#pku — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pku, aggregated by home.social.
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New #openaccess publication #SciPost #Physics
Two-dimensional higher-order Weyl semimetals
Lizhou Liu, Qing-Feng Sun, Ying-Tao Zhang
SciPost Phys. 20, 115 (2026)
https://scipost.org/SciPostPhys.20.4.115 -
CW: Blood
Nailed it, as usual 😏
#Phenylketonuria #PKU #phenylceotnurie #pico #blood #health #nhs
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To all PKU folks - Share your story!
@poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
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Good news, did a blood spot recently! Came back 226umol/L! 🥳🎉🎊
#phenylkeotnuria #PKU #Phenylcetobnurie #PKU #bloodtest #health #nhs
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New #openaccess publication #SciPost #Physics
Current-induced re-entrant superconductivity and extreme nonreciprocal superconducting diode effect in valley-polarized systems
Yu-Chen Zhuang, Qing-Feng Sun
SciPost Phys. 20, 021 (2026)
https://scipost.org/SciPostPhys.20.1.021 -
CW: Blood
Look, I tried my best.
#blood #bloodtest #health #nhs #pku #pcu #phenylketonuria #phenylcetonurie #phenylalnine
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It's been a while, but I've finished my Magnus Opus
#blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie
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Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
Third is that it ain't sticky when cooked (unless overcooking).This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.
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Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/
#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet
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The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):
https://www.pigpen.page/fennel-and-orange-salad/
#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet
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My latest blood test results was 676umol/L! (My last one was 950+ umol/L, so this is great news) 🥳
(I've only now realised I've completely forgot to provide blood spot samples as usual, but you know what to expect by now 😂)
#blood #bloodspot #pku #phenylketonuria #pcu #phenylcetonurie
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Sunday fun day in Druids Glen making some low protein sweet and savoury
#PKU #Metabolic #Sauerkraut #Toasties #Muffins #Ireland -
CW: Blood
Did a blood test this morning. Added more blood spots as it was starting to get a lil too serious in here 😤🥴😎
#phenylketonuria #phenylxetonurie #pku #pcu #lowprotein #raredisease #nhs #blood
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CW: Food
Mogo chips with normal chips and vegan mayonnaise.
2 PKU exchanges and utterly delicious 😋
#pku #phenyketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood #food
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Just saw Promin did a video making low protein Yorkshire puddings on my YouTube feed
Gotta give this a try!
#pku phenylketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood
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I'm back, folks 😎 #bloodspot #blood #health #pku #phenylketonuria #pcu #phenylcetonurie
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CW: Blood
I'm back, folks 😎
#bloodspot #blood #health #pku #phenylketonuria #pcu #phenylcetonurie
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Tristan ( @pcublogue ) has wrote a brill article on fasting and it's effects on PKU. Give it a read here
#pku #phenylketonuria #pcu #phenylceotnurie
https://pcublogue.substack.com/p/resume-darticle-controle-metabolique?r=4i1emi
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CW: Blood
Blood test today. I think the strong wind and rained in the UK enforced some discipline in me...
#bloodtest #blood #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #nhs #health #healthcare
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Two of the greatest things in life.
#pasta #lowprotein #lowproteindiet #thinkpad #lenovothinkpad #spaghetti #phenylketonuria #pku #phenylcetonurie #pcu
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Made some stir fry rice with Mevalia rice.
It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.
#pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals
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Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.
My recent levels are about 100umol/L higher than usual.
I checked the ingredients, and worcestershire sauce has anchovies... 🤦♂️
#pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood
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CW: Blood
... Look, I tried, okay?!?!!
I mean, I guess it is fitting for a few days after Halloween...
#blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet
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CW: Blood
It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...
#blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet
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OpenBSD on ThinkPad L13 Gen 2 running KDE 6
https://brynet.ca/article-l13gen2.html
#ycombinator #openbsd #openbsd_developer #bsd #unix #brynet #canadianbryan #ramblings #canada #security #intel #xonly #pku #bti #ibt #thinkpad #l13gen2 #tigerlake -
Today a work colleague just looked on my low protein PKU pasta, and I thought he was weirded out by the low protein-ness of it all.
He pointed out it was overcooked. He is Italian, so obviously he was going to judge my pasta cooking skills 🤦♂️
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CW: Pizza Preparation for Friday Night
TGIF - pizza night for my kids including our youngest with PKU low protein diet. Margherita pizza, no protein: Mevalia low protein pizza base, Violife Mozzarella flavour topping, Tesco pizza sauce.:chefkiss: #PKU #Phenylketonuria #LowProtein #LowProteinDiet #PKUparenting #TGIF #PizzaNight #Pizza #Mastodaoine
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Just done my blood spots for my PKU! The first circle is great, but I eventually loose steam by the end 😂
#pku #phenylketonuria #phenylcetonurie #bloodspots #bloodspot #blood #health #nhs #lowprotein #diet
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Here is my year result of my blood test results. I'm so proud of myself to have consistently kept it below 700umol/L!
#pku #phenylketonuria #phenylcetonurie #lowprotein #bloodspot #health #restricteddiet #phenylalanine
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My last bloodspot result came in, and it was 394umol/L!!
I’m so happy and proud of myself for managing to keep my levels down for a whole entire YEAR!! Past me wouldn’t believe such a thing, and yet here I am!! 😁🎉🥳🎊
#bloodspot #pku #phenylketonuria #phenylcetonurie #lowprotein #restricteddiet #health #phenylalanine