International #MEAwarenessMonth has just ended and, with the first day of June, I, a #pwME #SevereME, washed myself at my basin for the first time this year. Lovely hot water! #MECFS #MyalgicEncephalomyelitis
#meawarenessmonth — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #meawarenessmonth, aggregated by home.social.
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Seo nasc don agallamh a rinne mé le @raidiofailte le haghaidh #MEAwarenessmonth https://open.spotify.com/episode/7dFGC8kok5bLn6Stc4ToYw?si=d443c8b7a8754cbd #Gaeilge #pwME #disability
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Beidh mé ar Raidió Fáilte maidin amárach ag labhairt faoin tinneas ME, agus faoi mo scannán Na Doirse (nadoirse.ie). #pwME #MEAwarenessMonth #Gaeilge #Scannánaíocht
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It’s STILL #MEAwarenessMonth
The cartoons seem to be as endless as the medical ignorance!
#ThereForME
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It’s STILL #MEAwarenessMonth The cartoons seem to be as endless as the medical ignorance! #ThereForME @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected]
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Give us the support and medications we need so we can get our lives back and be useful again! #MEAwarenessWeek #MEAwarenessMonth #SimonWessely
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This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE -
ME/CFS Awareness Month: I Am Aware, and It Sucks https://www.patreon.com/posts/157808555?utm_campaign=postshare_creator&utm_content=android_share
A little post about why I haven't managed to post to my Patreon for the last couple of weeks, and the condition that's ruined my life. #mecfs #MissingMillions #MEAwarenessMonth #ChronicIllness #Disability
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Bettina Grande (Psychotherapeutin und ME/CFS Expertin & Ally):
"Zum biopsychosozialen Modell in Bezug auf ME/CFS sage ich als Psychotherapeutin Folgendes:
Wenn sich Ärzte und Wissenschaftler um biologische Faktoren kümmern und Behörden und Krankenkassen dafür sorgen würden,
dass die sozialen Faktoren weniger verheerend wären, dann würde für meine Berufsgruppe nur sehr wenig übrig bleiben." -
It's the LAST DAY of #MEAwarenessMonth and hence the last day of my matching campaign! I will double-match all donations made before the end of May to 501c3 charities that support people with ME, and that means your $10 = $30 total! Here are my individual fundraisers, or if you donate outside of them, you can send me receipts.
Open Medicine Foundation: https://openmedicinefoundation.crowdchange.co/50084
MEAction: https://meaction.funraise.org/fundraiser/elana-hashman -
I wrote about how I'm participating in this year's ME Awareness & Benefit Month with @operamariposa.bsky.social with some of my #SciArt #embroidery and music! #BAMonth2025 #MECFS #MEAwarenessMonth
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13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmEDay 13
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Today is International #MECFS Awareness Day, the big day in #MEAwarenessMonth, so I'll be dedicating my accounts to talking about my and others' experiences with ME, how you can support us, and details on the fundraising I'm doing (with a double match!)
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Mo., 12.05., 17:30, #Mannheim
Filmvorführung:
„Chronisch krank, chronisch ignoriert“
mit anschließender Podiumsdiskussion, ua mit Petra Krebs, gesundheitspolitische Sprecherin der Grünen im LandtagFilm:17:45 (Anmeldung)
Podiumsdiskussion: 19:45#MEcfs #LongCovid #MEawarenessmonth
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It's May, which means it's #MEAwarenessMonth! I suffer from a debilitating illness called myalgic encephalomyelitis (ME), which has upended my life and left me with little hope for recovery. But we can change that by funding research & treatments, which is why I am fundraising with a double match 🧵
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Anil Van der zee
OMG we did it‼️‼️In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://m.youtube.com/watch?v=J0 -
Catch the premiere of Opera Mariposa’s last online musical performance for #BAMonth2024 and #MEAwarenessMonth ! Join me NOW for a beautiful piano improvisation, and mark the close of an incredible May Awareness Month for #MECFS, #Fibromyalgia and other chronic neuro-immune diseases. https://www.youtube.com/watch?v=47ADrkevWNQ
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Today is the LAST day of #MEAwarenessMonth! I've only received one donation to match and I haven't had anyone reach out about government advocacy 🥺 You have some time left still!!
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May has been #InternationalMEAwarenessMonth #MEAwarenessMonth, but, alas, I have not been well enough to post nor share much this year. Here is a #poem from a decade ago. Matters have ameliorated slightly in that time, in that awareness has been raised and the issues are within the sights of politicos across the Globe due to #LongCovid.
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #ELCI #PostViralDisorder
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That is, I will match all donations made in May 2024 to:
- MEAction https://www.meaction.net/millionsmissing-fundraiser-2024/
- Open Medicine Foundation https://www.omf.ngo/
- SolveME https://solvecfs.org/
- Bateman Horne Center https://batemanhornecenter.org/donate/pay-form/
- Workwell Foundation https://workwellfoundation.org/
#MECFS #MillionsMissing #MEAwarenessMonth #LongCovid @mecfs -
There's 4 days left of #MEAwarenessMonth left! That also means 4 more days that I'm still matching donations to US-based ME/CFS charities!
Which ones? I wrote a blog about my illness to better share what my life has been like the past ~year with friends and colleagues. There's a call to action at the end that also includes some no-cost advocacy opportunities. https://hashman.ca/me-cfs/
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This article is about me:
https://t.co/f1vB5pXoK6People helping is most important. I need an #advocate & safe place to live most. Please consider.🙏
There’s links in the article but a summary:
#crowdfund https://www.buymeacoffee.com/halcionandon
Also:
People with Australian bank accounts can use https://www.beem.com.au to pay @halcionandon. Free & anonymousPlease #boost & thanks for reading. Help not expected but appreciated💜
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This is a short (78-second) video about postexertional malaise in ME/CFS.It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.
May is #MEAwarenessMonth.
You can help raise awareness and understanding by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmEDay 13
@mecfs -
I wrote a blog post on all the ways I'm participating in
Opera Mariposa's #MECFS benefit this year for #MEAwarenessMonth. There is art, music, and prizes to be won! -
12 May is
International ME Awareness DayA view from UK charity Invest in ME Research
"𝙔𝙤𝙪 𝙣𝙚𝙚𝙙 𝙩𝙤 𝙜𝙞𝙫𝙚 𝙈𝙀/𝘾𝙁𝙎 𝙥𝙖𝙩𝙞𝙚𝙣𝙩𝙨 𝙖 𝙛𝙪𝙩𝙪𝙧𝙚"
https://investinme.org/investinMEresearch2024.shtml
#mecfs #InternationalMEawarenessDay #severeME #MEawareness #MEAwarenessmonth
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An exclusive mix of The Hum is now live on Opera Mariposa’s YouTube channel! This is part of their benefit and awareness campaign for #MECFS. #MEAwarenessMonth https://youtu.be/TwimUTiW4qE?si=jrH-3mbZPbek7Eb3
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Exciting things are happening with Opera Mariposa for #MEAwarenessMonth again! I laughed with glee when I saw they sent me some embroidery thread in the package 😆
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CW: ME and suicide
#EncefalomielitisMialgica y #suicidio
🇪🇦 Agy_lena: "Otra muerte causada por Encefalomielitis Mialgica al sentir que no había otras opciones. Sufrimiento severo, síntomas extremos, falta de atención, CERO #tratamientos efectivos, #LuzDeGas y falta de #esperanza llevan a este lugar. ¡ES CRIMINAL QUE LA MUERTE SE CONVIERTA EN OPCIÓN VIABLE!
Briggite D.W: https://m.facebook.com/groups/MEMemorial/permalink/10062537600424808/?refsrc=deprecated&__hwl=1&_rdr
#MEawarenessmonth #FFpaciente #prevencionsuicidio #NoMasRosasAzules
Mario Pinna #DEP🕯️ -
Today is the final day of 2023’s #InternationalMEAwarenessMonth #MEAwarenessMonth
I have run out of personal, relevant blog-posts. So, given my continuing suïcidal ideätion, in which I daily struggle to convince myself to stick around, I thought reposting the song that has helped me of late was best. Via #Blogger “A Song for People with MECFS”
https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/a-song-for-people-with-mecfs.html