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1000 results for “pycon”
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What is Palynziq? And why does it have so many names?
PAL. PEG-PAL. Pegvaliase. Palynziq.
If you’ve ever felt confused by PKU treatment names — you’re not alone. They all describe the same enzyme-based treatment, just from different angles.I’ve updated my blog to explain it in plain language:
💚 what the treatment is
💚 how it works
💚 where it’s available (and where it isn’t)https://www.pigpen.page/what-is-palynziq/
#PKU #LivingWithPKU #RareDiseaseCommunity #PatientInfo #Phenylketonuria
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🎁 Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas
💡 Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included menu suggestions & recipes, but let’s start with making the festive season friendlier to those on restricted diets.
Merry Christmas 🎄
#PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder
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@soheb Thank you, and thank you for the post yesterday :) I did see it and missed doing my own!
Yeah, it is difficult as I worry most about access. A few years back it became clear that the UK wouldn't get the injection.
Now that the UK isn't in the EU, Sepheince isn't a guarantee - particularly for adults.
Re the kidney drugs, None of the UK trials discussed were looking at adults!
I think we and the NSPKU have to gear up for campaigning again as access is going to be a key issue!
#PKU -
🔬 The latest on PKU treatment from NSPKU's October conference - and what they might mean for those living with PKU.
💊 Sepiapterin (Sephience)
🧪 JNT-517, and MZE782
🩸 At-home phe monitors
🗓️ Published on PigPen.page (Want to be the first to see my posts? Subscribe for free emails.)
🔗 https://www.pigpen.page/whats-in-the-treatment-pipeline/
#PKU #Phenylketonuria #RareDisease #InheritedMetabolicDisorders #LivingWithPKU #NSPKU
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@poconnor has wrote a new newsletter about what she came away with at the NSPKU. It's exciting stuff!
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A great NSPKU conference in Cardiff yesterday. Lovely to see so many new faces, a reminder to head out beyond the usual places.
Lots of updates, new products and research coming. Just organising my thoughts and will report in the blog soon!
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Autumn comfort food after a bruising workout?
Low-Protein Mac & Cheese :)
Yum!
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🎁 Free to subscribe! Plus, you get a gift ebook: "PKU & Mental Health"
📬 October's newsletter looks at the turmoil in the UK pharmaceutical industry, why this matters - and what you can do.
💚 PKU news: Support NSPKU in parliament, another promising treatment in development
🧠 Brain news: Do we have a sideline test for concussion at last?!
🥘 Plus: 4 Low-protein recipes to try out
#PKU #LivingWithPKU #RareDisease #Concussion #LivingWithMildBrainInjury #TBI #PKUFood
https://www.pigpen.page/oct-2025/ -
A great start to the week!
The latest issue of the NSPKU News & Views popped through the door first thing.
#LivingwithPKU #PKUcommunity #PKULife #Phenylketonuria, #PKU
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🆕 Tips for Managing Prescriptions and Travelling with #PKU
[https://pkutalk.com/tags/PKU]Earlier this summer I had a great conversation with Tom and Jasmine for this new
podcast by the NSPKU.It was full of tips for:
- dealing with GPs
- packing for PKU,
- managing protein while travellingand just talking about how we manage our PKU "Home & Away"
Would like to know what you think of it!
#LivingWithPKU [https://pkutalk.com/tags/LivingWithPKU] #TravellingWithPKU
[https://pkutalk.com/tags/T… -
♻️ Want to make your #PowerShell jobs #sustainable? At #PSConfEU 2025, Leo Visser showed how to: 🌍 Schedule automations during green energy peaks 📉 Use CO₂ forecast APIs (Electricity Maps, ENTSO-E) 🔋 Cache smartly to avoid waste ⚙️ Move jobs or VMs to greener regions #GreenIT #Climate
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Our Python advocacy team has landed at PyCon US!
Can I get a P-Y-C?!?Here's where you can find us:
https://devblogs.microsoft.com/python/pycon-us-2026/
If you're here, come say hi at the booth. 👋🏻 -
PyCon AU (the finest vaguely-python-related-things conference in Australia and quite possible the entire world) is on in Melbourne again, September 12-14 2025!
https://2025.pycon.org.au/I'll be there talking about the eerie parallels between the #microprocessor and #cell_biology ... and there'll be a lot of other interesting and probably more useful things to learn about too: https://pretalx.com/pycon-au-2025/schedule/
PS: voucher code for 10% off tickets: https://pretix.eu/pyconau/2025/redeem?voucher=SPKR10-ASE85RZ7Q84L3C7Z
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PyCon AU (the finest vaguely-python-related-things conference in Australia and quite possible the entire world) is on in Melbourne again, September 12-14 2025!
https://2025.pycon.org.au/I'll be there talking about the eerie parallels between the #microprocessor and #cell_biology ... and there'll be a lot of other interesting and probably more useful things to learn about too: https://pretalx.com/pycon-au-2025/schedule/
PS: voucher code for 10% off tickets: https://pretix.eu/pyconau/2025/redeem?voucher=SPKR10-ASE85RZ7Q84L3C7Z
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Just presented at EduSummit #PyConUS
"Your slides, but faster:
Building an AI-powered presentation workflow"https://pamelafox.github.io/ai-powered-presentation-workflow/
Tips: Use RevealJS, ASCII mockups, audits, agent skills -
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:postgresql: After premiering "Patroni and pgBackRest: better together" at the PostgreSQL Belgium meetup, I'm excited to bring it next week to @pgconfeu in Riga! 🇱🇻
Learn how to integrate pgBackRest into a Patroni-managed cluster, rebuild standby nodes from backups, and perform PITR under Patroni's control — with real-world examples and YAML snippets.
See you in Riga for an amazing week of #PostgreSQL talks and community! 💙
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Hyperaccumulator #tree with sap that can be up to 25% #nickel citrate. 🌳
https://en.wikipedia.org/wiki/Pycnandra_acuminata -
Vinny’s Italian Market in Hanover, Pa. Center Square is now closed https://www.diningandcooking.com/2542424/vinnys-italian-market-in-hanover-pa-center-square-is-now-closed/ #Affiliate #Catering #company #CompanyNews #content #cuisine #cuisines #Delicatessens #food #FoodU0026GroceryRetailers #grocery #Hanover #Italia #Italian #ItalianCooking #ItalianCuisine #italiano #italy #local #LocalAffiliateFood #LocalNews #Neutral #news #Overall #OverallNeutral #Pà #PAContentSharingYork/Hanover #Restaurants #retailers #sharing #u0026 #Vegetarian #York/Hanover
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Another image from Buck Mountain Creek this past fall. You'd never know it, but it was raining like hell ☔
#photography #poconomountains #dltrail #dlnhc #photographylovers #carboncounty #pennsylvania
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My #Pennsylvania Fall Foliage montage for the 2022 season. Images were captured in Lehigh and Carbon County.
D&L Trail - Lehigh Gorge
D&L Trail - Rockport Trailhead
Trexler Nature Preserve
Beltzville State Park
Cedar Beach in Allentown
West Park in Allentown#lehighvalleypa #lehighvalley #photography #fallfoliage #landscapephotography #naturephotography #art #travel #poconos #lehighcounty #CarbonCounty
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Today's note promoting @pythonbynight's excellent talk at North Bay PyCon:
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https://www.europesays.com/it/407832/ Che Tempo Che Fa gli ospiti di domenica 22 marzo di Fabio Fazio #accoglierà #Celebrità #Celebrities #cinema #diretta #edizione #Entertainment #express #fabio #FabioFazioAccoglierà #FabioFazio #fazio #FazioAccoglierà #ficarra #FicarraPicone #film #francesco #Intrattenimento #IT #Italia #Italy #mara #marzo #metsola #nuova #ospiti #picone #puntata
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So what can package maintainers do to help?
Know who to call: [email protected] and [email protected]
Look into Zizmor, then CodeQL, Semgrep, Fuzzer, LLM
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So what can package maintainers do to help?
Know who to call: [email protected] and [email protected]
Look into Zizmor, then CodeQL, Semgrep, Fuzzer, LLM
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So what can package maintainers do to help?
Know who to call: [email protected] and [email protected]
Look into Zizmor, then CodeQL, Semgrep, Fuzzer, LLM
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So what can package maintainers do to help?
Know who to call: [email protected] and [email protected]
Look into Zizmor, then CodeQL, Semgrep, Fuzzer, LLM
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So what can package maintainers do to help?
Know who to call: [email protected] and [email protected]
Look into Zizmor, then CodeQL, Semgrep, Fuzzer, LLM
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Next Goal: Improving Python Ecosystem Vuln response capacity
This means:
- Threat model guide (@sethmlarson is sprinting on this!)
- Scanning projects
- Sec. Engineer time to respond more
- Incident response that's more than just "when Seth and Mike are working" -
Next Goal: Improving Python Ecosystem Vuln response capacity
This means:
- Threat model guide (@sethmlarson is sprinting on this!)
- Scanning projects
- Sec. Engineer time to respond more
- Incident response that's more than just "when Seth and Mike are working"