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Really delighted to hear from #Labour MP Chi Onwurah, Chair of the Science, Innovation and Technology Select Committee. She’s speaking on how #OpenSource can deliver #Innovation #ForAll!
Read all about her at https://en.m.wikipedia.org/wiki/Chi_Onwurah
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I don’t love #ChildrenInNeed #BBCChildrenInNeed for all the reasons that Nina Tame shares on instagram (check out her post at https://www.instagram.com/p/DCUhO4GM39j/, and her website at https://ninatame.komi.io) - in short: children shouldn’t have to share their personal circumstances, difficulties and trauma to be deserving of support and access. That’s what a government should provide.
BUT I do love a nursery bake sale! Look at these amazing #snowman #cupcakes made by Mackenzie’s favourite staff member!
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As part of the discussion Prof Avery has invited Alan Griffiths - who has multiple long term conditions and who takes 14 pills per day. He talks about how these define him (or not) and which elements are the most challenging.
“It’s not the conditions that are the hardest part, it’s what I have to do to manage all of them, every day. Especially through some of the hardest times in my life.”
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Our last speaker in this session is Krish Nirantharakumar Co-PI Optimal at the University of Birmingham. His talk is focused on Utilising an informatics consult to improve prescribing.
His team are building tools to visualise and analyse the prescribing of multiple long term conditions. The tool can also start to predict what conditions might emerge over time!
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Mike Barnes of Queen Mary University is having us ponder even how you define something like a “long term prescription”? What is long? What if someone switches medications? How long a gap is enough to note?
The AI-Multiply team are taking a longitudinal approach and using #AI and data science tools to follow prescribing data over time for individuals and then summarising them across cohorts.
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Our next speaker Lauren Walker, Co-PI DynAIRx is presenting on “Using real world data to identify and plan interventions to minimise polypharmacy and transform prescribing in multiple long term conditions”
The team have been engaging with clinicians to ask what AI tools would be useful for them? They all emphasised the importance of transparency in how any tool makes its recommendation / decision.
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There are multiple dimensions of challenge if you live with #MLTC and we are now turning to a deep dive into one of them: #polypharmacy - taking multiple medications for those multiple conditions.
We’re honoured to have Prof Tony Avery who is the National Clinical Director for Prescribing for NHS England chair the discussion and present an introduction including recommendations for systematic and cultural improvements within the NHS.
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We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.
Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data
They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.
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Next up is Jane McDermott from the NIHR Policy Research Programme Policy Research Unit in Healthy Ageing at the University of Manchester.
Her talk is titled “Raising the Bar in Policy Research - Lessons learnt from the NIHR Policy Research Unit in Health Ageing”
She’s sharing the broad network of stakeholders who feed into policy research, and #mobilising #knowledge as a pathway for #scaling #impact.
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Hajira Dambha-Miller is presenting her team’s work on “Understanding the impact of multimorbidity and social care needs in England and Wales from the Cluster - AIM study”.
She opens her talk sharing the story of a patient of hers (she’s a GP as well as a research scientist) whose social care challenges outweigh and exacerbate her physical and mental health challenges. We must understand the social context of the people living with #MLTC.
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We’re back from a delicious lunch and jumping into a discussion of #Impact. How can we bridge the gap between research, policy, people and practice?
Duleep Allirajah, CEO of the Richmond Group is getting us started with a talk on “The Task Force for Multiple Long-Term Conditions: Priority setting and progress to date”
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Our last speaker in this session is Cathie Sudlow who is leading a review of #HealthData in the UK. Her talk is focused on “Building a UK data infrastructure at scale”
It is a real honour and exciting to hear some of the preliminary key messages.
Her talk is highlighting how hard it is to combine data from so many different sources - health records, images, research projects, wearables, census etc etc
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Next speaker is Bruce Guthrie who is keeping us focused on how routine data - while incredible valuable - is an imperfect record of what happened and when it happened!
His talk is titled: Through a glass, darkly: reflecting on data challenges in multiple long-term conditions research #MLTC
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Back from our first coffee break (the mini quiche was delicious!) and we’re discussing how we can leverage the UK’s unique health data assets to catalyse AI research in multiple long term conditions #MLTC.
Wonderful to get started with the fantastic Chris Orton describing how we in the #AIMRSF have supported the 8 research consortia to manage and analyse their data effectively, reproducibly, and sustainably at scale.
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The #AIM #PPIE teams have worked very creatively to describe artificial intelligence #AI to people who don’t work in the field. There’s a lot of jargon and descriptions can be very abstract and inaccessible.
There is no meaningful consultation if the #ExpertsByLivedExperience don’t understand what you’re asking!
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Next up is Mon Fletcher who is introducing our session on Celebrating and recognising excellence in patient and public engagement and involvement #PPIE
She’s sharing collages of photos from just a few of our amazing contributors who are #ExpertsByLivedExperience.
“Research sometimes sits on dusty shelves and is too far away from the people who would actually benefit from the work.”
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“The #AIM programme is ahead of other areas in #HealthDataScience in thinking about the benefits of #interdisciplinary collaboration to solve real world problems.”
“Early career researchers #ECRs are our leaders of tomorrow. We must invest in their success by providing career pathways for research in multiple long term conditions #MLTC”
A fantastic interview of Professor Lucy Chappell, Chief Scientific Adviser to the Department of Health & Social Care #DHSX & CEO of #NIHR.
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Absolutely honoured to listen to Deborah Udon who is speaking as part of the #EmergingVoices plenary session at #RSECon24. She’s sharing how she bridged her passion for #Healthcare through #OpenSource contributions, particularly through her work with #OLS https://we-are-ols.org/community.html
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Oooph, the exclusion of in-person only networking and strategy setting events is making me furious.
Baby is poorly, I’m poorly, so the responsible thing is to stay home tomorrow. To not pass on my germs to 20+ colleagues.
And therefore I’ll miss the (an? feels like the) opportunity to shape the direction of a major research initiative and (possibly) gain some respect as a fellow research leader.
I’m so mad that we’ve let #RemoteFirst #inclusion drop by the wayside so badly 😭🤬🤦🏼♀️