#actuallyautistc — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #actuallyautistc, aggregated by home.social.
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Well that's the news I've been waiting for. @lornaslater has taken Edinburgh Central for @ScottishGreens. I'm very pleased; she's the only genuinely inspirational member of #Holyrood in this generation, in my opinion.
Hopefully a future #FirstMinister.
Also, although Angus Robertson would make a fine ambassador for Scotland, we do not need yet another machine politician.
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@rmblaber1956 @autistics on one hand: of course!
On the other, I don't think anyone has the right to accept or not accept me. At the very least they should respect me, regardless of neurology.Did you not agree with the arguments I raised in my blogpost?
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I hate living in a society where lying and pretending are part of the social norm. It's so exhausting! No wonder, I am an "introvert". I need time alone to be able to "drop my guard" and actually relax and recharge. How I wish we could all be honest with each other, without having to fear rejection or abuse. #ActuallyAutistc
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"[Examples are amongst others] avoiding deep focus or rest, because interruption is inevitable. [But] we can't really help our nervous systems to recover, if it nerver gets the signal to be 'off dury'. [We've developed this survival state, b/c we were] treated as being difficult, unless we are useful. [...] This is not generosity, it's hyper vigilance shaped like kindness. [To overcome, we need to learn] how to be valued for [our] presence rather than [our] output." #ActuallyAutistc
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"Service mode is a learned survival state where an autistic person stays oriented towards being useful, helpful, emotionally available or non-disruptive in order to remain safe & accepted. That often includes constant low level vigilance even in your own home, b/c you're always anticipating interruption, needing to respond or being called on. Instead of fully resting, your nervous system stays on, scanning for demands, needs or cues that someone might need something from you." #ActuallyAutistc
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RE: https://chaos.social/@levampyre/116263478747997742
So I recently became aware that as a monotropistic person I am traumatized out of flow states and feeling the heaviness of that loss was already painful.
But look there's another, very related reason why I avoid deep focus and have difficulty to relax and taking care of my own needs in general. It is because my autistic brain is always in "service mode" whenever another person is around. Mother on the Spectrum talks about it in this YT video: https://youtu.be/yZ2_S_5xRAc #ActuallyAutistc
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@Ferrous The pain and regret I feel is, because I remember how wonderful it was to walk those inner mindfields. How much value and energy it gave me. I miss it so much. But I don't dare to go back, because I have kids and I am a responsible adult and they do depend on me "functioning". I don't want to function anymore. I just want to be a brain in a jar, just for a while, so that I can truely relax again. I'm so exhausted. 😭
Anyways, thanks for naming the trauma! 3/3 #ActuallyAutistc
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@Ferrous I feared it would interfere too much with my responsibilities. I cannot allow me to loose myself in my inner mindfields, b/c I will either miss appointments and my kids will starve to death or become so frustrated from interruption that it would drain all my energy that my kids would suffer differently. So I have stopped to engage in it entirely. I didn't notice until I burned out and tried again as part of my recovery. I was interrupted and suffered a meltdown. 2/ #ActuallyAutistc
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@Ferrous I watched your lecture on "Monotropism & Wellbeing" on YT today and you said something that resonated with me intensely: "We've been traumatized out of trust in the flow state." (As monotropistic adults who have experienced and frustrated over constant interruptions.) I feel that with so much pain and regret.
Ever since I became a responsible adult with dependencies I have not really allowed myself to enter a deep flow state over passionate intellectual topics. 1/ #actuallyAutistc
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Can we all take a moment to recognize how sick of a society we are if we have people spending most of their productive "working time" looking for income rather than actually doing something intrinsically productive that gives back?
I *still* can't find a job to the point it feels like my #programming skills are degrading.
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So I’m one episode into #plur1bus and so far this seems like an analogy for what it’s like to be #actuallyAutistc
Everyone seems to magically know what everyone else is thinking (through some creepy mechanism unavailable to you), the world is an absolute dumpster fire (yet everyone is fine with it), and they want to research what’s wrong with you so they can “fix you”. WHAT IF I DON’T WANT TO BE FIXED?! -
I sometimes wish that questionnaires about autism-related topics came with the option "Strongly agree but I've trained myself not to do that"
Questionnaires don't seem to account for masking, which seems a major design flaw for this area of study? #ActuallyAutistc -
@ChrisMayLA6 'More testing' does far more (permanent) damage to #ActuallyAutistc children than just 'suck[ing] the joy out of education.'
It's worth noting that places which are actually good at education, like Finland, do no standardised testing AT ALL.
It's child abuse; it should be banned.
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@DenisCOVIDinfoguy Autism is not a bad thing. It's a normal part of human variation without which we would not have any technological development or much in the way of art.
If #COVID causes more autism, that's to be welcomed. Then maybe we'll develop a culture which is less hostile to #ActuallyAutistc people.
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Can anyone recommend any book(s) on #AuDHD? Looking for something that's not just a basic 'what's AuDHD?' but rather more about how #autism and #ADHD / #ADD interact, as well as how to cope. Bonus points if it also takes into account gender differences in presentation of both / either issues.
Articles / research projects also of interest, of course, if you're aware of any. -
Been back at work one day and I’m already feeling as welcome as a fart in a spacesuit. I need an out but I simply don’t have one. 😢 #ActuallyAutistc
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@BPI I've got some poems (incl. audio) here: https://www.poetryfoundation.org/poets/annette-c-boehm#tab-poems
and here:
https://ogre.red/issues/2023-04/2023-04-boehm-annette-c/#ActuallyAutistc #MastoPoets #queerLiterature @writingcommunity
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Anyone else feel like this song is super #AutisticCoded? https://music.youtube.com/watch?v=0j4IpHk1yQc
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Hi everyone, I’m #ActuallyAutistc and have been #AuHD since I first quibbled spelling.
Also I was trying to reduce my caffeine use anyway, but then I saw some ChubbyEmu videos on youtube (peertube is better) and now I’m even warier of it.
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Wore my sunflower #HiddenDisabilities lanyard in a shopping centre to prevent staff from talking to me. Instead it turned me into a staff magnet and I became overwhelmed from everyone asking if I needed help. Not great. #ActuallyAutistc
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What am I doing? Funny you should ask. I'm watching this five-and-a-half hour YT video about Entertainment made in North Korea. It's pretty interesting. #ActuallyAutistc #nonfiction #infodumping
http://youtu.be/0T-pPPUAppk -
I'm regularly confused why anyone, especially parents of Autistic children, would think ABA (Applied Behavioral Analysis) is a good thing.
Sure, it might make your child compliant at moments when you want to do show-and-tell with your "friends", but you will be generating lifelong trauma.
https://neurodivergentrebel.substack.com/p/neurodivergent-rebels-neurodivergent
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Well yay me. I’ve finally built up the #spoons to seek help for myself with our #HMO, and placed a call to get back in touch after my last contact with them. It’s been months, since I had to focus my attention to getting my son’s stuff worked out. Waiting for callback.
Interestingly, it unlocked my #blocks on making headway on some other things at home too. I’m trying not to go crazy and going into #overload.
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CW: Autistic Parenting While Autistic
Schedule and medication #regularity can be very important for us. We were late tonight with dinner, meds, and bath. So papa’s weekly video call came and further delayed things. And we had a #meltdown. I say we because son did, which triggered papa on video, and that got me going.
Got off call, meds delivered, bath completed, and now we’re both cooling off. Sigh.
#AutisticParenting #ActuallyAutistc #ParentingWhileAutistic @actuallyautistic #AuDHD
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@devxvda The best thing I can do for myself to avoid #AutisticBurnout is be mindful of my energy and avoid over scheduling myself. Externalities often I interrupt this approach.
Being kind to myself and allowing myself time to #recuperate is key. “Null days” is how I refer to these. I suppose #endorphin producing activities might help. Exercise, for example. But there are times when there isn’t the energy or motivation.
Definitely open to hearing others’ strategies! #ActuallyAutistc
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@StvNo I’ve felt like an #imposter in one way or another most of my life. I’m slowly trying to silence that voice in my head, that nagging feeling. It never completely goes away.
For me, the power of #community is learning from each others #insecurities. Learning that we can share our vulnerabilities, Discover that we are more genuine that we realize, when we’re among our kind(s) and can put aside voices decrying our #otherness or #pathology. #ActuallyAutistc @devxvda
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@devxvda ooh! #Allistic demon #exorcism…? Sounds lovely… Where do I sign up? #ActuallyAutistc
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@autisticengineer I was also late diagnosed. I always knew something was different. I labeled it #introversion. But there were no #resources or #support. Honestly, #SPED in those days would have been harmful for me. What I needed was emotional and social support. I did fine educationally, by good fortune.
The benefit knowing sooner would have been feeling less like a freak and winding up #SelfIsolating and #masking, on top of being in the #closet. So much #clarity now.
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@autisticengineer I was also late diagnosed. I always knew something was different. I labeled it #introversion. But there were no #resources or #support. Honestly, #SPED in those days would have been harmful for me. What I needed was emotional and social support. I did fine educationally, by good fortune.
The benefit knowing sooner would have been feeling less like a freak and winding up #SelfIsolating and #masking, on top of being in the #closet. So much #clarity now.
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@autisticengineer I was also late diagnosed. I always knew something was different. I labeled it #introversion. But there were no #resources or #support. Honestly, #SPED in those days would have been harmful for me. What I needed was emotional and social support. I did fine educationally, by good fortune.
The benefit knowing sooner would have been feeling less like a freak and winding up #SelfIsolating and #masking, on top of being in the #closet. So much #clarity now.
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@autisticengineer I was also late diagnosed. I always knew something was different. I labeled it #introversion. But there were no #resources or #support. Honestly, #SPED in those days would have been harmful for me. What I needed was emotional and social support. I did fine educationally, by good fortune.
The benefit knowing sooner would have been feeling less like a freak and winding up #SelfIsolating and #masking, on top of being in the #closet. So much #clarity now.
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@autisticengineer I was also late diagnosed. I always knew something was different. I labeled it #introversion. But there were no #resources or #support. Honestly, #SPED in those days would have been harmful for me. What I needed was emotional and social support. I did fine educationally, by good fortune.
The benefit knowing sooner would have been feeling less like a freak and winding up #SelfIsolating and #masking, on top of being in the #closet. So much #clarity now.
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CW: Submission and Subspace
1/3 @aphyr Your point about whether there is a “me” there really resonated. I’ve said my goal in submission is to be nowhere, but what it feels like is getting myself out of my head. All the thought threads stop. I open myself up and let myself just flow. There’s no anxiety. No need to stim. I let it all go for them to see and mold and enjoy. There’s no fear of rejection. No social awkwardness. No filters.
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Just hearing about a special school being set up run by autistic adults for autistic kids.
#BBCNews
#SouthToday
#SpecialSchool
#Autistc
#ActuallyAutistc
#AutisticRunSchool
#SEND
#SpecialEducationalNeeds