#haemophilia — Public Fediverse posts

https://www.europesays.com/ie/707484/ Memorial created at school where boys were infected with HIV and hepatitis – The Irish News #AdrianGoodyear #BrianLangstaff #CollinsSolicitors #ContaminatedBlood #DesCollins #Éire #GaryWebster #Haemophilia #Hampshire #Health #HepatitisC #HIV #IE #InfectedBlood #InfectedBloodPublicInquiry #InfectedBloodScandal #Ireland #LordMayor’sTreloar’sCollege #memorial #RichardWarwick #SouthEast #SteveNicholls #TreloarBoys #UK

Sheffield student believed to be fastest to run a marathon with a bleeding disorder

A Sheffield University student ran the London Marathon in 2:47:46 last weekend, breaking the record for the fastest…
#Sheffield #UnitedKingdom #UK #GB #England #Headlines #News #Europe #EU #bleedingdisorder #Britain #GreatBritain #haemophilia #LondonMarathon #running #sheffield #UniversityofSheffield
https://www.europesays.com/uk/932283/

https://www.europesays.com/uk/932283/ Sheffield student believed to be fastest to run a marathon with a bleeding disorder #BleedingDisorder #Britain #England #GreatBritain #haemophilia #LondonMarathon #running #sheffield #UK #UnitedKingdom #UniversityOfSheffield

https://www.europesays.com/africa/194527/ Nigeria Integrates Haemophilia Care Into Health Services #Haemophilia #HealthServices #Nigeria

https://www.europesays.com/africa/118640/ Health Committee to consider petition on management of haemophilia and bleeding disorders » Capital News #Featured #Haemophilia #HealthCommitee #Kenya #NationalAssembly

Dziś w Łodzi, podobnie jak rok temu, odbyły się warsztaty edukacyjne dla chorych na hemofilię 🩸i ich rodzin. Przyciągnęły prawie 70 uczestników. Szczególnie cieszy obecność nowych osób, które po raz pierwszy miały okazję poznać naszą społeczność i z entuzjazmem włączyły się w nasze działania.

Serdecznie dziękuję wszystkim uczestnikom za obecność i aktywny udział. To właśnie dzięki tak zaangażowanej społeczności możemy skutecznie działać na rzecz poprawy jakości życia i leczenia osób z hemofilią.
Wyrażam ogromną wdzięczność prelegentom za przekazanie ogromu wiedzy i doświadczenia. Dziękuję również naszym sponsorom za wsparcie tego wydarzenia.

Tegoroczne warsztaty obejmowały zagadnienia takie jak:
🔬 Hemofilia B w XXI wieku - najnowsze perspektywy leczenia.
🦵 Możliwości leczenia zaawansowanej artropatii.
💊 Personalizacja leczenia hemofilii A.
🎬 Debata ekspertów na temat najnowszych trendów w hematologii.
🏃‍♂️ Jak osoby z hemofilią mogą skutecznie i bezpiecznie schudnąć.

Dziękuję wszystkim w imieniu zarządu Koła Łódzkiego za tak liczną obecność i zaangażowanie.

#hemofilia #psch #skazykrwotoczne #hemophilia #haemophilia #łódź #warsztatyedukacyjne

Qfitlia (Fitusiran): A Novel siRNA-based Treatment for Haemophilia  
Qfitlia (Fitusiran), a novel siRNA-based treatment for haemophilia has received FDA approval............
#Bleedingdisorders #FDA #Fitusiran #Haemophilia #Hemophilia #Qfitlia #siRNA
Umesh Prasad

https://www.scientificeuropean.co.uk/medicine/qfitlia-fitusiran-a-novel-sirna-based-treatment-for-haemophilia/

At the final report of the #InfectedBloodInquiry and I have to say sir Brian is the very representative of ethics, integrity and clarity. If you want to understand ethics on a medical or governmental level, you should watch his final speech. It was delayed by 10 minutes of standing ovations. His conclusions are the most comprehensive, evidence based paper I have ever read.

So much emotion here today. #haemophilia . There is an odd feeling of validation, recognition and fury for all here.

Here is my first publication from my #PhD #Haemophilia #ContaminatedBliodScandal

https://sciendo.com/article/10.2478/jhp-2023-0003

🩸Current treatments for #haemophilia A do not provide a definitive cure for the disease.

#EUfunded researchers have developed a novel innovative cell therapy for its treatment.

Read more about the study👉https://europa.eu/!CM4xrc

🐦🔗: https://n.respublicae.eu/CORDIS_EU/status/1647870081907531778

🩸 @MonashUni say their new preventative treatment for #haemophilia could help patients stop bleeding

https://www.scimex.org/newsfeed/new-preventative-treatment-for-haemophilia-could-help-patients-stop-bleeding

The #CHMP recommended for authorisation the 1⃣st gene therapy to treat #haemophilia B in adults ⬇️

https://www.ema.europa.eu/en/news/first-gene-therapy-treat-haemophilia-b

🐦🔗: https://n.respublicae.eu/EMA_News/status/1603711318233649152

"CSL’s Hemgenix costs $3.5mn per dose, which makes it the most expensive drug in the world. Skysona and Zynteglo, which are gene therapies targeting a rare childhood brain disease and an inherited blood disorder, developed by the Cambridge, Massachusetts-based biotech Bluebird Bio, are the second- and third-most expensive drugs on the market. They are priced at $3mn and $2.8mn per dose, respectively."

#GeneTherapy #DrugDiscovery #DrugDevelopment #haemophilia
#raredisease

https://www.ft.com/content/8173d816-1167-4773-bad5-f565fed3ffde

💡This idea and template is from @cosullivan

#Introduction
Interested in most things #nursing. I work in HE as a nursing lecturer and #BlendedLearning and I was a #ParkinsonsNurseSpecialist. I'm a #PhD student studying the impact of the #ContaminatedBloodScandal for children of #Haemophilia. I'm also interested in #PoliticalDeterminantsOfHealth
​
#creativeHE​
#LTHEchat​​

🎲 Here are some of my outside interests
#sewing
#dogs
#TextBasedGaming
#RPG
#Reading

@phdlife