#menieresdisease — Public Fediverse posts

Current #tinnitus vibe: Pressing an ear to the interior wall of an airplane in flight, with a hint of screaming. Everything may be on fire.

#VestibularDisorder #MenieresDisease #VestibularMigraine

A reflection: I’m the wrong side of the frustrations I’m going to accumulate, so I can’t fully appreciate what not driving will do to my life; I’m yet to fall and do myself harm; I’m yet to pause before doing something, fearful that an unannounced #DropAttack may derail my plans entirely.

Instead, I feel hope.

I’m going to beat #MenieresDisease, and I’ll be so much more than it’s stolen from me; because it’s forced me to consider who I am, and find value in my foundations.

I earned a new Meniere’s merit badge today: First Drop Attack! 🙌

I was half way down the stairs when it happens, fell into the wall, and managed to get to the bottom without harming myself. For the minority of sufferers that experience them, they often manifest in the later stages. So on the upside, I may be close to being through this thing; the downside is that I can’t now drive for a while.

#MenieresDisease #VestibularDysfunction #DropAttack #ChronicIllness

Cada 7 de febrero se celebra el día mundial del síndrome de Ménière, para dar a conocer esta enfermedad tan incapacitante del oido.

https://somosdisca.es/dia-mundial-del-sindrome-de-meniere/

#enfermedadesraras #meniere #menieresdisease #ménière #ménières #ménières #discapacidad #discapacidadauditiva #disability #disabilities #disca #gentetitanica #Somosdisca #visibilidad #mareos #síndromedeménière #sindromedemeniere #enfermedaddemeniere #Salud

I'm searching for more info and people with experience of meniere's disease.

Wondering if my fellow #hachyderm citizens (or anyone) has suggestions other than following #neurodivergent (as it doesn't seem an exact intersection).

Also #menieres and #menieresdisease doesn't seem to get a lot of traffic.

Ya know, asking for a friend.