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#chroniclyme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chroniclyme, aggregated by home.social.

  1. From the Massachusetts #MECFS & FM Association e-newsletter:
    (#Boston, #Massachusetts)

    MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls

    Links in image
    talresearchgroup.mit.edu/mitma
    intake.mit.edu/surveys/?s=WLPF

    #longCOVID #Lyme #ChronicLyme #LongLyme #PTLDS #PwLC

  2. CW: Topical delivery of glutathione

    A Better Way To Raise Glutathione? Human Trial | Dr Nayan Patel interview with Modern Healthspan
    youtu.be/P5Z5RaBOLvw?si=15Bown

    Apparently a glutathione–cyclodextrin nanoparticle complex (GSH-CD) can not only get through the skin, it is readily taken up by immune cells. The product is now on sale direct to consumer from Auro Wellness. It's expensive, but if one bottle is equivalent in dose to an IV glutathione infusion, then it is competitive in cost (in the US).

    I'm tagging this for the chronic illness community as an FYI. I have not used it; I may not try it since cyclodextrin can be corn-derived and I'm allergic to corn. Dr Patel notes rash can develop if dose is too high; I'm wondering if chronically ill people might be more sensitive.

    Small human study on healthy participants that is discussed in video:
    doi.org/10.3390/antiox12071375

    #glutathione #antioxidants #DrugDelivery
    #NEISvoid #MECFS #ChronicLyme
    #ChronicIllness

  3. 2/

    It looks like this study may still recruiting people from the US

    snyderlabs.stanford.edu/crashc

    Researchers are recruiting ME/CFS, #ChronicLyme and #LongCovid patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or “crashes”.

    @longcovid #ptlds #longlyme #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme