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#unknownillness — Public Fediverse posts

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  1. Will @StorieswithaWill ·

    Guess the point of prev post was that even though several of my conditions might explain these symptoms (or other factors)
    I'm feeling there's another u ndiagnosed medical thing happening.
    Maybe its a dysautonomia- but there's no test for that.
    Thus i need engagement from docs...












    and

  2. Please share if you can.

    This is maybe not the way to do it, but I'm at my wits end and I know I follow several doctors, nurses and other medical professionals here.

    Here's the deal - I have debilitating muscle spasms in my legs, torso, feet, toes and occasionally hands and arms, as well as some sort of spasm issue that occasionally affects swallowing and bladder control. I lose my voice from time to time, but not in a laryngitis sort of way. It affects my sleep and I'm terrified of having a spasm in public..I had one yesterday at a friend's house. It's embarrassing and terrifying and I'm worried I'm going to fall over in public sometimes.

    At this point I take a prescription muscle relaxant, but my doctor has told me there is no real way to know what causes muscle spasms and I'll have to learn to live with it. 1/

    #medMastodon #unknownIllness #mecfs #pots #fibromyalgia #chronicIllness #chronicPain #medBubble #mediBubble