive.
We need about $650 in donations over the next 2 weeks to get us through June/July.
https://chuffed.org/project/kat
Venmo: @bohe2389
Cashapp: $bohe2389 -
New tattoo, and a sketch of it my sweet June bug did for me
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New tattoo, and a sketch of it my sweet June bug did for me
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Just hit a wall....barely a spoon to type this with. Good day of work but I need a nap, I think
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Hopefully my approval has gone through by tomorrow morning so I can start linin up so appoints, starting with my PCP
#MultipleSclerosis #fatigue #balance #ChronicDisease #Doctor
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"even #science is #corrupt" #jacquefresco #bigpharma short term relief long term destruction "hurray" #multiplesclerosis
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"even #science is #corrupt" #jacquefresco #bigpharma short term relief long term destruction "hurray" #multiplesclerosis
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I should also mention that I’m married to Dr Caitlin Swisslet - the strongest and cleverest person I know (she has about 5 degrees and gave up a hugely successful corporate career to move into health psychology working for the NHS). We’ve been together for 27 years or something and I’ve never really understood why she likes me, but I’m very grateful that she does. I am surrounded by intelligent, powerful women and I find it utterly mystifying that anyone might think women are in any way inferior to men. Not in my bloody experience.
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I should also mention that I’m married to Dr Caitlin Swisslet - the strongest and cleverest person I know (she has about 5 degrees and gave up a hugely successful corporate career to move into health psychology working for the NHS). We’ve been together for 27 years or something and I’ve never really understood why she likes me, but I’m very grateful that she does. I am surrounded by intelligent, powerful women and I find it utterly mystifying that anyone might think women are in any way inferior to men. Not in my bloody experience.
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I’ve been here since 2022, but no rush, eh?
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I’ve been here since 2022, but no rush, eh?
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I’ve never done an #Introduction post, so...
I’m Tim. I have #MultipleSclerosis, and although that’s only a part of me, it’s shaped my life hugely since diagnosis (in 2009, after 4 years of symptoms). I’m a much kinder person than I used to be and I’m grateful for that, even if the disease itself is a bastard. I used to run marathons, but #MS eventually put paid to that, so now I swim in a lake and row on a river instead. I try to focus on what I have and not what I’ve lost.
I have an MA in medieval history; I work as a PM for a large corporation, (but not very hard); I’m a trustee/director of a Nottingham-based charity combatting domestic violence. As a middle aged, white, CIS guy, this has been a real eye-opener; I’m a member of my local #parkrun core team; I’m a qualified running coach. I have loads of tattoos.
I’m interested in politics but try to focus on being a force for good myself. Nauseating, no?
❤️ animals (esp cats!)
❤️ music
❤️ booksMotto: don’t be a dick
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I’ve never done an #Introduction post, so...
I’m Tim. I have #MultipleSclerosis, and although that’s only a part of me, it’s shaped my life hugely since diagnosis (in 2009, after 4 years of symptoms). I’m a much kinder person than I used to be and I’m grateful for that, even if the disease itself is a bastard. I used to run marathons, but #MS eventually put paid to that, so now I swim in a lake and row on a river instead. I try to focus on what I have and not what I’ve lost.
I have an MA in medieval history; I work as a PM for a large corporation, (but not very hard); I’m a trustee/director of a Nottingham-based charity combatting domestic violence. As a middle aged, white, CIS guy, this has been a real eye-opener; I’m a member of my local #parkrun core team; I’m a qualified running coach. I have loads of tattoos.
I’m interested in politics but try to focus on being a force for good myself. Nauseating, no?
❤️ animals (esp cats!)
❤️ music
❤️ booksMotto: don’t be a dick
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For the Spoonie Community, I fall asleep because I have no spoons and I wake up an hour later having recovered...no spoons
You know what I mean
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I feel like shit. I woke up after a few hours feeling like I'd been hit by a truck; not rested at all..draggedmy ass to the kitchen to make a sandwhich and then back to bed. Still no energy; still fatigued and wobbly, I'm just not recovering #MultipleSclerosis #Relapse #Symptom
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I'm wondering if I have a new relapse
I can't shake this fatigue and unsteadiness the last few weeks
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Delighted to be invited to talk at the All Wales MS Meeting today! Talking about Aging and MS #MS #research #multiplesclerosis
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Delighted to be invited to talk at the All Wales MS Meeting today! Talking about Aging and MS #MS #research #multiplesclerosis
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CW: Burnout, health, work-related stress
I had a healthy thought about work for the first time in a long while today: I might not have the capacity or means to reach a larger audience, but I can adapt to the reality that my audience is no more than 100 people.* I can get off the open calls treadmill in order to prioritise my wellbeing and satisfaction in my work. I can scale everything way back to what's within my capacity to complete without funding, and that's not the same as having to quit entirely.
It's probably not a coincidence that this healthy thought comes about a week after the DWP finally reached the decision that I truly cannot work right now and started paying me the higher rate of UC. This brings me much closer to meeting my basic living costs, and confirms that I have the space and time to focus on #burnoutrecovery . Until now I had to constantly hold onto the possibility that I'd be forced to return to work, so I couldn't relax and prioritise my body's needs, I was constantly running survive-late-capitalism.exe in the background.
According to Visible, there's been a clear improvement in many of my symptoms over the past month, but I've not been tracking as consistently because the bad days have been very bad and it's thrown me off my routine. I might be missing data from my worst days and having lower average symptom scores as a result. There are some other signs of improvement though, e.g. I have been able to prepare food recently, albeit with a crash the following day. That's crucial, because a lot of the interventions that I'm exploring at the moment are diet-related, and require preparing fresh, nutritious food.
I'm starting two group courses provided by the NHS: one for pre-diabetics, and one for people with chronic pain. Although neither are directly fatigue-related, I'm hopeful that they might both help with my energy levels. I'm generally getting the attention of doctors, and they're really trying to figure out why I'm so unwell because #multiplesclerosis doesn't explain it adequately, but we're also hamstrung by pretty crap NHS systems that are backlogged and dysfunctional.
Generally this is all taking much longer than I ever would have expected, and it's beyond frustrating to know that it could all happen again at any time due to COVID. But I have lots of reasons to feel hopeful now.
* My metrics on social media and Neocities traffic give numbers far larger than that, but when it comes to the question of how many people will directly experience something I'm working on, I don't think it breaks triple digits. I'm lucky if 25 people join a live performance online. The London show only got 4, despite being part of a festival of sci-fi theatre, and one was a TERF who walked out.
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CW: Burnout, health, work-related stress
I had a healthy thought about work for the first time in a long while today: I might not have the capacity or means to reach a larger audience, but I can adapt to the reality that my audience is no more than 100 people.* I can get off the open calls treadmill in order to prioritise my wellbeing and satisfaction in my work. I can scale everything way back to what's within my capacity to complete without funding, and that's not the same as having to quit entirely.
It's probably not a coincidence that this healthy thought comes about a week after the DWP finally reached the decision that I truly cannot work right now and started paying me the higher rate of UC. This brings me much closer to meeting my basic living costs, and confirms that I have the space and time to focus on #burnoutrecovery . Until now I had to constantly hold onto the possibility that I'd be forced to return to work, so I couldn't relax and prioritise my body's needs, I was constantly running survive-late-capitalism.exe in the background.
According to Visible, there's been a clear improvement in many of my symptoms over the past month, but I've not been tracking as consistently because the bad days have been very bad and it's thrown me off my routine. I might be missing data from my worst days and having lower average symptom scores as a result. There are some other signs of improvement though, e.g. I have been able to prepare food recently, albeit with a crash the following day. That's crucial, because a lot of the interventions that I'm exploring at the moment are diet-related, and require preparing fresh, nutritious food.
I'm starting two group courses provided by the NHS: one for pre-diabetics, and one for people with chronic pain. Although neither are directly fatigue-related, I'm hopeful that they might both help with my energy levels. I'm generally getting the attention of doctors, and they're really trying to figure out why I'm so unwell because #multiplesclerosis doesn't explain it adequately, but we're also hamstrung by pretty crap NHS systems that are backlogged and dysfunctional.
Generally this is all taking much longer than I ever would have expected, and it's beyond frustrating to know that it could all happen again at any time due to COVID. But I have lots of reasons to feel hopeful now.
* My metrics on social media and Neocities traffic give numbers far larger than that, but when it comes to the question of how many people will directly experience something I'm working on, I don't think it breaks triple digits. I'm lucky if 25 people join a live performance online. The London show only got 4, despite being part of a festival of sci-fi theatre, and one was a TERF who walked out.
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My #MultipleSclerosis nuero says I can go from infusions every six months to every nine months instead. Hell. Yes.
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My #MultipleSclerosis nuero says I can go from infusions every six months to every nine months instead. Hell. Yes.
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Petition the UK government to improve PIP processes for conditions such as MS
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Petition the UK government to improve PIP processes for conditions such as MS
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Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Venmo: @bohe2389
Cashapp: $bohe2389#MutualAid #MutualAidRequest #DisabledAid #Pride #TransCrowdfund
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Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Venmo: @bohe2389
Cashapp: $bohe2389#MutualAid #MutualAidRequest #DisabledAid #Pride #TransCrowdfund
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Often mistaken for stress, this hidden neurological disorder is affecting more young Indians https://english.mathrubhumi.com/lifestyle/health/multiple-sclerosis-symptoms-diagnosis-india-b8gur37p?utm_source=dlvr.it&utm_medium=mastodon #MultipleSclerosis #MSAwareness #Neurology #InvisibleIllness
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World #MS Day was established in 2009 by the International Multiple Sclerosis Federation (MSIF) and partner organizations. It is observed in dozens of countries worldwide and its official date is May 30th.
The symbol of solidarity with diagnosed individuals is the color orange and the orange ribbon.
#multiplesclerosis #fuckms #msawareness -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$60/150 allergy-friendly cat food and litter
$28/60 human meds
$0/60 allergy-friendly dog food
$260/260 dog heartworm and flea/tick prevention meds
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$60/150 allergy-friendly cat food and litter
$28/60 human meds
$0/60 allergy-friendly dog food
$260/260 dog heartworm and flea/tick prevention meds
Venmo: @bohe2389
Cashapp: $bohe2389 -
Teri Garr was a National Ambassador for the National MS Society and a National Chair for the Society's Women Against MS program.
#MusComEnt #WorldMSDay #MultipleSclerosis #TeriGarr -
In 2002, Teri Garr confirmed that she had been living with Multiple Sclerosis for more than 20yrs. She spent years dedicating her life off camera to MS-charities and MS patient advocacy (https://www.brainandlife.org/articles/teri-garr-on-life-with-ms)
#MusComEnt #WorldMSDay #MultipleSclerosis #TeriGarr -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$60/150 allergy-friendly cat food and litter
$28/60 human meds
$0/60 allergy-friendly dog food
$260/260 dog heartworm and flea/tick prevention meds
Venmo: @bohe2389
Cashapp: $bohe2389 -
ANTITRUST Biogen probed by Italy over MS drug competition cinquewnews.blogspot.com/2026/05/biog... #Antitrust #Biogen #MultipleSclerosis #MSDrug #PharmaNews #ItalianAntitrust #CompetitionLaw #HealthcareIndustry #Biotech #Natalizumab #Sandoz #DrugMarket #EUCompetition #Pharmaceuticals #MedicalNews
Biogen probed by Italy over MS... -
Two drug molecules achieve myelin repair in MS disease models