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#immunedeficiency — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #immunedeficiency, aggregated by home.social.

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  1. RINSE AND REPEAT …

    This is how happy you are when you’re seriously ill and have just tested positive for ureaplasma again. (The bacteria that nearly killed me in 2024.)

    It's unclear how long I’ve had it this time, but most likely since the summer.

    I’m self-medicating while waiting for the healthcare system to consider it worth getting involved, so my professional assessment is that the risk is not acute at the moment.

    But I am undeniably rather tired.

    ------
    For those asking:

    Doxycycline 100 mg x 2 (split into two doses).

    So yes, I know exactly what I’m doing. It’s not as if I work in healthcare.

    #immunedeficiency #ureaplasma #healthcare #swedenhealthcareexample #sepsisrisk

  2. There's an event coming up next month that I'd like to go to, but which I believe is being advertised falsely. Disability Unleashed is an event which is put out in support of people with disabilities. It is advertised as inclusive and accessible, but there's no mention of masking requirements. I sent a couple of emails to the venue and promoters to find out if people will be asked to wear masks to make it accessible for people with compromised immune systems, but have received no response. I sent a followup saying that the silence makes me think that people will not be asked to wear masks, but maybe there's a hybrid option so immune-compromised folks can still watch from home.

    I don't have high hopes. This is so disappointing.
    #MaskUp #Accessibility #Inclusion #ImmuneDeficiency #Performance
    centreinthesquare.com/event/di

  3. Had a good conversation why I was #masking. Told them of the research. They said they’d better dig out their #masks again.
    #CovidIsNotOver #ImmuneDeficiency

  4. #COVID #ImmuneDeficiency is like giving someone an anti-vaccine against any other infection or condition.
    [As we now have vaccines against cancer]
    ☑️ Liberal Normalcy

  5. We live in a society where I can say:
    "What if today I go to work without a mask and infect everyone I can with #SARSCoV2, so that they acquire an #ImmuneDeficiency "?

    Politicians have just offered us their immunity from responsibility.

    It's more than a normalcy bias, it's a liberal bias. Still, people elect these politicians.

  6. A "summer flu" keeps me on low energy level since almost 3 weeks. Covid tests return negative, however all symptoms remind me eeriely of such infection. While that remains speculation this research article might shed a light on, how Cov might turn out to be sthg similar than hepatitis in the long run: https://johnsnowproject.org/insights/a-new-disease-paradigm/

    #LongCovid #ImmuneDeficiency #increasedTcellActivation #sleeperVirus
  7. "In mice, the loss of Sharpin leads to severe dermatitis due to excessive cell death in keratinocytes. Here we report the first patient with SHARPIN deficiency, manifesting fever, arthritis, colitis, chronic otitis media and hepatic glycogenosis but unexpectedly, not associated with dermatologic manifestations."

    #Immunology #HumanGenetics #Immunedeficiency #LUBAC #Sharpin

    medrxiv.org/content/10.1101/20