#actuallyadhd — Public Fediverse posts

Coming out of a music hyperfocus is so weird. It's like watching a really long film in a really dark cinema, and you get totally absorbed and into it. Then you come outside into really bright sunshine and realise you have to navigate your way through the world again.

*blink*

*blink*

#hyperfocus #musicProduction #MusiciansOfMastodon #ActuallyADHD #ActuallyAutistic

I also understand why some autistics break down crying when in meltdown. I experience intense anger to the point of rage, at times. Underneath that anger and rage is profound grief. Likely owing to a history of trauma, I don't grieve easily. And so the rage is typically rhe dominant emotion. My resistance to/difficulty experiencing grief sometimes compounds contemporary as more trauma.

@autistics #actuallyaudhd #acruallyautistic #actuallyadhd

I *FINALLY* understand why we tend to self-harm. Our senses can become so overwhelmed that the only way to manage them is buy causing intense localized discomfort to force us to focus ourselves to a far smaller set of sensory inputs. In that way, self-harm is a form of sensory-deprivation, as counter-intuitive as that may seem.

I realize that I have had these kinds of behaviors, in different forms, almost my entire life.

The more I reflect on the entirety of my life, the more past autistic experiences and behaviors reveal themselves. Back then, what I lacked was the autistic frame of reference. After all, I was diagnosed at age 50.

#actuallyaudhd #actuallyautistic #actuallyadhd @autistics

Question for the Fediverse: are there any texts on how neurodivergence, especially autism and ADHD, is perceived and/or dealt with in cultures other than western European/North American culture? Scholarly sources, fiction, whatever (preferably in English).
#actuallyAutistic #askFedi #actuallyADHD

Bei einer wichtigen, aber mühsamen Arbeit das Wort cumbersome im Kopf gehabt. Dann an die Cumberland-Soße gedacht, die meine Ma zum Fondue selbst machte. Dann an deren Geschmack und den Cayennepfeffer, der da drin ist, und, tja, was soll ich sagen, eine Stunde später weiß ich jetzt alles über Cayennepfeffer und den Gewürzhandel auf der Seidenstraße. 😶‍🌫

@actuallyadhd #ADHS #HypercuriousMind #ActuallyADHD

Sometimes I think the reason why I am not horribly addicted to all those chatbots is my ND trauma.
I have very strong negative reactions when someone praises me, so the bot sycophancy had the inverse effect on me, a sort of inoculation.

#ActuallyAuDHD #ActuallyAutistic #ActuallyADHD

On Friday, I had my #actuallyADHD birthday - and now I'm a solid 3yo! 🥳🥳🥳

Still is and has been quite the journey, at the same time being #actuallyAutistic [almost 3yo], they both fight with each other + regret a lot; maybe THAT's the reason why I've always talked to and with myself in "we", without being multiple like in a dissociative personality?!

As Senne & Ackrill wrote in The ND Lovers Club, 2025, p. 13:

"Membership [in ND] is lifelong, the costs are high, and you don’t get to opt out."

Question for my fellow #ActuallyAutistic #ActuallyADHD #ActuallyAuDHD folks:
Are you able to consistently engage online with communities that you *want* to be a part of, like for a hobby, a special interest, or a guild for a multiplayer game? If yes: how?
I find myself either hyperfocusing on a community and then not doing anything else, forgetting that it exists while I engage with my hobbies alone, or needing so much alone time that almost any kind of social interaction seems too much.

A rather frustrating part of #ADHD is I can do tasks when there is an obvious external urgency to it. The adrenaline of this urgency somehow activates the executive function. The rest of the time I cannot do the executive function and everything feels like the world's worst slog and so I curse myself for being lazy because obviously I can do the task but why can't I do it not-last-minute?

#ActuallyADHD

:kirby_prideheart: Ello sweet and lovely Friendos :purple_heart_sparkle:

It seems that Pixy's Journey is continuing on a new path. I know all life is uncertain, however well you try to plan. And I know that some things will happen, but you can never really prepare for them... As these things happen in different ways for everyone, with some overlap of course, and there is no "set pathway" to follow, to make things easier...

I've been experiencing symptoms that I have been dealing with for many years now. But... They were/are more intense. They are different than they used to be. And I got more and more frustrated at my incapability to deal with them properly. I got worse and worse, and I just could not understand why this all was getting so hard to deal with.

And then... I made the connection. I should have realized sooner, when the temperature regulation issues got worse (and it wasn't due to fibro flare)... I was born with an uterus. It's never been of use to me, as I didn't want to be a mom, and the monthly issues were a struggle, are a struggle, to deal with. But it means that my "main hormone" is estrogen. And, as I am 46 now... I am in the "zone" to start the decline of the hormonal bits...

I looked a bit online, and found out that many of my issues were indeed part of the peri. And... That people with ADHD may experience the decline in estrogen even worse, as it regulates, among others, dopamine... And, with most ADHD folks, the dopamine controls are already "out of the ordinary", so it can really enhance some negative effects of it all...

This is one of the sites that I found with info about this: 🔗
https://steadystatehealth.org/how-estrogen-decline-impacts-dopamine-and-why-adhd-feels-worse-in-menopause/

So yeah... Pixy's Journey has started on a new path, a new road in their journey, where they need to find ways to deal with the peri period, and then the menopause that will follow.

Someone has told me that, especially "us ADHD folks", could greatly benefit from HRT patches. But I know that many GPs aren't too keen on handing out these patches... So, before I dive in to this with my GP, I was hoping that other folks here, that are going through this, or have gone through this, could let me know about the patches. Did/dk you use them? And, if so, what are the main pros and cons of them? I'd like to be as informed as I can, so I can have a good talk with my GP, and so I know what I could be asking for.

Thanks in advance for sharing your experience!

:pixy_party: 🫂 🩵 💜 🩷 🐾 :dogeparrot:

#PixysJourney
#ActuallyAuDHD
#ActuallyADHD
#ADHD
#PeriMenopause

Edit: thought this Toot would reach the appropriate folks better with the proper hashtags, so I added them. Sorry I forgot to add them in the first place. Thanks for all the boosts (so far!). I really appreciate the support. :blobcatflower:

@atarifrosch @Tami @sofasophia um zu schauen, wie sich das kind in soz. situationen verhält, blickrichtungen, körperhaltung, mimik/gestik etc. - geht ja um ne med. diagnose einer störung [terminologie, NICHT meine meinung], die schon seit frühester kindheit vorgelegen haben muss.

bei mir zB wenig aussagekräftig, da ich schon ganz klein heavy gemasked hab, u.a. wg #actuallyADHD, vgl. zu fragebögen, die die häufig selbst undiagnostizierten eltern kriegen ["hat sich ihr kind "normal" verhalten?"].