#lowprotein — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #lowprotein, aggregated by home.social.
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Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!
You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor
#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein
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Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!
You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor
#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein
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Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!
You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor
#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein
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Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!
You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor
#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein
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Now is your best chance to find my *entire* ebook collection FREE or 50% off @Smashwords!
You can find all my books at https://www.smashwords.com/profile/view/PaulineO%27Connor
#SWSale2026 #Smashwords #PKU #LivingWithPKU #RedHatStories #RareDisease #LowProtein
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To all PKU folks - Share your story!
@poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
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To all PKU folks - Share your story!
@poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
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To all PKU folks - Share your story!
@poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
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To all PKU folks - Share your story!
@poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!
Visit this link to find out more: https://www.pigpen.page/share-your-story-2/
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Getting ready for Valentine's Day - and Pancake Tuesday :)
An easy low protein recipe for reliable PKU pancakes: photos & video guides :)
Ideas for protein-free, and measured protein toppings.
https://www.pigpen.page/pku-pancakes/
#PKU #LivingwithPKU #LowProtein #LowProteinIdeas #Phenylketonuria #Pancakes
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Getting ready for Valentine's Day - and Pancake Tuesday :)
An easy low protein recipe for reliable PKU pancakes: photos & video guides :)
Ideas for protein-free, and measured protein toppings.
https://www.pigpen.page/pku-pancakes/
#PKU #LivingwithPKU #LowProtein #LowProteinIdeas #Phenylketonuria #Pancakes
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Getting ready for Valentine's Day - and Pancake Tuesday :)
An easy low protein recipe for reliable PKU pancakes: photos & video guides :)
Ideas for protein-free, and measured protein toppings.
https://www.pigpen.page/pku-pancakes/
#PKU #LivingwithPKU #LowProtein #LowProteinIdeas #Phenylketonuria #Pancakes
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Getting ready for Valentine's Day - and Pancake Tuesday :)
An easy low protein recipe for reliable PKU pancakes: photos & video guides :)
Ideas for protein-free, and measured protein toppings.
https://www.pigpen.page/pku-pancakes/
#PKU #LivingwithPKU #LowProtein #LowProteinIdeas #Phenylketonuria #Pancakes
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🎁 Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas
💡 Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included menu suggestions & recipes, but let’s start with making the festive season friendlier to those on restricted diets.
Merry Christmas 🎄
#PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder
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🎁 Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas
💡 Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included menu suggestions & recipes, but let’s start with making the festive season friendlier to those on restricted diets.
Merry Christmas 🎄
#PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder
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🎁 Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas
💡 Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included menu suggestions & recipes, but let’s start with making the festive season friendlier to those on restricted diets.
Merry Christmas 🎄
#PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder
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🎁 Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas
💡 Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included menu suggestions & recipes, but let’s start with making the festive season friendlier to those on restricted diets.
Merry Christmas 🎄
#PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder
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🥗 Recipe ideas! Four quick ‘school-night’ dinners
Quick, easy dinners that satisfy both the PKU diet and your taste buds.Three recipes are Phe-free; the fourth has 2.5 g Phe per adult portion, with optional additions if you need more.
https://www.pigpen.page/four-quick-school-night-dinners/
#LivingWithPKU #BackToSchool #PKU #PKUFood #LowProtein #LowProteinIdeas
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🥗 Recipe ideas! Four quick ‘school-night’ dinners
Quick, easy dinners that satisfy both the PKU diet and your taste buds.Three recipes are Phe-free; the fourth has 2.5 g Phe per adult portion, with optional additions if you need more.
https://www.pigpen.page/four-quick-school-night-dinners/
#LivingWithPKU #BackToSchool #PKU #PKUFood #LowProtein #LowProteinIdeas
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🥗 Recipe ideas! Four quick ‘school-night’ dinners
Quick, easy dinners that satisfy both the PKU diet and your taste buds.Three recipes are Phe-free; the fourth has 2.5 g Phe per adult portion, with optional additions if you need more.
https://www.pigpen.page/four-quick-school-night-dinners/
#LivingWithPKU #BackToSchool #PKU #PKUFood #LowProtein #LowProteinIdeas
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Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
Third is that it ain't sticky when cooked (unless overcooking).This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.
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Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
Third is that it ain't sticky when cooked (unless overcooking).This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.
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Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
Third is that it ain't sticky when cooked (unless overcooking).This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.
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Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
Third is that it ain't sticky when cooked (unless overcooking).This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.
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Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/
#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet
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Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/
#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet
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Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/
#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet
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Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/
#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet
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The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):
https://www.pigpen.page/fennel-and-orange-salad/
#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet
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The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):
https://www.pigpen.page/fennel-and-orange-salad/
#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet
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The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):
https://www.pigpen.page/fennel-and-orange-salad/
#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet
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The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):
https://www.pigpen.page/fennel-and-orange-salad/
#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet
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July news from PigPen is out now, with the latest on:
👏 #PKU news, including approval for a new treatment
👨⚕️ A Men's Health care strategy in the UK
🧠 Neuroplasticity in #BrainInjury recovery
🥗A #LowProtein 'no-cook' recipe to beat the heat
🏃♂️ An epic 372 mile run for #charity
PLUS! 📚 new #books for PKU kids, full of low-protein foods. 🍎
🆓 Free to subscribers (and subscribing is free!) 🥳
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July news from PigPen is out now, with the latest on:
👏 #PKU news, including approval for a new treatment
👨⚕️ A Men's Health care strategy in the UK
🧠 Neuroplasticity in #BrainInjury recovery
🥗A #LowProtein 'no-cook' recipe to beat the heat
🏃♂️ An epic 372 mile run for #charity
PLUS! 📚 new #books for PKU kids, full of low-protein foods. 🍎
🆓 Free to subscribers (and subscribing is free!) 🥳
-
July news from PigPen is out now, with the latest on:
👏 #PKU news, including approval for a new treatment
👨⚕️ A Men's Health care strategy in the UK
🧠 Neuroplasticity in #BrainInjury recovery
🥗A #LowProtein 'no-cook' recipe to beat the heat
🏃♂️ An epic 372 mile run for #charity
PLUS! 📚 new #books for PKU kids, full of low-protein foods. 🍎
🆓 Free to subscribers (and subscribing is free!) 🥳
-
July news from PigPen is out now, with the latest on:
👏 #PKU news, including approval for a new treatment
👨⚕️ A Men's Health care strategy in the UK
🧠 Neuroplasticity in #BrainInjury recovery
🥗A #LowProtein 'no-cook' recipe to beat the heat
🏃♂️ An epic 372 mile run for #charity
PLUS! 📚 new #books for PKU kids, full of low-protein foods. 🍎
🆓 Free to subscribers (and subscribing is free!) 🥳
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I wish more people knew about the use of food restrictions as a medical treatment.
Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.
In truth, many medical conditions are treated through the use of food restrictions.
You never know what someone else is dealing with, but you can choose how you react to their requests.
What do you wish people knew more about?
#LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU
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I wish more people knew about the use of food restrictions as a medical treatment.
Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.
In truth, many medical conditions are treated through the use of food restrictions.
You never know what someone else is dealing with, but you can choose how you react to their requests.
What do you wish people knew more about?
#LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU
-
I wish more people knew about the use of food restrictions as a medical treatment.
Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.
In truth, many medical conditions are treated through the use of food restrictions.
You never know what someone else is dealing with, but you can choose how you react to their requests.
What do you wish people knew more about?
#LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU
-
I wish more people knew about the use of food restrictions as a medical treatment.
Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.
In truth, many medical conditions are treated through the use of food restrictions.
You never know what someone else is dealing with, but you can choose how you react to their requests.
What do you wish people knew more about?
#LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU
-
I wish more people knew about the use of food restrictions as a medical treatment.
Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.
In truth, many medical conditions are treated through the use of food restrictions.
You never know what someone else is dealing with, but you can choose how you react to their requests.
What do you wish people knew more about?
#LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU
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Just released my new PKU books. An ABC reader and a colouring book 👏
- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.Let me know what you think, or grab your copy here:
-
Just released my new PKU books. An ABC reader and a colouring book 👏
- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.Let me know what you think, or grab your copy here:
-
Just released my new PKU books. An ABC reader and a colouring book 👏
- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.Let me know what you think, or grab your copy here:
-
Just released my new PKU books. An ABC reader and a colouring book 👏
- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.Let me know what you think, or grab your copy here:
-
Just released my new PKU books. An ABC reader and a colouring book 👏
- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.Let me know what you think, or grab your copy here:
-
Just emailed to PigPen Subscribers. It is free to join, and you get a free book!
https://www.pigpen.page/june-2025/
📣 News and views from the world of rare disease. This month:
➡️ exciting news on future rare disease treatments;
➡️ a look at the revision of the ESPKU Guidelines on PKU (plus, a primer on what they are!)
➡️ Recipe of the month: Low-Protein Waldorf salad🎭 Catch up on our LinkedIn Live! And much more
#pku #Phenylketonuria #raredisease #lowprotein #BrainHealth #braininjuryawareness
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Just emailed to PigPen Subscribers. It is free to join, and you get a free book!
https://www.pigpen.page/june-2025/
📣 News and views from the world of rare disease. This month:
➡️ exciting news on future rare disease treatments;
➡️ a look at the revision of the ESPKU Guidelines on PKU (plus, a primer on what they are!)
➡️ Recipe of the month: Low-Protein Waldorf salad🎭 Catch up on our LinkedIn Live! And much more
#pku #Phenylketonuria #raredisease #lowprotein #BrainHealth #braininjuryawareness
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Just emailed to PigPen Subscribers. It is free to join, and you get a free book!
https://www.pigpen.page/june-2025/
📣 News and views from the world of rare disease. This month:
➡️ exciting news on future rare disease treatments;
➡️ a look at the revision of the ESPKU Guidelines on PKU (plus, a primer on what they are!)
➡️ Recipe of the month: Low-Protein Waldorf salad🎭 Catch up on our LinkedIn Live! And much more
#pku #Phenylketonuria #raredisease #lowprotein #BrainHealth #braininjuryawareness
-
Just emailed to PigPen Subscribers. It is free to join, and you get a free book!
https://www.pigpen.page/june-2025/
📣 News and views from the world of rare disease. This month:
➡️ exciting news on future rare disease treatments;
➡️ a look at the revision of the ESPKU Guidelines on PKU (plus, a primer on what they are!)
➡️ Recipe of the month: Low-Protein Waldorf salad🎭 Catch up on our LinkedIn Live! And much more
#pku #Phenylketonuria #raredisease #lowprotein #BrainHealth #braininjuryawareness