#pwoa — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pwoa, aggregated by home.social.
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Remembering twelve years ago today being able to read not one but two books in the same day! Now I am limited to reading webcomics and small snippets of text. As dancing was my favourite physical activity, reading was my fave cerebral pastime. This malfunctioning body has taken too much joy from my existence.
#MyalgicEncephalomyelitis #pwME
#Fibromyalgia #pwFM
#Osteoarthritis #pwOA -
Plus getting back into bed. Then even drinking requires two handed co-ordination so as to minimise spillage from shakes & spasms. I also recalled to select a biscuit, so I not only drank but also had sonething to eat!
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For the first time in a couple of weeks or so I managed to make myself a hot-drink via the Senseo in housemate’s room. It requires:
a return hobble of no more than 10 metres;
selecting drink;
selecting cup;
loading machine;
selecting programme;
instigating drink-making;
trying not to fall down whilst waiting;
switching off Senseo;
opening lid to air;
picking up cup;
then transferring back to my room without spilling.Plus getting back into bed.
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CW: Bit of a ramble, bonus points for MECFS and fibro chat.
@Splodgenoodles I also am officially diagnosed as a #pwME, a #pwFM & a #pwOA inter alia other maladies. I both hear & feel you. {{{gentle}}}
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Obviously, my #disabilities as inter alia a #pwME, #pwFM & #pwOA mean it may take me some time to transfer lists of followers, etc. In the meantime, feel free to follow me at @[email protected] For the time being, I shall cross-post toots until I have fully moved over to my new instance. Hopefully I shall not break the rules too often - it won’t be deliberate if I do! 🙏🏻🌈💕🤓💙
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As inter alia a #pwME, #pwFM & #pwOA apart from physical issues my cognitive abilities are severely impaired. #Dyscognition aka #BrainFog or #FibroFog means I cannot consistently act as might be expected. It transpires I am too #disabled for disabled.social, as their list of rules & regs is rather large, and I have no hope of fulfilling their requirements on a regular basis. I have opted for mstdn.social which has a much shorter list of required behaviours. Now @[email protected]
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@tacosubpizza I have never seen the perm previously, but have every intention of using it in the future - #painsomnia ! Brilliant!
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Do other folks experience some pains as sounds? For me some hum, others have a high-pitched whistling-sound.
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Since #carers stopped coming in early Dec., I leave my bed even more rarely as donæ feel safe if no-one around or due to be. Had my first #fall of 2023 en route to wc. No damage done. Just a tad shaken. 🙏🏻
#pwME #pwFM #pwOA
#MyalgicEncephalomyelitis #SevereME
#Fibromyalgia
#OsteoArthritis -
See my previous post for the context for posting this piece of #poetry. My second #dance #poem is entitled “Bruised Reed”:
https://crippledqueeranglo-europeanranter.blogspot.com/2012/08/bruised-reed.html
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I have not long since finished viewing a film (see previous post) which included #dance as a driving-force. It reminded me of how much I adored #dancing, of moving rhythmically, of meeting, discovering & partnering space. I remembered that I had written a couple of #poems about what dance meant to me & my life. Herewith “All Back”:
https://crippledqueeranglo-europeanranter.blogspot.com/2013/05/all-back.html
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#Pain #ChronicPain #ChronicIllness
#pwME #MyalgicEncephalomyelitis #SevereME
#pwFM #Fibromyalgia
#pwOA #OsteoArthritis #Arthritis[Sorry due to #Disabilities, incl. above, I cannæ type text from meme.]