#chroniclyme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chroniclyme, aggregated by home.social.
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( #Cambridge, MA, USA)
Research subjects sought for Lyme & Long COVID Research Study at MIThttps://talresearchgroup.mit.edu/mitmaestro
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/newsletters/912-2024-12-december-newsletter@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain
#Lyme #ChronicLyme @lyme -
( #Cambridge, MA, USA)
Research subjects sought for Lyme & Long COVID Research Study at MIThttps://talresearchgroup.mit.edu/mitmaestro
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/newsletters/912-2024-12-december-newsletter@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain
#Lyme #ChronicLyme @lyme -
"No suffering is equal" by Laura de Vries
"On behalf of all patients with #mecfs, #longcovid, #chronicLyme, #qfever and other post-acute infectious diseases (#PAIS)."
https://meglobalchronicle.wordpress.com/2024/03/21/no-suffering-is-equal/
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC
@spoonies #Lyme @lyme -
"No suffering is equal" by Laura de Vries
"On behalf of all patients with #mecfs, #longcovid, #chronicLyme, #qfever and other post-acute infectious diseases (#PAIS)."
https://meglobalchronicle.wordpress.com/2024/03/21/no-suffering-is-equal/
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC
@spoonies #Lyme @lyme -
2 studies still recruiting
https://talresearchgroup.mit.edu/mitmaestro
https://www.omf.ngo/mecfs-sleep-disturbance-study/
From the MassME newsletter
https://massmecfs.org/newsletters/906-2024-10-october-newsletter#ChronicLyme #Lyme @lyme #MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain -
2 studies still recruiting
https://talresearchgroup.mit.edu/mitmaestro
https://www.omf.ngo/mecfs-sleep-disturbance-study/
From the MassME newsletter
https://massmecfs.org/newsletters/906-2024-10-october-newsletter#ChronicLyme #Lyme @lyme #MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain -
From the MassME newsletter
Study of interplay of cellular landscapes and the role of oxidative stress in various conditions
https://www.umassmed.edu/slusslab/reclaim-study/#MEcfs #hEDS #HypermobilitySyndrome #Orthostaticintolerance #POTS #LongCOVID @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #ChronicLyme
#GulfWarIllness @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid -
From the MassME newsletter
Study of interplay of cellular landscapes and the role of oxidative stress in various conditions
https://www.umassmed.edu/slusslab/reclaim-study/#MEcfs #hEDS #HypermobilitySyndrome #Orthostaticintolerance #POTS #LongCOVID @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #ChronicLyme
#GulfWarIllness @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid -
From the Massachusetts #MECFS & FM Association e-newsletter:
A Caregiver's PerspectiveLink in image
https://www.massmecfs.org/newsletters/875-spotlight-kim-moy-jan-24Among other things, Kim set up the support group for ME/CFS partner caregivers that meets online monthly
#MECFS #LongCOVID #fibromyalgia #ChronicLyme #caring #Caregiver #carer
@mecfs @longcovid @fibromyalgia @caregivers #CFS #PwME -
From the Massachusetts #MECFS & FM Association e-newsletter:
A Caregiver's PerspectiveLink in image
https://www.massmecfs.org/newsletters/875-spotlight-kim-moy-jan-24Among other things, Kim set up the support group for ME/CFS partner caregivers that meets online monthly
#MECFS #LongCOVID #fibromyalgia #ChronicLyme #caring #Caregiver #carer
@mecfs @longcovid @fibromyalgia @caregivers #CFS #PwME -
From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9 -
From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9 -
CW: Topical delivery of glutathione
A Better Way To Raise Glutathione? Human Trial | Dr Nayan Patel interview with Modern Healthspan
https://youtu.be/P5Z5RaBOLvw?si=15BownYWCeDzrDB8Apparently a glutathione–cyclodextrin nanoparticle complex (GSH-CD) can not only get through the skin, it is readily taken up by immune cells. The product is now on sale direct to consumer from Auro Wellness. It's expensive, but if one bottle is equivalent in dose to an IV glutathione infusion, then it is competitive in cost (in the US).
I'm tagging this for the chronic illness community as an FYI. I have not used it; I may not try it since cyclodextrin can be corn-derived and I'm allergic to corn. Dr Patel notes rash can develop if dose is too high; I'm wondering if chronically ill people might be more sensitive.
Small human study on healthy participants that is discussed in video:
https://doi.org/10.3390/antiox12071375#glutathione #antioxidants #DrugDelivery
#NEISvoid #MECFS #ChronicLyme
#ChronicIllness -
#LongCovid #MECFS #ChronicLyme
New infection and immunity center looks into long COVID-19, chronic Lyme disease - Yale Daily News https://yaledailynews.com/blog/2023/09/19/new-infection-and-immunity-center-looks-into-long-covid-19-chronic-lyme-disease/ -
#LongCovid #MECFS #ChronicLyme
New infection and immunity center looks into long COVID-19, chronic Lyme disease - Yale Daily News https://yaledailynews.com/blog/2023/09/19/new-infection-and-immunity-center-looks-into-long-covid-19-chronic-lyme-disease/ -
San Diego, CA, USA:
New $1 million grant...to support a multi-method effort to deeply characterize the microbial, viral, immune & genetic characteristics of tissue samples collected from...#longCOVID, #Lyme, #myalgicencephalomyelitis/#chronicfatiguesyndrome & #EDS
https://today.ucsd.edu/story/what-are-the-drivers-of-chronic-infectious-disease
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San Diego, CA, USA:
New $1 million grant...to support a multi-method effort to deeply characterize the microbial, viral, immune & genetic characteristics of tissue samples collected from...#longCOVID, #Lyme, #myalgicencephalomyelitis/#chronicfatiguesyndrome & #EDS
https://today.ucsd.edu/story/what-are-the-drivers-of-chronic-infectious-disease
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It looks like this study may still recruiting people from the US
https://snyderlabs.stanford.edu/crashcourse/
Researchers are recruiting ME/CFS, #ChronicLyme and #LongCovid patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or “crashes”.
@longcovid #ptlds #longlyme #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme
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I have been seeing this for a long time. Curious if you know when this started. HIV/AIDS?
I know the #MyalgicEncephalomyelitis & #ChronicLyme communities concur after what they did in 1994.
This book (The Why by Hillary Johnson) explains the history of what the CDC did to #pwME.
https://www.amazon.com/Why-Historic-CFS-Call-Arms/dp/0578398478?ref_=d6k_applink_bb_dls_failed
Chronic Lyme info at www.May12.org
1994 was a pivotal year for systemic bias against chronically ill patients. That would be a great story for journalists to cover!
