"The U.K.’s plan for ME has failed us. Members of parliament must step up.
Written by Nick Benton – June 19, 2026
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom? (...)
I encourage all U.K. advocates and their allies to write to their MPs. Every letter builds momentum, and if we can get a couple more Tessa Munts on our side, that critical moment might come sooner."
⚠️Warning:
Please only read the article if you feel emotionally stable. It contains severe medical neglect, medical gaslighting and death.
📝draft for a letter to your MP: https://thepersonalme.substack.com/p/a-letter-for-your-mp
#mecfs
#severeME
#UK
#MedicalGaslighting
#takeaction
#VerySevereME
