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#metabolicdisorder — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #metabolicdisorder, aggregated by home.social.

  1. 🎁 Please share with patients, clinicians, and anyone who might be catering for someone on a Low-Protein diet this Christmas

    💡 Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included menu suggestions & recipes, but let’s start with making the festive season friendlier to those on restricted diets.

    Merry Christmas 🎄

    #PKU #LowProtein #LivingWithPKU #RareDiseas #MetabolicDisorder

    pigpen.page/pku-at-christmas/

  2. A great NSPKU conference in Cardiff yesterday. Lovely to see so many new faces, a reminder to head out beyond the usual places.

    Lots of updates, new products and research coming. Just organising my thoughts and will report in the blog soon!

    #PKU #Livingwithpku #raredisease #MetabolicDisorder

  3. I wish more people knew about the use of food restrictions as a medical treatment.

    Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.

    In truth, many medical conditions are treated through the use of food restrictions.

    You never know what someone else is dealing with, but you can choose how you react to their requests.

    What do you wish people knew more about?

    #LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU

  4. Listening to an NPR #1A show on #Ozempic #semaglutide and feel like posting that I tried it for a few months over the winter. **It worked!** It suppressed my appetite *and* reduced the glycemic impact of food I did eat; I lost 10 pounds easily and felt my "#MetabolicDisorder" (aka #PreDiabetes) was under control. Unfortunately even after an initial nausea ebbed, I was still feeling faint and/or nausea off and on, and I decided to put it on hold for now until I can establish a snacking schedule.