#decodeme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #decodeme, aggregated by home.social.
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More #SequenceME news coverage:
"UK to sequence genomes of 6,000 ME/CFS patients for treatment clues"
"The work will build on the earlier DecodeME study, which created the world’s largest ME/CFS research cohort."
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More #SequenceME news coverage:
"UK to sequence genomes of 6,000 ME/CFS patients for treatment clues"
"The work will build on the earlier DecodeME study, which created the world’s largest ME/CFS research cohort."
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More #SequenceME news coverage:
"UK to sequence genomes of 6,000 ME/CFS patients for treatment clues"
"The work will build on the earlier DecodeME study, which created the world’s largest ME/CFS research cohort."
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More #SequenceME news coverage:
"UK to sequence genomes of 6,000 ME/CFS patients for treatment clues"
"The work will build on the earlier DecodeME study, which created the world’s largest ME/CFS research cohort."
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More #SequenceME news coverage:
"UK to sequence genomes of 6,000 ME/CFS patients for treatment clues"
"The work will build on the earlier DecodeME study, which created the world’s largest ME/CFS research cohort."
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This blog post has a good overview of the project:
"DNA sequencing study to help pinpoint biology of ME gets £4.7m"
#MEcfs #LongCovid #SequenceME #DecodeME #Genetics #MedMastodon
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This blog post has a good overview of the project:
"DNA sequencing study to help pinpoint biology of ME gets £4.7m"
#MEcfs #LongCovid #SequenceME #DecodeME #Genetics #MedMastodon
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This blog post has a good overview of the project:
"DNA sequencing study to help pinpoint biology of ME gets £4.7m"
#MEcfs #LongCovid #SequenceME #DecodeME #Genetics #MedMastodon
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This blog post has a good overview of the project:
"DNA sequencing study to help pinpoint biology of ME gets £4.7m"
#MEcfs #LongCovid #SequenceME #DecodeME #Genetics #MedMastodon
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This blog post has a good overview of the project:
"DNA sequencing study to help pinpoint biology of ME gets £4.7m"
#MEcfs #LongCovid #SequenceME #DecodeME #Genetics #MedMastodon
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Check out the latest News in Brief (May 11 - 17) from the Science for ME forum. It's a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Good news - Major funding secured for Sequence ME & Long Covid research project!
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
#MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME #Science4ME
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Check out the latest News in Brief (May 11 - 17) from the Science for ME forum. It's a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Good news - Major funding secured for Sequence ME & Long Covid research project!
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
#MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME #Science4ME
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Check out the latest News in Brief (May 11 - 17) from the Science for ME forum. It's a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Good news - Major funding secured for Sequence ME & Long Covid research project!
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
#MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME #Science4ME
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Check out the latest News in Brief (May 11 - 17) from the Science for ME forum. It's a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Good news - Major funding secured for Sequence ME & Long Covid research project!
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
#MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME #Science4ME
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Check out the latest News in Brief (May 11 - 17) from the Science for ME forum. It's a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Good news - Major funding secured for Sequence ME & Long Covid research project!
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
#MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME #Science4ME
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
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Free webinar on June 10:
"… host Dr. Jessica Maya will talk to the DecodeME management team and recent Catalyst Award honorees Prof. Chris Ponting, Sonya Chowdhury, and Andy Devereux-Cooke about how their study could reveal many more genes, gene-regulation elements, and biological pathways that affect ME/CFS risk, advance efforts to identify new biomarkers for disease subtypes, and ultimately lead to new treatments."
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Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
This is good news! 🎉 More funding is still needed, but this is a good start.
I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.
#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon
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Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
This is good news! 🎉 More funding is still needed, but this is a good start.
I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.
#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon
-
Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
This is good news! 🎉 More funding is still needed, but this is a good start.
I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.
#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon
-
Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
This is good news! 🎉 More funding is still needed, but this is a good start.
I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.
#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon
-
Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
This is good news! 🎉 More funding is still needed, but this is a good start.
I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.
#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon
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More details about the Sequence ME and Long Covid research are in this government press release:
"Thousands of ME/CFS patients to benefit from first genomics study"
https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study
"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."
20/n
#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon
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More details about the Sequence ME and Long Covid research are in this government press release:
"Thousands of ME/CFS patients to benefit from first genomics study"
https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study
"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."
20/n
#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon
-
More details about the Sequence ME and Long Covid research are in this government press release:
"Thousands of ME/CFS patients to benefit from first genomics study"
https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study
"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."
20/n
#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon
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More details about the Sequence ME and Long Covid research are in this government press release:
"Thousands of ME/CFS patients to benefit from first genomics study"
https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study
"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."
20/n
#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon
-
More details about the Sequence ME and Long Covid research are in this government press release:
"Thousands of ME/CFS patients to benefit from first genomics study"
https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study
"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."
20/n
#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon
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ME/CVS is geen mysterie, maar een complexe ziekte: infecties (bv. Long COVID), genetische aanleg en afwijkingen in immuunsysteem/zenuwstelsel spelen een rol. Wetenschap bevestigt: dit is fysiek, niet psychisch. 💙 #MEcvs #OnderzoekTelt #DecodeME
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RE: https://mas.to/@eleanorrees/116263420791396664
Donations requested for the #SequenceME genetic research project which builds on the #DecodeME research. Read more about the project here:
https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/
The JustGiving donation link is in the quoted post.
Thanks to @eleanorrees for setting up this donation page ❤️
And happy birthday! 🎉
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From the ME/CFS Science Blog:
"2025: looking back on a year of ME/CFS research"
https://mecfsscience.org/2025-looking-back-on-a-year-of-me-cfs-research/
Discussion of ME/CFS research done in 2025 starting with DecodeME:
"DecodeME is the largest ME/CFS study ever conducted; more than 15,000 in the United Kingdom participated by sending their DNA through the mail."
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"Building Gold Standard Patient and Public Involvement - DecodeME Conference Presentation"
https://www.youtube.com/watch?v=S3SScaC0L1o
Video posted by Action for ME, a recording of the Nov. 12 'Patient Advocacy Panel' session.
"Learn how Patient and Public Involvement worked within the world's largest ME/CFS study - DecodeME, presented at The International Conference on Clinical and Scientific Advances on ME and long Covid in Porto, Portugal."
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Interview with Professor Chris Ponting on Building ME/CFS Research Infructure with PRIME
By David Tuller, DrPH
This is a crowdfunding month for UC Berkekely and Trial By Error. If you’d like to support my work, here’s the link: https://crowdfund.berkeley.edu/project/47768
(Donations are tax-deductible for US taxpayers.)**********
The UK Medical Research Council recently awarded £800,000 over four years to PRIME, a partnership between Action For ME and the University of Edinburgh. PRIME will seek to develop a research infrastructure to pursue investigations into ME/CFS. The funding starts this month.
According to Action For ME, the goals of PRIME are:
“1. Coordinate and engage researchers by creating at least 15 new research collaborations. We will bring together researchers from a range of backgrounds, along with private sector partners to investigate the genetics, biomarkers and disease mechanisms behind ME/CFS.
“2. Strengthen International Research Networks by forming two global consortia, one with a focus on genetics and the other on molecular biomarkers. The aim of the consortias will be to share data, replicate research and create a shared research standard.
“3. Build a Public and Patient Involvement (PPI) pool with at least 100 trained contributors (people with ME and their carers). This will be the world’s first large scale PPI pool available for ME researchers across the UK so that their research can be created and shaped by people with lived experience.”
Chris Ponting, a geneticist at the University of Edinburgh, is the lead investigator of DecodeME, a study that recently identified eight spots on the genome implicated in ME/CFS. Professor Ponting, along with Sonya Chowdbury, Action For ME’s CEO, will oversee PRIME. I spoke last week with Professor Ponting about the project and related issues. (I also spoke with Professor Ponting a couple of months ago about the DecodeME findings.)
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Blog post explaining results from the recent DecodeME research.
"DecodeME: the biggest ME/CFS study ever"
https://mecfsscience.org/decodeme-the-biggest-me-cfs-study-ever/
"More than 15,000 patients shared their DNA to uncover the underlying pathology of the disease. The results show 8 hits: regions in the human genome where ME/CFS patients differ significantly from controls. Most of the implicated genes point to the brain and nervous system."
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From ME Research UK :
ME Research UK-funded researcher Dr Jarred Younger has recorded a 15 minute explanation of deCodeME's recently published pre-print results. This covers background, method, results, and importance - https://tinyurl.com/5n6buzpj
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In case you missed it:
"Scientists Find Links to Chronic Fatigue Syndrome in Genes and in the Gut Microbiome"
A report on two recent studies on ME/CFS. One study found markers in the gut microbiomes of ME/CFS patients. The other study, DecodeME, published a pre-print that identified genetic signals in ME/CFS patients.
DecodeME is the largest DNA study of ME/CFS that has ever been done!
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Just watched the DecodeME webinar presenting the initial findings, and talking about the reaction from the media, other researchers and the community.
The study is finished, they are working on the formal paper to be peer-reviewed and published, but future steps are getting funding for a long Covid/ME genetic study.
And possibly more on links between ME/CFS and fibromyalgia.I anticipate finding shared genetic signals between all three, as the overlaps in people who have 2 or all 3 of these in a single person or in families seem strong, as well as the overlap in symptoms.
Note their website will close soon, the huge dataset will transfer to the University of Edinburgh for future research (95% of us signed up to be contacted for this).
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Need an overview before the webinar? Here are 2 links from the DecodeME website:
1. Initial DecodeME DNA Results:
https://www.decodeme.org.uk/initial-dna-results/
2. X marks the spot where ME/CFS biology can be discovered:
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🚨 DecodeME Genetic Results Webinar tomorrow, Thursday, Aug 14, 2:30 PM BST
Register here:
https://us02web.zoom.us/webinar/register/WN_C82NbFK_TYGnJ_T6edmV-w#/registration(registration link will show time in your time zone)
Note from DecodeME:
"There are limited spots to join on Zoom (registering does not guarantee a spot).Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time."
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Here's the latest News in Brief (Aug 4-10) from the Science for ME forum, a weekly summary of ME/CFS and Long Covid news:
https://www.s4me.info/threads/news-in-brief-august-2025.45582/#post-632266
Don't miss the #DecodeME section!
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@GollataCaitlyn Yes! Most of the #DecodeME discussion is over my head, but the little bits I can understand are exciting!
I'm really happy that the study was so large, and also that it included a lot more severe ME/CFS patients since the DNA kits were sent out and returned by mail. No need for folks to show up in person and then get PEM from the exertion.
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Donation links to support the researchers behind #DecodeME
Links:
https://www.actionforme.org.uk/research-campaigns/our-research-work/genetics-centre-of-excellence/https://www.actionforme.org.uk/sequenceme-first-of-a-kind-genetic-study/
https://www.actionforme.org.uk/research-campaigns/our-research-work/decodeme-donate/
https://donate.ed.ac.uk/support/ME-CFSResearch
Screenshot from latest Science for ME weekly update
