home.social

#chronicilness — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicilness, aggregated by home.social.

  1. That white landscape is quite beautiful, but restricts my mobility quite a bit.
    Since I have "drug" induced Parkinsonism, I walk as if there's snow on the ground in every season. Now that it's icy, I'm just housebound.
    I can walk reasonably well with spikes, but you can't wear them to/in the supermarket or so...
    .....I'm glad it's thawing.

    Are there other people here with ? I'm in to liking photos of your cat 🙂



  2. That white landscape is quite beautiful, but #snow restricts my mobility quite a bit.
    Since I have "drug" induced Parkinsonism, I walk as if there's snow on the ground in every season. Now that it's icy, I'm just housebound.
    I can walk reasonably well with spikes, but you can't wear them to/in the supermarket or so...
    .....I'm glad it's thawing.

    Are there other people here with #Parkinsonism? I'm in to liking photos of your cat 🙂

    #ChronicIlness #Environment
    #Medication #Balance
    #Welcome #Thaw

  3. That white landscape is quite beautiful, but #snow restricts my mobility quite a bit.
    Since I have "drug" induced Parkinsonism, I walk as if there's snow on the ground in every season. Now that it's icy, I'm just housebound.
    I can walk reasonably well with spikes, but you can't wear them to/in the supermarket or so...
    .....I'm glad it's thawing.

    Are there other people here with #Parkinsonism? I'm in to liking photos of your cat 🙂

    #ChronicIlness #Environment
    #Medication #Balance
    #Welcome #Thaw

  4. That white landscape is quite beautiful, but #snow restricts my mobility quite a bit.
    Since I have "drug" induced Parkinsonism, I walk as if there's snow on the ground in every season. Now that it's icy, I'm just housebound.
    I can walk reasonably well with spikes, but you can't wear them to/in the supermarket or so...
    .....I'm glad it's thawing.

    Are there other people here with #Parkinsonism? I'm in to liking photos of your cat 🙂

    #ChronicIlness #Environment
    #Medication #Balance
    #Welcome #Thaw

  5. That white landscape is quite beautiful, but #snow restricts my mobility quite a bit.
    Since I have "drug" induced Parkinsonism, I walk as if there's snow on the ground in every season. Now that it's icy, I'm just housebound.
    I can walk reasonably well with spikes, but you can't wear them to/in the supermarket or so...
    .....I'm glad it's thawing.

    Are there other people here with #Parkinsonism? I'm in to liking photos of your cat 🙂

    #ChronicIlness #Environment
    #Medication #Balance
    #Welcome #Thaw

  6. How can I promote my #crowdfund if I can barely get online? I won’t survive much longer in this house. My doctor agrees. I’m declining and there’s no treatment that can work while I’m constantly being #abused #neglected #controlled you name it.

    Please help promote my crowdfund I don’t have long.

    chuffed.org/project/161937-hel

    #SevereME #ChronicIlness #MECFS #Disabilty #MutualAid #Neisvoid

  7. How can I promote my #crowdfund if I can barely get online? I won’t survive much longer in this house. My doctor agrees. I’m declining and there’s no treatment that can work while I’m constantly being #abused #neglected #controlled you name it.

    Please help promote my crowdfund I don’t have long.

    chuffed.org/project/161937-hel

    #SevereME #ChronicIlness #MECFS #Disabilty #MutualAid #Neisvoid

  8. How can I promote my #crowdfund if I can barely get online? I won’t survive much longer in this house. My doctor agrees. I’m declining and there’s no treatment that can work while I’m constantly being #abused #neglected #controlled you name it.

    Please help promote my crowdfund I don’t have long.

    chuffed.org/project/161937-hel

    #SevereME #ChronicIlness #MECFS #Disabilty #MutualAid #Neisvoid

  9. How can I promote my #crowdfund if I can barely get online? I won’t survive much longer in this house. My doctor agrees. I’m declining and there’s no treatment that can work while I’m constantly being #abused #neglected #controlled you name it.

    Please help promote my crowdfund I don’t have long.

    chuffed.org/project/161937-hel

    #SevereME #ChronicIlness #MECFS #Disabilty #MutualAid #Neisvoid

  10. How can I promote my #crowdfund if I can barely get online? I won’t survive much longer in this house. My doctor agrees. I’m declining and there’s no treatment that can work while I’m constantly being #abused #neglected #controlled you name it.

    Please help promote my crowdfund I don’t have long.

    chuffed.org/project/161937-hel

    #SevereME #ChronicIlness #MECFS #Disabilty #MutualAid #Neisvoid

  11. This one's for my people in the #ChronicPain and #ChronicIlness worlds...I'm now up to 17 pills a day, and I've having trouble managing them (they've ended up all over the floor a few times). How many pills you all on? Should I be asking for fewer?? Anyone got any cool ideas on homemade blister pack day-to-day thingies?

  12. This one's for my people in the #ChronicPain and #ChronicIlness worlds...I'm now up to 17 pills a day, and I've having trouble managing them (they've ended up all over the floor a few times). How many pills you all on? Should I be asking for fewer?? Anyone got any cool ideas on homemade blister pack day-to-day thingies?

  13. This one's for my people in the #ChronicPain and #ChronicIlness worlds...I'm now up to 17 pills a day, and I've having trouble managing them (they've ended up all over the floor a few times). How many pills you all on? Should I be asking for fewer?? Anyone got any cool ideas on homemade blister pack day-to-day thingies?

  14. This one's for my people in the #ChronicPain and #ChronicIlness worlds...I'm now up to 17 pills a day, and I've having trouble managing them (they've ended up all over the floor a few times). How many pills you all on? Should I be asking for fewer?? Anyone got any cool ideas on homemade blister pack day-to-day thingies?

  15. This one's for my people in the #ChronicPain and #ChronicIlness worlds...I'm now up to 17 pills a day, and I've having trouble managing them (they've ended up all over the floor a few times). How many pills you all on? Should I be asking for fewer?? Anyone got any cool ideas on homemade blister pack day-to-day thingies?

  16. plz #boost Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme #MyalgicEncephalomyelitis

    @disability @disabilityjustice @mecfs @mutualaid @chronicillness @[email protected] @multipledisabilities @socialwork
    @neisvoid
    @[email protected]
    @RAHU

  17. plz #boost Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme #MyalgicEncephalomyelitis

    @disability @disabilityjustice @mecfs @mutualaid @chronicillness @[email protected] @multipledisabilities @socialwork
    @neisvoid
    @[email protected]
    @RAHU

  18. plz #boost Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme #MyalgicEncephalomyelitis

    @disability @disabilityjustice @mecfs @mutualaid @chronicillness @[email protected] @multipledisabilities @socialwork
    @neisvoid
    @[email protected]
    @RAHU

  19. plz #boost Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme #MyalgicEncephalomyelitis

    @disability @disabilityjustice @mecfs @mutualaid @chronicillness @[email protected] @multipledisabilities @socialwork
    @neisvoid
    @[email protected]
    @RAHU

  20. plz #boost Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme #MyalgicEncephalomyelitis

    @disability @disabilityjustice @mecfs @mutualaid @chronicillness @[email protected] @multipledisabilities @socialwork
    @neisvoid
    @[email protected]
    @RAHU

  21. Guys what do I treat #Covid with? How do I get #Paxlovid? Does it work? This is a 3rd time infection but because of heavy brain fog I can’t remember the treatments or supplements used!😩

    Already got #LongCovid!

    Help please.

    In Australia for Paxlovid reference. Most things closed today (Good Friday).

    #ChronicIlness #Neisvoid
    #MECFS #pwlc #Pwme

    @longcovid
    @mecfs
    @neisvoid
    @chronicillness
    @multipledisabilities

  22. Guys what do I treat #Covid with? How do I get #Paxlovid? Does it work? This is a 3rd time infection but because of heavy brain fog I can’t remember the treatments or supplements used!😩

    Already got #LongCovid!

    Help please.

    In Australia for Paxlovid reference. Most things closed today (Good Friday).

    #ChronicIlness #Neisvoid
    #MECFS #pwlc #Pwme

    @longcovid
    @mecfs
    @neisvoid
    @chronicillness
    @multipledisabilities

  23. Guys what do I treat #Covid with? How do I get #Paxlovid? Does it work? This is a 3rd time infection but because of heavy brain fog I can’t remember the treatments or supplements used!😩

    Already got #LongCovid!

    Help please.

    In Australia for Paxlovid reference. Most things closed today (Good Friday).

    #ChronicIlness #Neisvoid
    #MECFS #pwlc #Pwme

    @longcovid
    @mecfs
    @neisvoid
    @chronicillness
    @multipledisabilities

  24. Guys what do I treat #Covid with? How do I get #Paxlovid? Does it work? This is a 3rd time infection but because of heavy brain fog I can’t remember the treatments or supplements used!😩

    Already got #LongCovid!

    Help please.

    In Australia for Paxlovid reference. Most things closed today (Good Friday).

    #ChronicIlness #Neisvoid
    #MECFS #pwlc #Pwme

    @longcovid
    @mecfs
    @neisvoid
    @chronicillness
    @multipledisabilities

  25. Guys what do I treat #Covid with? How do I get #Paxlovid? Does it work? This is a 3rd time infection but because of heavy brain fog I can’t remember the treatments or supplements used!😩

    Already got #LongCovid!

    Help please.

    In Australia for Paxlovid reference. Most things closed today (Good Friday).

    #ChronicIlness #Neisvoid
    #MECFS #pwlc #Pwme

    @longcovid
    @mecfs
    @neisvoid
    @chronicillness
    @multipledisabilities

  26. The NIH study on myalgic encephalomyelitis/chronic fatigue syndrome that I volunteered for as a study patient was published recently & led to a lot of disappointment & some alarm in the patient community. The publication in Nature Communications did not discuss the central symptom of post-exertional malaise very much & now NIH has published a FAQ addressing this issue.

    #MEcfs #ChronicIlness #Disability #LongCovid

  27. The NIH study on myalgic encephalomyelitis/chronic fatigue syndrome that I volunteered for as a study patient was published recently & led to a lot of disappointment & some alarm in the patient community. The publication in Nature Communications did not discuss the central symptom of post-exertional malaise very much & now NIH has published a FAQ addressing this issue.

    #MEcfs #ChronicIlness #Disability #LongCovid

  28. The NIH study on myalgic encephalomyelitis/chronic fatigue syndrome that I volunteered for as a study patient was published recently & led to a lot of disappointment & some alarm in the patient community. The publication in Nature Communications did not discuss the central symptom of post-exertional malaise very much & now NIH has published a FAQ addressing this issue.

    #MEcfs #ChronicIlness #Disability #LongCovid

  29. The NIH study on myalgic encephalomyelitis/chronic fatigue syndrome that I volunteered for as a study patient was published recently & led to a lot of disappointment & some alarm in the patient community. The publication in Nature Communications did not discuss the central symptom of post-exertional malaise very much & now NIH has published a FAQ addressing this issue.

    #MEcfs #ChronicIlness #Disability #LongCovid

  30. #boost plz Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme

    @disabilityjustice
    @disability
    @mecfs
    @mutualaid
    @[email protected] @[email protected]
    @[email protected]@multipledisabilities

  31. #boost plz Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme

    @disabilityjustice
    @disability
    @mecfs
    @mutualaid
    @[email protected] @[email protected]
    @[email protected]@multipledisabilities

  32. #boost plz Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme

    @disabilityjustice
    @disability
    @mecfs
    @mutualaid
    @[email protected] @[email protected]
    @[email protected]@multipledisabilities

  33. #boost plz Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme

    @disabilityjustice
    @disability
    @mecfs
    @mutualaid
    @[email protected] @[email protected]
    @[email protected]@multipledisabilities

  34. #boost plz Situation terrible 😔
    Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.

    I’m fleeing #abuse and #neglect Denied basic needs for years.

    If anyone wants to take me in & be my #carer you’re welcome to help.
    I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

    It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.

    I have some emergency savings to get going. Can sort something out.

    In #Melbourne, #Australia.

    Might even consider moving states. Nobody here been keen to help so far.

    The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

    If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.

    #housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid#MECFS #pwlc #Pwme

    @disabilityjustice
    @disability
    @mecfs
    @mutualaid
    @[email protected] @[email protected]
    @[email protected]@multipledisabilities

  35. On Wedsnesday, I took the longest walk I've taken in some years, I have no idea how many. It was mostly flat ground, with benches for resting. I was able to manage due to years of immunoglobulin treatment and a small dose of Adderall. Very grateful for it.

    #MEcfs #Disability #ChronicIlness #NEISvoid #Nature #Seals #Beach #Ocean

  36. On Wedsnesday, I took the longest walk I've taken in some years, I have no idea how many. It was mostly flat ground, with benches for resting. I was able to manage due to years of immunoglobulin treatment and a small dose of Adderall. Very grateful for it.

    #MEcfs #Disability #ChronicIlness #NEISvoid #Nature #Seals #Beach #Ocean

  37. On Wedsnesday, I took the longest walk I've taken in some years, I have no idea how many. It was mostly flat ground, with benches for resting. I was able to manage due to years of immunoglobulin treatment and a small dose of Adderall. Very grateful for it.

    #MEcfs #Disability #ChronicIlness #NEISvoid #Nature #Seals #Beach #Ocean

  38. On Wedsnesday, I took the longest walk I've taken in some years, I have no idea how many. It was mostly flat ground, with benches for resting. I was able to manage due to years of immunoglobulin treatment and a small dose of Adderall. Very grateful for it.

    #MEcfs #Disability #ChronicIlness #NEISvoid #Nature #Seals #Beach #Ocean

  39. On Wedsnesday, I took the longest walk I've taken in some years, I have no idea how many. It was mostly flat ground, with benches for resting. I was able to manage due to years of immunoglobulin treatment and a small dose of Adderall. Very grateful for it.

    #MEcfs #Disability #ChronicIlness #NEISvoid #Nature #Seals #Beach #Ocean

  40. I'm grateful to this Garmin watch because I would have no way to measure my calmness and sleep quality without it. I can't go based on how I feel, because sometimes I'm feeling stressed when it says I'm calm, or I'm feeling calm when it says I'm freaking the fuck out. I wake up feeling tired no matter what my body battery score is and no matter how well I slept. To the point where I wondered if it was even accurate, but it does match up with my overall experience, so it's accurate enough. I can see what works (guided meditations, sustained periods of breathwork) and what doesn't (wishing I were more calm, willing it to happen, only 3 breaths). I can see which meditations work better than others, and all kinds of semi-scientific processes. I highly recommend a good health watch and feel incredibly blessed to have this technology. (Garmin Vivoactive 4s.) Even so, it has taken an act of will to take calmness seriously.

    4/4

    #DarkSojourn #Recovery2023 #ChronicIlness #MECFS