#recovery2026 — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #recovery2026, aggregated by home.social.
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Maybe as a reward for doing so well working through my lists, I'll do things today that aren't on my list!
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I've been heavily processing lately. Lots of dreams.
Last night it was me arguing with my MAGA brother, who also IRL refused to help me when I was in crisis caretaking our mother until I left (now he's stuck with her).
In the dream he had a full-sized love android, and I'd seen her be violent but he hadn't, so he was denying it. I didn't want to be around her because I knew she'd kill me by order of the government surveillance apparatus. And I was trying to convince my brother of this, and of the fascism of it all. I was trying to use my questions method, but he just kept completely avoiding and deflecting. I started just screaming at him.
The setting was a series of connected shops right on the Canadian border, so I was jumping back and forth by crossing from the diner to the gift shop while other things were going on.
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I've been thinking lately about the difference between ego and the simple need for connection.
Some of what I thought was the former (an attachment, illusion, fragile, source of bad behavior, needs to die) may actually be the latter (also an attachment, but more healthy if properly handled).
Much of how we view the self is a reflection of a reflection of what others think of us. It's unhealthy to rely on others as a source of ego fulfillment. But genuine human connection is bound up in that tangle. How much of my pain is wounded ego, and how much is just a normal reaction to continual rejection and the absence of connection?
[Funny how my instance was down for a couple of hours when I first tried to send this!]
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In deep detox.
Mild depression is a thing I haven't had the luxury of dealing with in many years (possibly 15), though at one time in my life, I was functionally depressed every few weeks. I've been mildly depressed since late last week. Hard to believe how long it's been since I've experienced this, and yes, it's a major sign of growth.
Now trying to remember how to function outside of emergency mode. I can do stuff if I have to, but I don't have to. Sure, we need water. Sure, I'd planned to go into town today and get water. But there's backup water in storage. Don't really feel like pushing myself — there's no immediate reason.
I created this situation on purpose, now I'm trying to feel glad I've arrived at what I worked so hard for, but also struggling to figure out how to "be" when not absolutely pumped up on cortisol and adrenaline fueled by existential threats. But if I can just be when I'm suffering at a 9 on the 3rd Tier pain scale, then I can just be when I'm sorta meh, too.
Will I feel better if I pull it together and go into town today? Probably. That's how I used to cope with functional depression. But also maybe I don't care to feel better.
I want to take a sick day but I'm not exactly sick. I've had enough rest. Pain levels are minimal, tiredness is minimal. It's not brain fog — I know how to push through that. It's more like I just don't care to think.
I didn't accept 9-T3level pain as an excuse before, until I did and learned to rest.
So maybe I don't need any excuses at all.
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Had a really bad flare up yesterday that is overflowing into today. After several really good weeks.
I don't know what triggered it.
I can't believe I used to feel like this, or worse, every day.
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It feels really good to be able to work hard.
#MECFS #Journal #Recovery2026 #YardTales #rewilding #solarpunk
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Damn it I was gonna take before and after pictures but forgot.
Anyway, a majority of the area is covered now. Ran out of cardboard and there's some stuff I can't move myself.
#MECFS #Journal #Recovery2026 #YardTales #rewilding #solarpunk
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Today I'm planning to work outside. There's so much to do out there, but I need to remember not to overextend, even if I'm having fun.
I've picked a tiny spot of land to rewild. For today I'd like to clear the junk and lay down cardboard to "solarize" the grass and burdock there, basically a month without light will kill the roots. (idk why they call it that.)
I'll be trying to figure out what to plant in the meantime, and also how to keep the deer away.
🧵
#MECFS #Journal #Recovery2026
#YardTales #rewilding #solarpunk -
My energy levels have been doing really well!!
I had so much energy this week that by yesterday, I had to keep reminding myself that it was Thursday not Wednesday, but then it turned out to be Friday.
That's because I only started getting tired yesterday, when normally on a good week I'm very very tired by Wednesday.
So I've gone from still being tired in Monday when the week starts, to having it last through the week.
I'm still having to pace, but the pace is faster. I did take a slow day / partial rest day oneu realized it was Friday, because I was tired. I'd just gotten my period and cramping, so took it easy.
🧵
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Things are better for me than they have been in years.
But I'm having anxiety today.
It just feels so fragile.
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I recently learned that you can relax your vagus nerve by massaging your ears. (This sounds like a setup for a joke, but this time, it is NOT.) It seems to work.
I stopped stimming my ears as a small child, when my mom would freak out that I had an ear infection. There are a lot of behaviors I repressed because my mom thought it meant I was sick, and she'd give me prune juice or put something up my nose.
My body knew what to do.
My mom isn't quite Munchausen or by proxy, but she leans in that general direction. She has always been sick with something and always thought I was sick, and unless I wanted to get out of work, I did whatever it took to hide whatever she thought made me sick. Lately I've been learning that some of tho behaviors were beneficial.
And upon individuating, my reaction to that upbringing was to swing the opposite way, to suppress and deny when I was tired or sick. I hardly ever took sick days (not that work would have let me anyway), and just powered through until I got permanently sick, and still powered through. Even my burnouts had burnouts.
Weird that I ended up with my mom, caretaking her endless illnesses while she ignored my pleas – "I am sick, mom! I need to pace! You need to prioritize my energy! The yard is clean enough! Stop calling me for useless things after 9pm!" and that's when I *really* well and truly broke beyond repair.
#Journal #DarkSojourn #Recovery2026 #IGuessImProcessingInteadOfLookingForWorkLol
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I know I've whined about this on here before, but ... I was on track to be somebody. I was a small-time somebody there for a minute. I was on panels at cons, being invited to other cons, speaking in front of crowds, invited to podcasts, invited to write for anthologies, people in certain small niches fanned over me and wanted my autograph, I was meeting the movers and shakers.
But then I left my abuser and got sick. I continued to do all that and keep on climbing while sick. Until I couldn't anymore. (I think of what I was able to do during those years to maintain and even increase momentum, and it astonishes me. I am still so angry at my mom, who was the final nail in my coffin.)
It's been a few years since I could, and they say publish or perish. I hath perished and have been forgotten at best, and made many poor impressions at worst.
This isn't it quite the same scene, but it tells me that maybe I can still be impressive. Maybe my laurels can just be dusted off and rehung the moment I am ready.
I still run out of energy so quickly. I do still worry about not being able to fulfill expectations. And I'm currently unemployed, which isn't much of an ego boost. It seems like such a waste of all the skills and reputation I fostered over years of struggle. I am *very* confident in my skills when I can show up. I just can't show up without my functionality quickly draining.
But maybe if I pace myself well, maybe my health can continue to improve, and maybe I can hit the scene again, not running, but at least walking.
I doubt if I'll ever be able to travel again, though. 😔
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Not being able to maintain a reading habit for a decade has been a huge blow to my sense of self. I made terms with it, but not satisfying terms. I still kept pushing and trying. Sometimes I'd finish a book but only through struggle, something I had to try, unsuccessfully, through intermittent brain fog or lack of desire.
All this week when watching YouTube, I've had this nagging sense I'd rather be doing something else, and it would take me hours to realize it was READING. I'd rather be reading.
It feels like a healing moment.
I'm still going to keep my expectations low. I'm sure I'll struggle again. But I've proven it's possible. This is my old self.
I'm back.
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I've seen several playthroughs of Disco Elysium (one was over eighty hours), played it partway through twice myself, and seen several video essays about it (including one by Jeffiot that was *five* hours).
Since I usually don't like to repeat content, I wondered why I was so obsessed with it.
From a video essay, this quote answered that and hit me hard at the same time.
"Disco Elysium isn't really about getting better. The more I played, the more I realized it wasn't teaching me how to fix myself. It was teaching me how to move while I was still broken." Jazz Stewart, YouTube
(If you've not experienced a run or partial run of this game, this video will not be the best introduction. I'm just including it as the quote source. If you're interested, it's best to play it or watch a playthrough, preferably raw without knowing too much about it.)
(But also it's a fine video to watch if you're already a fan.)
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LRT, "All I did today" was organize a very small stack of files and floundered against my taxes.
My new productivity scale counts that as extremely productive. Even if I don't.
(I did it mostly without pain flaring up, and that's the goal.)
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I'm resetting after a weekend of basically not worrying about much of anything.
So last month, I had that hip injury, and on top of that I had a cold. While I'd gotten through most of my years-long backlog of high-priority emergencies, I still had plans to continue pacing myself through the remaining list items in order of priority/distastefulness. But my hip was so bad that I basically just spent January focusing on recovery, the barest essential daily tasks, pain management, and my two hours of billed work per day.
It forced me to rest-rest. Like, super rest. Not very relaxing, given the pain I was in, my mobility issues and the fear that caused me, and all the trips to the chiropractor. Not restful rest. But in terms of forcing a total reset on my brain, that did it.
Through that, I finished up my work project of three years. Last Thursday.
I still had a couple of hours of loose ends to finish up, mainly just emailing the client and getting all her files in the right format and uploaded, final invoicing.
But Friday? Instead of doing that, I just crashed out. I overslept, and overslept some more. Friday wasn't even fun, because I had that feeling of having sat still for way too long. But I had zero motivation to do anything whatsoever about it.
Saturday, same thing. Only by then, I'd gotten a new game that was sufficiently giving me dopamine. Like, way too much, so then I had insomnia 😂 I've also been watching nonstop spooky YouTube since the injury started. Unsolved mysteries, nostalgia, found footage, lost media, internet history, weird Wikipedia, Reddit drama, reviews of unethical 2000's era reality shows, ghost stories, weird weather incidents. Whatever is creepy without being triggering. So it's kind of a mood.
Yesterday, I scraped together the final work stuff in one hour, then went back to doing nothing. Because except for a few expected loose ends for my client, I'm technically unemployed now.
(And my tooth chipped all by itself in the middle of the night? So that's weird.)
There were several points during the month at which a grocery run seemed incredibly urgent... but then my sister brought some fruit and bread from the food bank. There was enough frozens in the freezer to get me by a little longer (because being a food packrat needs to pay off from time to time). Then my sister brought some of my old food from my mom's house. And I'm just skating by. Consider the lilies of the field, and all that.
This weekend was the first time since I can remember (13+ years) since I have felt zero sense of urgency, zero sense of responsibility, zero sense that even though I was resting, I still needed to be ready to pull myself together at any moment. Even when I was sick in my bedroom all those years, there were still things needing doing that took everything I had to push myself into.
This is first time I've felt a sense of "That's uncomfortably too much rest actually, but I think I'll just rest some more." Actual boredom and being fully rested. Since at least... 2013? Or earlier?
And also, no pain. All weekend. Except for my hip mildly aching when I slept.
Even with all the pol drama going on, I simply did not care. I didn't even feel like cracking jokes. I dipped in here from time to time to get quick updates on the state of the world, but it was mostly rather uninteresting.
It feels like a total reset. I have a vague sense of boredom, of sluggish thoughts, and no real need to pull myself together, other than a distant feeling that I really do have things coming due soon, and I really should be looking for work.
But .... there's time.
It's the weirdest thing. As I slowly roll back into activity, I have no feeling of fatigue or tiredness, other than having overslept.
I have no idea what my fatigue levels are should I try to pick up pace again. But no sense that I need to be on nearly the pace I was.
Unless I want to be.
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CW: Back injury update, long post
This whole thing is still ongoing but I think I can safely say I'm out of the woods. It took several trips to the chiropractor,. My hip was seriously jacked.
Thinking back, two weeks before the injury, I *did* move two bags of 80lbs concrete by myself, and tried to move a third. When I am not used to lifting. This injury began with a large number of compound moments and I regret every single one of them, but the one that did it was probably this. And in fact, after moving that concrete, I probably installed a time bomb that was going to go off no matter what.
I think my days of powering through whatever it takes using raw gumption and leverage need to be far behind me. I have been forced to learn to ask for help, and it's best if I do that while I can still walk rather than after.
On top of the injury, I caught a cold on my second trip to the chiro. The first cold I've had in years. I admittedly didn't mask, because the first time I went, hardly anyone was there, and because my social anxiety on top of severe pain and difficulty walking, I just needed one less stressor. Lesson learned, because this whole ordeal has been managing multiple health problems that are fighting one another. (Coughing with a spasming hip is NOT recommended!)
I still have to be careful with the hip but I can walk sometimes without the stick and I have gotten back most of my range of motion. Getting up in the night to the bathroom is relatively easy once again.
I haven't spasmed since my second-to-last chiro appointment. The cold is showing signs of clearing. I still struggle to get things off the floor, but can do just about everything else.
It has been a terrible ordeal. Thought I was gonna die, wanted to die, fever dream, etc. If I hadn't had help with basic functionality, I could easily have died in a heap on the floor. Especially living off grid in a tiny space, recovery would have taken much longer without some help. And I would not have recovered without the chiropractor. My bones were not going back into the right place by themselves. I should have gone in the first week.
Emotionally, I have learned some lessons, so it hasn't been a complete waste.
That said, I sure am tired of being sick for this reason or that. Fully ready to break free of the Dark Sojourn and live again.
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CW: More about injury recovery, journaling
Overall, I'm sitting back and asking the question: Why am I *still* in pain!? There's always a different reason, and I work hard to do the right things to overcome one form of pain, only to have something else flare up, or in this case, some whole entire new thing. (I haven't had serious lower back issues for many, many years, and never a serious hip issue.)
So for most of last year it was cycles myalgia and fatigue from MECFS, plus emotional pain and IBS. I worked really hard to finish things up and pace while getting my life stable.
More recently, three weeks ago, right after I felt I was coming out of the fatigue-woods and finally prepped enough for winter, it was severe IBS. Right after the IBS lifted, last week, the hip and back go out.
It's like at most I get 2-3 days of break from pain (if that) before there's something new.
The complete novelty of this new source of pain reallllllly has me thinking of this as a Pattern. As if my body is clinging to any source of pain it can find. So I've got that burning in the back of my mind. What am I getting out of this? How is pain protecting me? And how can I get that some other way?
Because what I really want now is FREEDOM. It's what I've been working towards for so long. The ability to just go outside, or go to the store, or clean up in here, or do whatever I want without having to make a elaborate huge plan. It's always infringed by anxiety or brain fog, or, as those things heal, by unrelenting physical pain from a wide variety of sources. Pain that fills my days with maintenance routines.
My therapist pointed out another factor:
As the trauma becomes more distant, my physical body is going to respond. Muscles are shifting into new positions. That's maybe a sign of emotional healing?But the *result* is more of the same constant companion of pain that has been with me for more than a decade.
#Recovery2026 #journal #Journaling
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CW: More about injury recovery
For several days, my hip has been swinging between on the mend to spazzing again. I'm fairly certain it's between my mattress and the ergonomics of living in an RV.
I do wish I had that really good mattress I left at my mom's. But there's no way it would fit in here even if I could move it. It's simply too tall. It might be worth getting a new mattress, but even if it would "fit," testing it to make sure it's good is a whole thing, and wrangling it into place is another whole thing. Then there's how money is tight. So I'm tabling that option.
I had to cut back on the NSAIDs. They're amazing for telling my muscles to stop contracting and reinjuring, but my kidney was complaining. (I was taking prescription dosages of OTC ibuprofen.)
I've also, as of this moment, moved my workspace. So for the last decade, I've operated largely from bed. I work from bed, recreate from bed, and sleep in bed. But it's a step up and a couple of twists to get in and out of it.
I'm emotionally ready to try moving my workspace to the "kitchen table," so that's where I am now. This situation is not without its problems, but I hope that by switching my position more frequently, I can stay in the "on the mend" zone long enough to mend.
I've also been trying stretches, but since I've never had hip problems like this, I don't even know any stretches, and now is very not the time to be experimenting with new ones. Some of the ones I'm trying do help, and some don't, and it's really hard to tell the difference, because they all *feel great* while I'm doing them. Just not after.
I also know that more movement, but good movement at the right time, is helpful. I've been wanting to go for a walk every day, but the weather is unkind, and also, uhm, like putting on boots is not a simple thing under these circumstances. Slippers won't cut it in this snow.
#Recovery2026 #journal #journaling
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