#hemophilia — Public Fediverse posts

#healthcare #healthtech #healthcaretech #healthtechnology #medgadget #medicine #doctor #hospital #medtech

#onthisday #planet #banker #hemophilia

The Japan Times @[email protected]

2026-03-29

Sunday marked the 30th anniversary of the settlement of a class-action lawsuit filed by hemophilia patients in Japan who contracted HIV through the administration of untreated blood products. https://www.japantimes.co.jp/news/2026/03/29/japan/crime-legal/hiv-tainted-blood-scandal-30-years/?utm_medium=Social&utm_source=mastodon #japan #crimelegal #hemophilia #covid19 #drugmakers #pharmaceuticals #health #hiv

#covid19 #drugmakers #pharmaceuticals #health #hiv #japan

Australia News Beep @[email protected]

2025-10-23

New gene-editing method can correct many disease-causing mutations in mammalian cells

Some genetic disorders-such as cystic fibrosis, hemophilia and Tay Sachs disease-involve many mutations in a…
#NewsBeep #News #Genetics #AU #Australia #Biotechnology #cysticfibrosis #dna #Fibrosis #FluorescentProtein #Gene #geneediting #genetherapy #Genetic #Genome #Hemophilia #MammalianCells #Mitochondria #Mutation #protein #research #Science #Scoliosis #Technology #therapy
https://www.newsbeep.com/au/235190/

#therapy #technology #scoliosis #science #research #protein

Healthcare Tech Robot @[email protected]

2025-10-13

DATE: October 13, 2025 at 05:30PM
SOURCE: BioWorld MedTech

Direct article link at end of text block below.

#Genetherapy for #hemophilia stalls but doesn’t stop at ESGCT

https://t.co/zmLTT7QGz9

#medtech

Here are any URLs found in the article text:

https://t.co/zmLTT7QGz9

#medtech

Articles can be found by scrolling down the page at https://www.bioworld.com/topics/85-bioworld-medtech .

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#genetherapy #hemophilia #medtech #healthcare #healthtech #healthcaretech

Adam Trojańczyk @[email protected]

2025-09-20

Dziś w Łodzi, podobnie jak rok temu, odbyły się warsztaty edukacyjne dla chorych na hemofilię 🩸i ich rodzin. Przyciągnęły prawie 70 uczestników. Szczególnie cieszy obecność nowych osób, które po raz pierwszy miały okazję poznać naszą społeczność i z entuzjazmem włączyły się w nasze działania.

Serdecznie dziękuję wszystkim uczestnikom za obecność i aktywny udział. To właśnie dzięki tak zaangażowanej społeczności możemy skutecznie działać na rzecz poprawy jakości życia i leczenia osób z hemofilią.
Wyrażam ogromną wdzięczność prelegentom za przekazanie ogromu wiedzy i doświadczenia. Dziękuję również naszym sponsorom za wsparcie tego wydarzenia.

Tegoroczne warsztaty obejmowały zagadnienia takie jak:
🔬 Hemofilia B w XXI wieku - najnowsze perspektywy leczenia.
🦵 Możliwości leczenia zaawansowanej artropatii.
💊 Personalizacja leczenia hemofilii A.
🎬 Debata ekspertów na temat najnowszych trendów w hematologii.
🏃‍♂️ Jak osoby z hemofilią mogą skutecznie i bezpiecznie schudnąć.

Dziękuję wszystkim w imieniu zarządu Koła Łódzkiego za tak liczną obecność i zaangażowanie.

#hemofilia #psch #skazykrwotoczne #hemophilia #haemophilia #łódź #warsztatyedukacyjne

#hemofilia #psch #skazykrwotoczne #hemophilia #haemophilia #lodz

Sheldon @[email protected]

2025-05-21

One of my oldest friends has had severe #hemophilia his entire life. That means your blood doesn't clot and you're in constant danger of bleeding to death.

Several years ago he was among the first to test out a new gene therapy treatment for hemophilia that improved his ability to produce blood clotting factors. He's still not exactly normal, but instead of having severe hemophilia, it's more like a mild to moderate version now.

He's improved enough that he got a much needed knee replacement this year. He wouldn't have survived before. To celebrate his milestone, he's doing a charity walk to raise money for bleeding disorders.

He's competing with friends to see who can get the most number of people to donate to his walk. If you can spare $5 to help fund research into bleeding disorders and help my friend win his contest, please go here and make a small donation:
https://www.uniteforbleedingdisorders.org/team/15555

#fundraiser #charity

#hemophilia #fundraiser #charity

Knowledge Zone @[email protected]

2025-04-17

#OnThisDay First Earth-Size #Planet (Kepler-186f) Found In The 'Habitable Zone' of Another Star (2014).

Birth Anniversary of J. P. Morgan (1837) - American financier and #Banker.

Today is World #Hemophilia Day.

#onthisday #planet #banker #hemophilia

Healthcare Tech Robot @[email protected]

2025-04-01

DATE: April 01, 2025 at 06:30PM
SOURCE: BioWorld MedTech

Direct article link at end of text block below.

.@sanofi adds to #hemophilia arsenal with @FDADeviceInfo nod for #Qfitlia

Here are any URLs found in the article text:

#healthcare #healthtech #healthcaretech #healthtechnology #medgadget #medicine #doctor #hospital #medtech

Articles can be found by scrolling down the page at https://www.bioworld.com/topics/85-bioworld-medtech .

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Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org
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NYU Information for Practice puts out 400-500 good quality health-related research posts per week but its too much for many people, so that bot is limited to just subscribers. You can read it or subscribe at @PsychResearchBot
.
Since 1991 The National Psychologist has focused on keeping practicing psychologists current with news, information and items of interest. Check them out for more free articles, resources, and subscription information: https://www.nationalpsychologist.com
.
EMAIL DAILY DIGEST OF RSS FEEDS -- SUBSCRIBE:
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#hemophilia #qfitlia #medtec #healthcare #healthtech #healthcaretech

Healthcare Tech Robot @[email protected]

2025-03-31

DATE: March 31, 2025 at 07:30PM
SOURCE: BioWorld MedTech

Direct article link at end of text block below.

.@sanofi adds to #hemophilia arsenal with @FDADeviceInfo nod for #Qfitlia

Here are any URLs found in the article text:

#healthcare #healthtech #healthcaretech #healthtechnology #medgadget #medicine #doctor #hospital #medtech

Articles can be found by scrolling down the page at https://www.bioworld.com/topics/85-bioworld-medtech .

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Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org
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NYU Information for Practice puts out 400-500 good quality health-related research posts per week but its too much for many people, so that bot is limited to just subscribers. You can read it or subscribe at @PsychResearchBot
.
Since 1991 The National Psychologist has focused on keeping practicing psychologists current with news, information and items of interest. Check them out for more free articles, resources, and subscription information: https://www.nationalpsychologist.com
.
EMAIL DAILY DIGEST OF RSS FEEDS -- SUBSCRIBE:
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#hemophilia #qfitlia #medtec #healthcare #healthtech #healthcaretech

Scientific European @[email protected]

2025-03-30

Qfitlia (Fitusiran): A Novel siRNA-based Treatment for Haemophilia
Qfitlia (Fitusiran), a novel siRNA-based treatment for haemophilia has received FDA approval............
#Bleedingdisorders #FDA #Fitusiran #Haemophilia #Hemophilia #Qfitlia #siRNA
Umesh Prasad

https://www.scientificeuropean.co.uk/medicine/qfitlia-fitusiran-a-novel-sirna-based-treatment-for-haemophilia/

#bleedingdisorders #fda #fitusiran #haemophilia #hemophilia #qfitlia

tiskovec @[email protected]

2025-03-03

Congratulations to Prof. Miroslav Penka for receiving the annual award from the Czech Hemophilia Society! His dedication to advancing hematology and improving care for hemophiliacs in the Czech Republic is truly commendable. #Hemophilia #Healthcare #CzechRepublic

👉 Více informací najdete zde:
https://tiskovec.cz/clanky/prof-miroslav-penka-obdrzel-vyrocni-cenu-ceskeho-svazu-hemofiliku?utm_source=mastodon_social&utm_medium=social&utm_campaign=new_article

#hemophilia #healthcare #czechrepublic

Scientific European @[email protected]

2024-12-29

Concizumab (Alhemo) for Hemophilia A or B with Inhibitors
Concizumab (commercial name, Alhemo), a monoclonal antibody was approved bythe FDA on 20 December 2024 for prevention of bleeding episodes in...........
#Alhemo #Concizumab #FDA #HemophiaB #Hemophilia #HemophiliaA
SCIEU Team

https://www.scientificeuropean.co.uk/medicine/concizumab-alhemo-for-hemophilia-a-or-b-with-inhibitors/

#alhemo #concizumab #fda #hemophiab #hemophilia #hemophiliaa

Scientific European @[email protected]

2024-10-12

Hympavzi (marstacimab): New Treatment for Hemophilia
On 11 October 2024, Hympavzi (marstacimab-hncq), a human monoclonal antibody targeting “tissue factor pathway inhibitor” received US FDA’s approval...........
#bleedingdisorder #HemophiaB #Hemophilia #HemophiliaA #Hympavzi #marstacimab #Monoclonalantibody
SCIEU Team

https://www.scientificeuropean.co.uk/medicine/hympavzi-marstacimab-new-treatment-for-hemophilia/

#bleedingdisorder #hemophiab #hemophilia #hemophiliaa #hympavzi #marstacimab

cafepharma @[email protected]

2024-04-26

Why the obesity drug market is about to get a lot more crowded—Pfizer hemophilia gene therapy arrives in US to uncertain future —AbbVie lifts profit forecast after Skyrizi sales beat expectations--http://bit.ly/w28kSd #obesity #weightloss #pfizer #genetherapy #hemophilia #abbvie #earnings #pharma #pharmanews #biotech #biopharma #biotechnology #cafepharma

#obesity #weightloss #pfizer #genetherapy #hemophilia #abbvie

Cute Calendar @[email protected]

2024-04-17

Apr 17: Today is World #Hemophilia Day! http://www.cute-calendar.com/42667 #WorldHemophiliaDay #holiday #event #observance

#hemophilia #worldhemophiliaday #holiday #event #observance

Knowledge Zone @[email protected]

2024-04-17

#OnThisDay First Earth-Size #Planet (Kepler-186f) Found In The 'Habitable Zone' of Another Star (2014).

Birth Anniversary of J. P. Morgan (1837) - American financier and #Banker.

Today is World #Hemophilia Day.

https://www.nature.com/articles/d41591-023-00037-3

#hemophilia #banker #planet #onthisday

cafepharma @[email protected]

2023-05-30

Persistent Sun Pharma ready to complete Taro buyout—16 years after initial offer — Pfizer's hemophilia drug hits in phase 3, giving it a chance to leapfrog Novo Nordisk --Moderna looks for opportunities in China after registering legal entity -- See more on our front page news http://bit.ly/w28kSd #sunpharma #india #mergersandacquisitions #hemophilia #pfizer #clinicaltrials #china #moderna #pharma #pharmanews #biotech #biopharma #biotechnology #cafepharma

#sunpharma #india #mergersandacquisitions #hemophilia #pfizer #clinicaltrials

Thiago Carvalho @[email protected]

2023-04-24

My latest Clinical Pipeline column for #NatureMedicine, on fitusiran, a small interfering RNA for the treatment of hemophilia A or B. It may be particularly useful for patients with inhibitors (antibodies against clotting factors).

#drugdevelopment #drugdiscovery #SciComm #sciencecommunication #pharma #hemophilia 👇

#sciencecommunication #hemophilia #naturemedicine #drugdevelopment #drugdiscovery #scicomm

mem_somerville @[email protected]

2023-04-21

Wow, someone in my r/EverythingScience post on #CRISPR gene editing is someone who has been cured of #Hemophilia B. Reporting "I am out of pain for the first time in 50 years. My life has improved dramatically."

A journo should tell this #scicomm story.

https://redd.it/12u93pd

#crispr #hemophilia #scicomm

Birgit Hofmann @[email protected]

2023-04-17

It's World Hemophilia Day today.

Don't be surprised if you see buildings lit up in red tonight: It's one of the campaigns to increase awareness for blood clotting disorders!

https://wfh.org/world-hemophilia-day/

We at Beomed Translation Team have been experts in this field for over 30 years.

#hemophilia
#WHD2023
#WorldHemophiliaDay
#LightItUpRed
#WHD
#WHF
#clottingdisorder
#Gerinnungsstörung
#Experttranslators
#medicaltranslator
#xl8
#medxl8

#hemophilia #whd2023 #worldhemophiliaday #lightitupred #whd #whf

Knowledge Zone @[email protected]

2023-04-17

#OnThisDay First Earth-Size #Planet (Kepler-186f) Found In The 'Habitable Zone' of Another Star (2014).

Birth Anniversary of J. P. Morgan (1837) - American financier and #Banker.

Today is World #Hemophilia Day.