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#neurome — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #neurome, aggregated by home.social.

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  1. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  2. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  3. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #neurome #longcovid #cfsme #meeps #myalgice
  4. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  5. Tom Kindlon @[email protected] ·

    4/

    “On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing

    #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice
  6. Tom Kindlon @[email protected] ·

    4/

    “On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing

    #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice
  7. Tom Kindlon @[email protected] ·

    4/

    “On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing

    #millionsmissing #neurome #seid #cfids #meeps #cfsme
  8. Tom Kindlon @[email protected] ·

    4/

    “On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing

    #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice
  9. Tom Kindlon @[email protected] ·

    (US)
    Tell Congress: Fund ME/CFS Research Now

    Deadline is April 15 I believe

    solvecfs.quorum.us/campaign/15

    Image is from the AMMES April 2026 newsletter

    #MEcfs #PwME #ME #MyalgicE
    @mecfs
    #CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    #mecfs #pwme #me #myalgice #cfsme #meeps
  10. Tom Kindlon @[email protected] ·

    (US)
    Tell Congress: Fund ME/CFS Research Now

    Deadline is April 15 I believe

    solvecfs.quorum.us/campaign/15

    Image is from the AMMES April 2026 newsletter

    #MEcfs #PwME #ME #MyalgicE
    @mecfs
    #CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    #mecfs #pwme #me #myalgice #cfsme #meeps
  11. Tom Kindlon @[email protected] ·

    (US)
    Tell Congress: Fund ME/CFS Research Now

    Deadline is April 15 I believe

    solvecfs.quorum.us/campaign/15

    Image is from the AMMES April 2026 newsletter

    #MEcfs #PwME #ME #MyalgicE
    @mecfs
    #CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    #chronicfatiguesyndrome #myalgicencephalomyelitis #mye #cfs #neurome #seid
  12. Tom Kindlon @[email protected] ·

    (US)
    Tell Congress: Fund ME/CFS Research Now

    Deadline is April 15 I believe

    solvecfs.quorum.us/campaign/15

    Image is from the AMMES April 2026 newsletter

    #MEcfs #PwME #ME #MyalgicE
    @mecfs
    #CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    #mecfs #pwme #me #myalgice #cfsme #meeps
  13. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME
    @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  14. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME
    @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  15. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME
    @mecfs @longcovid

    #neurome #longcovid #cfsme #meeps #myalgice
  16. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME
    @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  17. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @longcovid @mecfs

    #myalgice #meeps #cfsme #longcovid #neurome
  18. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @longcovid @mecfs

    #myalgice #meeps #cfsme #longcovid #neurome
  19. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @longcovid @mecfs

    #neurome #longcovid #cfsme #meeps #myalgice
  20. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @longcovid @mecfs

    #myalgice #meeps #cfsme #longcovid #neurome
  21. Tom Kindlon @[email protected] ·

    ⬆️

    Hope to see some of you at this event in Dublin 15. 👋

    If the weather is suitable, I plan to be outside. There are benches there for this purpose.
    #NeuroME #MyalgicEncephalomyelitis

    @IrishMECFSAssociation @mecfs

    #neurome #myalgicencephalomyelitis
  22. Tom Kindlon @[email protected] ·

    ⬆️

    Hope to see some of you at this event in Dublin 15. 👋

    If the weather is suitable, I plan to be outside. There are benches there for this purpose.
    #NeuroME #MyalgicEncephalomyelitis

    @IrishMECFSAssociation @mecfs

    #neurome #myalgicencephalomyelitis
  23. Tom Kindlon @[email protected] ·

    ⬆️

    Hope to see some of you at this event in Dublin 15. 👋

    If the weather is suitable, I plan to be outside. There are benches there for this purpose.
    #NeuroME #MyalgicEncephalomyelitis

    @IrishMECFSAssociation @mecfs

    #myalgicencephalomyelitis #neurome
  24. Tom Kindlon @[email protected] ·

    ⬆️

    Hope to see some of you at this event in Dublin 15. 👋

    If the weather is suitable, I plan to be outside. There are benches there for this purpose.
    #NeuroME #MyalgicEncephalomyelitis

    @IrishMECFSAssociation @mecfs

    #neurome #myalgicencephalomyelitis
  25. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  26. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  27. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #neurome #longcovid #cfsme #meeps #myalgice
  28. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  29. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
    @mecfs #longcovid @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome #mecfs
  30. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
    @mecfs #longcovid @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome #mecfs
  31. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
    @mecfs #longcovid @longcovid

    #mecfs #neurome #longcovid #cfsme #meeps #myalgice
  32. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
    @mecfs #longcovid @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome #mecfs
  33. Tom Kindlon @[email protected] ·

    10/

    “You can help support patients to handle this life transition, the grief, the stress that comes from having this illness without removing it.”

    #CFSME #NeuroME #mecfs
    @mecfs @chronicillness

    #cfsme #neurome #mecfs
  34. Tom Kindlon @[email protected] ·

    10/

    “You can help support patients to handle this life transition, the grief, the stress that comes from having this illness without removing it.”

    #CFSME #NeuroME #mecfs
    @mecfs @chronicillness

    #cfsme #neurome #mecfs
  35. Tom Kindlon @[email protected] ·

    10/

    “You can help support patients to handle this life transition, the grief, the stress that comes from having this illness without removing it.”

    #CFSME #NeuroME #mecfs
    @mecfs @chronicillness

    #mecfs #neurome #cfsme
  36. Tom Kindlon @[email protected] ·

    10/

    “You can help support patients to handle this life transition, the grief, the stress that comes from having this illness without removing it.”

    #CFSME #NeuroME #mecfs
    @mecfs @chronicillness

    #cfsme #neurome #mecfs
  37. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  38. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  39. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #neurome #longcovid #cfsme #meeps #myalgice
  40. Tom Kindlon @[email protected] ·

    2/

    Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

    #MyalgicE #MEeps #CFSME #LongCovid #NeuroME @mecfs @longcovid

    #myalgice #meeps #cfsme #longcovid #neurome
  41. Tom Kindlon @[email protected] ·

    2/

    A pilot cross-sectional investigation of symptom clusters & associations with patient-reported outcomes in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome & #PostCOVID19 Condition

    "None of the four symptom clusters identified were unique to ME/CFS or #PCC"

    link.springer.com/article/10.1

    @mecfs @longcovid #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #myalgicencephalomyelitis #chronicfatiguesyndrome #postcovid19 #pcc #longcovid #pwlc
  42. Tom Kindlon @[email protected] ·

    2/

    A pilot cross-sectional investigation of symptom clusters & associations with patient-reported outcomes in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome & #PostCOVID19 Condition

    "None of the four symptom clusters identified were unique to ME/CFS or #PCC"

    link.springer.com/article/10.1

    @mecfs @longcovid #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #myalgicencephalomyelitis #chronicfatiguesyndrome #postcovid19 #pcc #longcovid #pwlc
  43. Tom Kindlon @[email protected] ·

    2/

    A pilot cross-sectional investigation of symptom clusters & associations with patient-reported outcomes in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome & #PostCOVID19 Condition

    "None of the four symptom clusters identified were unique to ME/CFS or #PCC"

    link.springer.com/article/10.1

    @mecfs @longcovid #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #millionsmissing #mye #me #neurome #seid #cfids
  44. Tom Kindlon @[email protected] ·

    2/

    A pilot cross-sectional investigation of symptom clusters & associations with patient-reported outcomes in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome & #PostCOVID19 Condition

    "None of the four symptom clusters identified were unique to ME/CFS or #PCC"

    link.springer.com/article/10.1

    @mecfs @longcovid #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #myalgicencephalomyelitis #chronicfatiguesyndrome #postcovid19 #pcc #longcovid #pwlc
  45. Tom Kindlon @[email protected] ·

    From: @Notjustfatigue

    Is it a coincidence that three times more women than men are living with #MECFS and #MECFS is our country’s most underfunded disease, with respect to the severity of disease and the number of people affected? No. This is the seventh video in a ten part video series by #NotJustFatigue

    @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    1/

    #mecfs #notjustfatigue #myalgicencephalomyelitis #chronicfatiguesyndrome #cfs #pwme
  46. Tom Kindlon @[email protected] ·

    From: @Notjustfatigue

    Is it a coincidence that three times more women than men are living with #MECFS and #MECFS is our country’s most underfunded disease, with respect to the severity of disease and the number of people affected? No. This is the seventh video in a ten part video series by #NotJustFatigue

    @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    1/

    #mecfs #notjustfatigue #myalgicencephalomyelitis #chronicfatiguesyndrome #cfs #pwme
  47. Tom Kindlon @[email protected] ·

    From: @Notjustfatigue

    Is it a coincidence that three times more women than men are living with #MECFS and #MECFS is our country’s most underfunded disease, with respect to the severity of disease and the number of people affected? No. This is the seventh video in a ten part video series by #NotJustFatigue

    @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    1/

    #neurome #seid #cfids #meeps #cfsme #myalgice
  48. Tom Kindlon @[email protected] ·

    From: @Notjustfatigue

    Is it a coincidence that three times more women than men are living with #MECFS and #MECFS is our country’s most underfunded disease, with respect to the severity of disease and the number of people affected? No. This is the seventh video in a ten part video series by #NotJustFatigue

    @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    1/

    #mecfs #notjustfatigue #myalgicencephalomyelitis #chronicfatiguesyndrome #cfs #pwme
  49. Tom Kindlon @[email protected] ·

    2/

    Elizabeth has posted this video already on her #Notjustfatigue social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit #Notjustfatigue notjustfatigue.org

    Hashtags:
    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #notjustfatigue #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme
  50. Tom Kindlon @[email protected] ·

    2/

    Elizabeth has posted this video already on her #Notjustfatigue social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit #Notjustfatigue notjustfatigue.org

    Hashtags:
    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #notjustfatigue #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme
  51. Tom Kindlon @[email protected] ·

    2/

    Elizabeth has posted this video already on her #Notjustfatigue social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit #Notjustfatigue notjustfatigue.org

    Hashtags:
    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #millionsmissing #mye #me #neurome #seid #cfids
  52. Tom Kindlon @[email protected] ·

    2/

    Elizabeth has posted this video already on her #Notjustfatigue social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit #Notjustfatigue notjustfatigue.org

    Hashtags:
    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

    #notjustfatigue #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme
  53. Irish ME/CFS Association @[email protected] ·

    Just one week to go with Lee Colligan’s marathon 2500km walk around Ireland in memory of his brother and in aid of ME.

    People can donate to us at
    idonate.ie/fundraiser/LeeColli

    Donation link for Action for ME
    joshcolligan.muchloved.com/

    #SevereME @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing #EndMECFS @severeme

    #severeme #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme
  54. Irish ME/CFS Association @[email protected] ·

    Just one week to go with Lee Colligan’s marathon 2500km walk around Ireland in memory of his brother and in aid of ME.

    People can donate to us at
    idonate.ie/fundraiser/LeeColli

    Donation link for Action for ME
    joshcolligan.muchloved.com/

    #SevereME @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing #EndMECFS @severeme

    #severeme #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme
  55. Irish ME/CFS Association @[email protected] ·

    Just one week to go with Lee Colligan’s marathon 2500km walk around Ireland in memory of his brother and in aid of ME.

    People can donate to us at
    idonate.ie/fundraiser/LeeColli

    Donation link for Action for ME
    joshcolligan.muchloved.com/

    #SevereME @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing #EndMECFS @severeme

    #endmecfs #millionsmissing #neurome #seid #cfids #meeps
  56. Tom Kindlon @[email protected] ·

    2/
    More info on this Open Medicine Foundation Australia project: "SPOT-ME: Serial Pediatric Omics Tracking for ME/CFS"

    Aims include deeply profiling the biology of patients vs controls, testing cellular energy metabolism changes and evaluating brain function with MRI.

    omfaustralia.ngo/pediatrics-me

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice
  57. Tom Kindlon @[email protected] ·

    2/
    More info on this Open Medicine Foundation Australia project: "SPOT-ME: Serial Pediatric Omics Tracking for ME/CFS"

    Aims include deeply profiling the biology of patients vs controls, testing cellular energy metabolism changes and evaluating brain function with MRI.

    omfaustralia.ngo/pediatrics-me

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice
  58. Tom Kindlon @[email protected] ·

    2/
    More info on this Open Medicine Foundation Australia project: "SPOT-ME: Serial Pediatric Omics Tracking for ME/CFS"

    Aims include deeply profiling the biology of patients vs controls, testing cellular energy metabolism changes and evaluating brain function with MRI.

    omfaustralia.ngo/pediatrics-me

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    #neurome #seid #cfids #meeps #cfsme #myalgice
  59. Tom Kindlon @[email protected] ·

    2/
    More info on this Open Medicine Foundation Australia project: "SPOT-ME: Serial Pediatric Omics Tracking for ME/CFS"

    Aims include deeply profiling the biology of patients vs controls, testing cellular energy metabolism changes and evaluating brain function with MRI.

    omfaustralia.ngo/pediatrics-me

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    #meeps #cfids #seid #neurome #myalgicencephalomyelitis #chronicfatiguesyndrome
  60. Tom Kindlon @[email protected] ·

    2/

    From presentation: "Through an illuminating blend of life transcription & deep imaginative projection, he shows how placing fiction into the stories of our damaged lives can remind us of who we are & who we might have been, even when so much of us has been taken away by illness"

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME

    #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice