#parkinsonsplus — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #parkinsonsplus, aggregated by home.social.
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I just read about Democratic Rep Wexton being diagnosed with #ParkinsonsPlus, progressive supranuclear palsy.
She's only 56. I, too, have Parkinson's Plus, Multiple System Atrophy and a few years younger than her.
Parkinson's Plus Syndromes are affecting so many GenX in numbers like none other, once rare–becoming more commonplace.
We must make headway before they are even more widespread.
:wikipedia: More about Parkinson's on Steroids
https://en.wikipedia.org/wiki/Parkinson-plus_syndrome -
I just read about Democratic Rep Wexton being diagnosed with #ParkinsonsPlus, progressive supranuclear palsy.
She's only 56. I, too, have Parkinson's Plus, Multiple System Atrophy and a few years younger than her.
Parkinson's Plus Syndromes are affecting so many GenX in numbers like none other, once rare–becoming more commonplace.
We must make headway before they are even more widespread.
:wikipedia: More about Parkinson's on Steroids
https://en.wikipedia.org/wiki/Parkinson-plus_syndrome -
I just read about Democratic Rep Wexton being diagnosed with #ParkinsonsPlus, progressive supranuclear palsy.
She's only 56. I, too, have Parkinson's Plus, Multiple System Atrophy and a few years younger than her.
Parkinson's Plus Syndromes are affecting so many GenX in numbers like none other, once rare–becoming more commonplace.
We must make headway before they are even more widespread.
:wikipedia: More about Parkinson's on Steroids
https://en.wikipedia.org/wiki/Parkinson-plus_syndrome -
I just read about Democratic Rep Wexton being diagnosed with #ParkinsonsPlus, progressive supranuclear palsy.
She's only 56. I, too, have Parkinson's Plus, Multiple System Atrophy and a few years younger than her.
Parkinson's Plus Syndromes are affecting so many GenX in numbers like none other, once rare–becoming more commonplace.
We must make headway before they are even more widespread.
:wikipedia: More about Parkinson's on Steroids
https://en.wikipedia.org/wiki/Parkinson-plus_syndrome -
I just read about Democratic Rep Wexton being diagnosed with #ParkinsonsPlus, progressive supranuclear palsy.
She's only 56. I, too, have Parkinson's Plus, Multiple System Atrophy and a few years younger than her.
Parkinson's Plus Syndromes are affecting so many GenX in numbers like none other, once rare–becoming more commonplace.
We must make headway before they are even more widespread.
:wikipedia: More about Parkinson's on Steroids
https://en.wikipedia.org/wiki/Parkinson-plus_syndrome -
@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.
Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.
I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy
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@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.
Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.
I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy
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@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.
Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.
I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy
-
@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.
Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.
I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy
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@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.
Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.
I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy
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Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.
We toot post our progress.
We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.
Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491 -
Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.
We toot post our progress.
We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.
Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491 -
Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.
We toot post our progress.
We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.
Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491 -
Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.
We toot post our progress.
We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.
Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491 -
Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.
We toot post our progress.
We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.
Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491 -
I'm sooo sleepy. My sleep schedule is messed up right now as we had to adjust my meds to deal with summer issues with my #ParkinsonsPlus. #Parkinsons
I am sleeping like a newborn right now
It's been neat spending time on my Mastodon timeline at hours different than.my normal times online with the timeline being in chronological order
Still, I have had several mutuals reach out to make sure I was ok as my absence was odd during my normal timeline time
I go through this in winter, too
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I'm sooo sleepy. My sleep schedule is messed up right now as we had to adjust my meds to deal with summer issues with my #ParkinsonsPlus. #Parkinsons
I am sleeping like a newborn right now
It's been neat spending time on my Mastodon timeline at hours different than.my normal times online with the timeline being in chronological order
Still, I have had several mutuals reach out to make sure I was ok as my absence was odd during my normal timeline time
I go through this in winter, too
-
I'm sooo sleepy. My sleep schedule is messed up right now as we had to adjust my meds to deal with summer issues with my #ParkinsonsPlus. #Parkinsons
I am sleeping like a newborn right now
It's been neat spending time on my Mastodon timeline at hours different than.my normal times online with the timeline being in chronological order
Still, I have had several mutuals reach out to make sure I was ok as my absence was odd during my normal timeline time
I go through this in winter, too
-
I'm sooo sleepy. My sleep schedule is messed up right now as we had to adjust my meds to deal with summer issues with my #ParkinsonsPlus. #Parkinsons
I am sleeping like a newborn right now
It's been neat spending time on my Mastodon timeline at hours different than.my normal times online with the timeline being in chronological order
Still, I have had several mutuals reach out to make sure I was ok as my absence was odd during my normal timeline time
I go through this in winter, too
-
I'm sooo sleepy. My sleep schedule is messed up right now as we had to adjust my meds to deal with summer issues with my #ParkinsonsPlus. #Parkinsons
I am sleeping like a newborn right now
It's been neat spending time on my Mastodon timeline at hours different than.my normal times online with the timeline being in chronological order
Still, I have had several mutuals reach out to make sure I was ok as my absence was odd during my normal timeline time
I go through this in winter, too
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I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.
As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.
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I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.
As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.
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I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.
As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.
-
I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.
As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.
-
I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.
As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.
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CW: My health and Autonomic dysfunction
We're acclimating my #ParkinsonsPlus from #winter to #summer, & it takes a toll on me.
Without going into too much detail, but I'm always open to #AMA, my #autonomic system, the things your body does on its own, is shot.
Season changes means adapting to new stimuli, like heat, allergens, etc.
Reactions to stimuli includes passing out, dangerous blood pressures, heart issues, etc.
We're slowly introducing my body back to the new season, adjusting meds, etc
-
CW: My health and Autonomic dysfunction
We're acclimating my #ParkinsonsPlus from #winter to #summer, & it takes a toll on me.
Without going into too much detail, but I'm always open to #AMA, my #autonomic system, the things your body does on its own, is shot.
Season changes means adapting to new stimuli, like heat, allergens, etc.
Reactions to stimuli includes passing out, dangerous blood pressures, heart issues, etc.
We're slowly introducing my body back to the new season, adjusting meds, etc
-
CW: My health and Autonomic dysfunction
We're acclimating my #ParkinsonsPlus from #winter to #summer, & it takes a toll on me.
Without going into too much detail, but I'm always open to #AMA, my #autonomic system, the things your body does on its own, is shot.
Season changes means adapting to new stimuli, like heat, allergens, etc.
Reactions to stimuli includes passing out, dangerous blood pressures, heart issues, etc.
We're slowly introducing my body back to the new season, adjusting meds, etc
-
CW: My health and Autonomic dysfunction
We're acclimating my #ParkinsonsPlus from #winter to #summer, & it takes a toll on me.
Without going into too much detail, but I'm always open to #AMA, my #autonomic system, the things your body does on its own, is shot.
Season changes means adapting to new stimuli, like heat, allergens, etc.
Reactions to stimuli includes passing out, dangerous blood pressures, heart issues, etc.
We're slowly introducing my body back to the new season, adjusting meds, etc
-
CW: My health and Autonomic dysfunction
We're acclimating my #ParkinsonsPlus from #winter to #summer, & it takes a toll on me.
Without going into too much detail, but I'm always open to #AMA, my #autonomic system, the things your body does on its own, is shot.
Season changes means adapting to new stimuli, like heat, allergens, etc.
Reactions to stimuli includes passing out, dangerous blood pressures, heart issues, etc.
We're slowly introducing my body back to the new season, adjusting meds, etc
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Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )
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Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )
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Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )
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Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )
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Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )
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I feel healthier since my #TwitterMigration to #Mastodon.
Not in an elitist way but the topics are so broad, and not focused on one evil subject. We still get that in but then you have the pure, refreshing content.
You get into disagreements and discussions, but they usually end with a follow or at least ends without battle scars and wounds.
My skills get tested due to my #ParkinsonsPlus on a regular basis.
#Twitter was physically & cognitively injuring me.
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I feel healthier since my #TwitterMigration to #Mastodon.
Not in an elitist way but the topics are so broad, and not focused on one evil subject. We still get that in but then you have the pure, refreshing content.
You get into disagreements and discussions, but they usually end with a follow or at least ends without battle scars and wounds.
My skills get tested due to my #ParkinsonsPlus on a regular basis.
#Twitter was physically & cognitively injuring me.
-
I feel healthier since my #TwitterMigration to #Mastodon.
Not in an elitist way but the topics are so broad, and not focused on one evil subject. We still get that in but then you have the pure, refreshing content.
You get into disagreements and discussions, but they usually end with a follow or at least ends without battle scars and wounds.
My skills get tested due to my #ParkinsonsPlus on a regular basis.
#Twitter was physically & cognitively injuring me.
-
I feel healthier since my #TwitterMigration to #Mastodon.
Not in an elitist way but the topics are so broad, and not focused on one evil subject. We still get that in but then you have the pure, refreshing content.
You get into disagreements and discussions, but they usually end with a follow or at least ends without battle scars and wounds.
My skills get tested due to my #ParkinsonsPlus on a regular basis.
#Twitter was physically & cognitively injuring me.
-
I feel healthier since my #TwitterMigration to #Mastodon.
Not in an elitist way but the topics are so broad, and not focused on one evil subject. We still get that in but then you have the pure, refreshing content.
You get into disagreements and discussions, but they usually end with a follow or at least ends without battle scars and wounds.
My skills get tested due to my #ParkinsonsPlus on a regular basis.
#Twitter was physically & cognitively injuring me.
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The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me
I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly
Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms
Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon
-
The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me
I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly
Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms
Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon
-
The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me
I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly
Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms
Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon
-
The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me
I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly
Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms
Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon
-
The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me
I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly
Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms
Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon
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Little Bit, my #CatsOfMastodon, saved my life today
I was napping in my lift chair on the other side of the house when he relentlessly woke me up. Penny, my wife, was gone to store and I was by myself
There was an electrical fire with a fan.
I am not too mobile due to my #Parkinsons #ParkinsonsPlus. For their entire lives, my two #cats have lived in a homebound human's house. Not sure if their behavior is different due to that, but they hoover over me 24/7
He won't leave my side tonight. ❤️
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Little Bit, my #CatsOfMastodon, saved my life today
I was napping in my lift chair on the other side of the house when he relentlessly woke me up. Penny, my wife, was gone to store and I was by myself
There was an electrical fire with a fan.
I am not too mobile due to my #Parkinsons #ParkinsonsPlus. For their entire lives, my two #cats have lived in a homebound human's house. Not sure if their behavior is different due to that, but they hoover over me 24/7
He won't leave my side tonight. ❤️
-
Little Bit, my #CatsOfMastodon, saved my life today
I was napping in my lift chair on the other side of the house when he relentlessly woke me up. Penny, my wife, was gone to store and I was by myself
There was an electrical fire with a fan.
I am not too mobile due to my #Parkinsons #ParkinsonsPlus. For their entire lives, my two #cats have lived in a homebound human's house. Not sure if their behavior is different due to that, but they hoover over me 24/7
He won't leave my side tonight. ❤️
-
Little Bit, my #CatsOfMastodon, saved my life today
I was napping in my lift chair on the other side of the house when he relentlessly woke me up. Penny, my wife, was gone to store and I was by myself
There was an electrical fire with a fan.
I am not too mobile due to my #Parkinsons #ParkinsonsPlus. For their entire lives, my two #cats have lived in a homebound human's house. Not sure if their behavior is different due to that, but they hoover over me 24/7
He won't leave my side tonight. ❤️
-
Little Bit, my #CatsOfMastodon, saved my life today
I was napping in my lift chair on the other side of the house when he relentlessly woke me up. Penny, my wife, was gone to store and I was by myself
There was an electrical fire with a fan.
I am not too mobile due to my #Parkinsons #ParkinsonsPlus. For their entire lives, my two #cats have lived in a homebound human's house. Not sure if their behavior is different due to that, but they hoover over me 24/7
He won't leave my side tonight. ❤️
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My #Parkinsons #ParkinsonsPlus is rough on desktop computer mice. I think I am going to have to setup 'subscribe and save' for the mouse and get a new one every couple months.
Need to figure out something.
Serious #GamersOfMastodon. I figure you are hard on computer mice. Send me links and suggestions for an ''industrial strength' computer mouse that will take abuse, please.
#gaming #Gamers #gamers #videoGame #videoGames #GamingCommunity.
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My #Parkinsons #ParkinsonsPlus is rough on desktop computer mice. I think I am going to have to setup 'subscribe and save' for the mouse and get a new one every couple months.
Need to figure out something.
Serious #GamersOfMastodon. I figure you are hard on computer mice. Send me links and suggestions for an ''industrial strength' computer mouse that will take abuse, please.
#gaming #Gamers #gamers #videoGame #videoGames #GamingCommunity.
-
My #Parkinsons #ParkinsonsPlus is rough on desktop computer mice. I think I am going to have to setup 'subscribe and save' for the mouse and get a new one every couple months.
Need to figure out something.
Serious #GamersOfMastodon. I figure you are hard on computer mice. Send me links and suggestions for an ''industrial strength' computer mouse that will take abuse, please.
#gaming #Gamers #gamers #videoGame #videoGames #GamingCommunity.
-
My #Parkinsons #ParkinsonsPlus is rough on desktop computer mice. I think I am going to have to setup 'subscribe and save' for the mouse and get a new one every couple months.
Need to figure out something.
Serious #GamersOfMastodon. I figure you are hard on computer mice. Send me links and suggestions for an ''industrial strength' computer mouse that will take abuse, please.
#gaming #Gamers #gamers #videoGame #videoGames #GamingCommunity.
-
My #Parkinsons #ParkinsonsPlus is rough on desktop computer mice. I think I am going to have to setup 'subscribe and save' for the mouse and get a new one every couple months.
Need to figure out something.
Serious #GamersOfMastodon. I figure you are hard on computer mice. Send me links and suggestions for an ''industrial strength' computer mouse that will take abuse, please.
#gaming #Gamers #gamers #videoGame #videoGames #GamingCommunity.
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🎶 Amandine By Morning
#SongsOrMoviesAboutCake
of Romania. Amadine is a chocolate layered cake filled with chocolate, caramel &fondant creamOff topic, we've had 513 unique players playing at least one of our 9 o'clock #HashtagGames over the past 7 days
Thank you, everyone. To see our past games, go to our profile & click on Media
Special thanks to my wife @penny who helps me out on the evenings when my #Parkinsons #ParkinsonsPlus takes it toll on me. Typing, liking, boosting, etc.
~ @paul
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🎶 Amandine By Morning
#SongsOrMoviesAboutCake
of Romania. Amadine is a chocolate layered cake filled with chocolate, caramel &fondant creamOff topic, we've had 513 unique players playing at least one of our 9 o'clock #HashtagGames over the past 7 days
Thank you, everyone. To see our past games, go to our profile & click on Media
Special thanks to my wife @penny who helps me out on the evenings when my #Parkinsons #ParkinsonsPlus takes it toll on me. Typing, liking, boosting, etc.
~ @paul
-
🎶 Amandine By Morning
#SongsOrMoviesAboutCake
of Romania. Amadine is a chocolate layered cake filled with chocolate, caramel &fondant creamOff topic, we've had 513 unique players playing at least one of our 9 o'clock #HashtagGames over the past 7 days
Thank you, everyone. To see our past games, go to our profile & click on Media
Special thanks to my wife @penny who helps me out on the evenings when my #Parkinsons #ParkinsonsPlus takes it toll on me. Typing, liking, boosting, etc.
~ @paul
-
🎶 Amandine By Morning
#SongsOrMoviesAboutCake
of Romania. Amadine is a chocolate layered cake filled with chocolate, caramel &fondant creamOff topic, we've had 513 unique players playing at least one of our 9 o'clock #HashtagGames over the past 7 days
Thank you, everyone. To see our past games, go to our profile & click on Media
Special thanks to my wife @penny who helps me out on the evenings when my #Parkinsons #ParkinsonsPlus takes it toll on me. Typing, liking, boosting, etc.
~ @paul
-
🎶 Amandine By Morning
#SongsOrMoviesAboutCake
of Romania. Amadine is a chocolate layered cake filled with chocolate, caramel &fondant creamOff topic, we've had 513 unique players playing at least one of our 9 o'clock #HashtagGames over the past 7 days
Thank you, everyone. To see our past games, go to our profile & click on Media
Special thanks to my wife @penny who helps me out on the evenings when my #Parkinsons #ParkinsonsPlus takes it toll on me. Typing, liking, boosting, etc.
~ @paul