#alicewong — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #alicewong, aggregated by home.social.
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THREAT MODEL: COVID 🦠
for Mar. 26th, 2026
by independent journalist @violetblue- Up to 60% of health care workers may have long COVID 4 years after infection
- The dangers of repeat Covid infections
- Discussion on highly mutated BA 3.2 ("Cicada") from experts & variant trackers
- Study: COVID vaccines not tied to risk of sudden death
- The unknowns of having Long Covid while pregnant
- NHS workers with Long Covid feel abandoned by the system
- The challenge of trying to get a booster for #AotearoaNewZealand -ers under 30
- Disability justice advocate and author #AliceWong 's celebration of life
...and much more.
✨THREAT MODEL is free to read -- please help keep it accessible to all by becoming a patron, even $1 a month makes a difference!✨
https://www.patreon.com/posts/covid-march-26-153975461
#ThreatModel #ThreatModelCovid #ThreatModelNewsletters #VioletBlue #COVIDnews #PublicHealth #CovidIsNotOver
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𝙏𝙝𝙧𝙚𝙖𝙩 𝙈𝙤𝙙𝙚𝙡: 𝘾𝙤𝙫𝙞𝙙
𝘧𝘰𝘳 Nov. 20th, 2025
𝘣𝘺 𝘫𝘰𝘶𝘳𝘯𝘢𝘭𝘪𝘴𝘵 @violetblue- Rest in Power SF Direwolf #AliceWong
- US CDC infectious disease data/early warning blackout hits week 7
- Spotlight: The Tyson Covid scandal
- Paper: clear signals Covid is disrupting population-wide immune function
- Weight-loss drug Zepbound tested as a treatment for #LongCovid
- Strange changes found in blood of Long Covid patients
- Australia: A call for action to address Long Covid in Aboriginal communities
- Germany to invest half-billion Euros for research into Long Covid, ME/CFS
...and much more.
* 𝙏𝙝𝙧𝙚𝙖𝙩 𝙈𝙤𝙙𝙚𝙡 𝘪𝘴 𝘧𝘳𝘦𝘦 𝘵𝘰 𝘳𝘦𝘢𝘥 -- 𝘱𝘭𝘦𝘢𝘴𝘦 𝘩𝘦𝘭𝘱 𝘬𝘦𝘦𝘱 𝘪𝘵 𝘢𝘤𝘤𝘦𝘴𝘴𝘪𝘣𝘭𝘦 𝘵𝘰 𝘢𝘭𝘭 𝘣𝘺 𝘣𝘦𝘤𝘰𝘮𝘪𝘯𝘨 𝘢 𝘱𝘢𝘵𝘳𝘰𝘯, 𝘦𝘷𝘦𝘯 $1/𝘮𝘰𝘯𝘵𝘩 𝘮𝘢𝘬𝘦𝘴 𝘢 𝘥𝘪𝘧𝘧𝘦𝘳𝘦𝘯𝘤𝘦 *
https://www.patreon.com/posts/covid-november-143980962
#ThreatModel #ThreatModelCovid #ThreatModelNewsletters #VioletBlue #COVIDnews #CovidIsNotOver #H5N1 #BirdFlu
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#ArtistOfTheWeek – this week I'm not choosing an artist per se but writer & activist Alice Wong.
The keywords last week were Access/Accessibility and this week the keyword is Change.
Alice passed away last weekend and was a bright, insightful, light-hearted person who embraced change and fought for justice for disabled folks.
#AliceWong #Disability #DisabilityJustice #Accessibility #A11y
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Alice Wong, the disability justice advocate and author, died at the weekend at age 51. She was best known for founding the Disability Visibility Project. She also wrote multiple books and a column for Teen Vogue, and her final project was Crips for eSims for Gaza, which raised over $3 million to help connect people living in Gaza to the internet. Here's @19thnews's tribute to her.
#AliceWong #InMemoriam #DisabilityVisibilityProject #DisabilityRights #Gaza #Books #Activism
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"We don’t have parades or awareness campaigns. There isn’t a push to stop using ableist slurs and language. People don’t call others out when they discriminate against the disabled. It’s still socially acceptable...
"Alice wasn’t afraid. She was fearless. She embraced her disabilities and made sure the world saw her for who she was.
"Her work helped me understand that there is no social justice without disability justice."
https://www.disabledginger.com/p/thank-you-alice-wong
#alicewong #disabled #disability -
From people who were Alice Wong's friends and colleagues, two posts.
For The Sick Times, by Miles W Griffis:
https://thesicktimes.org/2025/11/15/alice-wong-disability-activist-and-luminary-dies-at-51/At her blog, by Nicola Griffith:
https://nicolagriffith.com/2025/11/16/alice-wong/ -
Alice Wong
Alice Wong, Asian American woman in a wheelchair with a tracheostomy at her neck connected to a ventilator. She’s wearing a pink plaid shirt, pink pants, and a magenta lip color. She is smiling and behind her are a bunch of tall prehistoric looking plants. Photo credit: Allison Busch Photography.I found out late Friday night that Alice Wong had died an hour earlier in a San Francisco hospital. Others will write better obituaries, finer eulogies, but Alice—the woman herself, the activist, the co-conspirator, the mentor and encourager—had an outsized impact on my journey through to and understanding of my identity as a Disabled writer.
We met on Twitter. I long ago deleted my Twitter account and archive and so can’t trace the exact beginnings, but I think it was probably sometime in early 2015, after she has started the Disability Visibility Project and I was beginning to accept that elbow crutches were no longer sufficient to living a full life: that it was time for me to investigate, buy, and start using a wheelchair. I could feel my own resistance to that, and I knew it was ridiculous. I’d already been talking to Riva Lehrer, so I was already waking up to it, but it was reading the conversations with and/or facilitated by Alice in various venues that really helped me begin to wrap my head around how the tentacles of ableism didn’t affect just my immediate day-to-day life but were coiled about and strangling almost every aspect of disabled peoples’ lives, including—especially—our interactions with the world.
This of course includes our cultural lives. Alice and I were chatting on Twitter about writing: disabled writers, disabled characters in fiction. ‘We need a hashtag,’ I said. And #CripLit was born. Within a few weeks, Alice—the organisational powerhouse behind so very many crip community efforts of the early 21st century—and I were ready to announce the first-ever #CripLit chat for 23 July 2016. We announced simultaneously on here and on The Disability Visibility Project:
From the very beginning the chat was massive—almost overwhelming. Each chat took a lot of work to prepare—finding occasional co-hosts, working out the questions, scheduling, the intensity of the moderation—but they were worth it. We did one every couple of months for two and half years (they are archived here).1 I firmly believe that those chats moved the needle regarding disability literature. And though the hashtag and idea were mine, it was Alice—her drive, her organisational ability, her sheer forward momentum and refusal to let any barriers stand in her way—who made it possible; it was her energy that was the spine.
Alice was one of my two crip godmothers.2 She was fourteen years younger than me but decades wiser in the ways of disability, ableism, and the power of community engagement. I learnt from her constantly—sometimes in long conversations where I asked many (I’m guessing, looking back, rather tedious) questions, and sometimes just from watching how she handled situations. Alice was smart, brave, clear, definite, kind, and able to able to focus on and lead others to those from whom we can find and draw hope–because it’s hope that sustains us in hard times. Rage is vital—crip rage is powerful; and, oh, we have so much to be angry about—but Alice understood that it’s as important to talk about joy as about difficulty. It helps to be reminded of the positive things we’re fighting towards, not just what we’re fighting against. We don’t just want access; we don’t just want representation; we want power, real power over ourselves and our lives.
When I wrote So Lucky, Alice was kind enough to interview me for her blog.
We connected on Twitter several years ago and are co-partners in #CripLit, a series of Twitter chats about writing and disability representation with a particular focus on disabled writers. What have you enjoyed so far from these chats? Why do you think there is a need for these types of conversations? What do you see for the future of #CripLit?
Nicola: What I like best about #CripLit is a building sense of excitement, the disability community come together and beginning to flex. We are 20% of this country, maybe 20% of the electorate. We are amazingly diverse and fine. There are some incredible groups coalescing around different focuses; social media is a powerful way to connect. #CripLit is just one of them. Now we need to find a way to bring all these groups together to form a critical mass, a tipping point. We need to catch fire, to join in a roaring, creative inferno, to pour forth.
Part of that is to start putting together the scaffolding we need to build cultural connections; that scaffolding is story. We don’t know who we are until we can tell a story about ourselves. Stories help us understand we are not alone.
But to write stories we need to know that we’re not just a voice crying into the void: that others are crying out, too. Once we know others are there, to help, to learn, to teach, to support, we can sing out in harmony, build a chorus that will change the world.
That’s what #CripLit is for.
When she published her anthology of essay of crip wisdom, Resistance & Hope, I returned the favour and interviewed her here. I really hope you’ll go read that interview. It is pure Essence of Alice.
As a disabled activist and media maker, who or what are you most determined to resist? And where do you find hope?
I resist policies and programs that keep disabled people from living the lives they want. I resist low expectations and tokenistic attempts at disability diversity by organizations and institutions. I resist the feelings of shame and isolation that still plague many of us, including me. I resist the idea that nothing can change and that every system is broken. I resist the idea that representation is enough when what we really want is power.
I find hope in my friends and family. I find hope in the amazing ways disabled people create and get things done interdependently. I find hope and joy in the simple things—excellent conversations and meals. And cat videos.
I miss Alice, her clarity, bravery, and joy. I wish she were still here, but her work continues.3
- Sadly, all my tweets are missing because when I deleted my Twitter account I also deleted the archive. That missing record is the only thing I regret about leaving that platform. ↩︎
- The other is Riva Lehrer. I’ve talked about Riva often, and will no doubt do so again. ↩︎
- Her family has committed to continue her work, so if you wish to contribute to that, please donate to her GoFundMe, which was originally started to help keep Alice living in the wider community. ↩︎
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Re: Alice Wong, an email I received yesterday.
“The real gift any person can give is a web of connective tissue. If we love fiercely, our ancestors live among and speak to us through these incandescent filaments glowing from the warmth of memories. ” We would like to invite her friends, community, and her many fans to contribute to Alice’s GoFundMe to continue the legacy of her work. -
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https://www.npr.org/2025/11/15/nx-s1-5609903/disability-rights-activist-author-alice-wong-dies-51
#AliceWong passed away
💔
by Clare Harner
Do not stand at my grave and weep
I am not there. I do not sleep.
I am a thousand winds that blow.
I am the diamond glints on snoW.
I am the sunlight on ripened grain.
I am the gentle autumn rain.
When you awaken in the morning's hush
I am the swift uplifting rush Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry;
I am not there. I did not die. -
Disability rights activity, author Alice Wong dead
SAN FRANCISCO (AP) — Alice Wong, a disability rights activist and author whose independence and writing inspired others,…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #AliceWong #America #California #disabilities #Entertainment #Generalnews #Health #LocalNewsforApple #NotableDeaths #SanFrancisco #SandyHo #U.S.news #UnitedStatesofAmerica
https://www.newsbeep.com/us/294305/ -
Remembering Alice Wong, a powerful disability rights activist, author, and advocate https://english.mathrubhumi.com/news/world/alice-wong-disability-rights-activist-dies-urc51pir?utm_source=dlvr.it&utm_medium=mastodon #alicewong #disability #activist
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Rest in power, Alice; your name will be remembered.
ETA: gift link to Alice's obituary in the NYT:
https://www.nytimes.com/2025/11/15/us/alice-wong-dead.html?unlocked_article_code=1.1k8.aVQO.caUG5iuJ3aga&smid=url-shareETA 2: Alice's columns for Teen Vogue can be found under her name, not searching for disability:
https://www.teenvogue.com/contributor/alice-wong -
Såg att Alice Wong har rullat vidare. Jädrar vad hon jobbade hårt och satte funkisrättigheter och i synnerhet funkispride på kartan.
Hon är saknad 🖤#disabilitypride #disabledpride #disabilityjustice #disibilityvisibility #alicewong
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Alice Wong helped me accept my disabilities.
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
https://www.disabledginger.com/p/thank-you-alice-wong
#alicewong #disability #disabilityjustice #chronicillness #ableism #death #grief
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Some digital collages I made this afternoon for Alice💐
Inspired by her words in the intro of disability intimacy that I wrote by hand, my hand holding a flower and the flower motif from the cover of the book, plus an offering to Alice and other crips.
#disabilityintimacy #AliceWong #digitalcollage #collage #noAI #disabledart #disabledartist
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Alice Wong joins our ancestors in passing on 🕯️
AsAmNews: "We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I’m honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don’t let the bastards grind you down. I love you all,” she wrote."
#AliceWong #disability #activism
https://asamnews.com/2025/11/15/alice-wong-passes-away-51-disability-rights-activist/
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One very small but telling personal thing to add to the chorus of people praising #AliceWong after the tragic news of her passing. The website for her first anthology of disabled writers was the first place I ever saw a Bookshare link right alongside all the links to the usual bookstores. She made sure that all her books were available on Bookshare on publication day and put the Bookshare links everywhere online. One of the million small things she did out of a fierce and deep commitment to solidarity and accessibility. When I started helping people independently publish books, I made sure we always did the same. The love she showed people multiplied like that. I never got around to reading her memoir, so it felt appropriate to go get it on Bookshare this morning when I saw the news. Rest in Peace, Alice.
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Gutted at the news of the passing of Alice Wong today.
In her final words: Don't let the bastards grind you down!
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Gutted at the news of the passing of Alice Wong today.
In her final words: Don't let the bastards grind you down!
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Gutted at the news of the passing of Alice Wong today.
In her final words: Don't let the bastards grind you down!
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Gutted at the news of the passing of Alice Wong today.
In her final words: Don't let the bastards grind you down!
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Gutted at the news of the passing of Alice Wong today.
In her final words: Don't let the bastards grind you down!
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I am heartbroken at the news of the loss of the brilliant, smart, silly, inspirational Alice Wong.
She lived a truly amazing life.
Please read her works in Teen Vogue, her books, and her podcast.
As Alice wrote in her final letter to us:
"Don't let the bastards grind you down!"
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My heart is so heavy … I lost a friend and mentor yesterday and the disability community lost a leader.
The incomparable Alice Wong passed away.
She inspired me to find my voice. She encouraged me to take up space and embrace my disabled body.
To be visible in a world that seeks to make us invisible.
To be unapologetic about the ways I am different and the things I need to move through this world.
To be a voice for those who don’t have one and to always fight against ableism and eugenics.
I can’t believe she’s gone.
The Disabled Ginger wouldn’t exist without her, and I hope that I can honour her memory through my writing.
Hug your loved ones close.
Remember none of us are guaranteed a tomorrow and may we all be as visible, proud and fierce as Alice was.
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Disability activist Alice Wong has died.
"Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, and full of love."
She founded Crips for eSims for Gaza, which raised millions for phone connectivity for Palestinians in Gaza.
https://time.com/6960765/alice-wong-muscular-dystrophy-essay/
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Pre-ordered #AliceWong's new book, "Disability Intimacy: Essays on Love, Care, and Desire" which comes out on Tuesday. #DisabilityIntimacy #Disability #Bookstodon
https://amzn.to/3JD6Qba -
Year of the Tiger: An Activist's Life
This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.
@bookstodon
#books
#nonfiction
#memoir
#AliceWong
#DisabilityVisibility -
I’m really enjoying this conversation between Sandy Ho and Vu Le, inspired by Alice Wong’s incredible book, Year of the Tiger, hosted by the Longmore Institute!
#TigerTalks #YearOfTheTigerBook #AliceWong #SandyHo #Disability #DisVisibility #VuLe #NonprofitAF #professionalism
