#hdct — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #hdct, aggregated by home.social.
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Looking for a weekend read? Want to better understand the population disabled by a hereditary connective tissue disorder (#HDCT)--such as #EDS, #MCAD, #POTS, #HSD, #MECFS? There are a lot of them out there, but they're mostly invisible because when not going to medical appointments they’re stuck lying on the couch or bed at home.
The National Academies (#NASEM) delivered a report to #SSA on these disorders last year, I found it educational:
https://doi.org/10.17226/26431
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#NEISvoid #disability -
Looking for a weekend read? Want to better understand the population disabled by a hereditary connective tissue disorder (#HDCT)--such as #EDS, #MCAD, #POTS, #HSD, #MECFS? There are a lot of them out there, but they're mostly invisible because when not going to medical appointments they’re stuck lying on the couch or bed at home.
The National Academies (#NASEM) delivered a report to #SSA on these disorders last year, I found it educational:
https://doi.org/10.17226/26431
--
#NEISvoid #disability -
Looking for a weekend read? Want to better understand the population disabled by a hereditary connective tissue disorder (#HDCT)--such as #EDS, #MCAD, #POTS, #HSD, #MECFS? There are a lot of them out there, but they're mostly invisible because when not going to medical appointments they’re stuck lying on the couch or bed at home.
The National Academies (#NASEM) delivered a report to #SSA on these disorders last year, I found it educational:
https://doi.org/10.17226/26431
--
#NEISvoid #disability -
Looking for a weekend read? Want to better understand the population disabled by a hereditary connective tissue disorder (#HDCT)--such as #EDS, #MCAD, #POTS, #HSD, #MECFS? There are a lot of them out there, but they're mostly invisible because when not going to medical appointments they’re stuck lying on the couch or bed at home.
The National Academies (#NASEM) delivered a report to #SSA on these disorders last year, I found it educational:
https://doi.org/10.17226/26431
--
#NEISvoid #disability -
Looking for a weekend read? Want to better understand the population disabled by a hereditary connective tissue disorder (#HDCT)--such as #EDS, #MCAD, #POTS, #HSD, #MECFS? There are a lot of them out there, but they're mostly invisible because when not going to medical appointments they’re stuck lying on the couch or bed at home.
The National Academies (#NASEM) delivered a report to #SSA on these disorders last year, I found it educational:
https://doi.org/10.17226/26431
--
#NEISvoid #disability