#meawarenessmonth — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #meawarenessmonth, aggregated by home.social.
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13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE -
13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE -
13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE -
13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE -
13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE -
ME/CFS Awareness Month: I Am Aware, and It Sucks https://www.patreon.com/posts/157808555?utm_campaign=postshare_creator&utm_content=android_share
A little post about why I haven't managed to post to my Patreon for the last couple of weeks, and the condition that's ruined my life. #mecfs #MissingMillions #MEAwarenessMonth #ChronicIllness #Disability
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ME/CFS Awareness Month: I Am Aware, and It Sucks https://www.patreon.com/posts/157808555?utm_campaign=postshare_creator&utm_content=android_share
A little post about why I haven't managed to post to my Patreon for the last couple of weeks, and the condition that's ruined my life. #mecfs #MissingMillions #MEAwarenessMonth #ChronicIllness #Disability
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ME/CFS Awareness Month: I Am Aware, and It Sucks https://www.patreon.com/posts/157808555?utm_campaign=postshare_creator&utm_content=android_share
A little post about why I haven't managed to post to my Patreon for the last couple of weeks, and the condition that's ruined my life. #mecfs #MissingMillions #MEAwarenessMonth #ChronicIllness #Disability
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ME/CFS Awareness Month: I Am Aware, and It Sucks https://www.patreon.com/posts/157808555?utm_campaign=postshare_creator&utm_content=android_share
A little post about why I haven't managed to post to my Patreon for the last couple of weeks, and the condition that's ruined my life. #mecfs #MissingMillions #MEAwarenessMonth #ChronicIllness #Disability
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ME/CFS Awareness Month: I Am Aware, and It Sucks https://www.patreon.com/posts/157808555?utm_campaign=postshare_creator&utm_content=android_share
A little post about why I haven't managed to post to my Patreon for the last couple of weeks, and the condition that's ruined my life. #mecfs #MissingMillions #MEAwarenessMonth #ChronicIllness #Disability
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Bettina Grande (Psychotherapeutin und ME/CFS Expertin & Ally):
"Zum biopsychosozialen Modell in Bezug auf ME/CFS sage ich als Psychotherapeutin Folgendes:
Wenn sich Ärzte und Wissenschaftler um biologische Faktoren kümmern und Behörden und Krankenkassen dafür sorgen würden,
dass die sozialen Faktoren weniger verheerend wären, dann würde für meine Berufsgruppe nur sehr wenig übrig bleiben." -
Bettina Grande (Psychotherapeutin und ME/CFS Expertin & Ally):
"Zum biopsychosozialen Modell in Bezug auf ME/CFS sage ich als Psychotherapeutin Folgendes:
Wenn sich Ärzte und Wissenschaftler um biologische Faktoren kümmern und Behörden und Krankenkassen dafür sorgen würden,
dass die sozialen Faktoren weniger verheerend wären, dann würde für meine Berufsgruppe nur sehr wenig übrig bleiben." -
Bettina Grande (Psychotherapeutin und ME/CFS Expertin & Ally):
"Zum biopsychosozialen Modell in Bezug auf ME/CFS sage ich als Psychotherapeutin Folgendes:
Wenn sich Ärzte und Wissenschaftler um biologische Faktoren kümmern und Behörden und Krankenkassen dafür sorgen würden,
dass die sozialen Faktoren weniger verheerend wären, dann würde für meine Berufsgruppe nur sehr wenig übrig bleiben." -
Bettina Grande (Psychotherapeutin und ME/CFS Expertin & Ally):
"Zum biopsychosozialen Modell in Bezug auf ME/CFS sage ich als Psychotherapeutin Folgendes:
Wenn sich Ärzte und Wissenschaftler um biologische Faktoren kümmern und Behörden und Krankenkassen dafür sorgen würden,
dass die sozialen Faktoren weniger verheerend wären, dann würde für meine Berufsgruppe nur sehr wenig übrig bleiben." -
Bettina Grande (Psychotherapeutin und ME/CFS Expertin & Ally):
"Zum biopsychosozialen Modell in Bezug auf ME/CFS sage ich als Psychotherapeutin Folgendes:
Wenn sich Ärzte und Wissenschaftler um biologische Faktoren kümmern und Behörden und Krankenkassen dafür sorgen würden,
dass die sozialen Faktoren weniger verheerend wären, dann würde für meine Berufsgruppe nur sehr wenig übrig bleiben." -
It's the LAST DAY of #MEAwarenessMonth and hence the last day of my matching campaign! I will double-match all donations made before the end of May to 501c3 charities that support people with ME, and that means your $10 = $30 total! Here are my individual fundraisers, or if you donate outside of them, you can send me receipts.
Open Medicine Foundation: https://openmedicinefoundation.crowdchange.co/50084
MEAction: https://meaction.funraise.org/fundraiser/elana-hashman -
It's the LAST DAY of #MEAwarenessMonth and hence the last day of my matching campaign! I will double-match all donations made before the end of May to 501c3 charities that support people with ME, and that means your $10 = $30 total! Here are my individual fundraisers, or if you donate outside of them, you can send me receipts.
Open Medicine Foundation: https://openmedicinefoundation.crowdchange.co/50084
MEAction: https://meaction.funraise.org/fundraiser/elana-hashman -
It's the LAST DAY of #MEAwarenessMonth and hence the last day of my matching campaign! I will double-match all donations made before the end of May to 501c3 charities that support people with ME, and that means your $10 = $30 total! Here are my individual fundraisers, or if you donate outside of them, you can send me receipts.
Open Medicine Foundation: https://openmedicinefoundation.crowdchange.co/50084
MEAction: https://meaction.funraise.org/fundraiser/elana-hashman -
It's the LAST DAY of #MEAwarenessMonth and hence the last day of my matching campaign! I will double-match all donations made before the end of May to 501c3 charities that support people with ME, and that means your $10 = $30 total! Here are my individual fundraisers, or if you donate outside of them, you can send me receipts.
Open Medicine Foundation: https://openmedicinefoundation.crowdchange.co/50084
MEAction: https://meaction.funraise.org/fundraiser/elana-hashman -
It's the LAST DAY of #MEAwarenessMonth and hence the last day of my matching campaign! I will double-match all donations made before the end of May to 501c3 charities that support people with ME, and that means your $10 = $30 total! Here are my individual fundraisers, or if you donate outside of them, you can send me receipts.
Open Medicine Foundation: https://openmedicinefoundation.crowdchange.co/50084
MEAction: https://meaction.funraise.org/fundraiser/elana-hashman -
13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmEDay 13
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13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmEDay 13
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13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmEDay 13
-
13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmEDay 13
-
13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmEDay 13
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Today is International #MECFS Awareness Day, the big day in #MEAwarenessMonth, so I'll be dedicating my accounts to talking about my and others' experiences with ME, how you can support us, and details on the fundraising I'm doing (with a double match!)
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Today is International #MECFS Awareness Day, the big day in #MEAwarenessMonth, so I'll be dedicating my accounts to talking about my and others' experiences with ME, how you can support us, and details on the fundraising I'm doing (with a double match!)
-
Today is International #MECFS Awareness Day, the big day in #MEAwarenessMonth, so I'll be dedicating my accounts to talking about my and others' experiences with ME, how you can support us, and details on the fundraising I'm doing (with a double match!)
-
Today is International #MECFS Awareness Day, the big day in #MEAwarenessMonth, so I'll be dedicating my accounts to talking about my and others' experiences with ME, how you can support us, and details on the fundraising I'm doing (with a double match!)
-
Today is International #MECFS Awareness Day, the big day in #MEAwarenessMonth, so I'll be dedicating my accounts to talking about my and others' experiences with ME, how you can support us, and details on the fundraising I'm doing (with a double match!)
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CW: Ramble on ME/CFS descriptors
This does not alter your main point, but something I'm curious about.
I often see mild/moderate/severe the way you describe.
But I also often see a version where mild is up to 50% capacity limitation (which of course is pretty damn serious), moderate is more than 50% but less than severe (homebound) and "very severe" is bedbound.
So the main difference seems to be "severe" means significantly different things between the two.
I don't really know where I'm going with this, but have you noted the two schemes as well?
Because I'm homebound, which feels far more "severe" than when I could work 8-10 hours per week, but not do much else. So the fourth category seems useful, but not necessarily at the cost of the ambiguity of describing myself as severe.
On the other hand, it's not like there's any competition going on and few people outside my family and doctors will be impacted by homebound versus bedbound.
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Mo., 12.05., 17:30, #Mannheim
Filmvorführung:
„Chronisch krank, chronisch ignoriert“
mit anschließender Podiumsdiskussion, ua mit Petra Krebs, gesundheitspolitische Sprecherin der Grünen im LandtagFilm:17:45 (Anmeldung)
Podiumsdiskussion: 19:45#MEcfs #LongCovid #MEawarenessmonth
1/
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Mo., 12.05., 17:30, #Mannheim
Filmvorführung:
„Chronisch krank, chronisch ignoriert“
mit anschließender Podiumsdiskussion, ua mit Petra Krebs, gesundheitspolitische Sprecherin der Grünen im LandtagFilm:17:45 (Anmeldung)
Podiumsdiskussion: 19:45#MEcfs #LongCovid #MEawarenessmonth
1/
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Mo., 12.05., 17:30, #Mannheim
Filmvorführung:
„Chronisch krank, chronisch ignoriert“
mit anschließender Podiumsdiskussion, ua mit Petra Krebs, gesundheitspolitische Sprecherin der Grünen im LandtagFilm:17:45 (Anmeldung)
Podiumsdiskussion: 19:45#MEcfs #LongCovid #MEawarenessmonth
1/
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Mo., 12.05., 17:30, #Mannheim
Filmvorführung:
„Chronisch krank, chronisch ignoriert“
mit anschließender Podiumsdiskussion, ua mit Petra Krebs, gesundheitspolitische Sprecherin der Grünen im LandtagFilm:17:45 (Anmeldung)
Podiumsdiskussion: 19:45#MEcfs #LongCovid #MEawarenessmonth
1/
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Mo., 12.05., 17:30, #Mannheim
Filmvorführung:
„Chronisch krank, chronisch ignoriert“
mit anschließender Podiumsdiskussion, ua mit Petra Krebs, gesundheitspolitische Sprecherin der Grünen im LandtagFilm:17:45 (Anmeldung)
Podiumsdiskussion: 19:45#MEcfs #LongCovid #MEawarenessmonth
1/
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It's May, which means it's #MEAwarenessMonth! I suffer from a debilitating illness called myalgic encephalomyelitis (ME), which has upended my life and left me with little hope for recovery. But we can change that by funding research & treatments, which is why I am fundraising with a double match 🧵
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It's May, which means it's #MEAwarenessMonth! I suffer from a debilitating illness called myalgic encephalomyelitis (ME), which has upended my life and left me with little hope for recovery. But we can change that by funding research & treatments, which is why I am fundraising with a double match 🧵
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It's May, which means it's #MEAwarenessMonth! I suffer from a debilitating illness called myalgic encephalomyelitis (ME), which has upended my life and left me with little hope for recovery. But we can change that by funding research & treatments, which is why I am fundraising with a double match 🧵
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It's May, which means it's #MEAwarenessMonth! I suffer from a debilitating illness called myalgic encephalomyelitis (ME), which has upended my life and left me with little hope for recovery. But we can change that by funding research & treatments, which is why I am fundraising with a double match 🧵
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It's May, which means it's #MEAwarenessMonth! I suffer from a debilitating illness called myalgic encephalomyelitis (ME), which has upended my life and left me with little hope for recovery. But we can change that by funding research & treatments, which is why I am fundraising with a double match 🧵
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Anil Van der zee
OMG we did it‼️‼️In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://m.youtube.com/watch?v=J0 -
Anil Van der zee
OMG we did it‼️‼️In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://m.youtube.com/watch?v=J0 -
Anil Van der zee
OMG we did it‼️‼️In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://m.youtube.com/watch?v=J0 -
Anil Van der zee
OMG we did it‼️‼️In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://m.youtube.com/watch?v=J0 -
Anil Van der zee
OMG we did it‼️‼️In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://m.youtube.com/watch?v=J0 -
Today is the LAST day of #MEAwarenessMonth! I've only received one donation to match and I haven't had anyone reach out about government advocacy 🥺 You have some time left still!!
