#patientcenteredcare — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #patientcenteredcare, aggregated by home.social.
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#PostAcuteCare #HomeRehab #HealthcareInnovation #PatientCenteredCare #RavCare -
I want to share something I'm really proud of.
In late July I found a 2016 Novo Nordisk Foundation article about intersex women. Its language was outdated and stigmatizing, calling them "genetically men," leaning on biological determinism, and reducing lives to a medical case.
I wrote with evidence, explained the harm, and asked them to fix it.
They responded quickly and sent a draft within weeks. They removed misgendering and pathologizing and moved away from chromosomes as destiny. I suggested final edits.
In August they published the update. It now centers human diversity, patient care, and informed consent.
Words shape care and how society sees us. My approach: be assertive, name the problem, bring evidence, stay in good faith. One article, one institution, and small wins add up.
I'm proud and will keep pushing for a world where our communities are seen, respected, and affirmed. 💜
Link to the revised article: https://novonordiskfonden.dk/en/news/more-women-than-expected-are-born-with-a-hidden-variation-in-sex-development/
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I want to share something I'm really proud of.
In late July, I came across a 2016 article from the Novo Nordisk Foundation. It discussed intersex women, including those with XY chromosomes, but the language was outdated, reductionist, and stigmatizing. It called them "genetically men," leaned on biological determinism, and framed their lives through a medical lens that undermined their dignity.
I couldn't let that stand, so I wrote to them. I explained why the language was harmful, pointed to current science and bioethics, and asked them to take responsibility.
To their credit, they listened. They replied quickly, acknowledged my concerns, and began reviewing the article. A couple of weeks later they sent me a revised draft. They had already removed the misgendering, replaced pathologizing phrases, and shifted the framing away from chromosomes as destiny. I suggested a few more adjustments to make the language even more accurate and affirming.
At the end of August, they published the updated article in English and Danish. The harmful wording is largely gone. The framing now centers human diversity, patient-centered care, and informed consent.
It may not sound dramatic, but these changes matter. Words shape how people see themselves, how they are treated by doctors, and how society understands trans and intersex lives. Correcting language in a piece like this helps chip away at stigma that has caused harm for decades.
Here's what this looked like in practice for me: I was assertive. I named where I disagreed. I brought factual evidence. I kept the exchange in good faith. I stayed open to change and supported it when it happened.
It is one article, one institution, one moment. Little by little, contribution by contribution, we are changing things. I'm proud that I stood up and made a difference here, and I'll keep doing what I can to push for a world where our communities are seen, respected, and affirmed. 💜
Link to the revised article: https://novonordiskfonden.dk/en/news/more-women-than-expected-are-born-with-a-hidden-variation-in-sex-development/
#Intersex #Trans #LanguageMatters #PatientCenteredCare -
I want to share something I'm really proud of.
In late July, I came across a 2016 article from the Novo Nordisk Foundation. It discussed intersex women, including those with XY chromosomes, but the language was outdated, reductionist, and stigmatizing. It called them "genetically men," leaned on biological determinism, and framed their lives through a medical lens that undermined their dignity.
I couldn't let that stand, so I wrote to them. I explained why the language was harmful, pointed to current science and bioethics, and asked them to take responsibility.
To their credit, they listened. They replied quickly, acknowledged my concerns, and began reviewing the article. A couple of weeks later they sent me a revised draft. They had already removed the misgendering, replaced pathologizing phrases, and shifted the framing away from chromosomes as destiny. I suggested a few more adjustments to make the language even more accurate and affirming.
At the end of August, they published the updated article in English and Danish. The harmful wording is largely gone. The framing now centers human diversity, patient-centered care, and informed consent.
It may not sound dramatic, but these changes matter. Words shape how people see themselves, how they are treated by doctors, and how society understands trans and intersex lives. Correcting language in a piece like this helps chip away at stigma that has caused harm for decades.
Here's what this looked like in practice for me: I was assertive. I named where I disagreed. I brought factual evidence. I kept the exchange in good faith. I stayed open to change and supported it when it happened.
It is one article, one institution, one moment. Little by little, contribution by contribution, we are changing things. I'm proud that I stood up and made a difference here, and I'll keep doing what I can to push for a world where our communities are seen, respected, and affirmed. 💜
Link to the revised article: https://novonordiskfonden.dk/en/news/more-women-than-expected-are-born-with-a-hidden-variation-in-sex-development/
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The paper lays out an approach to evaluate #GenerativeAI's usefulness in addressing human needs. It applies a drastically different lens on #AI and #ML - instead of #AI_Is_Automation (that replaces humans), we take the view that #AI_Is_Augmentation (that supports humans in our tasks).
Paper: https://arxiv.org/abs/2402.00234
#responsibleai #humancentereddesign #humanfactors #humancomputerinteraction #HumanAwareAI#PatientEducation #patientcenteredcare (5/n)
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The paper lays out an approach to evaluate #GenerativeAI's usefulness in addressing human needs. It applies a drastically different lens on #AI and #ML - instead of #AI_Is_Automation (that replaces humans), we take the view that #AI_Is_Augmentation (that supports humans in our tasks).
Paper: https://arxiv.org/abs/2402.00234
#responsibleai #humancentereddesign #humanfactors #humancomputerinteraction #HumanAwareAI#PatientEducation #patientcenteredcare (5/n)
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The paper lays out an approach to evaluate #GenerativeAI's usefulness in addressing human needs. It applies a drastically different lens on #AI and #ML - instead of #AI_Is_Automation (that replaces humans), we take the view that #AI_Is_Augmentation (that supports humans in our tasks).
Paper: https://arxiv.org/abs/2402.00234
#responsibleai #humancentereddesign #humanfactors #humancomputerinteraction #HumanAwareAI#PatientEducation #patientcenteredcare (5/n)
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The paper lays out an approach to evaluate #GenerativeAI's usefulness in addressing human needs. It applies a drastically different lens on #AI and #ML - instead of #AI_Is_Automation (that replaces humans), we take the view that #AI_Is_Augmentation (that supports humans in our tasks).
Paper: https://arxiv.org/abs/2402.00234
#responsibleai #humancentereddesign #humanfactors #humancomputerinteraction #HumanAwareAI#PatientEducation #patientcenteredcare (5/n)
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The paper lays out an approach to evaluate #GenerativeAI's usefulness in addressing human needs. It applies a drastically different lens on #AI and #ML - instead of #AI_Is_Automation (that replaces humans), we take the view that #AI_Is_Augmentation (that supports humans in our tasks).
Paper: https://arxiv.org/abs/2402.00234
#responsibleai #humancentereddesign #humanfactors #humancomputerinteraction #HumanAwareAI#PatientEducation #patientcenteredcare (5/n)
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Beyond medicine: the importance of cultural safety in healthcare
#CulturalSafety #PatientCenteredCare #Empathy #CommunityHealthcare
Raj Sundar is a family physician and can be reached on Twitter @krajsundar.
https://youtube.com/shorts/9drXyXtzDKA
Listen here: https://kevinmd.com/podcast
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Beyond medicine: the importance of cultural safety in healthcare
#CulturalSafety #PatientCenteredCare #Empathy #CommunityHealthcare
Raj Sundar is a family physician and can be reached on Twitter @krajsundar.
https://youtube.com/shorts/9drXyXtzDKA
Listen here: https://kevinmd.com/podcast
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Beyond medicine: the importance of cultural safety in healthcare
#CulturalSafety #PatientCenteredCare #Empathy #CommunityHealthcare
Raj Sundar is a family physician and can be reached on Twitter @krajsundar.
https://youtube.com/shorts/9drXyXtzDKA
Listen here: https://kevinmd.com/podcast
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The importance of quality of life in elderly care: a doctor's perspective
We often encounter patients who have already been through a lot in their lives, particularly those who come to us from nursing homes. Their quality of life may already be compromised and they may face difficult care decisions.
Kevin Haselhorst is an emergency physician.
https://youtube.com/shorts/SL3Yd7reB-c
Listen here: https://kevinmd.com/podcast
#palliativecare #endoflifecare #healthcareprovider #patientcenteredcare #medicalethics