#systemicexertionintolerancedisease — Public Fediverse posts

2/
Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."

3-minute TV clip:
https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/
Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."

3-minute TV clip:
https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/
Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."

3-minute TV clip:
https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/
Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."

3-minute TV clip:
https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/
Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into Maeve's death heard there was a gap in NHS services for severely ill ME patients."

3-minute TV clip:
https://youtu.be/pkyU41BHgnM?si=z9-2HJAx710bqfRq

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

Book for children aged 9-12 where one of the characters has ME.

@mecfs @mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

Book for children aged 9-12 where one of the characters has ME.

@mecfs @mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

Book for children aged 9-12 where one of the characters has ME.

@mecfs @mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

Book for children aged 9-12 where one of the characters has ME.

@mecfs @mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

Book for children aged 9-12 where one of the characters has ME.

@mecfs @mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”

“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”

“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”

“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”

“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow

2/

“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”

“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”

@mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE #MyE #ME #millionsmissing #CFSME #CFIDS
#SEID #NeuroME #EndMECFS #SystemicExertionIntoleranceDisease
#MEawareness #livingwithME #CanYouSeeMENow