#lowprotein — Public Fediverse posts

To all PKU folks - Share your story!

@poconnor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well!

Visit this link to find out more: https://www.pigpen.page/share-your-story-2/

#phenylketonuria #phenylcetonurie #pku #pcu #lowprotein

Getting ready for Valentine's Day - and Pancake Tuesday :)

An easy low protein recipe for reliable PKU pancakes: photos & video guides :)

Ideas for protein-free, and measured protein toppings.

https://www.pigpen.page/pku-pancakes/

#PKU #LivingwithPKU #LowProtein #LowProteinIdeas #Phenylketonuria #Pancakes

🎁 Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas

💡 Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included menu suggestions & recipes, but let’s start with making the festive season friendlier to those on restricted diets.

Merry Christmas 🎄

#PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder

https://www.pigpen.page/pku-at-christmas/

Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).

For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
Third is that it ain't sticky when cooked (unless overcooking).

This is one of the rare PKU rice that doesn't taste like pasta but manages to be even better than normal rice lol.

#phenylketonuria #pku #phenylcetonurie #pcu #lowprotein

Finally - an actual PKU post!

I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.

As someone who loves rice, I'm going to give this a try later on!

You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/

#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet

The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):

https://www.pigpen.page/fennel-and-orange-salad/

#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet

Just released my new PKU books. An ABC reader and a colouring book 👏

- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.

Let me know what you think, or grab your copy here:

https://www.pigpen.page/pku-kids-books/

#PKU #PCU #Phenylketonuria #RareDisease #LowProtein #LowPhe

Low Protein Waldorf Salad recipe for PKU

An easy, & PKU-friendly Waldorf salad for a quick, healthy lunch. 1g protein / 1 phe in the UK. I use pine nuts for the protein as you get more 'nuts' per serving.

https://www.pigpen.page/low-protein-waldorf-salad/

#PKU #PCU #PKUFood #PKURecipe #LowProtein #Phenylketonuria

📰 Monthly news, 🥗 low-protein recipes, and 🐶 dog photos all free to subscribers at PigPen.

Plus, you get a 🆓 copy of "Mental Health & PKU" when you sign up.

Join the conversation: https://www.pigpen.page/may-2025/

#PKU #Phenylketonuria #PCU #LowProtein #RareDisease #BrainInjury #Concussion #ABI #TBI #MentalHealth

When you use up all your protein allowance on buttered popcorn…

#LivingWithPKU #pku #LowProtein #RareDisease #pcu #Phenylketonuria

PKU-Friendly, low & no protein Easter Ideas from the team at Birmingham Children's Hospital!

#PKU #Phenylketonuria #LowProtein #LivingWithPKU #EasterIdeas #Easter