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#pku — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pku, aggregated by home.social.

  1. To all PKU folks - Share your story!

    @poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!

    Visit this link to find out more: pigpen.page/share-your-story-2/

    #phenylketonuria #phenylcetonurie #pku #pcu #lowprotein

  2. New #openaccess publication #SciPost #Physics

    Current-induced re-entrant superconductivity and extreme nonreciprocal superconducting diode effect in valley-polarized systems

    Yu-Chen Zhuang, Qing-Feng Sun
    SciPost Phys. 20, 021 (2026)
    scipost.org/SciPostPhys.20.1.0

    #PKU #HeifeiLab
    #CPSF

  3. Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).

    For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
    Third is that it ain't sticky when cooked (unless overcooking).

    This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.

    #phenylketonuria #pku #phenylcetonurie #pcu #lowprotein

  4. Finally - an actual PKU post!

    I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

    As someone who loves rice, I'm going to give this a try later on!

    You can buy the packet of rice online here: prominpku.com/product/echigo-l

    #phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

  5. The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

    pigpen.page/fennel-and-orange-

    #pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

  6. My latest blood test results was 676umol/L! (My last one was 950+ umol/L, so this is great news) 🥳

    (I've only now realised I've completely forgot to provide blood spot samples as usual, but you know what to expect by now 😂)

    #blood #bloodspot #pku #phenylketonuria #pcu #phenylcetonurie

  7. CW: Blood

    Did a blood test this morning. Added more blood spots as it was starting to get a lil too serious in here 😤🥴😎

    #phenylketonuria #phenylxetonurie #pku #pcu #lowprotein #raredisease #nhs #blood

  8. Just saw Promin did a video making low protein Yorkshire puddings on my YouTube feed

    Gotta give this a try!

    youtu.be/go6iElX1Bpk

    #pku phenylketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood

  9. Made some stir fry rice with Mevalia rice.

    It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.

    #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals

  10. Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.

    My recent levels are about 100umol/L higher than usual.

    I checked the ingredients, and worcestershire sauce has anchovies... 🤦‍♂️

    #pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood

  11. CW: Blood

    ... Look, I tried, okay?!?!!

    I mean, I guess it is fitting for a few days after Halloween...

    #blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet

  12. CW: Blood

    It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...

    #blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet

  13. Today a work colleague just looked on my low protein PKU pasta, and I thought he was weirded out by the low protein-ness of it all.

    He pointed out it was overcooked. He is Italian, so obviously he was going to judge my pasta cooking skills 🤦‍♂️

    #pku #lowprotein #pasta #italian

  14. CW: Pizza Preparation for Friday Night

    TGIF - pizza night for my kids including our youngest with PKU low protein diet. Margherita pizza, no protein: Mevalia low protein pizza base, Violife Mozzarella flavour topping, Tesco pizza sauce.:chefkiss: #PKU #Phenylketonuria #LowProtein #LowProteinDiet #PKUparenting #TGIF #PizzaNight #Pizza #Mastodaoine

  15. Here is my year result of my blood test results. I'm so proud of myself to have consistently kept it below 700umol/L!

    #pku #phenylketonuria #phenylcetonurie #lowprotein #bloodspot #health #restricteddiet #phenylalanine

  16. My last bloodspot result came in, and it was 394umol/L!!

    I’m so happy and proud of myself for managing to keep my levels down for a whole entire YEAR!! Past me wouldn’t believe such a thing, and yet here I am!! 😁🎉🥳🎊

    #bloodspot #pku #phenylketonuria #phenylcetonurie #lowprotein #restricteddiet #health #phenylalanine