home.social

#multiplesystematrophy — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #multiplesystematrophy, aggregated by home.social.

fetched live
  1. Tiziana Life Sciences reports reductions in brain inflammation in third MSA patient | Yahoo!Finance
    31 July 2026
    finance.yahoo.com/healthcare/a

    "Intranasal foralumab is a fully human anti-CD3 monoclonal antibody designed to modulate the immune system through mucosal tolerance mechanisms while aiming to reduce inflammation without the systemic toxicities associated with traditional anti-CD3 therapies."

    #MultipleSystemAtrophy #neuroinflammation #immunology #neurology #neuroscience

  2. Tiziana Life Sciences reports reductions in brain inflammation in third MSA patient | Yahoo!Finance
    31 July 2026
    finance.yahoo.com/healthcare/a

    "Intranasal foralumab is a fully human anti-CD3 monoclonal antibody designed to modulate the immune system through mucosal tolerance mechanisms while aiming to reduce inflammation without the systemic toxicities associated with traditional anti-CD3 therapies."

    #MultipleSystemAtrophy #neuroinflammation #immunology #neurology #neuroscience

  3. Tiziana Life Sciences reports reductions in brain inflammation in third MSA patient | Yahoo!Finance
    31 July 2026
    finance.yahoo.com/healthcare/a

    "Intranasal foralumab is a fully human anti-CD3 monoclonal antibody designed to modulate the immune system through mucosal tolerance mechanisms while aiming to reduce inflammation without the systemic toxicities associated with traditional anti-CD3 therapies."

    #MultipleSystemAtrophy #neuroinflammation #immunology #neurology #neuroscience

  4. Tiziana Life Sciences reports reductions in brain inflammation in third MSA patient | Yahoo!Finance
    31 July 2026
    finance.yahoo.com/healthcare/a

    "Intranasal foralumab is a fully human anti-CD3 monoclonal antibody designed to modulate the immune system through mucosal tolerance mechanisms while aiming to reduce inflammation without the systemic toxicities associated with traditional anti-CD3 therapies."

    #MultipleSystemAtrophy #neuroinflammation #immunology #neurology #neuroscience

  5. Tiziana Life Sciences reports reductions in brain inflammation in third MSA patient | Yahoo!Finance
    31 July 2026
    finance.yahoo.com/healthcare/a

    "Intranasal foralumab is a fully human anti-CD3 monoclonal antibody designed to modulate the immune system through mucosal tolerance mechanisms while aiming to reduce inflammation without the systemic toxicities associated with traditional anti-CD3 therapies."

    #MultipleSystemAtrophy #neuroinflammation #immunology #neurology #neuroscience

  6. @thetransmitter

    Super interesting. I'm wondering what the implications are for multiple system atrophy (synucleinopathy + demyelinating disease) in general and for one case in particular - Susana Schnarndorf (paralympic swimmer, former triathlete) en.wikipedia.org/wiki/Susana_S

    #MultipleSystemAtrophy #MSA

  7. @thetransmitter

    Super interesting. I'm wondering what the implications are for multiple system atrophy (synucleinopathy + demyelinating disease) in general and for one case in particular - Susana Schnarndorf (paralympic swimmer, former triathlete) en.wikipedia.org/wiki/Susana_S

    #MultipleSystemAtrophy #MSA

  8. @thetransmitter

    Super interesting. I'm wondering what the implications are for multiple system atrophy (synucleinopathy + demyelinating disease) in general and for one case in particular - Susana Schnarndorf (paralympic swimmer, former triathlete) en.wikipedia.org/wiki/Susana_S

    #MultipleSystemAtrophy #MSA

  9. @thetransmitter

    Super interesting. I'm wondering what the implications are for multiple system atrophy (synucleinopathy + demyelinating disease) in general and for one case in particular - Susana Schnarndorf (paralympic swimmer, former triathlete) en.wikipedia.org/wiki/Susana_S

    #MultipleSystemAtrophy #MSA

  10. @thetransmitter

    Super interesting. I'm wondering what the implications are for multiple system atrophy (synucleinopathy + demyelinating disease) in general and for one case in particular - Susana Schnarndorf (paralympic swimmer, former triathlete) en.wikipedia.org/wiki/Susana_S

    #MultipleSystemAtrophy #MSA

  11. CW: Terminal illness

    I learnt this morning that my mother is one of only 10 people in our whole (albeit sparsely populated) county that has a diagnosis of #MSA, #MultipleSystemAtrophy The incidence in the population is 3-4 people per 100,000 which I'm told makes it rarer than MND. It's an unlucky position to be in and having finally understood today what it really means, Mum has not taken it well. We're emphasising quality of life and so on but she just sees the death sentence.

  12. CW: Terminal illness

    I learnt this morning that my mother is one of only 10 people in our whole (albeit sparsely populated) county that has a diagnosis of #MSA, #MultipleSystemAtrophy The incidence in the population is 3-4 people per 100,000 which I'm told makes it rarer than MND. It's an unlucky position to be in and having finally understood today what it really means, Mum has not taken it well. We're emphasising quality of life and so on but she just sees the death sentence.

  13. CW: Terminal illness

    I learnt this morning that my mother is one of only 10 people in our whole (albeit sparsely populated) county that has a diagnosis of #MSA, #MultipleSystemAtrophy The incidence in the population is 3-4 people per 100,000 which I'm told makes it rarer than MND. It's an unlucky position to be in and having finally understood today what it really means, Mum has not taken it well. We're emphasising quality of life and so on but she just sees the death sentence.

  14. CW: Terminal illness

    I learnt this morning that my mother is one of only 10 people in our whole (albeit sparsely populated) county that has a diagnosis of #MSA, #MultipleSystemAtrophy The incidence in the population is 3-4 people per 100,000 which I'm told makes it rarer than MND. It's an unlucky position to be in and having finally understood today what it really means, Mum has not taken it well. We're emphasising quality of life and so on but she just sees the death sentence.

  15. Turns out Dad had got tangled up in Mum's cushion mountain as he emptied the commode, getting piss over his shoes and the carpet. Mum had for reasons best known to herself moved aside the plastic sheet that sits under the commode. Oh well, that's progressed the plans to get vinyl flooring in there #silverlining

    I'm taking Dad to the GP later as his hips are agony and he thinks his #PMR might be returning. Mum wants to die. Isn't this fun boys and girls?

    #multiplesystematrophy

  16. Turns out Dad had got tangled up in Mum's cushion mountain as he emptied the commode, getting piss over his shoes and the carpet. Mum had for reasons best known to herself moved aside the plastic sheet that sits under the commode. Oh well, that's progressed the plans to get vinyl flooring in there #silverlining

    I'm taking Dad to the GP later as his hips are agony and he thinks his #PMR might be returning. Mum wants to die. Isn't this fun boys and girls?

    #multiplesystematrophy

  17. Turns out Dad had got tangled up in Mum's cushion mountain as he emptied the commode, getting piss over his shoes and the carpet. Mum had for reasons best known to herself moved aside the plastic sheet that sits under the commode. Oh well, that's progressed the plans to get vinyl flooring in there #silverlining

    I'm taking Dad to the GP later as his hips are agony and he thinks his #PMR might be returning. Mum wants to die. Isn't this fun boys and girls?

    #multiplesystematrophy

  18. Turns out Dad had got tangled up in Mum's cushion mountain as he emptied the commode, getting piss over his shoes and the carpet. Mum had for reasons best known to herself moved aside the plastic sheet that sits under the commode. Oh well, that's progressed the plans to get vinyl flooring in there #silverlining

    I'm taking Dad to the GP later as his hips are agony and he thinks his #PMR might be returning. Mum wants to die. Isn't this fun boys and girls?

    #multiplesystematrophy

  19. Turns out Dad had got tangled up in Mum's cushion mountain as he emptied the commode, getting piss over his shoes and the carpet. Mum had for reasons best known to herself moved aside the plastic sheet that sits under the commode. Oh well, that's progressed the plans to get vinyl flooring in there #silverlining

    I'm taking Dad to the GP later as his hips are agony and he thinks his #PMR might be returning. Mum wants to die. Isn't this fun boys and girls?

    #multiplesystematrophy

  20. Evening all. I am popping by to see how you all are.

    I’m plodding on, my mum is somehow still hanging in there (now unable to carry out any voluntary movements, fully bed bound, hoisted, and covertly medicated) and it is absolutely grim. Such a cruel disease. #multiplesystematrophy #dementiawithlewybody #endoflife #terminaldiagnosis

  21. Evening all. I am popping by to see how you all are.

    I’m plodding on, my mum is somehow still hanging in there (now unable to carry out any voluntary movements, fully bed bound, hoisted, and covertly medicated) and it is absolutely grim. Such a cruel disease. #multiplesystematrophy #dementiawithlewybody #endoflife #terminaldiagnosis

  22. Evening all. I am popping by to see how you all are.

    I’m plodding on, my mum is somehow still hanging in there (now unable to carry out any voluntary movements, fully bed bound, hoisted, and covertly medicated) and it is absolutely grim. Such a cruel disease. #multiplesystematrophy #dementiawithlewybody #endoflife #terminaldiagnosis

  23. Evening all. I am popping by to see how you all are.

    I’m plodding on, my mum is somehow still hanging in there (now unable to carry out any voluntary movements, fully bed bound, hoisted, and covertly medicated) and it is absolutely grim. Such a cruel disease. #multiplesystematrophy #dementiawithlewybody #endoflife #terminaldiagnosis

  24. @awaisaftab

    Very interesting - thanks for posting.

    A bit OT, but would like to mention that Li is toxic at typical doses in ppl w/ multiple system atrophy.

    So far I've not come across an explanation, but study of Li toxicity in MSA might lead to a better understanding of disease mechanisms. I suspect there might be a connection with glycine & heme.

    doi.org/10.1007/s00415-012-665
    doi.org/10.1177/10499091114346

    #MultipleSystemAtrophy #lithium

  25. @awaisaftab

    Very interesting - thanks for posting.

    A bit OT, but would like to mention that Li is toxic at typical doses in ppl w/ multiple system atrophy.

    So far I've not come across an explanation, but study of Li toxicity in MSA might lead to a better understanding of disease mechanisms. I suspect there might be a connection with glycine & heme.

    doi.org/10.1007/s00415-012-665
    doi.org/10.1177/10499091114346

    #MultipleSystemAtrophy #lithium

  26. @awaisaftab

    Very interesting - thanks for posting.

    A bit OT, but would like to mention that Li is toxic at typical doses in ppl w/ multiple system atrophy.

    So far I've not come across an explanation, but study of Li toxicity in MSA might lead to a better understanding of disease mechanisms. I suspect there might be a connection with glycine & heme.

    doi.org/10.1007/s00415-012-665
    doi.org/10.1177/10499091114346

    #MultipleSystemAtrophy #lithium

  27. @awaisaftab

    Very interesting - thanks for posting.

    A bit OT, but would like to mention that Li is toxic at typical doses in ppl w/ multiple system atrophy.

    So far I've not come across an explanation, but study of Li toxicity in MSA might lead to a better understanding of disease mechanisms. I suspect there might be a connection with glycine & heme.

    doi.org/10.1007/s00415-012-665
    doi.org/10.1177/10499091114346

    #MultipleSystemAtrophy #lithium

  28. @jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

    Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

    I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy

  29. @jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

    Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

    I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy

  30. @jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

    Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

    I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy

  31. @jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

    Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

    I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy

  32. @jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

    Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

    I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy

  33. The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me

    I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

    Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

    Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon

  34. The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me

    I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

    Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

    Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon

  35. The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me

    I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

    Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

    Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon

  36. The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me

    I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

    Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

    Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon

  37. The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me

    I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

    Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

    Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon

  38. Re - #Introduction

    I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.

    My social life & purpose evolved so here I am just Paul & @hashtaggames

    My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.

  39. Re - #Introduction

    I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.

    My social life & purpose evolved so here I am just Paul & @hashtaggames

    My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.

  40. Re - #Introduction

    I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.

    My social life & purpose evolved so here I am just Paul & @hashtaggames

    My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.

  41. Re - #Introduction

    I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.

    My social life & purpose evolved so here I am just Paul & @hashtaggames

    My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.

  42. Re - #Introduction

    I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.

    My social life & purpose evolved so here I am just Paul & @hashtaggames

    My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.

  43. “rapid eye movement sleep behavior disorder (RBD)... can be associated with neurodegenerative disorders [like] Parkinson’s disease, Lewy body dementia and multiple system atrophy... #alcohol ...can worsen RBD and its effects”

    –Lindsay Modglin (reviewed by Seema Khosla, M.D., F.C.C.P., F.A.A.S.M)

    forbes.com/health/body/how-doe

    #alcohol #sleepApnea #REMsleepBehaviorDisorder #REMsleepDisturbnce #Dementia #Parkinsons #Neurodegenerative #Disorders #MultipleSystemAtrophy #Health #Wellbeing #longevity

  44. “rapid eye movement sleep behavior disorder (RBD)... can be associated with neurodegenerative disorders [like] Parkinson’s disease, Lewy body dementia and multiple system atrophy... #alcohol ...can worsen RBD and its effects”

    –Lindsay Modglin (reviewed by Seema Khosla, M.D., F.C.C.P., F.A.A.S.M)

    forbes.com/health/body/how-doe

    #alcohol #sleepApnea #REMsleepBehaviorDisorder #REMsleepDisturbnce #Dementia #Parkinsons #Neurodegenerative #Disorders #MultipleSystemAtrophy #Health #Wellbeing #longevity

  45. “rapid eye movement sleep behavior disorder (RBD)... can be associated with neurodegenerative disorders [like] Parkinson’s disease, Lewy body dementia and multiple system atrophy... #alcohol ...can worsen RBD and its effects”

    –Lindsay Modglin (reviewed by Seema Khosla, M.D., F.C.C.P., F.A.A.S.M)

    forbes.com/health/body/how-doe

    #alcohol #sleepApnea #REMsleepBehaviorDisorder #REMsleepDisturbnce #Dementia #Parkinsons #Neurodegenerative #Disorders #MultipleSystemAtrophy #Health #Wellbeing #longevity

  46. “rapid eye movement sleep behavior disorder (RBD)... can be associated with neurodegenerative disorders [like] Parkinson’s disease, Lewy body dementia and multiple system atrophy... #alcohol ...can worsen RBD and its effects”

    –Lindsay Modglin (reviewed by Seema Khosla, M.D., F.C.C.P., F.A.A.S.M)

    forbes.com/health/body/how-doe

    #alcohol #sleepApnea #REMsleepBehaviorDisorder #REMsleepDisturbnce #Dementia #Parkinsons #Neurodegenerative #Disorders #MultipleSystemAtrophy #Health #Wellbeing #longevity