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#lowproteindiet — Public Fediverse posts

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  1. Finally - an actual PKU post!

    I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

    As someone who loves rice, I'm going to give this a try later on!

    You can buy the packet of rice online here: prominpku.com/product/echigo-l

    #phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

  2. Finally - an actual PKU post!

    I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

    As someone who loves rice, I'm going to give this a try later on!

    You can buy the packet of rice online here: prominpku.com/product/echigo-l

    #phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

  3. The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

    pigpen.page/fennel-and-orange-

    #pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

  4. The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

    pigpen.page/fennel-and-orange-

    #pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

  5. 🦃🎄New blog for the festive season:

    Tips and links to help with a low protein Christmas or Thanksgiving.

    I’ve included PKU and low protein menu suggestions & recipes.

    Plus, links to low protein shopping websites.

    pigpen.page/pku-at-christmas/

    #pku #pcu #lowprotein #phenylketonuria #phenylcetonurie #LivingWithPKU #ClassicalPKU #EasyPKU #thanksgiving #Christmas #metabolicdiet #lowproteindiet

  6. Made some stir fry rice with Mevalia rice.

    It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.

    #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals

  7. Made some stir fry rice with Mevalia rice.

    It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.

    #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals

  8. Getting ready for my December newsletter with low protein ideas for Christmas. Here's a sneak peek.

    If you would like more:

    ➡️ sign up on the link in bio, and

    🎁 get your free copy of Mental Health & PKU

    #PKU #LowProtein #LowProteinDiet #ChristmasIdeas #LowProteinFood #LowProtein

    buff.ly/3URTOMZ

  9. Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.

    My recent levels are about 100umol/L higher than usual.

    I checked the ingredients, and worcestershire sauce has anchovies... 🤦‍♂️

    #pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood

  10. Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.

    My recent levels are about 100umol/L higher than usual.

    I checked the ingredients, and worcestershire sauce has anchovies... 🤦‍♂️

    #pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood

  11. CW: Blood

    ... Look, I tried, okay?!?!!

    I mean, I guess it is fitting for a few days after Halloween...

    #blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet

  12. CW: Blood

    ... Look, I tried, okay?!?!!

    I mean, I guess it is fitting for a few days after Halloween...

    #blood #bloodspot #bloodtest #nhs #pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet

  13. CW: Blood

    It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...

    #blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet

  14. CW: Blood

    It's about that time... My only fear is that the team won't recognise me from mh bloodsport this time...

    #blood #bloodtest #health #nhs #phenylketonuria #pku #lowprotein #lowproteindiet

  15. There was a great panel talk by @poconnor about living with PKU and sapropterin.

    One of the questions was "are you doing well with phe levels", and one of the points was that how life changes do have a severe impact on phe levels.

    As someone who moved house quite recently *AND* had a job change, I am proof that big life changes as well as changes to routine absolutely do mess up phe levels.

    #pku #LivingWithPKU #ClassicalPKU #diet #lowProteinDiet #LowProtein #phenylketonuria #phenylcetonurie

  16. Also in more PKU news (it's all kicking off in the PKU community!!) @pcublogue has released a new blog post for Low Protein Nachos...

    NACHOS!

    Give it a read/watch, and for goodness sakes, please do subscribe via RSS/email to @pcublogue's newsletter!!

    phenylcetonurie.ca/2024/05/01/

    #PKU #Nachos #Phenylketonuria #phenylcetonurie #lowProtein #food #diet #lowProteinDiet

  17. Didn’t do them last week as I had a cold, so didn’t see the point of being scolded for high phe levels which I had no control over.

    #bloodspot #blood #bloodtest #phenylketonuria #phenylcetonurie #phenylalanine #lowprotein #lowproteindiet #nhs

  18. I really loved watching this presentation given by our very own @pcublogue! It's about his experiences with PKU. Goes to show no matter the language/nationality/culture difference, there are some things we all share the same, and @pcublogue put it brilliantly! Well worth a watch:

    videos.pkutalk.com/w/343pZ7gFh

    #Phenylketonuria #phenylcetonurie #Phenylalanine #PKU #ClassicPKU #LivingWithPKU #LowProtein #LowProteinDiet

  19. Made myself some low protein burgers using the Promin burger/bun mixture. They both tasted great! I think it would be better with a leaf of lettuce, some tomatoes, and some vegan cheese though...

    #PKU #Phenylketonuria #Phenylalanine #LowProtein #LowProteinDiet #Food #Burgers

  20. CW: Pizza Preparation for Friday Night

    TGIF - pizza night for my kids including our youngest with PKU low protein diet. Margherita pizza, no protein: Mevalia low protein pizza base, Violife Mozzarella flavour topping, Tesco pizza sauce.:chefkiss: #PKU #Phenylketonuria #LowProtein #LowProteinDiet #PKUparenting #TGIF #PizzaNight #Pizza #Mastodaoine

  21. CW: Pizza Preparation for Friday Night

    TGIF - pizza night for my kids including our youngest with PKU low protein diet. Margherita pizza, no protein: Mevalia low protein pizza base, Violife Mozzarella flavour topping, Tesco pizza sauce.:chefkiss: #PKU #Phenylketonuria #LowProtein #LowProteinDiet #PKUparenting #TGIF #PizzaNight #Pizza #Mastodaoine