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#actually-audhd — Public Fediverse posts

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  1. @actuallyautistics What follows isn't a cry for help... I don't think? When I'm troubled, I often find myself "info dumping" because I can't identify the need that I'm trying to satisfy.

    Sitting in this coffee shop, taking my noise cancelling headphones off, I am disoriented.

    I'm bummed. Grieving. I'm not sure when it will stop. It's been 18 months since the autism diagnosis and 6 years since the ADHD. With the autism diagnosis came several other "comorbid" suspected diagnoses that seemed less relevant to follow up and more relevant to flag, remain aware of, and manage.

    It's just cacophony here.

    ASIDE: How did I survive this long without knowing what I am? Working in offices. Public spaces in general. "Socializing". Answering my own question: by wrecking myself almost daily, working/doing/self-shaming until I ran out of capacity, turning into a pile of useless goo, then rinsing and repeating for most of my life.

    The man the table over is loudly talking at his acquaintance. The other conversations, their sounds bouncing off of the hard surfaces of the cafe. The music playing in the background. I could go on.

    I tried to sit with it, allowing it. After about 30 seconds, I reluctantly surrendered, replaced my noise cancelling headphones and cranked them up. Once again, I withdraw from the world, for my health.

    I want to be a part of the world, even though I don't care for a lot of what happens within it. I just don't see how. It's been 18 months of minimal contact between me and the world with curated attempts at more—like sitting in this cafe today.

    Sometimes the change of venue helps though I have to insulate myself in these settings. I'm like an alien who needs to don their environment suit so that the atmosphere here doesn't poison me within hours to minutes.

    I get out of the house sometimes. I have doctor appointments. I shop for groceries. I even sometimes go out to restaurant or cafe, like today—sometimes even with my wife.

    Occasionally, I get in a bike ride but even that requires the reflexes of a healthy nervous system. The days that would be best for me to ride, I find my nervous system too strained and exhausted to trust myself to ride safely.

    Most days, I'm at home with the cats. I struggle to start and to complete chores. That's executive dysfunction and other fun autism-adjacent conditions operating on me. And this is with my ADHD medication.

    Often, I'll spend weeks immersed in computer games. Lately, I spend most of my time working on personal projects to automate the house, trying to use the tech we already have as much as possible to keep the costs down. Though I often wreck myself on these as I seem incapable of pacing myself, despite having attempted so many times and ways throughout my former career.

    I don't have a job. I don't see how to hold one down that won't rapidly lead to autistic burnout again (ASIDE: For the non-autistic readers at home, autistic burnout is a whole different thing from the kind that you know. *See below for more). The emotional labor of employment wrecks me; I know this with clarity now. I can only shake my head, having the hindsight of how I tried to develop systems to help me function in that environment. Torturous. Yet being unemployed, in the United States, is a source of shame. We're taught to be "fiercely independent" and "not to be a burden on society". Also, our social safety net system is intentionally designed to be hostile to use so there's that.

    I applied for Social Security Disability a few months ago. So... here I am.

    (* Courtesy of my self-hosted RAG system which, frankly, I needed an AI to help me setup because my nervous system can't handle too many of the steps involved anymore without losing the plot:
    1.Debilitating exhaustion - A profound, chronic state of mental and physical exhaustion that is more persistent and severe than typical burnout. Participants described being "drained, depleted and fatigued," with their "battery running dry."
    2.Loss of abilities - A reduction or loss of previously acquired skills and functioning, including:•Inability to process sensory stimuli (increased sensitivity to sounds, lights, textures)
    •Difficulty processing emotions, leading to meltdowns or shutdowns
    •Cognitive impairment, including memory loss, speech difficulties, and executive dysfunction
    •Inability to perform daily activities such as cooking, cleaning, personal hygiene, and self-care
    3.Increased sensory sensitivity - Heightened sensitivity to sensory input, where everyday stimuli that are normally manageable become overwhelming or painful.
    Source: Raymaker, et al 2020

    FWIW, I've read this and a lot of other studies on this. My AI just saves me time—after investing a shit load setting it up)

    #actuallyaudhd #actuallyautistic

  2. CW: AI

    Admission: I find myself increasingly leaning into AI.

    We've had some *serious shit* come up for our cats, over the past couple years. We've had a couple of them pass during this time. We have three now where two are grappling with serious shit: one with FGESF and another 16 y/o dealing with typical age-related stuff.

    Claude, in particular, has helped enormously searching for and digging into studies/the underlying medical science to get the best possible treatment. This has helped to aleviate a significant amount of my fear for their quality of care and life.

    FGESF... JFC. It's an enormously poorly understood condition where the science is slowly evolving. *I* (not Claude, IIRC) found a study that none of the internists we've worked with even knew about! But Claude has helped me keep an eye on the tests to ask for, the questions to ask, the medication protocols, all of it.

    As someone #actuallyaudhd, because of the extreme overwhelm of life at age 53, it's entirely too easy for me to lose track of extremely important details in their care. Doing this all without AI assistance? There would be unforgivable (to myself) errors in their care.

    Increasingly, I've been setting up a system at home, using my COVID-purchased gaming rig and its 3090. The power consumption is insane but at least it's only so when it's actively "reasoning".

    It is increasingly impressive, and a bit frightening too, how capable the models are becoming that can run on commodity hardware. Qwen3.6-35b-a3b runs fairly quickly and gives useful answers when connected up to a search engine. I also use it for "Retrieval-Augmented Generation" (RAG) to help keep track of cat care, given the sheer number of PDFs of instructions and data points that we receive for each cat.

    Of course, like with all technologies, it can be wielded for evil. It's already happening. And it's going to get worse. The democritization of AI, particularly through self-hosted open weight models, will certainly empower bad actors to affect more malicious outcomes at a likely exponential rate.

    I don't have data for this; what follows is my pattern-matching nature digesting information.

    The advent of (currently) increasingly skilled/"intelligent" LLMs seems likely to outstrip humanity's maturity. This is the latestsocietal inflection point where we are at high risk of self-destruction. The difference here: AI is more accessible than the technology to build nuclear weapons. I can't speak to how easy it is to build bio weapons. But that's the crux: AI seems poised to lower the barrier to entry for creation of deadly physical tools.

    Then, of course, there's the infrastructure-crippling InfoSec possibilities—and this seems the most immediate threat vector as it requires the least resourcing. We seem to have already seen an uptick in InfoSec attacks on infrastructure.

    This Pandora's box isn't going to be closed.

    While there's so much potential for good, if used responsibly, the opportunity for evil is enormous.

  3. You know those moments, in a really good story, when you hit an inflection point and everything changes? I almost wish that I could live within those moments. I think of B5, BSG, and Attack on Titan. If you know any of those stories, you know the moments I'm thinking about.

    I think it's an autistic thing. Some part of my mind attaches to one of these moments and then I find myself listening on some piece of music from the show on infinite repeat when I'm deliberately trying to lock in and hyperfocus on something.

    I "learned" this habit decades before I was diagnosed. The diagnosis created so many "aha" moments afterward—for instance, recognizing this behavior as decidedly autistic.

    #actuallyaudhd #actuallyautistic

  4. #Journal of a sore and tired Dutch AuDHD Pixy (Thursday, 27/08/2026)

    I got some sleep, but not nearly enough to feel like I had enough energy to deal with the new "day". I just wished for some nights where I could get some decent sleep. And I wished that I knew the reason of Koa's occasional whines... And to be able to help him to get to a point where he won't have a need to whine... How I wish he'd feel good enough so he can stop making me feel desperate... I want the best for him, but I'm finding it harder and harder to deal with his whining. 😢 I want so desperately for Koa to feel amazing, loved, and happy. And I need him to allow me to sleep longer, as I really need the energy to keep going on...

    Koa woke me up again, and it was time to start our "day". I let Koa out, fixed his food, took my meds, and then I got dressed. We got to the couch, where I got my tablet, and replied to an email of a sweet friend. I was allowed to take the new splint off for longer periods of time, to get some of the exercises done. I wasn't allowed yet to use the thumb and mouse yet, without wearing the splint. But, I found that I was able to carefully type a bit, while sticking to the therapist's instructions. The typing still went slowly, but it felt a bit better on my hands.

    When I had finished the email, I took Koa out for a short walk. When we came back, I fixed some brekkie and ate it. I worked on today's new blog post. When that was finished, I got my laptop, and started working on two journal Toots. As I had not been able to finish the one for Tuesday, I started with that. When it was done, I took out Koa for another short walkies. He got a meal when we'd returned, and I got back to some more typing.

    After some typing, I made myself some good, and ate it. I finished Wednesday's journal Toot, and felt rather relieved to finally have finished all the typing. I took out Koa for a bit of a longer walk. When we got back, I was hoping to get a bit of relaxing time, as it had been a busy morning. I had started the dishwasher, and just settled on the couch to watch a bit of telly. Unfortunately, Koa started his whining again. He sat near the kitchen door, and I figured that, this time, I kinda understood what he wanted from me...

    So, I got a towel, I got the water hose nozzle, and the furry brown idiot went wild! So, for a few minutes, I tried to hose down the grass, while trying to avoid the bouncing, jumping, wild doggo. I think he had a good time, and when it came time to dry him off, he enjoyed it some more. Even though this all seemed like a simple thing, I really needed to be able to relax a bit now. I did hear some little whines from the moist pup, but they faded away when he dozed off after all the excitement.
    Koa finally allowed me some TV time. I gave him a mat with some kibble. Then, I texted the neighbor, asking if she would be up for a walk with Koa, and maybe with me as well. I had not heard back from her, when it was time for another walk, so I took the dude out on my own again. We got back, and after a bit of time, I fixed his food.

    I wasn't sure yet if I would be up for another walk with the dude. But then, the neighbor texted, that she would be up for joining us for a walk. So, a few minutes later, I was putting on my shoes. I took Koa’s harness to the garden, where Koa was enjoying a bit of sun. He saw me with his harness and leash, and he ran to the gate and tried to peek through, probably hoping to see the neighbor. But, to his disappointment, she wasn’t there. I was able to put on his harness, and together, we went to the neighbor’s gate. After a wee bit of waiting, Koa gave out a loud bark. The neighbor came out, and Koa went nuts. I guess it’s safe to say that he really likes her. We went for a walk, and the neighbor helped me by taking the leash. We managed a rather long walk, and Koa was rather tired when we got back.

    I was really hoping that Koa would now be tired and satisfied enough to get a good bit of snoozing in. We went to bed, and I was also hoping to get a good bit of snoozing in. So, of course, there were many things causing me to stay awake, or wake up again after just dozing off. And, knowing my luck, I had finally managed to fall asleep, when Koa started to whine a bit.

    I got up, went to the loo, and let Koa out. He took a little sip of water, and followed me outside, where he just lay in the sun… After a few minutes, I really wanted to get back to bed, and try to get some real sleep this time. So, we went back, and after a little while, I finally managed some sleep. I woke up again when Koa whined again. Figuring it had been a while since he peed, I took him out, and he did it all. It was a little too early to get up, and I was still rather tired. So, I asked Koa for another chance to sleep a bit more. I had to bribe him with a snack. But, when he woke me up again, it was a decent time to get up, and it had allowed me a bit more sleep. So, we got up, and started our “day”.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  5. CW: Nothing bad at all! 😁 Just a little longer journal Toot, so this should save some folks from scrolling too much 😇

    #Journal of a bit more at ease Dutch AuDHD Pixy :pixy_party: (Wednesday, 26/08/2026).

    While Koa did wake me up a few times, I managed to get about 6½ hours of sleep. It’s a nice improvement from the previous 3, but getting less than 10 hours of sleep in two nights, it’s not enough. So, when I got up, I still felt like my body weighed a ton. But, perhaps it does, as I haven’t used the scale this month. I just could not be bothered, as there was no way that it was going to show me anything good.

    Today was going to be a busy one, but with some good things, so while I was tired, I was also looking forward to it. Koa and I started our “day” in our usual way. Koa got his meal, I took my meds and got dressed, and then we headed to the couch. I got my tablet, and started to type a reply email to a sweet friend of mine. I was still struggling with the cast, and my typing suffered from it.

    When I had finished the reply, I took Koa out for a short walk. We got back, and I fixed my brekkie, and I ate it. I got my laptop, and I started working on today’s blog post, as I still needed to get one ready, so I would not break my streak. It took some time and effort, but I was glad to have it ready in time.

    Koa and I went out for walkies again, and I fixed him some food. I started writing my journal toot, but my hands just weren’t really willing anymore. I lost my motivation due to all the soreness, so I decided to just let it be for now. I didn’t like not finishing it, but I had to stop typing for a while, and allow my hands the rest they needed. I put my laptop away, and fixed myself a meal.

    When mum texted me that she was on her way, I took Koa out for a bit of a longer walk. This way, hopefully, he would be tired and empty enough to be able to relax in his crate, while we were out at the hospital. We just got back when we saw mum arrive.

    I set up the tablet, so I could spy on my little dude again while we were out. We left for Nijmegen, and I kept a close eye out, still thinking about that time when he panicked so much, because he had forgotten to drink before he went into the crate. I was so glad that we were able to get back to him then, and that’s why I am checking on him now, every time he’s home in his crate when I need to head out.

    He was a bit restless. Nothing very bad, but he couldn’t seem to calm down long enough to get some relaxing done. I was just texting a neighbor, to ask if it was busy/loud outside behind our houses. She confirmed, so I knew that Koa was just getting distracted by the noises of the folks working there. I was called in while I was just thanking the neighbor for the update.

    The therapist asked me about my issues. I tried to explain as best as I could. He took off the splint, and checked my hand. He started making adjustments to my splint. But, he wasn’t too pleased with how my thumb and wrist were positioned, and he needed to adjust the splint to correct that. When he started doing just that, tears started rolling down my cheeks. That area was still so very painful, and he had to apply quite a bit of pressure for the time it took the splint to cool and harden. He gave me some exercises to do during the next 9 days, as I would see him for my therapy on September 4. I thanked him for the adjustments, and for giving me a little cry (I did that with a wink and smile), and then mum and I headed back to the car.

    I texted my friends that we were on our way to Koa again, so they knew they could come our way once they were ready. Mum helped me to change the plaids on the couch, as the ones on it were in serious need of refreshing. When mum was done, she headed back home again. I got everything ready for my friends, and then Koa wanted to head out for walkies. So, I texted my friends that we headed out for a bit, so they would know where we were.

    When Koa and I were almost home, our friends were just driving up. So we met them at the car, and then we headed to the house. Koa was all hyper and excited, and it took a little while for him to get a bit calmer. We chatted for a while, while I tried to keep Koa from getting too wild again. Koa got his meal, and after some time, he hinted he needed a walkies. Our friends joined us, and we had a nice little walk in the sun. We got back, had a bite to eat, and then our friends got ready to head back home again.

    I slowly prepared everything for bedtime. I was hoping that Koa would feel good and tired enough to allow me some decent sleep. It took me a little time to finally get comfy enough with the new splint. And, just as I dozed off, you guessed it! A buzzing terrorist came to wake me up again. I got out the deet, and turned on the UV swatter. I had just dozed off again when I heard the loud crackle, meaning at least one terrorist had committed suicide. After I dozed off once more, Koa allowed me a couple of hours, before waking me up with some whining.

    I went to the loo, opened his crate, and he didn’t come out at first. Then he came, went outside, and after a few minutes, it became apparent that he didn’t need to do anything. So, we got back to bed again. A bit later, I heard a few whines, and I listened, and I heard Koa doze off again, so I did the same. When he woke me up again, I saw the time, and understood why he used a little different whine, as it was time for food. So, we got up, and we started our “day”.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

    PS. Picture was taken on Tuesday, as I didn't take any pictures today.

  6. CW: Nothing bad, some good news really, just a little longer Toot, so this should save some folks from scrolling too much 😇

    #Journal of a double celebrating Dutch Pixy :pixy_party: (Tuesday, 25/08/2026).

    I had a crappy and short night. All the worries over Koa and the plushies tail were taking its toll. Time was running out, and we were getting closer and closer to needing to call the emergency vet. I was rather stressed, but thanks to the help of our sweet friend, at least I knew what to do, in case things were going the wrong way. Koa woke me up several times, and every time, I was hoping for him to produce some smelly brown stuff.

    So when it had finally come, I was so happy, relieved, and excited, that I stood crying with a smile on my face, while Koa did his thing. When I realized that the plushies tail had come out, I cried some more. I was hoping to get some more sleep now, but it seemed that Koa's belly was too upset, and he kept whining from time to time, and because I could not be sure that he didn't really need to go out... I got up, with a little less than 3 hours of sleep in total, to go out and out, every time Koa indicated it to me. Most of the time, he just sniffed around, and lay down to relax. I wished he'd let me relax every now and then, because I was tired before all this, but now I'm truly exhausted. Three hours of sleep, with all the stress, worries, and anxiety... It's not nearly enough, but it's all I got.

    I tried to start the “day” as best as I could. The relief of the tail coming out was big, but it didn’t take away how exhausted I felt. But, part of me needed to keep to our current routine as much as I could, so after I fed Koa, and had taken my meds and got dressed, we got to the couch. I got my laptop out, and wrote an email reply to my friend. After some time spent writing, Koa indicated that he had to go out. So, I put on my shoes, and we went for short walkies.

    During the walk, Koa brought me an even better feeling of relief, as he made a nice, decent sized, poop. So I could breathe a bit more easy now, knowing that it all looked like it was going to be OK. We got back home, I fixed myself some brekkie. I started writing my journal toot after that.

    I was having issues with my splint again. It felt like it was too small, as my hands and fingers were warmer now, then when it had been made. And, I had been retaining a bit more fluids, so I was a bit more swollen as well. It really started to hurt in several places. It made it harder to type with it, so I had to do even more with my left hand, making me even slower.

    I walked a short round with Koa again, and fixed him some food. I was still working on the journal toot, but due to the pain and being too tired, I struggled to keep motivated to keep writing. Bit by bit, I managed to add text to the post, and when I was finally done, it felt like I had written a book. And yeah, it was a longer toot, but it had just taken me so much time and effort...

    I uploaded it to the usual places, and then I fixed myself some food. I ate it, and followed it with a longer walk with Koa. When we got back, I really wanted to relax on the couch for a bit, before my mum would come to take us to my physio appointment. But, I guess the fatigue and all the stress of the previous days was coming out, and I had to rush to the loo. It wasn’t a pretty sight, and made me feel even more uncomfortable.

    When mum came, I called the hospital about my splint. I explained the situation, and the lady on the phone understood that this needed to be looked at sooner than later. She asked when we could come, and fortunately, mum had the car the next day. We made an appointment for the following morning, which I felt good about. Then, I realized that friends were coming over that day too. We should be back in time, but with hospitals, you never know. So, when mum drove us to the physio, I texted my friends to tell them I needed to visit the hospital first. We made plans to make sure all would go well, and that was done.

    My physio appointment went well, and mum, Koa and I headed back to Herpen. I made a quick pit stop at the supermarket, and then we went home. Mum let Koa out on the grassy field behind the house, while I put away the groceries, and fixed Koa’s food. Mum went home, I snacked a bit, and then I got everything ready for bedtime.

    Koa’s breeder had asked for a nice picture of all the pups this day, as this was their 6-month anniversary. I took Koa into the garden, and tried to take a snap of the dude. He was goofing around at first, but in the end, he even posed for a proper picture of him.

    I did start to get a bit worried again though, as his bowels weren’t back on track yet, and he had not pooped again since early this night. And the 24-hour rule was still fresh in my mind. But, we still had several hours before we’d get to that point. And, as I was almost keeling over from exhaustion, it was time for Koa and I to get to bed.

    Unfortunately, my hand and arm were not allowing me to properly relax for quite a while. When I finally dozed off, I could only get a wee bit of sleep, before Koa woke me up again. Because I was eager for him to go potty, I went outside with him every time he woke me up. When he gave a bit of a louder whine, I knew it was time to get up. We quickly went outside, and after some time, there came a poop. Yay!

    I was glad that I got a bit more sleep, but it had been broken up in many short bits, and it wasn’t nearly enough to help me feel more rested. But still, I fixed Koa’s food, took my meds, dressed, and we had started our new “day”.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  7. CW: Nothing too bad, some venting, but a good ending... Just a long journal Toot... 😊

    #Journal of a very worried Dutch AuDHD Pixy :pixy_party: (Monday, 24/08/2026).

    After a broken, and a bit short, sleep, Koa and I got up to start our “day”. Koa went outside, and he pooped. While I was cleaning it up, he went for a second poop. This one started soft, and ended runny. Which worried me a bit, as it could be a sign that his bowels were struggling too much with the plushies tail, which he ate the previous night. He wasn’t a happy puppy, although fortunately, he didn’t show any of the warning signs, and he was still doing things like eating, drinking, playing. But I could see that he didn’t feel too good about it all.

    I got dressed, fixed Koa’s dinner, and I took my meds. Koa ate his food without issue, which was a good thing. He was restless, and whined every now and then. I felt so bad do something, anything, to help him feel better again. I tried to comfort him as much as I could, while also trying to write an email to my sweet friend. I felt a bit sorry for my friend, as the last few emails I sent him, they were mostly me venting about all my worries for Koa. But it did feel like he really was the center of my world, as I spent a lot of time worrying over him. Raising a puppy on my own has proven to be quite difficult at times. And the situations with my back, and now my hand, add even more challenges to it all.

    When I had managed to finish the email to my friend, I took Koa out for a short walk. We got back, I fixed some brekkie for me, and after I was done, I started working on my blog post for that day. I got interrupted every now and then, by a little whine from Koa. As I didn’t know if this was due to his ears, or due to him eating that tail, I tried to be there for him as much as I could. This way, I hopefully would not miss any signs of Koa struggling too much.

    I finished the blog post. I took Koa out for another walk, and he only peed again. We got back home, and I fixed Koa another meal. Fortunately, he still had his appetite, and he also was still drinking well enough. After a little while, I texted my coach, telling her about the situation with Koa, and how worried I was. I asked her if she could help me to call the vet, as I was already in tears over the stress. Koa had swallowed the tail around midnight the previous night, and this night, his poop turned to diarrhea, which is usually a sign that something is not going too well in the bowels. She texted me that she would make the call, and try to be at our place as soon as she could.

    Unfortunately, she had not asked the questions that I told her were important to me, to be able to deal with this situation appropriately. When she got to our place, she called the vet again… And again didn’t ask my questions. She kept hanging on the part that I already knew, the part that didn’t help me. And she kept repeating the things she had found online, which sounded like she had swallowed an AI generator (as I had used AI myself to check on the things I thought I knew were indeed correct), and it was a bit annoying. She kept focusing on the “positive things”, but I kept telling her I needed to know about the negative ones, and how I would need to act if any of those would happen later… So that was not really helping me.

    We walked Koa for a while, and still no poop. When she left, she let me know to update her before 17, so she could check with the vet, so I could be prepared for the evening and night. I had a bit of hope that she finally understood what I needed, and I would make sure to give the best update later that day, so she could check, and prepare me for the situations that could happen.

    I tried to relax for a little while, as all the worrying, and the lack of decent sleep, was getting to me. I was so hyper vigilant of every sound that Koa made, of every little thing he did, so worried that something in his behavior would change, and not in a good way. So while I really needed to recharge my battery a bit, I could not switch myself off for a bit, as my focus was so strong towards keeping an eye on Koa… I was so worried that I would miss a sign, a warning, and then realize it too late. The trauma still has a strong grip on me, unfortunately.

    I walked with Koa, and when it was time for his meal, he still ate it like a mad-man. Which was a good sign. When it was time to get ready for bed, I set an alarm, so I could update the coach in time, so she could make the promised call for me. Turned out I didn’t need the alarm, as I barely managed to sleep for half an hour. Then I woke up from Koa whining a bit, and I wasn’t able to sleep some more.

    I took Koa out to the garden, and started typing all the observations in a chat with the coach. And… Nothing happened. No indication that she read the messages. No reply. Absolutely nothing. Around 17:15, I texted our friend that had helped us over the weekend. She immediately asked me about my worries, about my questions, and about my observations. And then, she made the call for me. After a few minutes, she updated me. We discussed it all, and then she made a second call for me. While she was on the phone for me, I got an incoming call from the coach. I ignored it, as it had been an hour since I shared everything with her… She sent a text, which was not helpful at all, and, as later turned out, was very bad advice for Koa’s situation.

    Our friend asked if she could call me to discuss the outcome from her call with the vet. I was sobbing a little, and I told her so, but also told her it was OK to call me. While she explained everything to me, I got even a bit angry with the coach, as she broke her promise, she made light of it, and her advice was not good at all… When we ended the call, I wrote a long text, where I told her that someone else made the call because she never responded. And that what she had told me to do, was bad advice, and I told her what the right advice should have been.

    I wanted to sleep, I was so tired. But I was also worried, and my body was sore all over. I finally dozed off, and managed a whole 2½ hours of sleep, until Koa woke me up again. It was a different kind of whine, and I got up fast to take him outside. Within a few minutes, Koa started to bend down and… One poop came out! I was so excited, after 23 hours, he finally pooped. I got my bright headlamp, and with my left hand, I tried to examine it as good as I could. And, if I was not mistaken, part of the poop seemed to be formed by a tail! It really looked like the whole thing had come out in one piece!

    I was very excited and happy about this. I tried to get back to bed, but I guess that pushing that thing out had brought some discomfort to Koa, and as soon as I was in bed, he started whining. So, totally exhausted, sore all over, but also extremely relieved, I got up, again, and Koa and I started our “day” a little early.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  8. CW: A bit of a long journal Toot, where something happened that made me rather worried and sad... Nothing triggering, I think, but almost 6k characters, so it may save some folks from scrolling too much 😇

    #Journal of a very worried Dutch AuDHD Pixy :pixy_party: (Sunday, 23/08/2026).

    After a bit of a broken night, Koa and I got up to start our “day”. We did all the usual things, and then we got to the couch. I got out my laptop, and started to write an answer email to my sweet friend. Koa was next to me, playing with his IKEA dachshund plushie. At some point, it fell to the ground. While I picked it up, I heard Koa chew. When I saw the plush, I realized what he was chewing on. But by the time I had my left hand free to check his mouth, it was gone. I panicked for a while, and didn’t know what to do.

    I tried to look up the actions needed, after such a happening. Koa could get an injection to induce vomiting, but it was most effective when administered in the next 1-2 hours. I started crying, as there was no way that I would be able to arrange someone to drive us to the on duty emergency vet, depending where the vet was. So I cried some more, and looked up the rest of the recommendations. I felt so guilty for not having the means to get Koa to a vet in time, and I even considered just calling the vet, and daring to drive myself. But that idea was struck down by an immense fear, as due to the surgery and splint, I was prohibited by law to drive. And, if something would go wrong, I would also not be insured (and I still couldn’t get Koa the help he needed in time). I was a wreck and so confused as what to do. I cried for quite some time, while bullying myself for not being a responsible humom.

    I texted my friend about what happened, as I needed to share it with someone, and I was hoping she would have some advice that I could use. I had looked up all the things that I needed to keep an eye out on, and decided to just keep monitoring like a hawk. I managed to finish the email to my friend. Every time Koa made a weird sound, or did something, I went to check on him. I was so terribly worried…

    When I had finished the email, I took Koa out for a walk. He behaved like he usually does. He peed, he pooped, and had all the sniffs. We got back, and I fixed my brekkie, and ate it. I started writing my journal toot. When Koa let me know he wanted to go out, I got ready for another walkies with him. He was still his usual self, but that didn’t stop me from worrying every second.

    We got back from walkies, and I fixed Koa’s meal. He was still eating like a hungry Lab, so I guessed that this was a good sign (so far). What made watching him a bit harder, was that before the swallowing of the tail, he already made the occasional whining noises, probably due to his ears. So, I told myself that so long as the whining didn’t change in any ways, it wasn’t due to the tail… Or so I hoped…

    I made myself some food. I had a lasagna, easy to make, and able to eat with just one hand. While I was eating the lasagna, I started to feel nauseated. At first I thought it was because there were some mushy bits of carrot in it, that didn't feel good in my mouth. But that normally wouldn't make me so nauseous. I didn't finish the meal. And within 15 minutes, it was all coming back out. When I checked the packaging of the lasagna, at the end of the ingredients list, I found the cause of my throwing up: zucchini. The lasagna I usually buy, they don't have the carrots or the zucchini, so I didn't realize I should have checked the ingredients for this one.

    I felt a bit better again, but still felt so worried about Koa. I tried to do the usual things, while keeping an eye on the dude. During the walkies, he acted all normal. And then, when our friend came, he was all excited and happy. He showed most of his usual behavior. The only thing he now also did with our friend, was to grab her hand or arm, and he nibbled and kinda sucked while he did this. He did it more than usual with me already, but now he did it to her too.

    I kept being unsure if waiting for it to hopefully come out on its own was the right thing to do. But what could a vet do now? It was way too late for the vomiting trick to work. Maybe they would take an x-ray to see where the tail was... But then? I was so worried, so conflicted, because I wanted to get help for him, but it would probably be too expensive for me to afford, even with the insurance (if they would pay me back for costs like these...). I felt like such a bad person for not immediately calling someone to get Koa the help he could/would need.

    Our friend walked with Koa for me, so he could get his walkies, and I could get some rest. I glanced at the tracker app every now and then, and saw that our friend was spoiling Koa with a rather long walk. So I had a bit of time to relax and prepare for bedtime, and Koa got some exercise in, which could help him with his excessive energy.

    When they came back, I had one more challenging question for our friend: if she would be able to sow up the Dachshund's butt, so that Koa could take it with him for bedtime. It was a challenge for her for sure, but, in the end, the plush had a sowed up butt. Yay! I thanked her again, and then she headed off to another appointment. She had been a great help, and Koa and I are lucky to have her as a friend.

    I got everything ready for bed, and Koa and I headed to the bedroom. When Koa finished his snack, and had a bit to drink, he made himself comfortable, and slowly dozed off. Unfortunately, it took a while longer for me to doze off. And, when I was finally snoozing, Koa woke me up for a drink and potty break. I slept a bit after that. When Koa woke me up again, it was still a bit early. But the way he whined, it sounded like potty break. And since he still had the plushies tail in him, I quickly got up, got Koa out of the crate, and we started our "day".

    Would this be a good day, where Koa would (hopefully) poop out the little tail?

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  9. CW: Nothing really triggering bad, but a bit long journal Toot, where I write about some struggles with Koa... But the CW should save some folks from scrolling too much 😇

    #Journal of a worried Dutch AuDHD Pixy :pixy_party: (Saturday, 22/08/2026).

    After a bit of a mixed night, Koa woke me up again, and informed me that it was time for us to start our “day”. I fixed Koa’s food, took me meds, got dressed, and then, we headed to the couch. While I was busy, trying to write an answer email to my sweet friend. While I was busy typing, Koa was busy chewing on one of his snacks. And yes, I checked to make sure if it was a snack, and not something else he was secretly trying to destroy.

    At some point, I heard Koa gobbling up his snack too quickly, and I think it got stuck in his throat for a while. Koa was stressed, and he drank almost all of his water-bowl in one go. He was panting, whining a bit, and constantly grabbing for my hand. I did my best to check his mouth and throat, and I could find nothing stuck somewhere. So I thought that the last bit of the snack had been stuck for a little while, which caused him the distress. As it took some time for Koa to settle down, I texted a dear friend that I was worried about him.

    The panting got less, he had a normal pee and poop, he was able to eat without any visible issues. The only thing that remained, was the occasional sad whining. But the difficult thing was/is, that Koa has always been a bit of a whiner, ever since he came to live with me (probably due to his ears). So I had no idea what these whines were about, making me worry all through the night.

    After I finished the email to my friend, I took Koa out for walkies. He did all the usual things in his normal ways. But, when we got back, there were moments again where Koa let out some of his sad whines. I made and ate my brekkie, and then I started writing my blog post for that day. Koa seemed to relax a bit more. But, every time he whined a bit again, I felt it through and through. I felt so helpless, as I felt like he was dealing with some sort of discomfort, and I just wanted him to feel better again, but I didn’t know how to help him.

    I scheduled the blog post, walked another short round with Koa, and fed him his meal. I watched him closely, and I saw no issues with his eating. But shortly after he finished, he lay down, and there was some whining again. I tried to comfort him every time when he whined, but I still felt like I should be doing more to help him feel better.

    I started writing my journal toot, but my hands were tired, and I had to take it easy for a bit. I fixed some food, and when I had enjoyed it, Koa wanted out for another walk. After the walk, I tried to relax a bit, until our friend was coming. She texted that she was on her way, but Koa hinted that he needed to go out. I texted our friend that we were heading out for a short walk, and just as Koa and I were heading out the door, our friend walked up to our home.

    We went for a little walk, which seemed to make Koa happy. We talked about what happened with Koa during the night. Our friend observed Koa for a while, and of course, Koa didn’t show any of the signs, as he was too excited of her visiting us. She checked some of the things that I had observed with Koa with some info she found online.

    The trouble is, that I don’t really have a “natural baseline” for Koa. When he came to me, he whined every now and then. But, it was stressful, being away from his family. And, when he moved into my home, he already had some issues with some ear wax. So, he could have been dealing with his ears already then. He never completely stopped the occasional whining, but then, his ears weren’t being treated yet, as I didn’t know that he was suffering from the infections. So, it’s making it very hard for me to know the actual reasons for his whining. He doesn’t do it all the time, and he’s not really showing any other clear signs that he’s in some sort of discomfort.

    It’s also harder for us to really find out what Koa is dealing with, as he never showed any of the clear signs of dealing with ear infections, except maybe the little whines, so there are no diminishing signs to show us that the treatment is working. And… He will be 6 months in a few days time, so there is so much happening in his body and mind. He’s still growing, so there’s always a chance of growing pains. He’s hitting puberty, so that means a lot of changes too. And, if he has been dealing with his ears since he was just a wee lad, then it will be strange to him what could be happening to his ears now, as the meds are (hopefully) destroying the infections.

    We tried to find out all we could, and the answers we found were good, but inconclusive, as we can’t be sure of any of it. There are moments where I wish dogs could just talk to us with words. So Koa could tell me why he keeps whining every now and then, so I could make sure to do anything possible to help him feel better again.

    My friend joined us for a nice walk, and then she got ready to head back home again. Of course, within a few minutes, Koa lay himself down again, and did the little sad whiney thing again. I tried to capture it on video, so I could share it with our friend. When she heard some of the little whines, she understood why they worried me some. So I’ll just keep monitoring Koa as best as I can, so I can give him the best support.

    Koa had his meal, I had a snack, and then I got everything ready so we could head to bed. It took me quite a while to get comfortable enough to doze off, as my hand was being annoying. When I was finally snoozing, Koa woke me up to get a drink, and go potty. We went back to bed after that, and I managed to get some sleep, until Koa woke me up again. We went outside, Koa did his thing, and back to bed again. Koa whined a bit again, and I checked the clock, and told Koa I needed a bit more sleep. And, for some magical reason, he stopped whining, and we dozed off again. An hour later, Koa told me that it was, in fact, now time to get up. So I did, and we started our “day”.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  10. #Journal of a sore Dutch AuDHD Pixy :pixy_party: (Friday, 21/08/2026).

    After a bit of a broken night, Koa woke me up to let me know it was time for a potty break, to be followed by some delicious food. So, I got up, and we started our "day". I let Koa out, fixed his meal, and I took my meds. I got dressed while Koa was eating. When we were both done, we headed to the couch. I got my laptop, and started writing a reply email to a sweet friend. It took me a while to get it finished. When the email had been sent, I took Koa out for a little walk.

    We got back, I fixed some brekkie, and then I worked on a blog post for that day. Typing was slower than usual, as I was having some issues with my splint being too tight in some spots. After I was relieved that I would not break my long posting streak, with a new post ready for the day, I started writing my journal toot. When that was finally finished too, my hands needed a bit of rest. I walked with Koa first, fed the dude, and then… I tried to relax a bit with some telly.
    I fixed myself some food, texted my mum about my issues with the splint, and that I was getting myself prepared to call the hospital as soon as I could, to see if they would be able to adjust the splint, so it would hopefully hurt me a little less.

    When it was time to call the hospital, I hoped that I was prepared enough. Calls just make me so anxious, especially with strangers, and when I need to explain things about my health, to try and get them to help me. I explained my situation, and the person who would have to handle this wasn’t in yet. So, they made a note and promised to call me back.

    And then, I anxiously waited for them to call me back. I had no idea when to expect their call-back, and in my mind, I kept going over and over of what I needed to discuss with them, when they would call. I had hoped to discuss everything when I called them, but now I needed to be ready for them, which was costing me a few of my scarcely available spoons.

    So when they finally called me, I did my best to tell them about my issue, and ask them for help. And... I managed to get an appointment with them at 11:30. I let mum know, and she would be here in time to pick me up.

    She texted me when she was on her way, and I took Koa out for a walk, so he'd be OK while we were at the hospital. Koa and I had a nice walk, and he did his things, so I was happy about that, as it would hopefully mean that he would be able to relax while mum and I were out. When we got back, I set up the tablet to use as webcam, as it proved to be very helpful the last time we went to the hospital.

    We left the house, and I eagerly kept checking the webcam app, as I was a bit anxious due to what happened last time we went to hospital. But, after a few barks, Koa quickly settled down. He was alert to sounds coming from outside, but he was quiet, and lay himself down after every sound disruption.
    We got to the hospital a little early. Mum wanted to visit a store for me, after the appointment. As there still was some time, and I didn't want to stay away from Koa too long, I suggested that mum would go to the store, and I would go to the appointment, and I'll meet her at the pick-up area in front of the hospital when we were both done.

    I was texting a friend, when I was called in early. So, I went along with the lady, and I explained the issue with the splint. While the lady was working on it, I got my phone to check on Koa. I left it on, so I could keep an eye on him, while the lady went back and forth to get the splint adjusted properly. He was being a very good boy, and I just felt proud of him. When the splint was done, the lady gave me a new fabric tube to go over my arm, under the splint. I thanked her for her help, and went downstairs, where I found mum already waiting for me.

    We got back home, and Koa was the happiest dude. While we were heading home, the new tube had started to hurt my hand and arm. So, mum helped me to change it back to th and old one. It didn't go all too well, and some tears were shed. But it felt good to have the tight fabric come off. The splint got back on, and I fed the dude, as it was a little past his meal time. When he finished, mum headed back home, and Koa and I relaxed for a while.
    I slowly got everything ready for bedtime. After some telly time, Koa and I got settled for some snooze time. It was a bit of a broken night, with my hand annoying me, and I could not get too comfortable. Koa woke me up a few times too. When he woke me up the last time, I would have preferred another hour of sleep. But, Koa needed to go potty. So it was time to get up and start our "day".

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD

  11. #Journal of an exhausted Dutch AuDHD Pixy :pixy_party: (Thursday, 20/08/2026).

    After a mixed night, we got up when Koa let me know it was time for a potty break, followed by some food. So, I got up, let Koa out, fixed his meal, took my meds, and then I got dressed. When Koa finished his meal, we got to the couch. I got my tablet, and wrote a reply email to my sweet friend. While I was writing, Koa had been busy with his snack. I could not see him, but after a while, I thought his snacking sounded a bit different. When I got up, and went to check on him, I saw the reason for the change in sounds… The little idiot had switched out the snack for a corner part of my skirting boards. Or, what was left of them… I got angry, both with him, for chewing up my boards, and with myself, for not realizing sooner that this sound wasn’t coming from the snack. I grabbed him by the neck, with some louder verbal support, and got him in his crate. *Sigh* I had been hoping the chewing would become less, after the teething was done. But unfortunately, I have been proven wrong, resulting in the death of a cool old controller, and now parts of the skirting boards.

    When I finished writing my email, Koa and I went out for a little walk. Back home, I fixed myself some brekkie. Then, I wrote my journal toot. It took me a while to write, as my hands weren’t really into it. So when I had managed to finish it, I was glad to give my hands a little rest, before it was time to take Koa out on another walk.

    We got back, and I made Koa another meal. I was tired and sore, but fortunately I had no appointments for today. So Koa and I could take it easy, even though I felt like Koa would want a bit less easy, and a bit more action. I still struggle with not being able to offer him what he needs at the moment. And I still feel guilty over never realizing that he had been struggling with an ear infection… Ugh…

    We relaxed for a little bit, watching some telly, trying to give my hand a little bit of rest. Of course, trying to scroll on my phone was not really giving it a lot of rest… You never realize how much you use your hands, until you can’t use one of them. And, this is not my first time in a cast/splint. It’s not my first hand surgery, although the first (and hopefully last) on my right hand. But me, being very dominant with my right hand, and having a left hand that’s not working fully properly… It’s quite challenging, and I guess having to care for Koa makes it even more than that.

    But, I want to take care of him as best as I can, and I hope that this way, Koa will also learn that there are times when I can do more, and times when there is less. But, I will always give him my best, and I hope that he will learn that as well. I try to give him all I can, and at times, I try to ask help from friends and family to provide Koa with some of the things that I can’t offer him at the moment.

    We spent some time trying to relax, and enjoying an occasional little walk here or there. I tried to open my bedroom window. But, something went wrong, and it got unlatched. I wasn’t able to get it beck, and to be honest, I didn’t know how… So, I texted my poor neighbor again, with a request for help. She came over, and tried loads of things, but the stupid window would not budge. So, I had to be brave again, and make a call with the rental coop, asking for their support.

    While I was on hold with the company, mum came in with some groceries. I told her I was on the call, but she still babbled through it, while I tried to understand the lady that had come back on the line. The lady scheduled an appointment, which would not be for several days, and it got me a bit worried, as I was not able to properly close the window now. Just a few minutes after the call, they called me back, saying a mechanic was in the neighborhood, and he had some time to pop the window back! Yay for that!

    Mum helped me with a few little chores, then the man came, and fixed the window in a blink of an eye! And the worst of it is, what he did, was something the neighbor had tried several times… He went on his way, and when mum was ready, she headed back home too. I fixed Koa’s meal, and slowly prepped everything to head to bed.

    Koa and I relaxed a bit, he went into the garden, and then we got ready for bed. It didn’t take too long for the both of us to doze off. I woke up for a bit, when a buzzing terrorist zapped itself in the UV swatter. The next time I woke up, Koa and I had a little potty break. We got back to bed, and quickly dozed off again. Koa whined a little bit, which woke me up again, and I realized that there was a bad thunderstorm happening, to which Koa reacted. I told him all was OK, and even with the storm still happening, we dozed off again. The next time Koa woke me up, was a good time to get up and start our “day”. It was a bit of a broken night, but we did get some sleep here and there.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  12. #Journal of a sore and tired Dutch AuDHD Pixy :pixy_party: (Wednesday, 19/08/2026).

    Fortunately, I had been able to get some sleep this night. I know I needed it very much, after the very short and broken previous night. Around midnight, Koa woke me up, and let me know it was time for a potty break, followed by some food. So, I obeyed the dude's wishes, and got up. I let Koa out, and prepped his food. While he was eating, I got dressed. When Koa was finished, we got to the couch. I got my tablet out, and wrote a long reply email to my sweet friend.

    When I finally finished the email, I took Koa out for a short walk. It was a rainy night. And nature needs the rain, but it makes the walkies a bit more challenging. When we got home, I fixed myself some brekkie, and I enjoyed it. After I finished, I wanted to start writing my journal Toot, but I remembered that I had not scheduled a blog post for today yet. And I didn't want to break the awesome daily posting streak that I've been able to keep going for so long...

    I had already started working on a post, which made it easier for me to keep going to finish it. When I was finally done with it, it was time to start writing my journal Toot. My hands were getting tired, and the right one was getting more painful, so I had to take my time to be able to finish the Toot. But while I was writing, it was time to take Koa out into the rain again. I fed him when we got back, and then I got back to finishing the journal Toot. When it was done, I uploaded it to the usual places.

    Then, I had a little time to try and relax. My body was still very sore. And whatever I tried, I kept feeling pain and discomfort... It didn't help that I was also still feeling rather tired. I tried to relax as best as I could, and I tried to walk a short round with Koa every now and then. Koa wasn't too pleased that we weren't walking bigger walks. I saw that he was eager to let out some of his pent up energy. So I texted our neighbor, asking if she would be willing and able to take Koa for a longer, and more challenging, walk.

    Koa had just finished his meal when I received a text from her, letting us know she'd be able to walk with the dude. I made sure that the dude was all ready, and he was very excited when he saw the neighbor through the fence. They went out for their walk, and I was able to relax a bit on the couch.

    I was just sorting my meds and bedtime supplements, when the dude came bouncing into the bathroom. He had some time in the closed off doggy pen, and apparently, he enjoyed a few minutes of very crazy zoomies there. I thanked my neighbor, and then took the pills. I relaxed for a little while, while I was waiting for Koa's breathing to calm down again. When it did, I got us both ready to head to bed.

    Koa dozed off rather quickly, but I wasn't so lucky. It took me quite a while before I was able to doze off. And, of course, knowing my luck, I had just dozed off, when an annoying buzzing terrorist started doing zoomies around my head. Ugh... It took me a while again, before I was finally able to get some sleep. Koa woke me up after a while, needing a potty break. We both did our thing, and then went back to bed again. I was able to doze off again, and slept until Koa woke me a bit before midnight, informing me that it was time to go potty, followed by a nice meal. So, I got up, and we started our "day".

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  13. CW: Nothing really bad, just quite a bit of frustration... But it's a 6700 character Toot, so this should save some folks from scrolling too long 😇 CW on picture due to showing two week old scars with several stitches visible as well.

    #Journal of a very stressed Dutch AuDHD Pixy :pixy_party: (Tuesday, 18/08/2026).

    Due to me waiting endlessly for my meds to be delivered, there wasn't much time for me to catch some sleep, until Koa would wake me up again for his pee, poop, and, of course, food. When I just dozed off, a buzzing terrorist 🦟 decided to hover around my head, making me very cranky. When I applied the deet, and turned on the UV swatter, it took a little while before I managed to doze off again. After just two hours, I woke up for the loo. I decided to take Koa out for a wee, and gave him some kibble (as I always do) when he went back to the crate. I had given him a little extra, hoping it would buy me some more time to sleep.

    Unfortunately, Koa woke me up again around midnight. So, after about 4 hours of sleep in total, feeling like utter crap, I got up to start our "day". I let Koa out, and then I fixed his food. While Koa was enjoying his meal, I tried to get dressed. My hand was swollen enough to make it hurt more again, so getting dressed was a bit more challenging. When I was done, I had to make due with my short working meds, because I never received the ones I had been waiting on for so long... When Koa had finished his meal, and I took some of the meds available to me, we got to the couch.

    I got my tablet out, and worked for a while to write a reply to my sweet friend's email. When I was finally done, as typing is still so slow these days, I took Koa out for a little walk. I fixed my brekkie after that, and then I started writing my journal toot. It was a harder one to write, as I still felt much of the stress and frustration of the previous day. I seemed to be typing for ages, and when I was finally done, I felt a bit of relief, in a way. But my hands also needed a proper rest. So, I tried to relax for a while, as best as my body was allowing it. And after a bit, it was time to take out Koa for a walk again.

    When we got back, I fed the little monster, and made some food for myself. Unfortunately, my food made me feel so very nauseous all of a sudden, and I had to rush to the loo. So, besides feeling terribly sore all over, I now was feeling super nauseous as well. This was going to be a fun filled day...
    I walked a short walk with Koa again, and then I tried to get a bit more relaxed. The message from the hospital said they'd call at 8:30, so of course I made sure to be ready for it. And, of course, the left me waiting till 8:50 before they finally called. Ugh, how I dislike people treating others that way... But I could have known, as I had dealt with this person before, and they left me waiting for ages before finally contacting me before as well.

    They started with some sort of apology about the confusion concerning my canceled appointments. I was supposed to receive a call last Friday, from the planning folks, where they should have explained that they made an error with the planning... But nope, they just deleted the appointments, and that was it... So I guess she never read my message properly, as I clearly stated that I had received no form of explanation... Ugh... The rest of the call was rather tedious, as it was the same stuff as after my previous hand surgery. Still the same comments of all I should be doing, and still the same resistance when I tried to explain to them, again, that due to how my brain communicates with my body, the standard things just won't work for me. They still pressed on about how I should at least try certain things... I stopped explaining that those things had not worked for me for all my life, so I doubted they would magically start working now... I just didn't have the spoons for this stuff...

    The dreadful call lasted for half an hour. I was even more exhausted than before, when the line finally disconnected. Soon after that, my mum arrived, and we got ready for her to help me take a well needed shower. It was a bit of a hassle, but in the end, I did feel a bit better. I still don't like the sensation of the water, and it's even harder when you're not the one in control, but it was worth it to feel a bit more refreshed again.

    When I finally managed to get dressed again, Koa was showing me he was a bit displeased with my lack of action. I should have walked with him after the phone call, but I really needed to shower first, to get that done. So, mum and I took Koa out for a little walk, which seemed to please the dude, so that was a plus. When we got back, mum wanted to get the vacuum out, as it had been two weeks since it was last done. I tried to gather some courage to make a phone call, as I had to find out what happened to the meds that I really needed. So, I made the call, and explained the situation. They told me they'd check, and then call me back. Which they did, a few minutes later. And it turned out, my meds had been delivered, sort of... They had put them in the mailbox! While I sat there, waiting... And while last year, when I had asked them if it were possible to get meds to the mailbox, as I could not be home all afternoon, since I needed to take Arwen out at times. And the man told me, with great conviction, that they were never allowed to do that, due to theft. They needed to deliver it to a person, answering the recipient's door... So yeah... Never believe what they tell ya, I guess... 🤔

    So, I hung up, frustrated with yet another thing that just made no sense at all, and I went to the mailbox to get my meds, finally... When mum was ready, it was time for us to get to the car, and head to Cuijk for my physio. The session helped me to get a bit of relief in my right shoulder and back. Then, we headed back to Herpen. A quick pitstop at the supermarket. Then, mum took Koa for a little round over the field behind the house, while I put away the groceries, and then fixed Koa's meal.

    I tried to eat a bit, as I was hungry, since I had not eaten anything since I became so nauseous and threw up after my morning meal. Koa and I relaxed a bit on the couch, with a bit of telly. As I was rather tired from all the happenings, and lack of decent sleep. So, I started to get everything ready to head to bed.
    I woke up once to a buzzing terrorist. I applied some deet, turned on the UV swatter, and fell back asleep. Koa woke me up after a few hours for a potty break. And then, he allowed me to sleep some more hours. I got a little over 7 hours of sleep in total, which had been very welcome. So now, Koa and I got up to start our "day".

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  14. CW: A rather long journal Toot, as many things didn't go too well today... Nothing really triggering, just a long one... 😇

    #Journal of a very stressed and exhausted Dutch AuDHD Pixy (Monday, 17/08/2026).

    After a bit of a broken night, Koa and I got up to start our "day". I got dressed, fixed Koa's kibble, and took my meds. When Koa had finished with his meal, we got to the couch. I got my tablet, and started writing an email to my sweet friend. When I was done, Koa and I went for a short walk.

    I fixed some brekkie when we got back. After that, I got my laptop, and wrote my journal Toot. After that, I finished up my journal blog post. I worked a little bit on a new post, but after all that typing, my hands were rather tired, and a tad sore. I tried to relax a little bit, before it was time to walk with Koa again.

    After the walk, I fed the little bugger. I got back to the couch a little while, but my hip, back, and neck were causing me some discomfort. So getting some proper rest was not really possible. A little while later, I fixed myself some food. I went out with Koa again, and then I got ready to walk to the GP's office for my appointment. It was raining quite a bit, which was very good for nature, but made things a bit more challenging for me. When you only have one functioning hand, and you need to hold an umbrella.

    I had set up the tablet again to keep an eye out on Koa, especially after what had happened last Friday. I wasn't able to watch the screen, as I could not hold the phone, due to the umbrella. But I could hear his barking. He did not bark continuously, but there was a bit of barking while I tried to walk to the GP. I had taken an extra painkiller, as I knew my back would not be too pleased with the longer walk.

    I arrived at the office, and while it was grey, wet, and only 16°C, I was sweating like crazy. I tried to relax a bit, hoping my temperature would get a bit better. I tried to watch the video from the tablet, but it was a bit too dark to see Koa in the crate. I could hear him though, and thankfully, he seemed to get a bit calmer. It was almost 8, so I put away the phone, to make it easier to follow the GP when she called me in.

    We had a good chat, where she informed me on some options when it comes to trying to manage my peri issues. And we talked a bit about my pain management, and my need for a new prescription for some painkillers. She send the pharmacy a new order for meds, and added that it should be delivered today. I thanked the GP, and got ready to brave the rain again.

    When I got home, I was hoping to relax a wee bit, before the coach would come. But Koa let me know that he wanted out for a little walk. So, instead of some rest, I was back out in the rain again. We walked a short round, and on the way home, I saw the coach already parked. She was a bit early, and on the phone. Koa and I went inside, and a few minutes later, the doorbell rang. No rest for the wicked.

    The coach and I discussed several things. She noticed that I was tired so we only did the necessary things. Then she offered me to walk with Koa so he could have a bit of exercise, and I could have a little bit of rest. After Koa came back home, the coach headed to her next appointment.

    I felt rather broken, I was hurting all over, and the couch was not allowing me to rest properly. SD Koa had just been taken for a walk, I decided we'd get to the bedroom for a bit, so we could both try to relax a bit. It would be a longer day, as I should be getting my meds this afternoon.

    I watched some series on my tablet, and Koa snoozed for a while. I found it hard to relax, as I was just so sore, and it seemed impossible to get comfortable. We got up again, I fixed Koa's meal, and after a bit of telly, I texted my coach and asked if she could help me. But there came no reply for quite a while, and I still needed the help. So, I texted a dear friend, explained the situation, and asked if she could help me. She said OK, and called the pharmacy to check if all went well, and that they would be delivering the meds this afternoon. I was very grateful that she wanted to check it for me. And glad that they said that the meds were on their way.

    I also asked my friend if she could help with the issue I was having with the hospital. Where all of a sudden, they canceled all my scheduled hand therapy, and instead only gave me a phone appointment for an intake... I was so confused, as I had already started therapy on Friday morning. I had sent them a message through their app, and had not heard back yet. I shared all info with my friend, and she was OK to call the hospital for me the next day.

    We were chatting while I was waiting for the meds. As it was getting later and later, I was getting worried that something was not right. I did receive a message from the hospital though. But, it was a bit weird. While it did give me a time when to expect the call, it referred to a message I supposedly had been sent by them. That message should contain some sort of explanation for the situation with the cancelation of my appointments. I checked all my emails, I checked every option in their app... But, I couldn't find that message anywhere... So that only brought me more annoyance. 😔

    Time kept ticking away, and when it was 17:45, I was giving up the last bit of hope that I would be able to get my meds for the night. They had told my friend twice that the delivery was coming... Guess they forgot about me. My whole body was so sore. I was so tired. I had wasted my time, waiting for the meds, meaning there was less time left to get some sleep as after some time, I would need to get up, as Koa needed his routine when it comes to his meals.

    I f got to bed, and my brain was such a mess due to the incompetence of the medical field today. So I wasted another precious hour, while I tried to get my brain calm enough to be able to doze off. Then, when I just dozed off, a buzzing terrorist 🦟 came at me. I was so frustrated with everything, that I ended up crying while I was applying some deet, and I turned on the UV fly fryer.

    I woke up when a terrorist decided to commit suicide... That was one mosquito that would not be bugging me anymore. I went to the loo, took Koa out for a wee, and I gave him some kibble, hoping it would buy me some extra time to sleep... I dozed off again. Unfortunately, around midnight, Koa woke me up, ready to start his "day". So, with just over 4 hours of sleep, it was time to get up again. I wondered how I wad going to get through this day... Especially with that intake call, going to PT, and hopefully being able to finally get the meds I need...

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  15. #Journal of a sore Dutch AuDHD Pixy :pixy_party: (Sunday, 16/08/2026).

    We had an OK enough night. I guess we were both tired enough, especially Koa after his walk with the neighbors, and maybe Koa felt a bit better due to the painkiller, so we had been able to get a few hours of snoozing in. When we got up, we started our routine again. So, getting dressed, Koa getting fed, taking meds, and getting to the couch.

    My thumb was rather sore, because it had swollen during the night, even though I had it elevated as best as I could. I opened the Velcro of the splint, to open it up a bit, so the flow could be restored a bit. But, it wasn’t enough, so I had to carefully take the splint off. I supported my arm and hand as best as I could, while it rested on my leg. I felt the tingling get less, and saw my thumb regain some of its normal size and color again. When it felt a lot better again came the painful struggle: to carefully get the splint back on my hand and arm. It’s a challenge to do with just one hand, as you can’t properly keep it open all the way to slide the thumb in, followed by the rest. It’s painful for sure, but not relieving the thumb from the fluids is even more painful.

    When all that was done, I got my tablet, and started writing an email to my sweet friend. It took some time to get it all typed out, but it’s going better now, with the splint, than it did while I still had the cast. Guess it’s also partially due to my fingers being less painful now than several days ago. After the email, I took Koa out for a short walk.

    We came back, and I fixed myself some brekkie. When I finished that, I started on writing my journal toot. My hands were a bit tired, so the typing took a bit longer now. But, I managed to finish it, and then I was done with typing for a bit. I walked another short round with Koa, and I fixed him his meal. Then, I got to the couch, and quickly tried to make my blog post for today. When I scheduled it, my hands were a tad tired. So, I tried to relax for a bit with some telly.

    Koa wanted to go out again, and his wish is my command (when it’s a reasonable wish), so we headed out and went for a walk. Koa had a good time, so that was a plus. But, while we were heading back home again, Koa spotted a butterfly, and… He tried to rush after it. Which caused a big jolt on the leash, which caused a pain to shoot through my back, shoulders, neck, and hand. So, when we got back home, Koa went into his crate, and I went to bed with my tablet. Not to sleep, but to, hopefully, have my body relax a bit after the “butterfly incident”.

    After a little time, Koa got restless, so I figured that this was all the rest I was going to get, and I got up again. I loaded the washing machine, and went outside to play a bit with Koa and his ball. He played a bit, got in some running and jumping, and then we went back in. He wasn’t too pleased that I went upstairs without him for a while. Hanging out the laundry goes a little slow when one hand can’t properly help out. So when I got back downstairs, Koa behaved like I left him alone for ages.

    I walked Koa again, and then I fixed myself some food. When I was done, it was time to feed Koa. We relaxed for a little while, which Koa didn’t agree with. But, he settled down a bit, and after a little while, food had settled enough, and we could take a little walk. When we got back, I took my meds and prepped things for bedtime. I was still rather sore from Koa and his love for trying to snatch butterflies…

    I had prepared everything for bed. Koa and I went to the garden, in case he needed a last wee or poop before going into his crate. It took a while for me to be able to relax enough to doze off. I woke up for a potty break, and took Koa out after that. It took him a little time to settle down after that, and when he finally relaxed, I tried to get back to sleep again as well.

    When Koa woke me up again, I still felt so tired. But Koa was sure about wanting to get up, so, I got out of bed so we could start our “day”.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  16. I also understand why some autistics break down crying when in meltdown. I experience intense anger to the point of rage, at times. Underneath that anger and rage is profound grief. Likely owing to a history of trauma, I don't grieve easily. And so the rage is typically rhe dominant emotion. My resistance to/difficulty experiencing grief sometimes compounds contemporary as more trauma.

    @autistics #actuallyaudhd #acruallyautistic #actuallyadhd

  17. I *FINALLY* understand why we tend to self-harm. Our senses can become so overwhelmed that the only way to manage them is buy causing intense localized discomfort to force us to focus ourselves to a far smaller set of sensory inputs. In that way, self-harm is a form of sensory-deprivation, as counter-intuitive as that may seem.

    I realize that I have had these kinds of behaviors, in different forms, almost my entire life.

    The more I reflect on the entirety of my life, the more past autistic experiences and behaviors reveal themselves. Back then, what I lacked was the autistic frame of reference. After all, I was diagnosed at age 50.

    #actuallyaudhd #actuallyautistic #actuallyadhd @autistics

  18. #Journal of a worried Dutch AuDHD Pixy :pixy_party: (Saturday, 15/08/2026).

    After the busy and long Friday, it had taken a little time before I was relaxed enough to fall asleep. First, I was woken up by a buzzing terrorist. Then, I was woken up by Koa. He was panting at times, licking the front paw that they had drawn the blood from for the titer testing, and at times, he gave a small whine. It was clear to me that he wasn't feeling too well. I took him outside, and then I sat in front of the crate for a while, to try and calm him down again. I tried to check his paw, and I could not see or feel anything wrong with it, After a while, Koa dozed off, and I went back to bed.

    We managed to get some sleep, but it was obvious Koa was not a happy puppy.We got up, and started our "day", and we did the usual things. But, Koa seemed a bit more clingy than usual. He would sometimes start panting, or give some sad whines. I could not find anything that could be upsetting him, so I wondered if the stuff they had put into his ears the previous day was bothering him now.

    I wrote an email to my sweet friend. Then I took Koa out for a short walk. He seemed to be doing everything as usual, so that was a bit of a relief. We got back, I had some brekkie, and then I did my best to write my journal toot, which was a rather long one, by the time I finally finished, My hands were tired after all the typing, so I put away the tablet. I tried to relax for a little while, before it was time to take Koa out for another little walk.

    We got back, and I fixed Koa some food. I was still worried, as he didn't seem too happy. And I was having flashbacks about the times Arwen dealt with her ear infections. How she never wanted to show me how she was hurting, because with the infections she had, she must have been in pain. But then, she also didn't want me to know about the tumor near her heart. I struggled with those flashback, started crying every now and then. Heck, even typing this now has brought me to tears again. Stupid trauma...

    When it was a little after 9, I called the vet. I was on hold for a while. When I got someone on the line, I explained the behavior that Koa had been showing me. Because they weren't sure what was going on, they offered me the last free spot of the morning, at 11:45. When I hung up, I called my neighbor. I explained the situation, and she agreed to drive us in Skoosh. I was so grateful, as it meant that I could have Koa checked out again, before the weekend.

    I tried to get through the morning as best as I could. When it was almost time, I took out Koa for a wee, before we had to go. He wasn't interested in a pee, so I tried to get him settled in the car, so we'd be ready when the neighbor came. When she saw Koa was seated and on his belt, she came to the car. She settled in the driver's seat, and off we went to the vet.

    We had to wait a little bit, and in that time, the neighbor managed to get Koa on the scale. He was around 22 kilos now. Getting bigger and bigger... The vet called us in, and I told her about Koa's behavior. She checked everything, and, fortunately, she could not find anything wrong with him. Which lead to the conclusion that it was probably due to his ears that he was not feeling too well. Yesterday, they had prodded in his ears, put in the medicine ointment/lotion/something. So his ears must be more irritated and more sensitive now, which is probably causing his discomfort. He got a 24-hour painkiller shot, which should hopefully help him to get past it, giving some time for his ears to settle down again.

    I was glad for the help, and also glad that the bill was less high than I was expecting it to be. The neighbor had gone outside with Koa, and she was on the phone when I got out. When she hung up, she told me that her son and his GF had offered to take Koa for a nice walk when we got back. So, when we got back, she took Koa home, and he went for a long walk with the "kids" (they're both adults and strong enough to handle him).

    I tried to relax a bit, until they brought back my dude. He was all worn out, but he looked happy. I thanked the "kids", and gave Koa his meal. It took some time for Koa's breathing to settle down a bit. When his breathing was more relaxed again, I got everything ready so we could head to bed. It took a little time for me to get comfortable. I heard that Koa was snoozing, so I felt more at ease. And then I dozed off.

    I woke up a few hours later, I went to the loo, and took Koa outside for a bit. Then, we went back to bed. And, I guess that Koa was feeling a bit better, as he allowed to sleep some more until I woke up again. I saw the time, and knew that it was time to get up. So, I got up, and opened Koa's crate, so he and I could start our "day" together.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  19. CW: Nothing really too bad, but a rather long journal Toot, as it's been quite a busy and long day. Saves some folks from scrolling too much. 😇 Photo is CW'd due to fresh scars and stitches.

    #Journal of a tired and slightly worried Dutch AuDHD Pixy :pixy_party: (Friday, 14/08/2026).

    I had been hoping for a good long sleep, but as mum came later than planned, and it took me a while to doze off, I had slept a little less than I needed. When I woke up for the loo, I saw the time, and new that I had to take over from mum, so she could get enough sleep to drive us around the next day. So, I got up, and mum could go to bed.

    I took my meds and fed the little dude. Then, we got to the couch. I got my tablet out, and started writing my email to my sweet friend. It took me a while, but I managed to finish it and send it. I took Koa out for a little walk. When we got back, I fixed myself some brekkie. When I was finished, I got started on my journal toot. The cast was bothering me some, and it was a bit of a challenge to get the journal bit done.

    When I was finally done with all the typing, I put away the tablet, and I tried to relax a bit. After some time, I took Ko out for another short walk. I fixed him some food, and then we tried to relax a bit. Mum got up, and when she was done, we took Koa out for a longer walk. Then, I set up the tablet to spy on Koa, and mum and I headed to the hospital.

    It was good that I was watching the cam, as I saw Koa being in huge distress. I had never seen him act this way. He was trying with all his might to open the crate door. He was acting so panicky that I got all upset. Fortunately, mum was able to turn around and head back home. We realized that Koa had not gotten himself something to drink before we left, so I rushed inside, and grabbed a bowl with water as fast as I could. I opened the crate, offered the bowl, and as Koa was drinking, he seemed to relax a bit. I gave him some cuddles, I offered some more water, and when Koa didn't want any more, I cuddled him some more. Then, I had to leave him again, as we needed to head to the hospital.

    I was still a bit anxious, and I kept checking on the camera as much as I could. But, Koa seemed more settled down, which eased some of my anxiety and worries. We got to the hospital, and checked in. We were a bit early, so there was some time to spend in the waiting room. Unfortunately, there was someone already there who could not keep their foot still. They were constantly wiggling their foot, and it drove me nuts. I tried to turn away from it, which made the uncomfortable chairs even more painful to sit on. When I finally got called in, it was such a relief. All that wiggling, and those bad chairs, it was eating away my short stack of spoons.

    The ergo therapist cut away my cast, and then, she started working on making me a plastic splint. It took some efforts and some time, and my hand felt rather sore when she was finally done. My fingers were still rather cold and numb, so when I got to the next appointment, the physio one, my fingers were painful, and not willing to really cooperate. I tried to get the exercises done, but it hurt so much, as my fingers were rather unresponsive. I got a bit annoyed with both myself, and with the therapist, as she didn't really understood how my body worked. It's the same issues that I had after my last hand surgery. Because the way my body works, the way I experience sensation and pain, I'm not "according to textbook". Which means that, when I object to their reasoning, they see me as stubborn more than that they accept that I am not "just" an average person that they see every day.

    I was very glad when we were able to head home. I checked on the camera, and saw that the crate was empty. Which meant that Koa was now enjoying some excellent care from our neighbor. Mum and I made a pitstop at the store, and then quickly headed home. Mum got ready to head back home, as did the neighbor. I thanked them both. And then, I got to the couch for a bit, as I was so exhausted. And we still had the vet appointment in the afternoon. It was already getting very hot, so I was a bit worried about the vet visit this afternoon, knowing the friend that was driving us didn't have aircon in her car.

    Koa and I tried to relax for a little while. But it was hard for me to really relax. I was a bit afraid that I would fall asleep, and then not be ready in time to feed Koa, and to get to our friends for the vet visit. So, when my friend, and her son, got here, I was out of spoons, and I did my best to keep going.

    The ride was super hot, and I was afraid it would be too warm for Koa. I felt so sorry for the dude, being in that hot car. When we got to the vet, we had to wait a little bit. I still find it hard to go to the vet, cause every time, I get triggered to that last visit with Arwen. Especially when one of the vets made the comment that they loved to see the dogs come in, wagging their tail. I had to focus so hard not to burst out in tears, as the last vet visit with Arwen, when she was suffering so much, she still wagged her tail when she went inside. I shared a blog post about that in November, and it was one of the hardest posts that I had every written.

    They started with checking Koa's ears. It took the vet, an assistant, and my friend to keep Koa still enough for them to check his ears. They didn't like how Koa reacted, so just to be sure, they took a swab from each ear, as they suspected Koa's yelping reaction was because of some sort of infection. They took the swabs to be checked, and indeed, Koa has an infection in both ears. I got another flashback, and I tried to push the tears away again. But, the "good" news was, that his kind was less severe, and hopefully easier to treat, than the infections that Arwen had.

    Next up, they drew some blood, for the titer test. As they were with three adults now, the drawing of blood went a lot better than last time. After waiting some more, they had a good outcome for us. All vaccinations were totally OK. They had to give Koa his meds for his ears, which needed to be squeezed into them. The crying that Koa did while they did that, heck, I was crying a bit now. When all was done, I paid (there goes my money...), and we scheduled a follow up appointment to check on his ears.

    The drive home was even warmer than the drive there. As glad and grateful I was for my friend driving, I was also glad to be back home, and that Koa would be able to relax and cool off again. I slowly prepared everything so Koa and I could go to bed. It was already a bit later than usual, and the day had left me so incredibly exhausted.

    It took a little while to get comfortable. I had finally dozed off, and slept for a little while, when a buzzing terrorist decided to wake me up. I tried to fall asleep again, and there the buzzing idiot was again... I used some deet on my hands and head, and I activated the UV fly "swatter". After a bit of time, I heard some buzzing, and then a big crack. One of the buzzing beats was no more. I managed to fall asleep again. When I woke up for the loo, I took Koa out as well. When he got back to his crate, and I got back to bed, he was a bit restless. So, I sat with him for a while, until he calmed down.

    I got back to sleep, and woke a bit when another buzzing terrorist fried himself, and I dozed off again. When I woke up again, I was a bit shocked by the time. I wondered why Koa had not woken me up yet, as it was past his food time. So, I quickly got up, let Koa out, prepped his food, and I took my meds, Then, we started our "day".

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  20. #Journal of a tired and sore Dutch AuDHD Pixy :pixy_party: (Thursday, 13/08/2026).

    After a bit better night, as I had been so tired of the previous bad night, and dealing with all the pain from the cast, I had been tired enough for some hours of sleep. When Koa woke me up again, it was time for us to get up, and start our "day". I fixed Koa's meal, took my meds, and got dressed. When Koa finished his meal, we got to the couch.

    I used my tablet to write an email to my sweet friend. I am still annoyed that typing goes so slowly. Every few sentences, I need to wiggle my cast a little, as it seems to move some when I use my right hand to type. But then, it does the same thing when I try to sleep, so I don't think the typing is the bad thing here. When I finished the email, I took out Koa for a short walk. When we came back, I fixed some brekkie, and tried to enjoy it.

    Ever since I got the new cast, I had been feeling more nauseous again. I thought of all the reasons, and one of them, was the chemical smell of the new cast. I held it under my nose, and yeah... It was not pleased at all with the smell of it. So, I tried to keep the cast away from my nose as I was eating, which seemed to help a little.

    After food, I tried to relax a bit on the couch, while I was slowly making progress with the journal Toot typing on my phone. I was annoyed with the stupid typos. How can one make so many of them, while typing at a snail speed? Ugh... Bit by bit, I managed to finish up the toot. When I was done, I took Koa out for another short walk.

    Koa got a nice meal when we got back, and I tried to relax a bit, as my whole body seemed to be against me this morning. Muscle aches in several places, making several of my joints make annoying, and painful, cracking noises. The ones in my neck were so awful,they sometimes made me see sparkles. But I felt so worn out, so broken and beaten. I knew that raising a puppy would be a challenge. But, first the herniated disc, thanks to the puppy, and now, before the disc had time to properly heal, this surgery...

    It's been several months since I had my last decent night, I've not felt rested for so long now. I keep saying that I am doing the best I can, but I'm struggling with the fact that, at this moment, my best is about 35% of what it used to be. And I know I am ot doing that badly at all. But it's just been too much for too long, and my body is protesting it.

    After another walk with Koa, I spent some more time on the couch. But, my body was very displeased with me, and in the end, Koa and I went to the bedroom, where he got a snack he loved, and I tried to get comfortable with a series on my tablet. It helped a bit for my back and neck, my hand was still annoying me.

    Mum texted that she would be coming later than planned, because she had issues with her hearing aid, and that needed to be fixed before she could come this way. I walked a short round with Koa, gave him his meal, and then we went back to bed. I tried to fall asleep, but my hand would not allow me to get comfortable enough. So by the time mum was finally here, I had not slept a wink.

    I got mum settled and went back to bed. Unfortunately, it still took a while before I could finally doze off. I woke up once for the loo. When I woke up again, I would have liked to get some more sleep if I could. But, when I saw the time, I knew I had to get up. Mum needed to get some time to sleep, I needed to take my meds, and... Some little brown dude was very interested in filling up his belly a bit. So, I got up, and I started my "day". It was going to be a longer one, as my friend was going to help me to get Koa for a vet visit in the afternoon. But first, I have an appointment for hand therapy and, if I am lucky, the cast will be replaced with a temporary plastic splint, which should be a bit more comfortable... Or so I hope... Hey ho, let's do this!

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  21. Sometimes I think the reason why I am not horribly addicted to all those chatbots is my ND trauma.
    I have very strong negative reactions when someone praises me, so the bot sycophancy had the inverse effect on me, a sort of inoculation.

    #ActuallyAuDHD #ActuallyAutistic #ActuallyADHD

  22. #Journal of a very pained Dutch AuDHD Pixy (Wednesday, 12/08/2026).

    After a difficult night, with loads of waking up due to my hand being so painful due to bad tingling, I woke up when Koa told me it was really time to get up. He had been an angel during the night, and now my body made sure I couldn't sleep. This was so unfair. But Koa had been a good boy, and he'd been in the crate for a while, so I got up as quickly as I could, to take care of my little dude.

    Koa was fed, meds were taken, and we got to the couch. I used my tablet to write an email to my sweet friend. When I was done, I took out Koa for a short walk. I made some brekkie, and then I used my phone to write my journal Toot. It took me quite a while, as my hand kept getting these tingles but now, every now and then, there were some "shooting" pains that ran through me thumb. And they were so incredibly painful, they brought me to tears. I knew then that I had to call the hospital in the morning, and get them to check out the cast. I was sure that the cold fingers, the painful tingling, the pain streaks, that they were caused by my cast being too tight in some places.

    The night seemed to go so slowly. I hate phone calls, but I was getting more eager by the hour, as my hand was getting more difficult to deal with, with every moment passing. I was worried both for the increasing pain, and about being able to get to the hospital, should they agree to see me. So when it was around 7, I first texted my neighbor, explaining the situation, asking if she could drive me to the hospital with Skoosh, should I get an appointment. Unfortunately, she wasn't feeling well, and didn't dare to drive now, let alone in a car that's not her own I texted my mum, but there was a chance that she would not have the car. And I texted a good friend.

    Mum texted me back first, saying she had the car, and if I knew when I could come in, I should call, and she'd come. Just after that, my friend texted that she would be able to drive me as well, should mum not be able after all. So, I was comforted by that, and counting the minutes until I could call the hospital.

    I called, waited a little while, explained my situation, and they connected me to the casting department. Nope, I wasn't going to be in a show. 😉 The other type of cast. I explained the situation again, told them that I was experiencing quite a bit of pain. I was hoping they'd tell me to come in as soon as I had a ride. But nope, they had two times for me: 12 and 13:30. When I hung up, it was 8:45, and I already burst out in tears every now and then, when a flash of pain shot through my thumb. It was so bad at times, that even Koa came to lick my tears, and give me a cuddle (before he started his nibbles again).

    I walked with Koa, had some food, watched some telly, and cried from time to time. Those hours until my mum came seemed to go even slower than the ones during the night. When mum came, she and I walked Koa together. I set up my tablet with the camera cam, and crated Koa with a few snacks. Then, mum drove me to the hospital, while I was checking on Koa on my phone. Koa barked just a few times, and then he seemed to quickly settle down. I didn't monitor him all the time while we were in the waiting room. But what I saw, made me rather proud. And heck, I needed that.

    The wait in the hospital was so bad. I could not properly breathe away the pain anymore. I was so stressed that people without pain got called in again and again, and I was there, waiting while suppressing the anxiety that I had now. So much pain, some anger over the longer wait, and the worries over my fingers losing feeling. I was sweating like crazy, and really struggling to keep it together as much as I could. When I got called in, I almost stumbled over because I was so dizzy.

    The cast specialist did his best to comfort me, but I was way passed that. I just needed that relief so badly. I needed to get warm hands again. To feel my fingers properly again. For the tingling to buzz off. And for the pain flashes to stop shooting through my thumb. When the cast got cut open, instead of feeling relief, I felt an increase of pain, and I panicked. All night and all morning, I had been looking forward to get to the moment where all these symptoms I just mentioned would just easily flow away when the pressure of the cast was taken off. And when this didn't happen, I freaked out. So the cast man had some work to do to get me breathing properly again. Ugh, I felt a bit ashamed of how badly I was handling this. But I had been in pain for about 18 hours, which has slowly gotten worse until the point of me not being able to handle it properly anymore.

    After some time, I was calm enough for the specialist to provide me with a new cast. Mum and I headed home, with a pitstop at the supermarket. When we get home, Koa was still such a good boy. But when I released him, he got over-excited and threw my drink on the floor. Fortunately, mum was able to quickly clean it up. After that, mum walked a bit with Koa, while I made his meal. Mum went back home, while Koa was enjoying his meal.

    I slowly got everything ready for bed, as I had taken my meds, and my hand finally started to feel a bit better. Koa and I went to bed, where I watched a little on my tablet, before I was relaxed enough to try and get some sleep. After a while I dozed off. I woke up a few times, and took Koa out once. When he woke me up again, I was still tired. But my body was rather sore, so it was time to get up, and take my meds. So, we got up, and Koa and I started our "day".

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  23. CW: Nothing bad really, except for some trauma and pain. But it's a <7k journal Toot, so it saves some people from scrolling too long. 😇

    #Journal of a very sore and emotional Dutch AuDHD Pixy :pixy_party: (Tuesday, 11/08/2026).

    After all the stress of the Monday afternoon, I had a shorter night than I had hoped for. But I understood that it was time for Koa to get out of the crate, and to enjoy a nice meal. Afterall, he had been snoozing already while I was stressing over getting my meds before the pharmacy would close. And then, waiting for them to be delivered. Ah well, after all these months of being tired, exhausted even, what's another short and crappy night. So, at the command of my hairy idiot, I got up, and we started our "day".

    I let Koa out, got dressed, fixed Koa's kibble, took my meds (as I had them now, yay), and then I got to the couch. I grabbed the laptop, and wrote an email to my sweet friend. I still felt very numb. And I kept starting to cry every few minutes. I'm just so lost and I have all these fears and doubts. What happened with me and Koa, it still haunts me. Everyone I've talked with, they all tell me that I didn't react as bad as I feel about it. And I know that these people would not be dishonest about that to me, as they know how important honesty is for me, even if it's bad news.

    I finished the email to my sweet friend, and then I took Koa out for a short walk. When we got back, I fixed some brekkie. Then I started writing my journal Toot. I did it on my phone, as my back was sore from leaning forward to the laptop and I had to lay down for a bit. My back, neck, and shoulder muscles were giving me such a hard time. I was really hoping that later today, my physio would be able to make things better. Even the slightest improvement would make a big difference, or so I hoped...

    When I had finished my journal and uploaded it to the usual places, it was time to try and work on a blog post for Wednesday, as I was all out... And I really don't want to lose my 6-year streak. I had already started on a post, so fortunately it was less work to finish it. I really hope that, when the painful cast is taken off, and I'll get the temporary plastic splint, it will then become easier for me to type.

    I walked again with the furball, and then I fixed food for him. I tried to relax a bit, after I'd been typing most of the night. My silly bursts of tears were becoming a bit less frequent, which was good, as I didn't want to be all sobby when mum would take me to physio. I fixed myself some food. After a nice meal, I had to rinse off the artificial grass. I can't leave that too long, especially with the warmer, sunny weather as the grass needs to stay proper for as long as possible. It's too expensive for me to replace it every now and then. It really needs to last for as many years as possible. So, I need to stay on top of it.

    It was a challenge to keep my cast dry, and to not be jumped over by the nutty Lab. It's already difficult when you have two working hands... Having only one, not even a very good one, and needing to keep the cast dry... I'll be very happy when I can use both my hands again. 😊

    I was watching some telly, while cooling the cast and skin around it, as it was itching like crazy, when mum texted me that she was on her way. When she arrived, we chatted for a while, and I started crying again. Telling her what had happened, and how awful I was feeling. 😢 When it was almost time to get ready to head to physio, mum and walked with the brown idiot. After that, we got to the car, and we headed to Cuijk.

    And seeing how mum is driving these days, it makes me worry that an accident is going to happen at some point. 😢 She made a mistake on a roundabout, one she'd made before, and one that's dangerous to make. I yelled at her, as she freaked me out with that action. Just like how I freaked out last time she did that. But there are so many little things that she used to do do much better, that I really worry about her being on the road like that. But, I was honest and I told her. I know it must have been difficult for her to hear. But if she drives as insecure as she does now, it really worries me.

    We got to physio a bit early. We waited and even Koa was doing a great job. When it was my turn, my PT got me a massage on my back and shoulders. It was rather painful, but he did his best to loosen up the tight muscles. When he was done, and I got up, I was dizzy for a bit. Then mum and I headed back home again. This time I gave her a slightly different route, that would hopefully be less stressful.

    Mum got us back home. She took Koa for a wee on the dry, grassy field, and then she quickly had to head home for another appointment. I fixed Koa's meal, and tried to eat a bit myself. But, I got nauseous after a few bites, so I put the snack away. I watched some telly, and then my neighbor texted she was coming to pick up Koa for a nice walk. Koa got all excited, and it was a challenge to get his leash on. So I let him greet the neighbor, and then we put the leash on. Without looking back, he was off on a nice adventure.

    I took my meds, and just relaxed watching telly. The neighbor and Koa came back and he was worn out all the way. She told me they had a good walk, and he seemed to enjoy it tremendously. The neighbor left, Koa drank away all he could, and I got things ready to head to bed. I was hoping to get some decent sleep tonight, as I really needed it badly.

    Koa was exhausted, he had his snack and a drink, and he just let himself crash. He was still panting, and while I was reading, hoping to doze off, I also kept listening, hoping Koa's breathing would calm down. When I heard him being more relaxed, I dozed off. Unfortunately, I woke up again about half an hour later, as my hand was tingling, which hurt rather annoyingly. It took some time for my hand to find a position that helped it to stop hurting.

    I dozed off again. But I kept waking up so often, as in my sleep, my arm would turn a wee bit, and it felt like the cast was pressing against a nerve, that kept triggering the tingling. At one point, it was so bad, that it took almost two hours before my hand stopped hurting too much, and I was finally able to fall asleep again. I still woke up several times. But I was amazed that Koa let me try to sleep for so long. I almost felt like he understood that I needed some sleep to feel a bit better again.

    I will need to contact the hospital in the morning, to ask them about this. It hurts so much when the tingling is happening. And sometimes, it feels like my thumb is experiencing little spasms. I will need to contact the neighbor first, because if they want me to come in (which I am hoping for, as I don't want to deal with this for two more nights - and when it happens during the day), I hope that she can command Skoosh to get us to the hospital (and back again of course). Let's see what the new day will bring...

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  24. CW: My journal Toot, where I discuss something I'm ashamed of 😢

    #Journal of a very ashamed Dutch AuDHD Pixy :pixy_party: (Monday, 10/08/2026).

    The "day" started as usual, with Koa waking me up, while I could have used some more sleep. We got up, and did our normal routine. After that, I got to the couch, grabbed my laptop, and started an email to my sweet friend.

    After some time, my bowels started to hurt. They always shut down for a few days after I've had anesthesia. And this pain meant I had to run to the loo. While I was "dealing with it", Koa came very happily to the loo. In his mouth, he had a bit of broken cable. I started to freak out, as there aren't many places where he could have gotten it. When I was finally done, Koa rushed to his bed, and started chewing some more. I saw what it was, and I saw red. And, I whacked him. This scared the heck out of both me and him. Koa rushed to the crate, and I quickly closed it.

    I was so shocked, so angry, so disappointed, so disgusted with my own behavior. I sat in front of the crate for 15 minutes, rocking myself, crying, trying to make sense of it all. I saw Koa looking at me through the wires of the crate. His eyes made me cry some more, I felt so terribly bad. When I calmed down a bit, I opened the crate. Koa slowly started to climb onto my legs, and then began licking my tears. I cried, tried to hug him as best as I could, tried to calm down. And while my tears were being "kissed" away, while I was stroking his fur, holding him tight, I felt so numb. And this scared me as well...

    Why didn't I feel anything? Why was it like I was dead inside? These feelings, these questions, they would keep me occupied for most of the day...

    After some time, Koa was done with the whole cuddling thing. He left me, and I got up, and headed back to the couch. I wrote my email, mostly about everything that had just happened. When I was done, I took Koa for a walk. Hoping some fresh air would help me.

    When we got back, I fixed myself some brekkie. Then, I tried to write up my journal Toot. It took me a while, as I was so overwhelmed with the previous events. When I was finally done, I put the laptop away and I tried to relax for a bit. Then, another short walk with Koa. I made him some food, and tried to distract myself with some more telly.

    I felt like crap, and every few minutes, I started crying again. I was still so overwhelmed, so depressed, so confused. I tried to "just" keep going. Fortunately, after a while, the crying became a bit less. I walked with Koa again, and then I waited for the coach to come.

    When she did, she helped me to call the GP about getting some meds. It was hard, especially when she forced me to talk, I felt so incredibly uncomfortable and stressed. In the end, she offered to take Koa for a walk. Which was very nice, as it gave me a wee bit of time to relax. When they got back, she left for her next appointment. Koa took a little time to unwind, and when he did, we were able to relax a bit together.

    After some time, I fixed him some food. We went out for a last time, and we got ready for bed. I was hoping to get my new meds delivered in the afternoon, so I tried to stay awake to not miss the doorbell. I also checked my phone many times. And then, around 15:45, the GP called me. I started to stress, but they said they had approved the meds request. When I asked about the delivery of them, they said they added that it should be delivered today. But, as they usually deliver between 14-16, and it was almost 16, I started to freak out. The GP told me to call the pharmacy, so some more freaking out was happening.

    I managed to call the pharmacy, and they said they never received the receipt, so they could not deliver. And... I had to call the GP about it. More freaking out, I was crying, rocking myself. This was just too much, and I was too exhausted. I managed to explain it to the GP office, and they promised to try and get the meds to me today. Ugh... I was so exhausted, but tried to stay awake to not miss the doorbell. And... When it finally rang, I felt such a relief.

    I let Koa out, and then we both went to bed. It didn't take too long for me to doze off. After a little less than 5 hours, Koa woke me up. We went outside, he did his things, and we went back to bed. Koa allowed me almost two more hours until he woke me up again, telling me he'd been in the crate long enough. Which I totally understand, as he's been in there all the time while I was waiting for the meds. So, with just over 6½ hours of sleep in total, feeling very groggy and doozy, I got up, and we started our "day".

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  25. Question for my fellow #ActuallyAutistic #ActuallyADHD #ActuallyAuDHD folks:
    Are you able to consistently engage online with communities that you *want* to be a part of, like for a hobby, a special interest, or a guild for a multiplayer game? If yes: how?
    I find myself either hyperfocusing on a community and then not doing anything else, forgetting that it exists while I engage with my hobbies alone, or needing so much alone time that almost any kind of social interaction seems too much.

  26. #Journal of a Dutch AuDHD Pixy :pixy_party: (Sunday, 09/08/2026).

    I didn’t have the worst night, as at least I got a few hours of sleep. But when I got up, I still felt so very tired, and so extremely sore. I am struggling to keep going. It’s just been too much lately, and there has been no real chance of any recovery, before the next thing hit. But yeah, it was time to get up and start the “day”.

    I got dressed, took my meds, and prepped Koa's food. When he was finished, we got to the couch, where I got my laptop. I started writing my email to my sweet friend
    Typing went slow and was a little painful at times. But, I managed to write a bit of a decent mail, and I sent it. Then, I fixed some brekkie.

    After my meal, I took Koa for a short walk. Then I got back to my laptop, where I worked hard on my journal Toot. I really annoy myself with the lack of speed, and the amount of typos. It just feels like writing the Toot is taking ages, and so many spoons. But, after some grumbling, I managed to finish the Toot. I uploaded it to all the usual places. Then it was time to put away the laptop.

    I walked again with the furball, and then I made him some food. After that, I made some food for myself. I was glad that I didn't feel as nauseous as I'd done the previous days. After some food, I tried to relax a bit. I had a slight, but very annoying, headache. By back was killing me. Me left shoulder was still so painful. I have no idea what happened to it. It was OK before the surgery. But ever since I came home again, it's been so terribly painful. So I really hoped that I could unwind a bit while watching some telly.

    I walked with Koa again, and then we went to the garden. I got the nozzle, so I could hose down the grass again. Of course, when the little monster saw me with it, it meant I had to be really careful. I managed to keep Koa at bay, while hopefully having rinsed the artificial green well enough. I tried to dry off the maniac, and then I needed some dry pants.

    After that, I tried to get some more relaxing in. But, the way my body and brain feel like at the moment, I just can't seem to unwind. I keep feeling pain, I'm so uncomfortable all the time, I'm tired of being exhausted, and I'm really struggling with my emotions. It's just been too much, too long, and I've pushed myself to the edge of the void... And, the way I've been feeling lately, I've had thoughts of just jumping in and leaving everything behind. Ugh...

    I tried to distract myself from these thoughts and feelings. Took Koa out for a little walk, and then we waited on a good friend to come by. She was bringing some groceries, as unfortunately I was in no state to get them. I had hoped to have been able to walk to the store, but since my left shoulder was so bad, I wasn't able to carry a backpack properly. So thankfully, my dear friend was able to help me out.

    When she arrived, we put away the groceries. After that, we took Koa for a little walk. It was already rather hot, so we took a path with the most shade. Koa got his sniffs in, and his business done. When we got back, I started preparing things for bedtime. Our friend left, and Koa and I went to bed. I watched a bit of a series on my tablet first. Then, I switched to my book. Koa wanted out so I got up again. When we went back to bed, it didn't take me too long to fall asleep.

    I woke up once more as Koa wanted to go out again. I was able to sleep a bit more, until Koa woke me up, again. I still felt so tired, but... I got up, and we started our "day".

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  27. CW: Nothing bad, just a >5k journal Toot... Saves some folks from a bit of scrolling. 😉

    #Journal of a slightly improving Dutch Pixy :pixy_party: (Saturday, 08/08/2026).

    Finally, after two very crappy nights, where there was a lot of discomfort, and very little sleep, I had a night with some more decent hours of sleep. First I got five hours, and then Koa woke me up for a potty break. We went back to bed after that, and he allowed me two more hours of sleep, before he was done with being in the crate, and eager for a nice meal. So, after about 7 hours of sleep, while I could have used a few more to catch up, we got up and started our “day”.

    I got dressed, took my meds, and fixed a meal for my dude. We got to the couch, and I got my laptop. I started my email to my sweet friend, which took some time to write. When I was finally done, I fixed myself some brekkie. After that, Koa and I had a short walk, and we got back to the couch. I started on my journal toot, which took some time to write as well. I usually enjoy writing my journal, but the last few days, it’s taken so many spoons… You’d think that typing would be an easier thing, but with a cast and all… Nope…

    When I finished the journal, and I uploaded it to all the right places, I finally put away the laptop. I took Koa for another short walk, and then I tried to relax for a bit on the couch. After some time, I fixed Koa some food. I was burping some from my brekkie, but I was also feeling rather hungry, as I had not eaten very much the previous days, due to being so nauseated all the time. So when Koa was done with his meal, I prepped some food for myself. I also took one of the pills that should help to reduce the nauseous bits and bops, as I really needed to get some food in me.

    I enjoyed the meal, and fortunately, the amount of reflux and burping was a lot less than it had been the previous few days. I took Koa for another short walk, and I texted the neighbor if she would be interested in taking Koa for another long walk again today. Then, I got the nozzle of the water hose, and I tried to clean the grass as best as I could, without being trampled by my wild beast. Of course, I could not film it, as I only had one hand, and it was hard enough to rinse the grass without being jumped against… But I think I managed to give it a wee bit of a rinse, and then I tried to fill up the blue shell some more.

    Koa was having a great time, and in the end, I’m not sure who was wetter, him or me. Fortunately, I managed to keep my cast dry. I tried to dry off the beast, and he kept rubbing against my legs, so my pants were in need of some drying as well. I switched clothes, and then I grabbed Koa’s shark toy. I threw it in the Koa pool, and he immediately took it out, and started running around like an idiot. He almost waltzed me over once. I tried to capture a little vid of him having fun, as it had been a while since I took a video or some snaps of him.

    The neighbor texted a time when she and her son would be coming over to pick up Koa. I walked a short round with him, as he indicated that he needed to go out. So we did just that, and then I watched telly, while I told Koa to relax and chill, as he would be getting a good walk soon, with possibly a bit of running as well.

    Koa got picked up for his walk, and I tried to relax a bit on the couch. It was nice to just be able to lie down and watch telly, without being disturbed by a silly, attention seeking, doggo. I do love that stupid beast, but sometimes, I just need him to relax and not keep “bothering” me. I wanna be there for him, and I do my best to provide him with all I can. Heck, I even ask my neighbors to take him on some decent walks, now that I can’t provide those myself. But, with my back still recovering, with my arm in a cast, and with me feeling just so sore and tired… Sometimes I need some time for myself to unwind, to recharge. And it makes me feel bad, because I push away Koa when he’s eager for attention. But I just can’t be there for him all the time, he needs to chill from time to time. So I can do the same…

    After about half an hour, the neighbor brought back one happily panting doggo. He had a good drink, and I fixed him some food. We relaxed for a while, and then I got everything ready to head to bed. I felt so tired, and my arm felt so sore… I hoped that I could catch some more sleep, and rest and not be bothered by my arm for some time.

    After some reading I dozed off. But I woke up again about half an hour later. I tried to get comfortable, but my arm kept on bugging me. I was awake for several hours. I did manage to finish the book I was reading, and start a new one. But I would have preferred to get some more sleep. I took out Koa for a wee, and then we got back to bed. I finally managed to fall asleep. After a few hours, Koa woke me up again. We went out again, and back to bed. I woke up a little time later, but as Koa was quiet, and I was still so tired, I managed to doze off again, and get another hour of sleep. Then Koa did wake me up, telling me he was done with being in the crate, and that he’d like to do a number two, to make space for a lovely meal that he was eager to get. So, after getting about 6 hours of sleep in total, according to my watch, we got up, and we started our “day”.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani

  28. #Journal of a burping Dutch AuDHD Pixy :pixy_party: (Friday, 07/08/2026).

    What a crappy night… I feel so broken and sore, and I struggled to keep going. It had taken me 4 hours to finally doze off. I woke up after am hour, as Koa needed a potty break. I got back to bed, and my body had allowed me one more hour of sleep. When I woke up again, I was nauseous, many of my muscles felt like I’d been hit by a truck, and I had a headache that made me look cross-eyed at times. Ugh, this wasn’t normal after a surgery like the one I had. I had so many symptoms, and they just didn’t “match” the situation. Which got me worried, as there must be some reason for all these extras I was dealing with. But, I’d have to wait until my mum would come to us, so we could call the hospital, and ask them about it.

    I got dressed, fixed Koa’s meal, and I took my meds. We got to the couch together, where I got my laptop. I started writing my email to my sweet friend. I was a bit frustrated, as typing was slow, my fingers were sore, and I had to correct a bigger than usual amount of typos. But, I kept trying, and in the end, I could press the send button on a decent enough email. I struggled a bit, but managed to make myself some brekkie. When I was done, I put on my shoes, and took Koa out for a short walk. When we got back, I got back to the laptop, where I wrote my journal toot.

    I also made good on a promise I made to an online friend. They have made an album, and there is a nice way to order it on vinyl. As it’s a special pressing, and it needs to be shipped a decent way, the costs were a little higher than for a usual vinyl. But, I want to grow my little vinyl collection when I can, and I want to support my friend by getting his album. So, when I got some good news of a bit of money coming to me, I made due on my promise and… I ordered the vinyl! Now I’ll have to be patient, as it needs to be pressed, and then shipped… But, I know it will be coming my way soon, which is so cool.

    When I was finally done with the journal toot, I put away the laptop. I went out for another short walk with Koa, and then I tried to relax a little on the couch. I felt so sore, and exhausted, and ever since I ate my brekkie, I had been nauseous and burping like a mad-woman. I tried to relax, but it just seemed impossible. The nausea, the muscle pains, the headache, the pain in my mouth from the sores… I just felt so terrible, and a bit sorry for myself for having to deal with this all. I got so worried about these symptoms, where did they come from, why was I dealing with them? Of course these worries didn’t help me to feel any better, and I just tried to make it through the night, while doing my best to care for Koa (and myself).

    I tried a little longer walk with Koa, and it went OK enough, but it hurt me, and wore me out as well. Then mum texted that she was coming our way. I tried to help mum to get the things from the car. When all was done, mum called the hospital for me, to ask about these symptoms I was dealing with. They assured mum that no Naproxen had been given to me. And that the side effects probably came from the anesthesia. And I just didn’t get it… I’ve had anesthesia enough times to know how I usually react to it. And I was experiencing exactly the same symptoms as I had after the second surgery, when I was given more Naproxen. So yeah, even though they were sure of me not getting those meds, I was very curious where these exact same symptoms were coming from then… Mum called the GP, and got them to get me some meds against the extreme nausea.

    After the calls, mum headed back home again. I had asked my neighbor if she had time and energy to take young Master Koa for a walk, as I was dead tired, and he was eager to release some of his energy. She was willing and able to take him for a nice walk, for which Koa and I were very grateful. I chatted to a good friend, and as I mentioned to him that I didn’t know if the pharmacy was indeed coming by this afternoon, and he was so sweet and called the pharmacy for me to check. They were indeed coming over this afternoon, so I knew I had to wait until they’d done the delivery.

    When the meds had been delivered, I already had everything prepped so Koa and I could head to bed. I was really hoping I would be able to get some sleep, as I felt like a steaming load of crap… It didn’t take too long before I was able to doze off. About 5 hours later, Koa woke me up for a potty break. We went back to bed, and Koa allowed me another two hours before waking me up again. I could have done with some more sleep, but according to my body, it was time to start moving again. It took me almost 5 minutes to get out of bed, as I was so stiff and sore… But, I managed to get up, and Koa and I started our “day” together.

    Thanks to all for your kindness and support during my "journey through daily life" :bear_love: I really appreciate it :bear_hugs: as it helps me to keep going on bad/harder days! :bear_nuzzle:

    :pixy_party: 💜 🍀 🐾

    #PixysJourney
    #WeirdFolks
    #ActuallyAuDHD
    #KoaKoolani