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#lowproteindiet — Public Fediverse posts

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  1. Finally - an actual PKU post!

    I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

    As someone who loves rice, I'm going to give this a try later on!

    You can buy the packet of rice online here: prominpku.com/product/echigo-l

    #phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

  2. Finally - an actual PKU post!

    I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

    As someone who loves rice, I'm going to give this a try later on!

    You can buy the packet of rice online here: prominpku.com/product/echigo-l

    #phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

  3. Finally - an actual PKU post!

    I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

    As someone who loves rice, I'm going to give this a try later on!

    You can buy the packet of rice online here: prominpku.com/product/echigo-l

    #phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

  4. Finally - an actual PKU post!

    I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

    As someone who loves rice, I'm going to give this a try later on!

    You can buy the packet of rice online here: prominpku.com/product/echigo-l

    #phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

  5. The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

    pigpen.page/fennel-and-orange-

    #pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

  6. The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

    pigpen.page/fennel-and-orange-

    #pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

  7. The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

    pigpen.page/fennel-and-orange-

    #pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

  8. The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

    pigpen.page/fennel-and-orange-

    #pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

  9. Made some stir fry rice with Mevalia rice.

    It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.

    #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals

  10. Made some stir fry rice with Mevalia rice.

    It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.

    #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals

  11. Made some stir fry rice with Mevalia rice.

    It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.

    #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals

  12. Made some stir fry rice with Mevalia rice.

    It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.

    #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals

  13. Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.

    My recent levels are about 100umol/L higher than usual.

    I checked the ingredients, and worcestershire sauce has anchovies... 🤦‍♂️

    #pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood

  14. Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.

    My recent levels are about 100umol/L higher than usual.

    I checked the ingredients, and worcestershire sauce has anchovies... 🤦‍♂️

    #pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood

  15. Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.

    My recent levels are about 100umol/L higher than usual.

    I checked the ingredients, and worcestershire sauce has anchovies... 🤦‍♂️

    #pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood

  16. Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.

    My recent levels are about 100umol/L higher than usual.

    I checked the ingredients, and worcestershire sauce has anchovies... 🤦‍♂️

    #pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood

  17. CW: Blood

    ... Look, I tried, okay?!?!!

    I mean, I guess it is fitting for a few days after Halloween...

    #blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet

  18. CW: Blood

    ... Look, I tried, okay?!?!!

    I mean, I guess it is fitting for a few days after Halloween...

    #blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet

  19. CW: Blood

    ... Look, I tried, okay?!?!!

    I mean, I guess it is fitting for a few days after Halloween...

    #blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet

  20. CW: Blood

    ... Look, I tried, okay?!?!!

    I mean, I guess it is fitting for a few days after Halloween...

    #blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet

  21. CW: Blood

    It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...

    #blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet

  22. CW: Blood

    It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...

    #blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet

  23. CW: Blood

    It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...

    #blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet

  24. CW: Blood

    It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...

    #blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet

  25. There was a great panel talk by @poconnor about living with PKU and sapropterin.

    One of the questions was "are you doing well with phe levels", and one of the points was that how life changes do have a severe impact on phe levels.

    As someone who moved house quite recently *AND* had a job change, I am proof that big life changes as well as changes to routine absolutely do mess up phe levels.

    #pku #LivingWithPKU #ClassicalPKU #diet #lowProteinDiet #LowProtein #phenylketonuria #phenylcetonurie

  26. There was a great panel talk by @poconnor about living with PKU and sapropterin.

    One of the questions was "are you doing well with phe levels", and one of the points was that how life changes do have a severe impact on phe levels.

    As someone who moved house quite recently *AND* had a job change, I am proof that big life changes as well as changes to routine absolutely do mess up phe levels.

    #pku #LivingWithPKU #ClassicalPKU #diet #lowProteinDiet #LowProtein #phenylketonuria #phenylcetonurie

  27. There was a great panel talk by @poconnor about living with PKU and sapropterin.

    One of the questions was "are you doing well with phe levels", and one of the points was that how life changes do have a severe impact on phe levels.

    As someone who moved house quite recently *AND* had a job change, I am proof that big life changes as well as changes to routine absolutely do mess up phe levels.

    #pku #LivingWithPKU #ClassicalPKU #diet #lowProteinDiet #LowProtein #phenylketonuria #phenylcetonurie

  28. Also in more PKU news (it's all kicking off in the PKU community!!) @pcublogue has released a new blog post for Low Protein Nachos...

    NACHOS!

    Give it a read/watch, and for goodness sakes, please do subscribe via RSS/email to @pcublogue's newsletter!!

    phenylcetonurie.ca/2024/05/01/

    #PKU #Nachos #Phenylketonuria #phenylcetonurie #lowProtein #food #diet #lowProteinDiet

  29. Also in more PKU news (it's all kicking off in the PKU community!!) @pcublogue has released a new blog post for Low Protein Nachos...

    NACHOS!

    Give it a read/watch, and for goodness sakes, please do subscribe via RSS/email to @pcublogue's newsletter!!

    phenylcetonurie.ca/2024/05/01/

    #PKU #Nachos #Phenylketonuria #phenylcetonurie #lowProtein #food #diet #lowProteinDiet

  30. Also in more PKU news (it's all kicking off in the PKU community!!) @pcublogue has released a new blog post for Low Protein Nachos...

    NACHOS!

    Give it a read/watch, and for goodness sakes, please do subscribe via RSS/email to @pcublogue's newsletter!!

    phenylcetonurie.ca/2024/05/01/

    #PKU #Nachos #Phenylketonuria #phenylcetonurie #lowProtein #food #diet #lowProteinDiet

  31. Didn’t do them last week as I had a cold, so didn’t see the point of being scolded for high phe levels which I had no control over.

    #bloodspot #blood #bloodtest #phenylketonuria #phenylcetonurie #phenylalanine #lowprotein #lowproteindiet #nhs

  32. Didn’t do them last week as I had a cold, so didn’t see the point of being scolded for high phe levels which I had no control over.

    #bloodspot #blood #bloodtest #phenylketonuria #phenylcetonurie #phenylalanine #lowprotein #lowproteindiet #nhs

  33. Didn’t do them last week as I had a cold, so didn’t see the point of being scolded for high phe levels which I had no control over.

    #bloodspot #blood #bloodtest #phenylketonuria #phenylcetonurie #phenylalanine #lowprotein #lowproteindiet #nhs

  34. I really loved watching this presentation given by our very own @pcublogue! It's about his experiences with PKU. Goes to show no matter the language/nationality/culture difference, there are some things we all share the same, and @pcublogue put it brilliantly! Well worth a watch:

    videos.pkutalk.com/w/343pZ7gFh

    #Phenylketonuria #phenylcetonurie #Phenylalanine #PKU #ClassicPKU #LivingWithPKU #LowProtein #LowProteinDiet

  35. I really loved watching this presentation given by our very own @pcublogue! It's about his experiences with PKU. Goes to show no matter the language/nationality/culture difference, there are some things we all share the same, and @pcublogue put it brilliantly! Well worth a watch:

    videos.pkutalk.com/w/343pZ7gFh

    #Phenylketonuria #phenylcetonurie #Phenylalanine #PKU #ClassicPKU #LivingWithPKU #LowProtein #LowProteinDiet

  36. I really loved watching this presentation given by our very own @pcublogue! It's about his experiences with PKU. Goes to show no matter the language/nationality/culture difference, there are some things we all share the same, and @pcublogue put it brilliantly! Well worth a watch:

    videos.pkutalk.com/w/343pZ7gFh

    #Phenylketonuria #phenylcetonurie #Phenylalanine #PKU #ClassicPKU #LivingWithPKU #LowProtein #LowProteinDiet