#neurospicyrage — Public Fediverse posts

Hey folks :ADHD_Butterfly:

Our titration on guanfacine prolonged-release (Intuniv) tablets is going broadly well. We have been, and still are, experiencing side effects, but nothing typically that we didn't expect.

We completed our first full week on the guanfacine last week, taking 2 mg nightly, and started taking 3 mg nightly on Monday this week.

We're taking the guanfacine alongside lisdex (Elvanse), which we're presently still taking as a split dose (2 x 30 mg capsules daily; each capsule taken ~2-3 hours apart).

The positive effects for us so far have been:

• Lowered anxiety.
• Lowered RSD.
• Slightly lowered threshold for initiating a task we don't want to do.
• Slightly better sleep hygiene (due to slight drowsiness).
• Lowered heart rate and blood pressure.

The certain side effects so far have been:

• Increase in wind (flatulence).
• Change in toilet schedule.
• Drowsiness (especially upon waking).

Something we're monitoring to determine whether it's an effect of the meds, perhaps directly or indirectly, is that we've experienced a few instances of intense, explosive (but very directed) rage :PleadingFace:

These appear so far to be linked to trauma and/or neurospicy triggers we have, rather than just anything, but we're not sure yet.

e.g.,

• Accessibility issues with the NHS and DWP.
• The mind-boggling complexity of mattress hunting, due to:
  • Dodgy mattress companies.
  • Fake (or paid for) review websites.
  • AI chatbots answering email queries!!!
  • Legit companies only selling products in stores, and providing e-tailers with bespoke mattress types which therefore cannot be directly compared without spending hours making a detailed spreadsheet, cracking the jargon code, and finding section diagrams.
• Smart devices randomly playing music, despite no-one using their wake word and no-one saying anything like that.
• Cold-callers not being able to read the "no cold callers" sign.

It's not clear whether the outbursts are:

• a side effect of the guanfacine.
• an indirect effect of the guanfacine.
• unrelated to the guanfacine.

We objectively have a lot of stressors in our life, and part of how our mind has dealt with them has been to not focus on them.

Counterintuitively, it's likely that being able to function more has meant we've had to start addressing more issues, which has increased stress in other ways.

It's overall still a massive improvement, and we do feel calmer overall, plus we'd have had to deal with all the same issues anyway eventually. It's probably largely just a matter of managing overwhelm as best as we can.

Plus we're still waiting on the NHS to offer us mental health support, which might -- in the long term at least -- help with some of the triggers... maybe 🥺

#ADHD #AuDHD #neurospicy #neurodivergent #guanfacine #lisdexamfetamine #ExecutiveDysfunction #anxiety #RSD #NeurospicyRage #NeurodivergentRage

Hey folks :ADHD_Butterfly:

Our titration on guanfacine prolonged-release (Intuniv) tablets is going broadly well. We have been, and still are, experiencing side effects, but nothing typically that we didn't expect.

We completed our first full week on the guanfacine last week, taking 2 mg nightly, and started taking 3 mg nightly on Monday this week.

We're taking the guanfacine alongside lisdex (Elvanse), which we're presently still taking as a split dose (2 x 30 mg capsules daily; each capsule taken ~2-3 hours apart).

The positive effects for us so far have been:

• Lowered anxiety.
• Lowered RSD.
• Slightly lowered threshold for initiating a task we don't want to do.
• Slightly better sleep hygiene (due to slight drowsiness).
• Lowered heart rate and blood pressure.

The certain side effects so far have been:

• Increase in wind (flatulence).
• Change in toilet schedule.
• Drowsiness (especially upon waking).

Something we're monitoring to determine whether it's an effect of the meds, perhaps directly or indirectly, is that we've experienced a few instances of intense, explosive (but very directed) rage :PleadingFace:

These appear so far to be linked to trauma and/or neurospicy triggers we have, rather than just anything, but we're not sure yet.

e.g.,

• Accessibility issues with the NHS and DWP.
• The mind-boggling complexity of mattress hunting, due to:
  • Dodgy mattress companies.
  • Fake (or paid for) review websites.
  • AI chatbots answering email queries!!!
  • Legit companies only selling products in stores, and providing e-tailers with bespoke mattress types which therefore cannot be directly compared without spending hours making a detailed spreadsheet, cracking the jargon code, and finding section diagrams.
• Smart devices randomly playing music, despite no-one using their wake word and no-one saying anything like that.
• Cold-callers not being able to read the "no cold callers" sign.

It's not clear whether the outbursts are:

• a side effect of the guanfacine.
• an indirect effect of the guanfacine.
• unrelated to the guanfacine.

We objectively have a lot of stressors in our life, and part of how our mind has dealt with them has been to not focus on them.

Counterintuitively, it's likely that being able to function more has meant we've had to start addressing more issues, which has increased stress in other ways.

It's overall still a massive improvement, and we do feel calmer overall, plus we'd have had to deal with all the same issues anyway eventually. It's probably largely just a matter of managing overwhelm as best as we can.

Plus we're still waiting on the NHS to offer us mental health support, which might -- in the long term at least -- help with some of the triggers... maybe 🥺

#ADHD #AuDHD #neurospicy #neurodivergent #guanfacine #lisdexamfetamine #ExecutiveDysfunction #anxiety #RSD #NeurospicyRage #NeurodivergentRage

Hey folks :ADHD_Butterfly:

Our titration on guanfacine prolonged-release (Intuniv) tablets is going broadly well. We have been, and still are, experiencing side effects, but nothing typically that we didn't expect.

We completed our first full week on the guanfacine last week, taking 2 mg nightly, and started taking 3 mg nightly on Monday this week.

We're taking the guanfacine alongside lisdex (Elvanse), which we're presently still taking as a split dose (2 x 30 mg capsules daily; each capsule taken ~2-3 hours apart).

The positive effects for us so far have been:

• Lowered anxiety.
• Lowered RSD.
• Slightly lowered threshold for initiating a task we don't want to do.
• Slightly better sleep hygiene (due to slight drowsiness).
• Lowered heart rate and blood pressure.

The certain side effects so far have been:

• Increase in wind (flatulence).
• Change in toilet schedule.
• Drowsiness (especially upon waking).

Something we're monitoring to determine whether it's an effect of the meds, perhaps directly or indirectly, is that we've experienced a few instances of intense, explosive (but very directed) rage :PleadingFace:

These appear so far to be linked to trauma and/or neurospicy triggers we have, rather than just anything, but we're not sure yet.

e.g.,

• Accessibility issues with the NHS and DWP.
• The mind-boggling complexity of mattress hunting, due to:
  • Dodgy mattress companies.
  • Fake (or paid for) review websites.
  • AI chatbots answering email queries!!!
  • Legit companies only selling products in stores, and providing e-tailers with bespoke mattress types which therefore cannot be directly compared without spending hours making a detailed spreadsheet, cracking the jargon code, and finding section diagrams.
• Smart devices randomly playing music, despite no-one using their wake word and no-one saying anything like that.
• Cold-callers not being able to read the "no cold callers" sign.

It's not clear whether the outbursts are:

• a side effect of the guanfacine.
• an indirect effect of the guanfacine.
• unrelated to the guanfacine.

We objectively have a lot of stressors in our life, and part of how our mind has dealt with them has been to not focus on them.

Counterintuitively, it's likely that being able to function more has meant we've had to start addressing more issues, which has increased stress in other ways.

It's overall still a massive improvement, and we do feel calmer overall, plus we'd have had to deal with all the same issues anyway eventually. It's probably largely just a matter of managing overwhelm as best as we can.

Plus we're still waiting on the NHS to offer us mental health support, which might -- in the long term at least -- help with some of the triggers... maybe 🥺

#ADHD #AuDHD #neurospicy #neurodivergent #guanfacine #lisdexamfetamine #ExecutiveDysfunction #anxiety #RSD #NeurospicyRage #NeurodivergentRage

Hey folks :ADHD_Butterfly:

Our titration on guanfacine prolonged-release (Intuniv) tablets is going broadly well. We have been, and still are, experiencing side effects, but nothing typically that we didn't expect.

We completed our first full week on the guanfacine last week, taking 2 mg nightly, and started taking 3 mg nightly on Monday this week.

We're taking the guanfacine alongside lisdex (Elvanse), which we're presently still taking as a split dose (2 x 30 mg capsules daily; each capsule taken ~2-3 hours apart).

The positive effects for us so far have been:

• Lowered anxiety.
• Lowered RSD.
• Slightly lowered threshold for initiating a task we don't want to do.
• Slightly better sleep hygiene (due to slight drowsiness).
• Lowered heart rate and blood pressure.

The certain side effects so far have been:

• Increase in wind (flatulence).
• Change in toilet schedule.
• Drowsiness (especially upon waking).

Something we're monitoring to determine whether it's an effect of the meds, perhaps directly or indirectly, is that we've experienced a few instances of intense, explosive (but very directed) rage :PleadingFace:

These appear so far to be linked to trauma and/or neurospicy triggers we have, rather than just anything, but we're not sure yet.

e.g.,

• Accessibility issues with the NHS and DWP.
• The mind-boggling complexity of mattress hunting, due to:
  • Dodgy mattress companies.
  • Fake (or paid for) review websites.
  • AI chatbots answering email queries!!!
  • Legit companies only selling products in stores, and providing e-tailers with bespoke mattress types which therefore cannot be directly compared without spending hours making a detailed spreadsheet, cracking the jargon code, and finding section diagrams.
• Smart devices randomly playing music, despite no-one using their wake word and no-one saying anything like that.
• Cold-callers not being able to read the "no cold callers" sign.

It's not clear whether the outbursts are:

• a side effect of the guanfacine.
• an indirect effect of the guanfacine.
• unrelated to the guanfacine.

We objectively have a lot of stressors in our life, and part of how our mind has dealt with them has been to not focus on them.

Counterintuitively, it's likely that being able to function more has meant we've had to start addressing more issues, which has increased stress in other ways.

It's overall still a massive improvement, and we do feel calmer overall, plus we'd have had to deal with all the same issues anyway eventually. It's probably largely just a matter of managing overwhelm as best as we can.

Plus we're still waiting on the NHS to offer us mental health support, which might -- in the long term at least -- help with some of the triggers... maybe 🥺

#ADHD #AuDHD #neurospicy #neurodivergent #guanfacine #lisdexamfetamine #ExecutiveDysfunction #anxiety #RSD #NeurospicyRage #NeurodivergentRage