#endmecfs — Public Fediverse posts

Just one week to go with Lee Colligan’s marathon 2500km walk around Ireland in memory of his brother and in aid of ME.

People can donate to us at
https://www.idonate.ie/fundraiser/LeeColligan

Donation link for Action for ME
https://joshcolligan.muchloved.com/

#SevereME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing #EndMECFS @severeme

Dr Speight's 5 free Irish ME/CFS talks in #Cork/ #Dublin/ #Galway/ #Limerick/ #Sligo, May 2024:
https://irishmecfs.org/blog/dr-speights-5-free-irish-mecfs-talks-in-corkdublingalwaylimericksligo-may-2024-plus-he-is-seeing-patients-aged-20-or-younger-for-free-while-he-is-in-ireland

Plus he is seeing patients aged 20 or younger for free while he is in Ireland.

Please share widely, tag others, etc.

#MEcfs #CFS #PwME
@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing #EndMECFS #MECFSNews #MEpvs #MEpostviralsyndrome

UK #DecodeME
"Our focus now is on getting as many spit kits back as possible. If you are yet to return your kit, please do so by the 31 January 2024 at the latest. Each sample returned will strengthen the results of our research, so we really appreciate every single kit sent back."

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS

2/
Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."

3-minute TV clip:
https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

🧵
BBC Radio Devon & BBC news article

Daughter's death 'could have been avoided'

"The mother of a woman who died after being discharged from hospital with #MyalgicEncephalomyelitis says the NHS has no way to treat the condition (contd)”

https://www.bbc.co.uk/news/uk-england-devon-67748453

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS

1/

2/

Book for children aged 9-12 where one of the characters has ME.

@mecfs @mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”

“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

Over 20 million people have #MECFS worldwide, 25% of whom are homebound & bedbound indefinitely. There are no treatments or cures. It's time for change. Learn more and join the cause to #EndMECFS by donating to support research today: www.omf.ngo

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID