#pku — Public Fediverse posts

Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!

You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor

#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein

Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!

You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor

#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein

Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!

You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor

#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein

Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!

You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor

#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein

Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!

You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor

#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein

Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.

#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU

Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.

#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU

Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.

#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU

Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.

#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU

https://www.europesays.com/hu/122242/ Karakter: Lemondott Demeter Szilárd a Petőfi Kulturális Ügynökség éléről #DemeterSzilárd #Főcímek #Headlines #Hírek #HU #Hungarian #Hungary #Kultúra #lemondás #Magyar #MagyarKulturáértAlapítvány #Magyarország #MKA #MNMKK #News #PetőfiKulturálisÜgynökség #PKÜ #TopStories #VezetőHírek

💛 You are more than your PKU.

🌱 Maddison, 27, drifted from the PKU diet as a teen — the pressure of being "different" got too much. Now she's working her way back to it while juggling full-time work and college.

Her message: "Keep trying and keep advocating for yourself! You can do it and always ask for support when you need it."

Quick read — her full story here 👇
https://www.pigpen.page/you-are-more-than-your-pku/

My thanks to Maddison for Sharing her Story
#PKU #RareDisease #YouAreMoreThanYourPKU

💛 You are more than your PKU.

🌱 Maddison, 27, drifted from the PKU diet as a teen — the pressure of being "different" got too much. Now she's working her way back to it while juggling full-time work and college.

Her message: "Keep trying and keep advocating for yourself! You can do it and always ask for support when you need it."

Quick read — her full story here 👇
https://www.pigpen.page/you-are-more-than-your-pku/

My thanks to Maddison for Sharing her Story
#PKU #RareDisease #YouAreMoreThanYourPKU

💛 You are more than your PKU.

🌱 Maddison, 27, drifted from the PKU diet as a teen — the pressure of being "different" got too much. Now she's working her way back to it while juggling full-time work and college.

Her message: "Keep trying and keep advocating for yourself! You can do it and always ask for support when you need it."

Quick read — her full story here 👇
https://www.pigpen.page/you-are-more-than-your-pku/

My thanks to Maddison for Sharing her Story
#PKU #RareDisease #YouAreMoreThanYourPKU

💛 You are more than your PKU.

🌱 Maddison, 27, drifted from the PKU diet as a teen — the pressure of being "different" got too much. Now she's working her way back to it while juggling full-time work and college.

Her message: "Keep trying and keep advocating for yourself! You can do it and always ask for support when you need it."

Quick read — her full story here 👇
https://www.pigpen.page/you-are-more-than-your-pku/

My thanks to Maddison for Sharing her Story
#PKU #RareDisease #YouAreMoreThanYourPKU

https://www.europesays.com/hu/76587/ Rókatánc, musicalkoncert, sétahétvége és a pesti tőzsde világa – Programajánló #A38Hajó #AnnaAndTheBarbies #boggie #BTMVármúzeum #budapest #BudapestKongresszusiKözpont #CsemerBoglárka #EurópaKiadó #HagyományokHáza #HU #Hungarian #Hungary #kiállítás #lemezbemutató #Magyar #MagyarZeneHáza #Magyarország #MenyhártJenő #MNMKKMagyarKereskedelmiésVendéglátóipariMúzeum #MNMKKPIMKassákMúzeum #musical #PaárJulcsi #PKÜ #program #VárosiSéta

RE: https://mastodon.online/@caoimhin/112174121072642405

So two years later, the results of the study for the PKU home testing kit in which I participated has finally been published: https://doi.org/10.1002/jimd.70187

While they try to frame things positively in the paper, looking at the numbers it seems to me that it's just a little too unreliable. My understanding is also that without some investor, they won't be able to productise it anyway.

For now it seems they are focussing on other parts of the phenyx app (https://phenyx.de/).

#pku #phenyx

RE: https://mastodon.online/@caoimhin/112174121072642405

So two years later, the results of the study for the PKU home testing kit in which I participated has finally been published: https://doi.org/10.1002/jimd.70187

While they try to frame things positively in the paper, looking at the numbers it seems to me that it's just a little too unreliable. My understanding is also that without some investor, they won't be able to productise it anyway.

For now it seems they are focussing on other parts of the phenyx app (https://phenyx.de/).

#pku #phenyx

RE: https://mastodon.online/@caoimhin/112174121072642405

So two years later, the results of the study for the PKU home testing kit in which I participated has finally been published: https://doi.org/10.1002/jimd.70187

While they try to frame things positively in the paper, looking at the numbers it seems to me that it's just a little too unreliable. My understanding is also that without some investor, they won't be able to productise it anyway.

For now it seems they are focussing on other parts of the phenyx app (https://phenyx.de/).

#pku #phenyx

New #openaccess publication #SciPost #Physics

Two-dimensional higher-order Weyl semimetals

Lizhou Liu, Qing-Feng Sun, Ying-Tao Zhang
SciPost Phys. 20, 115 (2026)
https://scipost.org/SciPostPhys.20.4.115

#HebeiNormalUniversity #PKU #HeifeiLab
#NSFHebei

New #openaccess publication #SciPost #Physics

Two-dimensional higher-order Weyl semimetals

Lizhou Liu, Qing-Feng Sun, Ying-Tao Zhang
SciPost Phys. 20, 115 (2026)
https://scipost.org/SciPostPhys.20.4.115

#HebeiNormalUniversity #PKU #HeifeiLab
#NSFHebei

New #openaccess publication #SciPost #Physics

Two-dimensional higher-order Weyl semimetals

Lizhou Liu, Qing-Feng Sun, Ying-Tao Zhang
SciPost Phys. 20, 115 (2026)
https://scipost.org/SciPostPhys.20.4.115

#HebeiNormalUniversity #PKU #HeifeiLab
#NSFHebei

New #openaccess publication #SciPost #Physics

Two-dimensional higher-order Weyl semimetals

Lizhou Liu, Qing-Feng Sun, Ying-Tao Zhang
SciPost Phys. 20, 115 (2026)
https://scipost.org/SciPostPhys.20.4.115

#HebeiNormalUniversity #PKU #HeifeiLab
#NSFHebei

New #openaccess publication #SciPost #Physics

Two-dimensional higher-order Weyl semimetals

Lizhou Liu, Qing-Feng Sun, Ying-Tao Zhang
SciPost Phys. 20, 115 (2026)
https://scipost.org/SciPostPhys.20.4.115

#HebeiNormalUniversity #PKU #HeifeiLab
#NSFHebei

New #openaccess publication #SciPost #Physics

Nonpertubative many-body theory for the two-dimensional Hubbard model at low temperature: From weak to strong coupling regimes

Ruitao Xiao, Yingze Su, Junnian Xiong, Hui Li, Huaqing Huang, Dingping Li
SciPost Phys. 20, 101 (2026)
https://scipost.org/SciPostPhys.20.4.101

#PKU #ZJU

New #openaccess publication #SciPost #Physics

Nonpertubative many-body theory for the two-dimensional Hubbard model at low temperature: From weak to strong coupling regimes

Ruitao Xiao, Yingze Su, Junnian Xiong, Hui Li, Huaqing Huang, Dingping Li
SciPost Phys. 20, 101 (2026)
https://scipost.org/SciPostPhys.20.4.101

#PKU #ZJU

New #openaccess publication #SciPost #Physics

Nonpertubative many-body theory for the two-dimensional Hubbard model at low temperature: From weak to strong coupling regimes

Ruitao Xiao, Yingze Su, Junnian Xiong, Hui Li, Huaqing Huang, Dingping Li
SciPost Phys. 20, 101 (2026)
https://scipost.org/SciPostPhys.20.4.101

#PKU #ZJU

New #openaccess publication #SciPost #Physics

Nonpertubative many-body theory for the two-dimensional Hubbard model at low temperature: From weak to strong coupling regimes

Ruitao Xiao, Yingze Su, Junnian Xiong, Hui Li, Huaqing Huang, Dingping Li
SciPost Phys. 20, 101 (2026)
https://scipost.org/SciPostPhys.20.4.101

#PKU #ZJU

New #openaccess publication #SciPost #Physics

Nonpertubative many-body theory for the two-dimensional Hubbard model at low temperature: From weak to strong coupling regimes

Ruitao Xiao, Yingze Su, Junnian Xiong, Hui Li, Huaqing Huang, Dingping Li
SciPost Phys. 20, 101 (2026)
https://scipost.org/SciPostPhys.20.4.101

#PKU #ZJU

I've realised I haven't posted here in a while. Also, haven't posted about movies, books, or PKU.

PKU - my last result was 325umol/L, which is good news but a little higher! I did change the diet so that was kind of expected, was actually lower than expected 🤯

Movies: Watched Ready or Not 2: Here They Come. It was fine, kind of like TWKY but not quite so supernatural.

Books: How long have you got? 🤣

#movies #pku #phenylketonuria #pcu #phenylcetonurie

I've realised I haven't posted here in a while. Also, haven't posted about movies, books, or PKU.

PKU - my last result was 325umol/L, which is good news but a little higher! I did change the diet so that was kind of expected, was actually lower than expected 🤯

Movies: Watched Ready or Not 2: Here They Come. It was fine, kind of like TWKY but not quite so supernatural.

Books: How long have you got? 🤣

#movies #pku #phenylketonuria #pcu #phenylcetonurie

I've realised I haven't posted here in a while. Also, haven't posted about movies, books, or PKU.

PKU - my last result was 325umol/L, which is good news but a little higher! I did change the diet so that was kind of expected, was actually lower than expected 🤯

Movies: Watched Ready or Not 2: Here They Come. It was fine, kind of like TWKY but not quite so supernatural.

Books: How long have you got? 🤣

#movies #pku #phenylketonuria #pcu #phenylcetonurie

I've realised I haven't posted here in a while. Also, haven't posted about movies, books, or PKU.

PKU - my last result was 325umol/L, which is good news but a little higher! I did change the diet so that was kind of expected, was actually lower than expected 🤯

Movies: Watched Ready or Not 2: Here They Come. It was fine, kind of like TWKY but not quite so supernatural.

Books: How long have you got? 🤣

#movies #pku #phenylketonuria #pcu #phenylcetonurie

I've realised I haven't posted here in a while. Also, haven't posted about movies, books, or PKU.

PKU - my last result was 325umol/L, which is good news but a little higher! I did change the diet so that was kind of expected, was actually lower than expected 🤯

Movies: Watched Ready or Not 2: Here They Come. It was fine, kind of like TWKY but not quite so supernatural.

Books: How long have you got? 🤣

#movies #pku #phenylketonuria #pcu #phenylcetonurie

Navigating Life's Challenges.

Change is a constant in life. Whether it’s a global event, a personal health journey, or an unexpected disruption, we are often forced to adapt to new realities

Explore how spoon theory and ambiguous loss shape our willpower and resilience. Learn to navigate change, chronic illness, and daily energy limits with practical insights.
#SpoonTheory #MentalHealth #Resilience #PKU #BrainInjury

https://www.pigpen.page/change-ambiguous-loss-and-spoons/

Navigating Life's Challenges.

Change is a constant in life. Whether it’s a global event, a personal health journey, or an unexpected disruption, we are often forced to adapt to new realities

Explore how spoon theory and ambiguous loss shape our willpower and resilience. Learn to navigate change, chronic illness, and daily energy limits with practical insights.
#SpoonTheory #MentalHealth #Resilience #PKU #BrainInjury

https://www.pigpen.page/change-ambiguous-loss-and-spoons/

Navigating Life's Challenges.

Change is a constant in life. Whether it’s a global event, a personal health journey, or an unexpected disruption, we are often forced to adapt to new realities

Explore how spoon theory and ambiguous loss shape our willpower and resilience. Learn to navigate change, chronic illness, and daily energy limits with practical insights.
#SpoonTheory #MentalHealth #Resilience #PKU #BrainInjury

https://www.pigpen.page/change-ambiguous-loss-and-spoons/

Navigating Life's Challenges.

Change is a constant in life. Whether it’s a global event, a personal health journey, or an unexpected disruption, we are often forced to adapt to new realities

Explore how spoon theory and ambiguous loss shape our willpower and resilience. Learn to navigate change, chronic illness, and daily energy limits with practical insights.
#SpoonTheory #MentalHealth #Resilience #PKU #BrainInjury

https://www.pigpen.page/change-ambiguous-loss-and-spoons/

Navigating Life's Challenges.

Change is a constant in life. Whether it’s a global event, a personal health journey, or an unexpected disruption, we are often forced to adapt to new realities

Explore how spoon theory and ambiguous loss shape our willpower and resilience. Learn to navigate change, chronic illness, and daily energy limits with practical insights.
#SpoonTheory #MentalHealth #Resilience #PKU #BrainInjury

https://www.pigpen.page/change-ambiguous-loss-and-spoons/

RE: https://pkutalk.com/@soheb/116188606885004550

The results for this bloodspot was 227umol/L!

My weight lifting seems to be helping quite a bit with the bloodspots! Also, I've rounded down with my exchanges, which has helped quite a bit (I rarely ever hit 2 exchanges exactly).

I'm trying to cook my own food now to cut down on visceral fat that my weighing scales report back, so next results should be interesting...

#phenylketonuria #phenylcetonurie #pku #pcu

RE: https://pkutalk.com/@soheb/116188606885004550

The results for this bloodspot was 227umol/L!

My weight lifting seems to be helping quite a bit with the bloodspots! Also, I've rounded down with my exchanges, which has helped quite a bit (I rarely ever hit 2 exchanges exactly).

I'm trying to cook my own food now to cut down on visceral fat that my weighing scales report back, so next results should be interesting...

#phenylketonuria #phenylcetonurie #pku #pcu

RE: https://pkutalk.com/@soheb/116188606885004550

The results for this bloodspot was 227umol/L!

My weight lifting seems to be helping quite a bit with the bloodspots! Also, I've rounded down with my exchanges, which has helped quite a bit (I rarely ever hit 2 exchanges exactly).

I'm trying to cook my own food now to cut down on visceral fat that my weighing scales report back, so next results should be interesting...

#phenylketonuria #phenylcetonurie #pku #pcu

RE: https://pkutalk.com/@soheb/116188606885004550

The results for this bloodspot was 227umol/L!

My weight lifting seems to be helping quite a bit with the bloodspots! Also, I've rounded down with my exchanges, which has helped quite a bit (I rarely ever hit 2 exchanges exactly).

I'm trying to cook my own food now to cut down on visceral fat that my weighing scales report back, so next results should be interesting...

#phenylketonuria #phenylcetonurie #pku #pcu