#decodeme — Public Fediverse posts

Free webinar on June 10:

https://solvecfs.org/event/sequence-me-long-covid-the-search-for-me-cfs-and-long-covid-biomarkers-and-subtypes/

"… host Dr. Jessica Maya will talk to the DecodeME management team and recent Catalyst Award honorees Prof. Chris Ponting, Sonya Chowdhury, and Andy Devereux-Cooke about how their study could reveal many more genes, gene-regulation elements, and biological pathways that affect ME/CFS risk, advance efforts to identify new biomarkers for disease subtypes, and ultimately lead to new treatments."

@mecfs @longcovid

#DecodeME #SequenceME #MEcfs

Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.

"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"

https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/

This is good news! 🎉 More funding is still needed, but this is a good start.

I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.

@mecfs @longcovid

#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon

More details about the Sequence ME and Long Covid research are in this government press release:

"Thousands of ME/CFS patients to benefit from first genomics study"

https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study

"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."

20/n

@mecfs @longcovid

#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon

RE: https://mas.to/@eleanorrees/116263420791396664

Donations requested for the #SequenceME genetic research project which builds on the #DecodeME research. Read more about the project here:

https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/

The JustGiving donation link is in the quoted post.

Thanks to @eleanorrees for setting up this donation page ❤️

And happy birthday! 🎉

@mecfs
@longcovid

#MEcfs #LongCovid #Research #MedMastodon #Fundraising

Need an overview before the webinar? Here are 2 links from the DecodeME website:

1. Initial DecodeME DNA Results:

https://www.decodeme.org.uk/initial-dna-results/

2. X marks the spot where ME/CFS biology can be discovered:

https://www.decodeme.org.uk/x-marks-the-spot/

@mecfs

#MEcfs #PwME #DecodeME #GWAS

🚨 DecodeME Genetic Results Webinar tomorrow, Thursday, Aug 14, 2:30 PM BST

Register here:
https://us02web.zoom.us/webinar/register/WN_C82NbFK_TYGnJ_T6edmV-w#/registration

(registration link will show time in your time zone)

Note from DecodeME:
"There are limited spots to join on Zoom (registering does not guarantee a spot).

Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time."

@mecfs

#MEcfs #PwME #DecodeME #GWAS

"Lack of ME research because of ‘medical misogyny’, says top scientist"

https://www.thetimes.com/uk/scotland/article/chris-ponting-misogyny-me-research-c09hp0hfg

"Professor Chris Ponting, who led a groundbreaking study into the disease (DecodeME) says it is 'highly stigmatised and incredibly female-biased'"

"…clinicians and scientists should be asking why his work was not done 15 years ago"

#MEcfs #PwME #GWAS #Genetics #DecodeME

If you'd like to support the researchers behind #DecodeME with other projects such as #SequenceME ( https://www.clinicalresearchnewsonline.com/cln/pressreleases/2024/12/18/oxford-nanopore-action-for-me-and-university-of-edinburgh-launch-groundbreaking-study-into-the-genetics-of-me ) , here's a donation link https://www.decodeme.org.uk/support-us/

Alternatively donate directly to Prof Ponting's #MECFS lab research
https://donate.ed.ac.uk/support/ME-CFSResearch

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

UK #DecodeME
"Our focus now is on getting as many spit kits back as possible. If you are yet to return your kit, please do so by the 31 January 2024 at the latest. Each sample returned will strengthen the results of our research, so we really appreciate every single kit sent back."

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS

UK #DecodeME
"Our focus now is on getting as many spit kits back as possible. If you are yet to return your kit, please do so by the 31 January 2024 at the latest. Each sample returned will strengthen the results of our research, so we really appreciate every single kit sent back."

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS

UK #DecodeME
"Our focus now is on getting as many spit kits back as possible. If you are yet to return your kit, please do so by the 31 January 2024 at the latest. Each sample returned will strengthen the results of our research, so we really appreciate every single kit sent back."

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS

UK #DecodeME
"Our focus now is on getting as many spit kits back as possible. If you are yet to return your kit, please do so by the 31 January 2024 at the latest. Each sample returned will strengthen the results of our research, so we really appreciate every single kit sent back."

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS

UK #DecodeME
"Our focus now is on getting as many spit kits back as possible. If you are yet to return your kit, please do so by the 31 January 2024 at the latest. Each sample returned will strengthen the results of our research, so we really appreciate every single kit sent back."

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #PostViralFatigueSyndrome #PVFS #pwLC #LongCovid #PostViralDisorder

#DecodeME one week left to enrol!

Less than two weeks left for #pwME / #pwLC + M.E. to sign up to participate in the once-in-a-generation #DecodeME research. Please consider enrolling.

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #PostViralFatigueSyndrome #PVFS #pwLC #LongCovid #PostViralDisorder

UK #DecodeME

Many more UK people with ME/CFS are needed for this large genetic study. All severity levels can take part as participation is from home. Questionnaires can be filled in on paper or online, and saliva samples for DNA extraction are sent by post. The target is 25,000 DNA samples, including 5,000 diagnosed with ME/CFS following Covid-19 infection.

Spread the word:
https://www.decodeme.org.uk/ways-to-share/

@mecfs #mecfs #pwme #PwMEs #cfs #cfsme #ChronicFatigueSyndrome

9/

“(Contd) This would ultimately lead to better understanding and perhaps even development of treatments, and may also help to establish subtypes. Home page - DecodeME https://www.decodeme.org.uk “

#PwME #mecfs #decodeme #MyalgicEncephalomyelitis #pwmes #ChronicFatigueSyndrome #cfs #cfsme #pwme
@mecfs