#me_cfs — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #me_cfs, aggregated by home.social.
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Die Grenzen der Autonomie - Wie Post-Covid und ME/CFS das Leben verändern https://www.deutschlandfunk.de/wie-postcovid-und-me-cfs-das-leben-veraendern-100.html #me_CFS #postCovid
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Nghiên cứu mới ở Úc chỉ ra rằng hội chứng mệt mỏi mãn tính (ME/CFS) có dấu ấn sinh học, không chỉ là vấn đề tâm lý. Những phát hiện này mở ra cơ hội cho chẩn đoán nhanh hơn và phương pháp điều trị hiệu quả hơn. Tìm hiểu thêm về cuộc nghiên cứu này! #ME_CFS #NghiênCứu #YHọc #SứcKhỏe https://ift.tt/RILK3q0 https://ift.tt/RILK3q0
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David Tuller's annual crowdfunding campaign to fund his work at the University of Berkely debunking bad science.
Ten years ago this month, David Tuller launched Trial By Error with a 15,000-word investigation of the fraudulent PACE trial for ME/CFS.
Since then, it's turned into a 10 year odyssey unpicking nonsense research as it's published.
Much more information about David's work and the funding link are here:
https://crowdfund.berkeley.edu/project/47768 -
#FYI #me #cfs #me_cfs #postcovid #longcovid #fatigue #fatiguesyndrome #medicine #science
Why you can't move in fatigue syndrome.
Microglia inflammation in the brain completely depletes the brain of serotonin, which is mandatory to even TRY to move.
(Immobility has a good reason, the underlying infections/eg. viruses like EBV, SARS-CoV2 can severely disturb energy transport on cellular level in the body, so never force activity, that would backfire badly!) -
#FYI #medicine #me #me_cfs #cfs #JarredYounger
Huge ME/CFS genetic study introduction.
Yes, that would pave the way to diagnoses supported by individual genetic testing. And also would help to understand and treat the wide range of symptoms in Long/Post Covid, which I suspect is rooting in similar genetic variants. The disorders in cellular vesical transport and mitocondrial disturbances are like "famous" already.
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The initial findings from the DecodeME genetic study:
"Our results show that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. These findings confirm that genes contribute to someone’s chances of developing ME/CFS.
Eight genetic signals have been identified that are much more common in people with ME/CFS than the general population. The signals discovered are involved in the immune and the nervous systems, indicating immunological and neurological causes to this poorly understood disease." -
Liebes Fediverse,
normal poste ich ja thematisch was ganz anderes, aber es würde mich wahnsinnig freuen, wenn Ihr dabei helft, dass diese Petition weiter vorangeht.
Ich hoffe, hier wenigstens ein paar weitere Unterzeichner zu finden.
Danke!
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Skeletal muscle properties in #LongCOVID and #ME_CFS differ from those induced by bed rest
https://www.medrxiv.org/content/10.1101/2025.05.02.25326885v1
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L'encéphalomyélite myalgique, une maladie sournoise qui touche à 70% les femmes et qui continue, trop souvent, à être psychiatrisée
#emsfc #EncephalomyeliteMyalgique #ME_CFS -
2/ So if the old definition doesn't require post exertional malaise, I wonder how many would have CFS under the current diagnosis criteria. How much is depression causing significant ongoing fatigue in people in these studies?
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1/ Today's dissertation topic was chronic fatigue syndrome and childhood trauma.
Several studies have found an association between CFS and childhood trauma. One study found over half of people with CFS reported childhood trauma. However, a study that excluded people with a history of depression didn't find an association between CFS and childhood trauma.
Note that these studies mostly use the 1994 CDC definition of CFS which didn't require post exertional malaise for diagnosis. -
Appallingly harmful action here on the outdated #Cochrane review on exercise and ME/CFS
"Cochrane re-issued the review in December, dated it 2024 despite the last search for studies being over 10 years ago, ostensibly affirming its content as current"
We know that increasing exercise has been found to be harmful in ME/CFS.
This brings the Cochrane Foundation into disrepute.
https://hbprojecttalk.wordpress.com/2025/01/24/independent-advisory-group-open-letter-to-cochrane/
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@chbmeyer Früher gab es medibubble.org, dies scheint tot zu sein. Ein Großteil ist zu #Bluesky abewandert, dort ist aber auch still geworden. Außer #LongCovid und #ME_CFS bzw. Aktivisten für Lüften, Maskentragen und Luftreiniger findet man kaum noch medizinisch spannende Themen für Laien.
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🔬 Wie können an Long COVID erkrankte Menschen bestmöglich medizinisch behandelt werden? Welche Versorgungsstrukturen sind für diese Patientinnen und Patienten geeignet? Mit diesen Fragen befassten sich Wissenschaftlerinnen und Wissenschaftler der vier Universitätskliniken im Land zwei Jahre lang im Projekt SEVEN-PCS.
🎯 Ziel ist es, ein Versorgungskonzept für Post-COVID-Betroffene zu entwickeln. Wichtig war dabei, dass die Ergebnisse auf die Behandlung anderer Krankheiten wie z.B. für Menschen mit ME/CFS übertragen werden können.
💡 Ergebnisse des Projekts:
👉 Herausgabe von Empfehlungen für bestmögliche Zusammenarbeit zwischen Hausarztpraxen und Therapeutinnen und Therapeuten
👉 Gründung drei regionaler Versorgungsnetzwerke für den Austausch und die Vernetzung zwischen Ärztinnen und Ärzten sowie Patientenvertreterinnen und -vertretern
👉 die Entwicklung einer Onlineplattform mit Informationen über das Krankheitsbild Long COVID💰 Wir haben das Projekt mit rund 2 Millionen Euro gefördert. Ein Erfolg ist, dass sich an SEVEN-PCS drei weitere Forschungsprojekte anschließen, die mit insgesamt rund 15 Millionen Euro unterstützt werden.
Mehr dazu ➡️ https://t1p.de/ycgt3
Zur Projektwebseite ➡️ https://knpc-bw.de/#LongCovid #Postcovid #PostCovidSyndrom #ME_CFS #Forschung #Wissenschaft #BadenWürttemberg #SevenPCS #Forschung #Forschungsprojekt #Uniklinik
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This is a good thread about the treatment of #LongCovid or #PostCovid which also applies to ME/CFS (#mecfs #ME_CFS ). The link with the personal experience of recovery is a good summary which isn't a simple checklist to get better. Sich a list can't exist yet. That's why it's so important he also writes about the psychological aspects of coping with this disease.
From: @secret_tomi
https://weirder.earth/@secret_tomi/113114948957875601 -
I have found this series of podcasts from my friend Paul who is a #longcovid sufferer really interesting. A raw, honest and genuine insight into how this has impacted his life, from being a centre-of-the-community parish priest figure to being forced into early retirement. Anyone struggling with #ChronicFatigueSyndrome or similar, or knows someone who is, may find it worth a listen. Plenty to challenge all of us. #health #ME_CFS #covid #fatigue https://www.buzzsprout.com/2385353
