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#connectivetissue — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #connectivetissue, aggregated by home.social.

  1. Diagnosis: Hypermobile Ehlers-Danlos Syndrome

    After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

    Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

     

    Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

    Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

    Final close up.

    https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

    #art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

  2. Diagnosis: Hypermobile Ehlers-Danlos Syndrome

    After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

    Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

     

    Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

    Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

    Final close up.

    https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

    #art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

  3. Diagnosis: Hypermobile Ehlers-Danlos Syndrome

    After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

    Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

     

    Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

    Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

    Final close up.

    https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

    #art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

  4. Diagnosis: Hypermobile Ehlers-Danlos Syndrome

    After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

    Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

     

    Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

    Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

    Final close up.

    https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

    #art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

  5. Diagnosis: Hypermobile Ehlers-Danlos Syndrome

    After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

    Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

     

    Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

    Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

    Final close up.

    https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

    #art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

  6. @trendless

    an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
    twitter.com/D_Bone/status/1550

    It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

    ~
    edited to add:

    So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

    #ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

  7. @trendless

    an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
    twitter.com/D_Bone/status/1550

    It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

    ~
    edited to add:

    So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

    #ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

  8. @trendless

    an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
    twitter.com/D_Bone/status/1550

    It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

    ~
    edited to add:

    So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

    #ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

  9. @trendless

    an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
    twitter.com/D_Bone/status/1550

    It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

    ~
    edited to add:

    So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

    #ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

  10. @trendless

    an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
    twitter.com/D_Bone/status/1550

    It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

    ~
    edited to add:

    So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

    #ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

  11. @ChariteBerlin @MDC_Berlin

    Really cool! This technique - tomoelastography - measures the mechanical stiffness of tissue.

    "The cerebral cortex, i.e. the outer layer of the brain consisting of gray matter, is less stiff in people affected by MS than in healthy people. The animal model showed that this is due to changes in the perineuronal networks. Perineuronal nets form a network that surrounds the neurons and that loosens when there is inflammation." (translation by Google)

    I have often wondered if there are differences in perineuronal nets in people with connective tissue disorders. Could this technique detect differences in people with EDS, for example? What about its use in other parts of the body, besides the brain? Perhaps the gut?

    Also, changes in PNN occur with aging. Could this technique be used to measure brain aging?

    #MultipleSclerosis #EDS #EhlersDanlos #ConnectiveTissue #Aging
    #Tomoelastography #PerineuronalNets

  12. @ChariteBerlin @MDC_Berlin

    Really cool! This technique - tomoelastography - measures the mechanical stiffness of tissue.

    "The cerebral cortex, i.e. the outer layer of the brain consisting of gray matter, is less stiff in people affected by MS than in healthy people. The animal model showed that this is due to changes in the perineuronal networks. Perineuronal nets form a network that surrounds the neurons and that loosens when there is inflammation." (translation by Google)

    I have often wondered if there are differences in perineuronal nets in people with connective tissue disorders. Could this technique detect differences in people with EDS, for example? What about its use in other parts of the body, besides the brain? Perhaps the gut?

    Also, changes in PNN occur with aging. Could this technique be used to measure brain aging?

    #MultipleSclerosis #EDS #EhlersDanlos #ConnectiveTissue #Aging
    #Tomoelastography #PerineuronalNets

  13. @ChariteBerlin @MDC_Berlin

    Really cool! This technique - tomoelastography - measures the mechanical stiffness of tissue.

    "The cerebral cortex, i.e. the outer layer of the brain consisting of gray matter, is less stiff in people affected by MS than in healthy people. The animal model showed that this is due to changes in the perineuronal networks. Perineuronal nets form a network that surrounds the neurons and that loosens when there is inflammation." (translation by Google)

    I have often wondered if there are differences in perineuronal nets in people with connective tissue disorders. Could this technique detect differences in people with EDS, for example? What about its use in other parts of the body, besides the brain? Perhaps the gut?

    Also, changes in PNN occur with aging. Could this technique be used to measure brain aging?

    #MultipleSclerosis #EDS #EhlersDanlos #ConnectiveTissue #Aging
    #Tomoelastography #PerineuronalNets

  14. @ChariteBerlin @MDC_Berlin

    Really cool! This technique - tomoelastography - measures the mechanical stiffness of tissue.

    "The cerebral cortex, i.e. the outer layer of the brain consisting of gray matter, is less stiff in people affected by MS than in healthy people. The animal model showed that this is due to changes in the perineuronal networks. Perineuronal nets form a network that surrounds the neurons and that loosens when there is inflammation." (translation by Google)

    I have often wondered if there are differences in perineuronal nets in people with connective tissue disorders. Could this technique detect differences in people with EDS, for example? What about its use in other parts of the body, besides the brain? Perhaps the gut?

    Also, changes in PNN occur with aging. Could this technique be used to measure brain aging?

    #MultipleSclerosis #EDS #EhlersDanlos #ConnectiveTissue #Aging
    #Tomoelastography #PerineuronalNets

  15. @ChariteBerlin @MDC_Berlin

    Really cool! This technique - tomoelastography - measures the mechanical stiffness of tissue.

    "The cerebral cortex, i.e. the outer layer of the brain consisting of gray matter, is less stiff in people affected by MS than in healthy people. The animal model showed that this is due to changes in the perineuronal networks. Perineuronal nets form a network that surrounds the neurons and that loosens when there is inflammation." (translation by Google)

    I have often wondered if there are differences in perineuronal nets in people with connective tissue disorders. Could this technique detect differences in people with EDS, for example? What about its use in other parts of the body, besides the brain? Perhaps the gut?

    Also, changes in PNN occur with aging. Could this technique be used to measure brain aging?

    #MultipleSclerosis #EDS #EhlersDanlos #ConnectiveTissue #Aging
    #Tomoelastography #PerineuronalNets

  16. #ergonomics not of office chairs but #bicycle #seats puzzle me. At the #gym I sit my bony butt on a #rowing machine or a #recumbent bicycle and I feel like I'm grinding softer tissue (#muscle? #connectiveTissue?) against bone, painfully, after about five minutes. Extra padding helps, but only a bit. On an upright bike I'm good as long as my energy holds. What's happening #anatomically? What sort of #adaptor can I buy or make to put on the rowing machine to mimic the normal bike seat?

  17. #ergonomics not of office chairs but #bicycle #seats puzzle me. At the #gym I sit my bony butt on a #rowing machine or a #recumbent bicycle and I feel like I'm grinding softer tissue (#muscle? #connectiveTissue?) against bone, painfully, after about five minutes. Extra padding helps, but only a bit. On an upright bike I'm good as long as my energy holds. What's happening #anatomically? What sort of #adaptor can I buy or make to put on the rowing machine to mimic the normal bike seat?

  18. #ergonomics not of office chairs but #bicycle #seats puzzle me. At the #gym I sit my bony butt on a #rowing machine or a #recumbent bicycle and I feel like I'm grinding softer tissue (#muscle? #connectiveTissue?) against bone, painfully, after about five minutes. Extra padding helps, but only a bit. On an upright bike I'm good as long as my energy holds. What's happening #anatomically? What sort of #adaptor can I buy or make to put on the rowing machine to mimic the normal bike seat?

  19. @ScienceMagazine

    It's remarkable that new subcellular structures are still being discovered.
    ~
    I've often wondered about the impact of most in vitro studies using atmospheric oxygen tension instead of physiological levels.
    ~
    It's possible there could be implications for connective tissue diseases.

    link to research article:
    doi.org/10.1038/s41586-023-066

    #ConnectiveTissue #chondrocytes #cartilage #joints #metabolism #hypoxia

  20. @ScienceMagazine

    It's remarkable that new subcellular structures are still being discovered.
    ~
    I've often wondered about the impact of most in vitro studies using atmospheric oxygen tension instead of physiological levels.
    ~
    It's possible there could be implications for connective tissue diseases.

    link to research article:
    doi.org/10.1038/s41586-023-066

    #ConnectiveTissue #chondrocytes #cartilage #joints #metabolism #hypoxia

  21. @ScienceMagazine

    It's remarkable that new subcellular structures are still being discovered.
    ~
    I've often wondered about the impact of most in vitro studies using atmospheric oxygen tension instead of physiological levels.
    ~
    It's possible there could be implications for connective tissue diseases.

    link to research article:
    doi.org/10.1038/s41586-023-066

    #ConnectiveTissue #chondrocytes #cartilage #joints #metabolism #hypoxia

  22. @ScienceMagazine

    It's remarkable that new subcellular structures are still being discovered.
    ~
    I've often wondered about the impact of most in vitro studies using atmospheric oxygen tension instead of physiological levels.
    ~
    It's possible there could be implications for connective tissue diseases.

    link to research article:
    doi.org/10.1038/s41586-023-066

    #ConnectiveTissue #chondrocytes #cartilage #joints #metabolism #hypoxia

  23. @ScienceMagazine

    It's remarkable that new subcellular structures are still being discovered.
    ~
    I've often wondered about the impact of most in vitro studies using atmospheric oxygen tension instead of physiological levels.
    ~
    It's possible there could be implications for connective tissue diseases.

    link to research article:
    doi.org/10.1038/s41586-023-066

    #ConnectiveTissue #chondrocytes #cartilage #joints #metabolism #hypoxia