#patientadvocacy — Public Fediverse posts

Living with Lupus: Survivors Share Their Stories & Struggles

Behind every lupus diagnosis is a silent battle the world rarely sees: the pain, stigma, strength, and resilien…
#NewsBeep #News #Health #autoimmunedisease #autoimmunesupport #ChronicIllness #chronicpain #GB #healthcareinNigeria #Invisibleillness #lupus #lupusawareness #Lupusdiagnosis #lupussupport #lupussurvivors #lupussymptoms #patientadvocacy #patientstories #UK #UnitedKingdom #Women'shealth
https://www.newsbeep.com/uk/589957/

Doctors kept dismissing her persistent cough. One heroic nurse refused to let it go.

https://web.brid.gy/r/https://www.upworthy.com/pn-nurse-saves-woman-persistent-cough-rare-condition/?utm_source=rss&utm_medium=rss&utm_campaign=pn-nurse-saves-woman-persistent-cough-rare-condition

Doctors kept dismissing her persistent cough. One heroic nurse refused to let it go.

https://fed.brid.gy/r/https://www.upworthy.com/pn-nurse-saves-woman-persistent-cough-rare-condition/?utm_source=rss&utm_medium=rss&utm_campaign=pn-nurse-saves-woman-persistent-cough-rare-condition

Doctors kept dismissing her persistent cough. One heroic nurse refused to let it go.

https://web.brid.gy/r/https://www.upworthy.com/pn-nurse-saves-woman-persistent-cough-rare-condition/?utm_source=rss&utm_medium=rss&utm_campaign=pn-nurse-saves-woman-persistent-cough-rare-condition

Doctors kept dismissing her persistent cough. One heroic nurse refused to let it go.

https://web.brid.gy/r/https://www.upworthy.com/pn-nurse-saves-woman-persistent-cough-rare-condition/?utm_source=rss&utm_medium=rss&utm_campaign=pn-nurse-saves-woman-persistent-cough-rare-condition

Before breast cancer surgery, consider consulting a breast cancer specialist; I later learned my axillary lymph node dissection may not have been necessary because modern protocols typically begin with a sentinel lymph node biopsy and remove additional nodes only if cancer is detected, and tumor boards exist so multiple doctors can review and guide treatment decisions based on evidence.

#BreastCancerJourney #PatientAdvocacy #CancerCare #MedicalAwareness #WomensHealth

💙 Are you a caregiver feeling overwhelmed and unsupported?

You're not alone — and AI-powered healthcare advisory is here to help.

RAVCARE was built with caregivers in mind, providing intelligent, real-time guidance so you can:

AI doesn't replace the human touch in caregiving. It empowers it. 💪

https://ravcare.com/how-ai-is-revolutionizing-patient-care-with-ravcare/

#CaregiverSupport #RAVCARE #AIinHealthcare #ChronicCareManagement #HealthcareAI #FamilyCaregiving #DigitalHealth #PatientAdvocacy #HealthTech #CaregiverBurnout

💙 Are you a caregiver feeling overwhelmed and unsupported?

You're not alone — and AI-powered healthcare advisory is here to help.

RAVCARE was built with caregivers in mind, providing intelligent, real-time guidance so you can:

AI doesn't replace the human touch in caregiving. It empowers it. 💪

https://ravcare.com/how-ai-is-revolutionizing-patient-care-with-ravcare/

#CaregiverSupport #RAVCARE #AIinHealthcare #ChronicCareManagement #HealthcareAI #FamilyCaregiving #DigitalHealth #PatientAdvocacy #HealthTech #CaregiverBurnout

#ShieldAlert: #AndSteiner, GenderDiverse #HumanRightsActivist, targeted for #PatientAdvocacy at #LemuelShattuck.

Urgent Update: #Whistleblower And Steiner Still in Danger Despite Recent Concessions

September 22, 2025: "#MindFreedomInternational (#MFI) is pleased to report that, in response to our previous Shield Alert update, Lemuel Shattuck Hospital has allowed And Steiner to see a covering provider of their choice and assured that And’s requests are being taken seriously. However, MFI remains concerned about And’s safety and well-being despite these concessions.

"As a reminder, And is a #Massachusetts (MA) Department of Mental Health (DMH) patient at Lemuel Shattuck Hospital and whistleblower alleging criminal misconduct and abuse within the Massachusetts #DMH system, and has faced a pattern of retaliation including illegal #ForcedTransfer, assault, and harassment and denial of #DueProcess. A staff member has also warned that DMH plans to continue this targeting and harassment."

See link below to learn what you can do.

"Main talking points:

- And Steiner is a whistleblower who has reported alleged criminal misconduct and abuse within the Massachusetts Department of Mental Health system.
- And is currently under the care of those they are whistleblowing about.
- A staff member has warned an MFI volunteer of DMH’s intentions to target and harass And.
- And has faced retaliation, including illegal forced transfer, assault, verbal and sexual harassment, and denial of due process, including recent targeted discrimination and abuse by staff.
- Ivy McCall, a friend of And’s with a masters degree in social work, who has attended many of And’s Team Meetings, has come forward saying she believes DMH is targeting and abusing And and that And is not safe.
- All Massachusetts State entities have refused to intervene despite an easily provable #patternOfAbuse and targeting by DMH towards And for at least 3 years.
- Many staff members have filed complaints regarding And’s care.
- #MindFreedom and many advocates and you remain concerned that this pattern will continue without intervention."

https://mindfreedom.org/front-page/and-steiner/

#LemuelShattuck #Queer #BIPOC #Transgender #LGBTQ #PatientAbuse #LetterWriting #Psychiatry #Fascism #Massachusetts #MassDMH
#HumanRightsAbuses

#ShieldAlert: #AndSteiner, GenderDiverse #HumanRightsActivist, targeted for #PatientAdvocacy at #LemuelShattuck.

Urgent Update: #Whistleblower And Steiner Still in Danger Despite Recent Concessions

September 22, 2025: "#MindFreedomInternational (#MFI) is pleased to report that, in response to our previous Shield Alert update, Lemuel Shattuck Hospital has allowed And Steiner to see a covering provider of their choice and assured that And’s requests are being taken seriously. However, MFI remains concerned about And’s safety and well-being despite these concessions.

"As a reminder, And is a #Massachusetts (MA) Department of Mental Health (DMH) patient at Lemuel Shattuck Hospital and whistleblower alleging criminal misconduct and abuse within the Massachusetts #DMH system, and has faced a pattern of retaliation including illegal #ForcedTransfer, assault, and harassment and denial of #DueProcess. A staff member has also warned that DMH plans to continue this targeting and harassment."

See link below to learn what you can do.

"Main talking points:

- And Steiner is a whistleblower who has reported alleged criminal misconduct and abuse within the Massachusetts Department of Mental Health system.
- And is currently under the care of those they are whistleblowing about.
- A staff member has warned an MFI volunteer of DMH’s intentions to target and harass And.
- And has faced retaliation, including illegal forced transfer, assault, verbal and sexual harassment, and denial of due process, including recent targeted discrimination and abuse by staff.
- Ivy McCall, a friend of And’s with a masters degree in social work, who has attended many of And’s Team Meetings, has come forward saying she believes DMH is targeting and abusing And and that And is not safe.
- All Massachusetts State entities have refused to intervene despite an easily provable #patternOfAbuse and targeting by DMH towards And for at least 3 years.
- Many staff members have filed complaints regarding And’s care.
- #MindFreedom and many advocates and you remain concerned that this pattern will continue without intervention."

https://mindfreedom.org/front-page/and-steiner/

#LemuelShattuck #Queer #BIPOC #Transgender #LGBTQ #PatientAbuse #LetterWriting #Psychiatry #Fascism #Massachusetts #MassDMH
#HumanRightsAbuses

#ShieldAlert: #AndSteiner, GenderDiverse #HumanRightsActivist, targeted for #PatientAdvocacy at #LemuelShattuck.

Urgent Update: #Whistleblower And Steiner Still in Danger Despite Recent Concessions

September 22, 2025: "#MindFreedomInternational (#MFI) is pleased to report that, in response to our previous Shield Alert update, Lemuel Shattuck Hospital has allowed And Steiner to see a covering provider of their choice and assured that And’s requests are being taken seriously. However, MFI remains concerned about And’s safety and well-being despite these concessions.

"As a reminder, And is a #Massachusetts (MA) Department of Mental Health (DMH) patient at Lemuel Shattuck Hospital and whistleblower alleging criminal misconduct and abuse within the Massachusetts #DMH system, and has faced a pattern of retaliation including illegal #ForcedTransfer, assault, and harassment and denial of #DueProcess. A staff member has also warned that DMH plans to continue this targeting and harassment."

See link below to learn what you can do.

"Main talking points:

- And Steiner is a whistleblower who has reported alleged criminal misconduct and abuse within the Massachusetts Department of Mental Health system.
- And is currently under the care of those they are whistleblowing about.
- A staff member has warned an MFI volunteer of DMH’s intentions to target and harass And.
- And has faced retaliation, including illegal forced transfer, assault, verbal and sexual harassment, and denial of due process, including recent targeted discrimination and abuse by staff.
- Ivy McCall, a friend of And’s with a masters degree in social work, who has attended many of And’s Team Meetings, has come forward saying she believes DMH is targeting and abusing And and that And is not safe.
- All Massachusetts State entities have refused to intervene despite an easily provable #patternOfAbuse and targeting by DMH towards And for at least 3 years.
- Many staff members have filed complaints regarding And’s care.
- #MindFreedom and many advocates and you remain concerned that this pattern will continue without intervention."

https://mindfreedom.org/front-page/and-steiner/

#LemuelShattuck #Queer #BIPOC #Transgender #LGBTQ #PatientAbuse #LetterWriting #Psychiatry #Fascism #Massachusetts #MassDMH
#HumanRightsAbuses

#ShieldAlert: #AndSteiner, GenderDiverse #HumanRightsActivist, targeted for #PatientAdvocacy at #LemuelShattuck.

Urgent Update: #Whistleblower And Steiner Still in Danger Despite Recent Concessions

September 22, 2025: "#MindFreedomInternational (#MFI) is pleased to report that, in response to our previous Shield Alert update, Lemuel Shattuck Hospital has allowed And Steiner to see a covering provider of their choice and assured that And’s requests are being taken seriously. However, MFI remains concerned about And’s safety and well-being despite these concessions.

"As a reminder, And is a #Massachusetts (MA) Department of Mental Health (DMH) patient at Lemuel Shattuck Hospital and whistleblower alleging criminal misconduct and abuse within the Massachusetts #DMH system, and has faced a pattern of retaliation including illegal #ForcedTransfer, assault, and harassment and denial of #DueProcess. A staff member has also warned that DMH plans to continue this targeting and harassment."

See link below to learn what you can do.

"Main talking points:

- And Steiner is a whistleblower who has reported alleged criminal misconduct and abuse within the Massachusetts Department of Mental Health system.
- And is currently under the care of those they are whistleblowing about.
- A staff member has warned an MFI volunteer of DMH’s intentions to target and harass And.
- And has faced retaliation, including illegal forced transfer, assault, verbal and sexual harassment, and denial of due process, including recent targeted discrimination and abuse by staff.
- Ivy McCall, a friend of And’s with a masters degree in social work, who has attended many of And’s Team Meetings, has come forward saying she believes DMH is targeting and abusing And and that And is not safe.
- All Massachusetts State entities have refused to intervene despite an easily provable #patternOfAbuse and targeting by DMH towards And for at least 3 years.
- Many staff members have filed complaints regarding And’s care.
- #MindFreedom and many advocates and you remain concerned that this pattern will continue without intervention."

https://mindfreedom.org/front-page/and-steiner/

#LemuelShattuck #Queer #BIPOC #Transgender #LGBTQ #PatientAbuse #LetterWriting #Psychiatry #Fascism #Massachusetts #MassDMH
#HumanRightsAbuses

#ShieldAlert: #AndSteiner, GenderDiverse #HumanRightsActivist, targeted for #PatientAdvocacy at #LemuelShattuck.

Urgent Update: #Whistleblower And Steiner Still in Danger Despite Recent Concessions

September 22, 2025: "#MindFreedomInternational (#MFI) is pleased to report that, in response to our previous Shield Alert update, Lemuel Shattuck Hospital has allowed And Steiner to see a covering provider of their choice and assured that And’s requests are being taken seriously. However, MFI remains concerned about And’s safety and well-being despite these concessions.

"As a reminder, And is a #Massachusetts (MA) Department of Mental Health (DMH) patient at Lemuel Shattuck Hospital and whistleblower alleging criminal misconduct and abuse within the Massachusetts #DMH system, and has faced a pattern of retaliation including illegal #ForcedTransfer, assault, and harassment and denial of #DueProcess. A staff member has also warned that DMH plans to continue this targeting and harassment."

See link below to learn what you can do.

"Main talking points:

- And Steiner is a whistleblower who has reported alleged criminal misconduct and abuse within the Massachusetts Department of Mental Health system.
- And is currently under the care of those they are whistleblowing about.
- A staff member has warned an MFI volunteer of DMH’s intentions to target and harass And.
- And has faced retaliation, including illegal forced transfer, assault, verbal and sexual harassment, and denial of due process, including recent targeted discrimination and abuse by staff.
- Ivy McCall, a friend of And’s with a masters degree in social work, who has attended many of And’s Team Meetings, has come forward saying she believes DMH is targeting and abusing And and that And is not safe.
- All Massachusetts State entities have refused to intervene despite an easily provable #patternOfAbuse and targeting by DMH towards And for at least 3 years.
- Many staff members have filed complaints regarding And’s care.
- #MindFreedom and many advocates and you remain concerned that this pattern will continue without intervention."

https://mindfreedom.org/front-page/and-steiner/

#LemuelShattuck #Queer #BIPOC #Transgender #LGBTQ #PatientAbuse #LetterWriting #Psychiatry #Fascism #Massachusetts #MassDMH
#HumanRightsAbuses

Something that changed my approach to doctor appointments: bringing actual data instead of trying to remember everything on the spot. When I started logging my symptoms daily, I stopped blanking out the moment they asked how I've been doing. Even just a week of notes makes such a difference.

#ChronicIllness #PatientAdvocacy #SymptomTracking #DoctorAppointment #HealthData

Something that changed my approach to doctor appointments: bringing actual data instead of trying to remember everything on the spot. When I started logging my symptoms daily, I stopped blanking out the moment they asked how I've been doing. Even just a week of notes makes such a difference.

#ChronicIllness #PatientAdvocacy #SymptomTracking #DoctorAppointment #HealthData

Something that changed my approach to doctor appointments: bringing actual data instead of trying to remember everything on the spot. When I started logging my symptoms daily, I stopped blanking out the moment they asked how I've been doing. Even just a week of notes makes such a difference.

#ChronicIllness #PatientAdvocacy #SymptomTracking #DoctorAppointment #HealthData

Something that changed my approach to doctor appointments: bringing actual data instead of trying to remember everything on the spot. When I started logging my symptoms daily, I stopped blanking out the moment they asked how I've been doing. Even just a week of notes makes such a difference.

#ChronicIllness #PatientAdvocacy #SymptomTracking #DoctorAppointment #HealthData

Something that changed my approach to doctor appointments: bringing actual data instead of trying to remember everything on the spot. When I started logging my symptoms daily, I stopped blanking out the moment they asked how I've been doing. Even just a week of notes makes such a difference.

#ChronicIllness #PatientAdvocacy #SymptomTracking #DoctorAppointment #HealthData

I just contacted my legislators about the Medical Foods and Formulas Access Act.

I use prescribed oral medical nutrition specifically to prevent needing a feeding tube. Right now the system will often cover the tube and hospital care but not the treatment that helps avoid it in the first place.

For many disabled and chronically ill patients this is the difference between staying stable and medical decline, especially for people on Medicaid or fixed incomes.

If you are in the US and this applies to you, the Rare Disease Action Network has a quick form you can use to contact your representatives.

https://rarediseases.quorum.us/campaign/154665

#MedicalFoods #RareDisease #DisabilityAdvocacy #HealthcareAccess #ChronicIllness #Medicaid #PatientAdvocacy

I just contacted my legislators about the Medical Foods and Formulas Access Act.

I use prescribed oral medical nutrition specifically to prevent needing a feeding tube. Right now the system will often cover the tube and hospital care but not the treatment that helps avoid it in the first place.

For many disabled and chronically ill patients this is the difference between staying stable and medical decline, especially for people on Medicaid or fixed incomes.

If you are in the US and this applies to you, the Rare Disease Action Network has a quick form you can use to contact your representatives.

https://rarediseases.quorum.us/campaign/154665

#MedicalFoods #RareDisease #DisabilityAdvocacy #HealthcareAccess #ChronicIllness #Medicaid #PatientAdvocacy

I just contacted my legislators about the Medical Foods and Formulas Access Act.

I use prescribed oral medical nutrition specifically to prevent needing a feeding tube. Right now the system will often cover the tube and hospital care but not the treatment that helps avoid it in the first place.

For many disabled and chronically ill patients this is the difference between staying stable and medical decline, especially for people on Medicaid or fixed incomes.

If you are in the US and this applies to you, the Rare Disease Action Network has a quick form you can use to contact your representatives.

https://rarediseases.quorum.us/campaign/154665

#MedicalFoods #RareDisease #DisabilityAdvocacy #HealthcareAccess #ChronicIllness #Medicaid #PatientAdvocacy

I just contacted my legislators about the Medical Foods and Formulas Access Act.

I use prescribed oral medical nutrition specifically to prevent needing a feeding tube. Right now the system will often cover the tube and hospital care but not the treatment that helps avoid it in the first place.

For many disabled and chronically ill patients this is the difference between staying stable and medical decline, especially for people on Medicaid or fixed incomes.

If you are in the US and this applies to you, the Rare Disease Action Network has a quick form you can use to contact your representatives.

https://rarediseases.quorum.us/campaign/154665

#MedicalFoods #RareDisease #DisabilityAdvocacy #HealthcareAccess #ChronicIllness #Medicaid #PatientAdvocacy

I just contacted my legislators about the Medical Foods and Formulas Access Act.

I use prescribed oral medical nutrition specifically to prevent needing a feeding tube. Right now the system will often cover the tube and hospital care but not the treatment that helps avoid it in the first place.

For many disabled and chronically ill patients this is the difference between staying stable and medical decline, especially for people on Medicaid or fixed incomes.

If you are in the US and this applies to you, the Rare Disease Action Network has a quick form you can use to contact your representatives.

https://rarediseases.quorum.us/campaign/154665

#MedicalFoods #RareDisease #DisabilityAdvocacy #HealthcareAccess #ChronicIllness #Medicaid #PatientAdvocacy

Woman has cyst removed and is horrified to learn it grew teeth, hair, and maybe even an eyeball

https://fed.brid.gy/r/https://www.upworthy.com/woman-discovers-cyst-is-actually-teratoma-ex1

Woman has cyst removed and is horrified to learn it grew teeth, hair, and maybe even an eyeball

https://web.brid.gy/r/https://www.upworthy.com/woman-discovers-cyst-is-actually-teratoma-ex1

Woman has cyst removed and is horrified to learn it grew teeth, hair, and maybe even an eyeball

https://web.brid.gy/r/https://www.upworthy.com/woman-discovers-cyst-is-actually-teratoma-ex1

🚨 Starting soon! 🚨
🔥 Our Fireside Chat with patient advocate Peter Kapitein gets underway at 10:30! Hear about Peter's life's mission to connect patients, researchers & clinicians to further research and care. #PatientsInResearch #IHITransformingHealth #PatientAdvocacy #NothingForUsWithoutUs

"Building Gold Standard Patient and Public Involvement - DecodeME Conference Presentation"

https://www.youtube.com/watch?v=S3SScaC0L1o

Video posted by Action for ME, a recording of the Nov. 12 'Patient Advocacy Panel' session.

"Learn how Patient and Public Involvement worked within the world's largest ME/CFS study - DecodeME, presented at The International Conference on Clinical and Scientific Advances on ME and long Covid in Porto, Portugal."

@mecfs

#MEcfs #DecodeME #PatientAdvocacy #ActionForME

https://www.propublica.org/article/mental-health-suicide-highmark-bcbs-insurance-denials

It once took us over a year to win the fight against our insurance company's denials for speech therapy for our son.

My husband wrote, at the end of the nearly 200 page final appeal, "The time I have spent fighting these denials would have been much better spent being with my son."

We won.

I was stunned to learn that only 1 in 10,000 people fight such denials. And meanwhile, people's lives hang in the balance.

#PatientAdvocacy
#MentalHealth
#Healthcare

My book Living with Mild Brain Injury is now 20% off! 🎉

It shares the lived experience of post-concussion recovery — the invisible parts, the slow healing, and the small wins that matter.

Find the discount link here 👉 https://www.pigpen.page/20-off-for-readers

#BrainInjury #MildTBI #PatientAdvocacy #Routledge #BookSale

Stay safe during medical treatment! Did you know hospitals have made progress in reducing preventable issues? Still, there's more work to be done. Take control of your care and learn how to stay safe!
Watch Full episode at: https://therokuchannel.roku.com/details/359ca1d16b49a9e5292e8aa0b21becca/health-matters-now-s1-e1-fight-inflammation-with-fiber
#MedicalSafety #HealthcareTips #PatientAdvocacy

#SalamonSMD on X wrote:

Calling #MedTwitter and #LongCOVID, #PEM & #MECFS circles:

I am compiling evidence against graded exercise therapy. Please share your favorite papers in replies.

#PatientAdvocacy #BelievePatients #PacingNotPushing #PatientSafety #LongCovidAwareness #pwLC #PatientLed

There’s a pressing need for more studies to enhance doctor-patient interactions! Better communication fosters trust, improves outcomes, and ensures patients feel heard. Let’s prioritize this! #HealthCare #PatientAdvocacy Follow us: https://carering.life #health #patientsfirst

Guess who I got to chat with about #clinicaltrials #bcsm #CancerResearch #patientadvocacy #communication and basically everything we love? 💕🎧🙌🏻 @6state

https://directory.libsyn.com/episode/index/show/diepcjourney/id/25038582

Proud to serve on the board of the Dystonia Medical Research Foundation and support its mission as both a leader and a dystonia patient.

The DMRF’s 2025 auction is live. Funds raised go directly to research and support for the dystonia community.

Take a look and consider bidding: http://bit.ly/4diKJVt

#Dystonia #MedicalResearch #DMRF #PatientAdvocacy

Continence is more than just plumbing. It's an area that needs to be humanised so that we can better advocate for patient care and quality of life.

More in our conversation with Sheena Lagat, .

https://podbite.link/bites/iv20R_DC

Watch or listen on your favourite platform: https://steampoweredshow.com

Show notes at https://steampoweredshow.com

#continence #incontinence #PatientAdvocacy #QualityOfLife #PatientCentredCare

This week’s blog is an introduction to Metabolic Support UK, & a look at their annual conference.

Their next event is the 7th of March, hopefully will be there to report back!

My thanks to all for the welcome, it was odd to be the one with the 'common' rare disease!

https://www.pigpen.page/metabolic-support-uk/

#RareDisease #PatientAdvocacy #PKU

@hildabast #Shame on #CochraneReview. ME/CFS patients deserve better!

@david says about this:

>Under the circumstances, it is incumbent upon Cochrane to withdraw the outdated review that the cancelled one was supposed to replace. To that end, the Science For ME online forum has re-upped its earlier call, via petition, for the organization to do just that. As of this posting, the petition has more than 13,000 signers.

https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

https://virology.ws/2024/12/17/trial-by-error-cochrane-tells-me-cfs-patients-to-go-f-k-themselves/

#mecfs #patientadvocacy

In a collaboration between ABC and the FDA, funded through the Dana Frontiers program, the goal is to test a new, multidirectional engagement model that embeds patient and family perspectives into regulatory processes and decision-making (i.e., in new therapies), via the TAP program. Learn more about this new initiative. #neurosociety #brainhealth #patientadvocacy https://dana.org/article/new-partnership-to-ensure-patients-and-families-are-included-in-regulatory-processes/

🎙️ ✨ A new episode has been published on @ITSPmagazine

Show: Health Exposed Podcast With Tyler Cohen Wood

Episode: 🎙️✨The Power of AI, Patient Advocacy, and Innovation | A Conversation With Irma Rastigaeva and Evan Kirstel

Podcast format: Audio & Video

#AI #PatientAdvocacy #healthcare #podcast

Enjoy, share, and subscribe!
👉 https://www.youtube.com/watch?v=FceAGBeOdmY

If you prefer to listen to the audio podcast, enjoy it here
👇
https://itsprad.io/healthexposed-2

The power of apology in healthcare: a patient's perspective

Dinaaz Lentin is a patient advocate.

https://youtube.com/shorts/ZR3WyHftatM

Listen here: https://kevinmd.com/podcast

#MedicalErrors #ApologyMatters #PatientRights #HealthcareTransparency #MistakesHappen #HospitalApology #PatientAdvocacy #MedicalMistakes #HumanityInMedicine #ApologyHeals

New blog post: "Nailing Down An Answer, Or At Least A Question"

https://www.harihareswara.net/posts/2023/nailing-down-answer-question-med-experts/

Sometimes you take pains to ask doctors & other medical experts a specific, deliberately-worded question, and they don't really seem to listen. They answer a question different from the one you asked, maybe a more common one. They recommend xyz even though you said that won't work for you. Etc.

Why does it happen? And how do I avoid it, or get less frustrated?

#caregiving #PatientAdvocacy #medicine

Researching specific treatments & how to perform at-home procedures

Organ/body donation; donating unused medicine

Palliative care, hospice, insurance/Medicare, & hospice facility eligibility

Delirium & persuasion

Music for comfort

Books & blogs that helped me prepare for this

#eldercare #caregiving #caregiver #caregivers #EndOfLife #healthcare #medicine #PalliativeCare #hospitals #PatientAdvocacy #EstatePlanning #DeathCare #hospice

This was, at times, hard to write. Hope it helps.

[2/n]

Why you should have a copy of your medical records

#MedicalRecords #PatientAdvocacy #HealthcareInformation #EmergencyPreparedness #MedicationManagement #PatientEmpowerment

Ann M. Hester is an internal medicine physician.

https://youtube.com/shorts/ksAZma-627A

Listen here: https://kevinmd.com/podcast

Why it's essential for healthcare professionals to listen to their patients' self-diagnosis

As healthcare professionals, it's important to remember that almost all patients come to us with their own self-diagnosis.

Mary O’Connor is an orthopedic surgeon.

https://youtube.com/shorts/AtqZOYc6Trk

Listen here: https://kevinmd.com/podcast

#healthcare #patientcare #clinicalencounter #selfdiagnosis #communication #teamwork #doctor #nurse #medicine #patientadvocacy #patientempathy #patienteducation #health literacy

Attended an amazing meeting of pancreatic cancer experts yesterday. Made me think a lot about patient advocacy and the ways I might be able to contribute. I've been so without purpose lately that I kind of feel found. #pancreaticcancer #patientadvocacy

Changing lives: The power of palliative care

Vickie Leff and Terry Altilio are palliative social workers.

https://youtube.com/shorts/-xhh2gUj1j4

Listen here: https://kevinmd.com/podcast

#PalliativeCare #ClinicianLife #SupportingFamilies #HealthcareTeam #PatientAdvocacy #Teamwork #CommunicationBridge #CompassionateCare #PatientCentered #Inspiration

Changing lives: The power of palliative care

Vickie Leff and Terry Altilio are palliative social workers.

https://youtube.com/shorts/-xhh2gUj1j4

Listen here: https://kevinmd.com/podcast

#PalliativeCare #ClinicianLife #SupportingFamilies #HealthcareTeam #PatientAdvocacy #Teamwork #CommunicationBridge #CompassionateCare #PatientCentered #Inspiration

Gynaecological cancer survivors help educate Australia’s future doctors and nurses

When Kristin Young was diagnosed with stage 3 ovarian ca…
#NewsBeep #News #Australia #ANZGOG #AU #CancerResearch #cancersurvivors #cervicalcancer #consumeradvocacy #endometrialcancer #gynaecologicalcancer #healtheducation #MedicalSchool #OvarianCancer #patientadvocacy #studentdoctors #studentnurses #survivorsteachingstudents #uterinecancer #vaginalcancer #volunteer #vulvalcancer
https://www.newsbeep.com/au/83573/

Why it's essential for healthcare professionals to listen to their patients' self-diagnosis

As healthcare professionals, it's important to remember that almost all patients come to us with their own self-diagnosis.

Mary O’Connor is an orthopedic surgeon.

https://youtube.com/shorts/AtqZOYc6Trk

Listen here: https://kevinmd.com/podcast

#healthcare #patientcare #clinicalencounter #selfdiagnosis #communication #teamwork #doctor #nurse #medicine #patientadvocacy #patientempathy #patienteducation #health literacy