#nspku — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #nspku, aggregated by home.social.
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I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
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A new contender - Prekulab - have two new products:
LNAA series - you can have *up to* 80% normal food, and the rest is tablets/powder.
AA series - up to 20% normal food, 80% tablets powder.I believe the person said the LNAA total tablets amount is body weight in kg/2. For example, for me I’m 80kg, so I’d have 40 tablets a day.
Spread that across the day, it would probably be 10 tablets in the morning, 20 in the afternoon, and 10 in the evening. Interesting!
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IT’S COMING HOME!!
IT’S COMING!!
BLOOD TESTS COMING HOME, IT’S COMING!!
Now, these are prototypes, BUT!
* Result in 2 mins
* Records in app
* Results get sent automatically to doctorsYour move, post box 📮♟️
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Professor Anne Green did a talk on Sheila (and Mary Jones’) life story of PKU. The talk was great, but the book is phenomenal and I strongly encourage folks to buy it and read it.
Sheila: Unlocking the Treatment for PKU https://amzn.eu/d/3gLpZ1z
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If you are wondering “what is PKU?”, my good friend @poconnor has wrote a book on just that!!
It's called Living with PKU, and you can get it here: https://pigpen.page/books/ (£15 for paper back, £5 for eBook)
Between June and July, half of the profits go to the NSPKU charity (https://nspku.org) - a charity that does so much for PKU folks!
Please check out the book (and boost these posts)! Thank you!
#phenylketonuria #LivingWithPKU #nspku #books #bookstodon #boost #boostswelcome