#parkinsonsplus — Public Fediverse posts

@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy

Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.

We toot post our progress.

We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.

#Parkinsons

Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491

@SecularJeffrey

I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.

As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.

@thepoliticalcat

Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )

The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me

I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon

I have #ParkinsonsPlus, #MultipleSystemAtrophy ( #MSA ) with severe autonomic dysfunction

I understand a lot of doctors treating #LongCovid don't understand #dysautonomia's, esp POTS

Speaking as a long-time sufferer, for #POTS they really should look at using #Pyridostigmine (brand name #Mestinon

It has been the best relief I've received in the past decade

The quality of my life improved after I started taking Mestinon

Significantly decreased my syncope and pre-syncope. #MedMastodon

#Sissy assumed her nightly position & purring so loud #CatsOfMastodon

Such a joy & relaxer. It does something for my #health to have such as great nurse like Sissy

This is a Two-fer hashtag toot

For #MedMastodon, the home pharmacy in background is to keep my #autonomic system in check. Nothing major pharmaceutical wise, just things that make you poo and pee, blood pressure medications & meds to keep other automatic things my body doesn't do now working #ParkinsonsPlus #MultipleSystemAtrophy