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#hysterectomy — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #hysterectomy, aggregated by home.social.

  1. I'm glad to report that it's been 9 years since I first started T and 8 years since I had my mastectomy and hysterectomy and I still don't regret a damn thing.

    #trans #transgender #transman #transition #mastectomy #hysterectomy #hrt #transhrt #noregret #lgbtq

  2. I'm glad to report that it's been 9 years since I first started T and 8 years since I had my mastectomy and hysterectomy and I still don't regret a damn thing.

    #trans #transgender #transman #transition #mastectomy #hysterectomy #hrt #transhrt #noregret #lgbtq

  3. I'm glad to report that it's been 9 years since I first started T and 8 years since I had my mastectomy and hysterectomy and I still don't regret a damn thing.

    #trans #transgender #transman #transition #mastectomy #hysterectomy #hrt #transhrt #noregret #lgbtq

  4. Finally got my surgery on Monday for a #hysterectomy

    In true Jax fashion, I have spent every spare moment over the last 3 months reading and researching everything about the surgery and risk factors.

    The surgery is due to a 12cm #ovariancyst and #adenomyosis thankfully both ovaries and uterus tested clear for cancer.

    Scheduled surgery is for a total laparoscopic hysterectomy, but after careful consideration I want them to keep my cervix intact, as I am high risk for future prolapse but low risk for cervical cancer ( I don't have sex with men for a start!).

    I've tried to get a telephone conversation with surgeon 5 times over the last 2 weeks and still not had a call back.

    After 5 years of medical gaslighting I am not confident or strong enough for a battle to keep my cervix on the day of admission. I'm already not sleeping and seriously stressed about this!

    Last attempt to get a callback tomorrow and I will be letting them know that if I don't get a conversation with surgeon by end of day Friday, I won't be admitting myself for surgery on Monday.

    It shouldn't be this hard 😭

  5. In my twenties, I was denied a medically necessary hysterectomy because I “might meet a man who wants kids”

    I fought for years to get the surgery, spending weeks out of every month stuck in a hospital bed needing iron and blood transfusions. Too disabled to work. Fainting almost daily. In constant pain.

    No matter how sick I got, the hypothetical future husband and baby came before my health. What these imaginary beings might want was more important than what I needed.

    When I finally had the surgery, I had a severe post operative complication. The surgeon didn’t believe me. She sent me home.

    I had to go to the ER four times before they found the life threatening internal bleed. Each time dismissing me as “attention seeking” or accusing me of not understanding some pain was to be expected.

    My then boyfriend saved my life. He got loud and refused to take me home, saying he was convinced I would die.

    It turns out, he was right. I had a giant bleed in my belly and an infected abscess that had been growing for weeks while they gaslit and ignored me.

    It was a hell of a crash course in medical misogyny, as well as the need to always have an advocate in healthcare settings:

    medium.com/@thedisabledginger/

    #misogyny #disability #chronicillness #patriarchy #womenshealth #disability #obgyn #hysterectomy #childfree #medicalmisogyny #disabilityjustice

  6. Medical errors kill, maim and traumatize. As a disability advocate, I hear stories of medical negligence almost every day. I’ve got more than a handful of my own stories.

    Few are as egregious a this one.

    A young woman seeks help for abdominal pain. At first she’s dismissed as having PCOS.

    They later find a 25cm (!!!) cyst on her ovary and proceed to do a total hysterectomy and resect part of her bowel and appendix.

    She barely survives, and when she regains consciousness in the ICU is told she’s lost her womb and has stage four cancer.

    That alone would be difficult to deal with, but then she’s later told she doesn’t have cancer and the hysterectomy and surgical menopause were unnecessary.

    She tries to focus on the positive (not dying of cancer), only to have the medical team change course again and confirm that she actually DOES have stage four cancer but in her appendix and lymph nodes and not her uterus or ovary. Pp

    The gauntlet of emotions this woman must be dealing with is heartbreaking.

    How a medical team can get something this wrong this many times on ONE patient I will never understand.

    As always, try and have an advocate with you at all times. I’m unsure if it would have helped in this scenario, but we all need a second set of eyes and ears in the room.

    Ask questions. Get a second opinion. Don’t be afraid to speak up if you feel you’re being mistreated. Reach out online for support from other patients and caregivers… we will help you.

    people.com/woman-32-has-hyster

    #medicalerrors #iatrogenic #disability #trauma #hysterectomy #cancer #womenshealth #obgyn #chronicillness

  7. Me at ER for cardiac issues

    Dr: “Could you be pregnant?”

    Me: “No I had a hysterectomy”

    Dr: “You look too young for that? Are you sure?”

    Me: “I’m confident”

    Dr: “I think you might be confused. Maybe it was your appendix.”

    Proceeds to order pregnancy test

    I’ve had this interaction more times than I can count

    Healthcare workers think I’m “too young” to have had a hysterectomy and automatically assume I’m confusing my womb with another organ.

    They ask endless questions, only to end up doing a pregnancy test anyways

    Perhaps there are patients who confuse their uterus for their appendix, but I would imagine that’s exceedingly rare

    The battle I went through to get my hysterectomy was long and arduous. It involved many physicians lecturing me about how I would never be able to have children

    Asking insensitive questions like:

    “Don’t you want to be a Mom?”

    “You might want biological children, many women do”

    “What happens if you meet your dream man and he leaves you for being barren?”

    You don’t have to endure this type of insulting and misogynistic third degree to get your appendix or gallbladder removed.

    They inform you of the surgical risks, you consent, the end.

    There’s simply no plausible way to confuse the removal of a WOMB with an appendix

    Despite these obvious facts, I’ve had countless doctors assume I’m wrong. That I couldn’t possibly have lost my uterus and it must have been something less important.

    I’ve even had “patient CLAIMS hysterectomy”’written in my chart.

    Why someone would lie about something so easy to prove or disprove is beyond me.

    The end result is always a delay in care while we argue and then wait for an unnecessary pregnancy test which always comes back negative.

    Surely we can do better?

    I understand that doctors must have a degree of skepticism, and that the price of missing a pregnancy can be incredibly high.

    I’m not opposed to them running a pregnancy test if that’s what they feel they need to do.

    I am opposed to the delays and gaslighting

    It was traumatic to lose my uterus at a young age. The healthcare workers who inundated me with misogynistic questions & put a hypothetical man before me and my health? They didn’t make it any easier.

    I feel that trauma all over again whenever I’m questioned about pregnancy

    I wish we could endeavour to either TRUST our patient, or just run the pregnancy test without all the unnecessary and (often) rude comments.

    I don’t object to the test, I object to the way I’m treated leading up to the test.

    Patients know their body best. We know the difference between a womb and an appendix. We know when we’re being talked down to and mistreated.

    It causes trauma. Makes us less likely to trust the provider and far less likely to seek care in the future

    Please treat your patients with the dignity they deserve. Don’t judge them on how they look, the chronic illness or disability they have or their gender or sexual orientation. Listen to them. Work with them. Let them be a partner in their care.

    We can do better together /end
    After the hysterectomy I also had a post op complication that was ignored by the ER three times. I had a life threatening internal bleed, but was sent home without tests because they thought I was “exaggerating”.

    We MUST listen to patients. I only survived because my accidental advocate stepped up

    disabledginger.com/p/my-most-d

    #misogyny #medicalmisogyny #womenshealth #obgyn #ableism #disability #endometriosis #hysterectomy #discrimination #mybodymychoice

  8. When you are told not to lift things from the floor, lift things, squat, or get on the floor after hysterectomy...maybe don't get hyperfocused on helping your partner put wires into the wall for new modem and forget that advice and end up ripping a stitch...

    I am not bleeding badly, but am bleeding.
    And feeling really stupid for becoming so blind to the warnings my body was giving.

    #hysterectomy #ADHD #hyperfocus #recovery
    #pain #bleeding #surgery #warning #feelinglow

  9. Today is a dark day for just about anyone who doesn’t look like Trump. Anyone who’s marginalized, a person of colour, an immigrant, LGBTQ+, disabled or female.

    I can speak most about ableism and misogyny - especially reproductive health. So that’s what I’m going to do:

    I no longer have my uterus - but I have nieces and friends with children and I fear for them. I fear for all uterus owners of reproductive age.

    I know firsthand the misogyny, patriarchy and life threatening hoops I was made to jump through when I needed my uterus removed. I know just how many people see us as “incubators”.

    I also know how many men view “barren” women as less than. It’s not just JD Vance and the childless cat lady comments.

    I lost my uterus at 24. My long term relationship ended shortly thereafter. I dated for a decade as a “barren” young woman. Let me tell you - there were VERY few men who took the news well. Or even kindly. Or who offered any support for ME.

    It went one of two ways:

    1) they were angry with me for not telling them sooner (folks a hysterectomy is not a first date conversation) and stormed off

    2) they did a hard and obvious pivot into glee because they saw an opportunity for sex without protection or consequences. I was no longer wife or girlfriend material but the “good time girl” and they didn’t hide it.

    Needless to say it was one hell of a wake up call for a girl who was still fairly naive and thought she was going to find Prince Charming.

    Thats why JD Vance’s comments have never surprised me. It’s why I worry about a national ban on abortion, birth control restrictions and period tracking. It’s why I worry about women of childbearing age AND women like me who still ARE of childbearing age but unable to bear children.

    What will happen to people like us in this version of America? I don’t know - but the writing on the wall isn’t good.

    Now is the time to unite, organize and fight back. Get loud, protect uterus owners in your life. Protect our trans friends. Marginalized people. Disabled people. Anyone who these people will “other” is someone who needs our love and support right now.

    And maybe stop using period tracker apps. Just to be safe. Pen and paper it is!

    #uterus #abortion #reproductivehealth #abortionishealthcare #misogyny #patriarchy #hysterectomy #fuckthepatriarchy #disability #ableism #racism #lgbtq #transrights

  10. Did you know that endometriosis can cause PAIN when your BLADDER IS FULL. I didn't, even tho it is so bad that I can't STAND STRAIGHT when it is happening. I had to GOOGLE IT despite having diagnosis of deep endometriosis and knew it is reason why I have constant bowel issues.

    I have had this issue since time memoriam, yet I didn't have a doctor explain what it all means and what pains the tissue explains. Wtf.

    #endometriosis #bladder #pain #hysterectomy #WaitingToYeetusTheJunk

  11. Wrote this when less #PEM crashed, but could be a typo/ comprehension minefield:

    Does anyone know if #CBD oil interferes with #oestrogen? In general but specifically the #OCP (oral contraceptive pill).

    Would I be better off consuming the whole plant? Perhaps oil from the whole plant? Has anyone had personal experience?

    There is some good evidence that #cannabis can stop #endometriosis from growing outside the uterus altogether, so I’m looking at this as a form of #pain relief as well as a treatment and preventative. I don’t know which form and dose is best though.

    The only other treatment for endometriosis is more hormones (which make me sick) and surgery, after which it grows back. Can’t find a doctor specialising in alternative treatments. They all just want to give you a #Mirena #IUD (without anaesthetic!) and surgery after surgery. Sometimes #hysterectomy if bad enough.

    There’s also been some studies about CBD oil and #LongCovid. Something about switching on the #cannabinoid system.

    Disclaimer: Yes of course I would get a #medical #marijuana license and buy it legally on prescription.
    *cough*

  12. Wrote this when less #PEM crashed, but could be a typo/ comprehension minefield:

    Does anyone know if #CBD oil interferes with #oestrogen? In general but specifically the #OCP (oral contraceptive pill).

    Would I be better off consuming the whole plant? Perhaps oil from the whole plant? Has anyone had personal experience?

    There is some good evidence that #cannabis can stop #endometriosis from growing outside the uterus altogether, so I’m looking at this as a form of #pain relief as well as a treatment and preventative. I don’t know which form and dose is best though.

    The only other treatment for endometriosis is more hormones (which make me sick) and surgery, after which it grows back. Can’t find a doctor specialising in alternative treatments. They all just want to give you a #Mirena #IUD (without anaesthetic!) and surgery after surgery. Sometimes #hysterectomy if bad enough.

    There’s also been some studies about CBD oil and #LongCovid. Something about switching on the #cannabinoid system.

    Disclaimer: Yes of course I would get a #medical #marijuana license and buy it legally on prescription.
    *cough*

  13. Wrote this when less #PEM crashed, but could be a typo/ comprehension minefield:

    Does anyone know if #CBD oil interferes with #oestrogen? In general but specifically the #OCP (oral contraceptive pill).

    Would I be better off consuming the whole plant? Perhaps oil from the whole plant? Has anyone had personal experience?

    There is some good evidence that #cannabis can stop #endometriosis from growing outside the uterus altogether, so I’m looking at this as a form of #pain relief as well as a treatment and preventative. I don’t know which form and dose is best though.

    The only other treatment for endometriosis is more hormones (which make me sick) and surgery, after which it grows back. Can’t find a doctor specialising in alternative treatments. They all just want to give you a #Mirena #IUD (without anaesthetic!) and surgery after surgery. Sometimes #hysterectomy if bad enough.

    There’s also been some studies about CBD oil and #LongCovid. Something about switching on the #cannabinoid system.

    Disclaimer: Yes of course I would get a #medical #marijuana license and buy it legally on prescription.
    *cough*

  14. Wrote this when less #PEM crashed, but could be a typo/ comprehension minefield:

    Does anyone know if #CBD oil interferes with #oestrogen? In general but specifically the #OCP (oral contraceptive pill).

    Would I be better off consuming the whole plant? Perhaps oil from the whole plant? Has anyone had personal experience?

    There is some good evidence that #cannabis can stop #endometriosis from growing outside the uterus altogether, so I’m looking at this as a form of #pain relief as well as a treatment and preventative. I don’t know which form and dose is best though.

    The only other treatment for endometriosis is more hormones (which make me sick) and surgery, after which it grows back. Can’t find a doctor specialising in alternative treatments. They all just want to give you a #Mirena #IUD (without anaesthetic!) and surgery after surgery. Sometimes #hysterectomy if bad enough.

    There’s also been some studies about CBD oil and #LongCovid. Something about switching on the #cannabinoid system.

    Disclaimer: Yes of course I would get a #medical #marijuana license and buy it legally on prescription.
    *cough*

  15. Time for a new #introductions post!

    I'm a #sahm (stay-at-home mom) with two degrees in #english #literature. I talk about #education, #school, #parenting, and my particular MH and PH issues like #anxiety and #depression, #infertility, and #hysterectomy recovery.

    I like #reading and #gaming and I have a book review blog @ awisheraliar. wordpress.com, focused mostly on #ya #fiction.