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#mepedia — Public Fediverse posts

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  1. @ContraindiKate @ahimsa_pdx AfME’s involvement, as ongoing supporters of the BPS-brigade is the main point of evidence. Read for e.g. these criticisms, as well as those listed on #mepedia carersfight.blogspot.com/2010/. At one point, it is true, AfME apologised for their involvement - but they unpublished the apology. I take that to mean they have withdrawn their apology in a volte face.

  2. @ContraindiKate @ahimsa_pdx AfME’s involvement, as ongoing supporters of the BPS-brigade is the main point of evidence. Read for e.g. these criticisms, as well as those listed on #mepedia carersfight.blogspot.com/2010/. At one point, it is true, AfME apologised for their involvement - but they unpublished the apology. I take that to mean they have withdrawn their apology in a volte face.

  3. @dom_mecfs I have been a #pwME for 25+ years, #SevereME for 10+. From at least 1998 I have suffered swollen & painful lymph-glands, specifically throat, armpits & R inner-thigh/groin. Whilst there is not a specific entry for “swollen glands” on #MEpedia, there are many articles in which it is mentioned. See for e.g. me-pedia.org/wiki/Flu-like_sym which has links to papers.

  4. @dom_mecfs I have been a #pwME for 25+ years, #SevereME for 10+. From at least 1998 I have suffered swollen & painful lymph-glands, specifically throat, armpits & R inner-thigh/groin. Whilst there is not a specific entry for “swollen glands” on #MEpedia, there are many articles in which it is mentioned. See for e.g. me-pedia.org/wiki/Flu-like_sym which has links to papers.

  5. Trying to find out more about #HUA or #HoursOfUprightActivity. There was nothing as far as I could see on #MEpedia and the #MEAssociation search was not refined enough. Most of the references I came across refer to #BatemanHorneCenter in USA. Below are three images of the aforementioned’s slides shared on #MEAction .net
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #pwME